RE: MRI results- help please - Kellie

[Guest guest]

Kellie -- what type of tether do you have?

Dee

To: tetheredspinalcord

From: redgecko97@...

Date: Sun, 13 Mar 2011 08:57:57 -0700

Subject: RE: MRI results- help please - neuropathic pain

I'm a bit in shock right now after reading this. I really don't know what to

say.

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>> It's just so hard to do. The pain meds work on the back pain, but I have

>> other things that have developed.That is what is really bothering me.

>> I can't even touch my legs without feeling like I am touching a bruise, my

>> butt feels the same way, very hard to sit.

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[Guest guest]

Hi Dee,

 

I believe it's tight filum terminale. I'm going to my Neurosurgeon tomorrow to

find out specifics and set the surgery date.

 

Kellie

 

>

>>

>>

>> It's just so hard to do. The pain meds work on the back pain, but I have

>> other things that have developed.That is what is really bothering me.

>> I can't even touch my legs without feeling like I am touching a bruise, my

>> butt feels the same way, very hard to sit.

>>

>>

>>

>

>

>

[Guest guest]

Dear Kellie

I had tight filum tethering - and surgery in 2001 was the best thing I ever

did. It gave me my life back and 10 years on I haven't regretted the

decision at all

if you want to write to me privately please do. I have also written a

website about my experiences, which might help you. It's at

www.btinternet.com/~tetheredcordresources

Regards

Nina

Bristol, UK

--

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> Hi Dee,

>  

> I believe it's tight filum terminale. I'm going to my Neurosurgeon

> tomorrow to find out specifics and set the surgery date.

>  

> Kellie

>  

>

>>

>>>

>>>

>>> It's just so hard to do. The pain meds work on the back pain, but I have

>>> other things that have developed.That is what is really bothering me.

>>> I can't even touch my legs without feeling like I am touching a bruise,

>>> my butt feels the same way, very hard to sit.

>>>

>>>

>>>

>>

>>

>>