Re:

[Guest guest]

Yes, I meant e, Sammy's mom. I knew her name started with a K. At least, I think I mean e (Kistine). Sorry, Kay. D.

To: bronchiectasis From: ericnkayn@...Date: Tue, 12 Apr 2011 17:43:42 +0000Subject: Re:

Kay--I, too, will be in Rochester in early May--arriving on the 4th until ?. This time the visit is for my fella. And we have not booked a return because we want to do some exploring in Minnesota. It's a lovely state. Is there a chance we can meet up? D.

Think you must be talking about another member!

Kay

[Guest guest]

Hello !Yes Sammy and I will be @ Mayo Clinic on the 9 & 10th of May! We areplanning to leave Orlando on that Saturday and hang out for a couple ofdays @ my sisters' house. Sammy's birthday is May 9th, so we will spendthe rest of that weekend celebrating Mother's Day and his B-Day.My in-laws are in that area as well, so Sammy will get to see almostall of his family, except my husband will not be joining us. Sammy is sad about that :-( Sam has an apt on May 10th, most of the day, Ibelieve it'll be, anyway, as usual. So yes! I'd love to meet you!We are leaving northern IL. on Monday the 9th, then arriving intoRochester mid-afternoon Monday. I may just fly into Rochester,or maybe rent a car and do the 4-5 hour drive, haven't

reallydecided yet. When is your 'fella's' appt? KrisSubject: RE: To: "bronchiectasis support group" <bronchiectasis >Date: Tuesday, April 12, 2011, 6:23 PM

Yes, I meant e, Sammy's mom. I knew her name started with a K. At least, I think I mean e (Kistine). Sorry, Kay. D.

To: bronchiectasis From: ericnkayn@...Date: Tue, 12 Apr 2011 17:43:42 +0000Subject: Re:

Kay--I, too, will be in Rochester in early May--arriving on the 4th until ?. This time the visit is for my fella. And we have not booked a return because we want to do some exploring in Minnesota. It's a lovely state. Is there a chance we can meet up? D.

Think you must be talking about another member!

Kay

[Guest guest]

hi:-)

thanks leslie, barbara and Helene for the kind words.

@ HELENA

ur soo sweet to defend ur muslim friend. And yea, it's not just me, i have

toooooooons of freinds and even family members who have suffered racials

attacks, verbal slurs etc. etc., not just from random people at public places,

but also store employes, airport security, company employyes etc. etc..I have

freinds who can't get a job becoz of their head scarf, and at job interviews a

couple have even been told on their face that their religion was a problem and

their dress style(modesty) was hence. Also my own sister has gone through much

trouble at airports, coz apparently a hijaabi muslim woman travellign with 3

kids looks very suspeicous too:-).... I have freinds who have gone trhough much

worst racisim than me. But we r used to it , to some extent, in the sense we

expect it.

U know for ur freind, well there is one thing that my therapist from Chicago,

Joaann used to tell me , and( i am refrasing it,as i can't recall the exact

words):

" every single human being has a god given right to be a jerk, and some people

just practise it to the fullest!! " ....

and this has stuck in my head ever since and don't believe i will ever forget

it.

Last year when i was in therapy at joanns a lotta times i would just get stuck

with this question, Y? Y do they do this to me? y do they behave like this with

me? y am i so hated?...and when she told me this, it made sense. In the sense, i

can dwell on the " whys " all my life, but by getting the precise answer, what

will that do for me? it won't change the fact that that will stil happen. I

needed to accept it and move on and knowing that " that guy, just like me or

anyone else , DOES infact have the right to be a jerk, even though i don't, but

he is choosing to simply practise it to the FULLEST:-)...that almost brought

some humor into a topic which cozed an anxiety attack in me everytime i would

mention my racial expereinces. It also helped me take this lightly. So if this

phrase helps ur muslim friend too, by all means share it with her too, i don't

believe Joann has yet put a TM on it;)...jk...

Also while it is always mentioned that Islam is the most hated religion in the

world, I like to believe that it is the most MISUNDERSTOOD religion in the

world, hence " perhaps " hated.

and the reason i say that is coz , (as randy mentioned it once to my post

somehwere else too), what we don't know , we fear.

The reason i say this is coz , like i mentioned earlier, when i joined

Toastmasters international, one of clubs in perticular had all middle aged

regular white folks, and they happened to be jews too. In the begining i would

feel a bit unconfortable becoz the person i picked to be my mentor, the first

day she introduced herself to me , she said " I go to Israel to do give

motivational speeches to the israeli army " . And at that time i felt intimidated,

but just told her i was as delighted to meet her she was to meet me. BTW she is

a wonderful lady.

Then there was this other INCREDIBLE public speaker, and once in his impromptu

speech he was talking about " airport security " and said " we all know who the

real terrorists r, it's not the white jews from ny like me, it's not the so and

so, so basically it just narrowd down to muslims, and i came home that evenig

and remember telling my hubby and he was like " sarah leave the group, r u

kidding me , this will worsten ur anxiety. u r intentionally putting urself in

situations that caused u this anxiety to begin with " i told him just let me

stick aroound a littl e bit more, i think it is coz they don't know me , hence

the hatred (or more like dislike) , not for me ofcourse, but for my " type " . So i

stuck around, and was always myself, which is i tend to smile a little too much

for no apparent reason. i am also a bit shy, but that perhaps comes from my

religious practise of modesty around opp. gender. When i gave my speeches i

spoke about what my life revolved around mostly which was my religion, islam,

but i also spoke about how growing up all my life in a catholic convent, around

nuns, then being raised in a hindu country etc, all impacted my personality and

made me who i am today. When i would do imprompu, coincidentally in some way or

the other , my culture, my food, my relion would come up, and then i would

notice others coming up and in their impromptu speeches sharing their own

religious precatises, their meals on their religious holiday, so to me it was

facinating to learn about them and their religion and culture. They would in

term love to hear me everytime i spoke. My other TM mentor fromt he other group

told me meeting and getting to know me has completely changed his perspective

about muslims.

That jewish man from ny, the incredible speaker, he was such a strong

personality , he would put down anyone and everyone, that was his way of

coaching, EXCEPT me. once he even said , sarah is the only person i have not

fought with VEN THOUGH she is a muslim and i am a jew. Then later on he would

always sit beside me, and i thought it was a co-incidence. Then right b4 i left

for chicago, i had a tm meeting, and there he gave a speech and in that speech

he mentioned me. He said my smile made his day. and he would always sit next to

me on purpose, and (somemore things i can't recall right now) And that if only

one could put all the jews and all the muslims together, lock em up in one room

and leave em locked up until they resolve their issues. So basically this is

coming from the mouth of a man who did not necessarily like my type initically.

Then my mentor,who gives motivational speeches in isreal, she once came to me

and held me and said, " sarah i don't say this to people, but i really love u "

and i feel ur pain, coz i myself have been a victim of anti-semetic slurs, which

i can believe. Plus being a religious jew, i was told by another jew that they

can't allow anyone to performs their prayers in their house. and we hadta move

the meetign to ehr house so some time, so i needed permission to pray one of my

prayers coz it fell at the time when the tm meetings would run. Aand she did let

me, outside her house in the backyard, but nonetheles she did. infact after that

they would make sure the break always coincided with my prayer time so i could

leave and pray:-)

omgoodness helena, i write excatly the way i talk, i need some writing classes i

tell ya;)...but i made some good freinds out of the TM, people whom initially i

could have never imaged in my wildest dreams i could befreind, also they had

never been or gotten to know a muslim so closly. I hope to remain freind with

them , and be able to socialse with emoutside of TM now.

Hence i feel , there a a lotta misunderstanding , and the media (fox) definately

is not doing a good job in bridging any gaps, infact i believe it is a major

cause for this.

thanks so much helena for sharing ur struggle in that reply u sent me when i

first joined the group.

and u also did an excellent job in explaining beautifully one of the points i

was making in my other email, about somtimes over attending to our anxiety and

overly monitoring it. Yes that's true.

Also showing some compassion to ourselves towards all our exprenices. Some times

we r willing to expand/accept experecingin whatever comes our way, but we forget

the compassion part, if we forget that then often the acceptance is still

accompanied by judgements and evaluations. hence it is very imp. to accept WITH

COMPASSION.

Lastly sometimes we get so lost in the details about what excatly act wants us

to do (the steps)), that we don't realize that here again it is our anxiety that

is workin us and making us overwhlemed. at such times we just need to take a

step back and realize, ok wait a minute, somthing that is supposed to help me

relive my anxiety is apparently casuing me more anxiety, so what am i doing

wrong here,and then notice we r simply getting caught up in the nitty gritty

details of how ACT is suppsoed to wrok, and if we r using it in the right way,

THE BEST way. Even though it is a diff. way of thinking from how we r used to

coz of our years of dealing with anxiety/distress, ACT principles r still

common sense (i believe). it 's just sometimes we can't c it as just that coz we

r so wrapped up around our anxiety. Once u can learn HOW TO think differently,

then just start using this skill IN THE BEST WAY U CAN, without worrying too

much about " what the best way really is " or if it is " providing u the optimal

results " . all that dosen't really matter in the end.

All that matters is u have just been introduced to a new way of thinking and

living ur life, and just u choosing and willing to give this a shot is infact ur

victory, and pat urself on the shoulder for that:-)

wasalaam

[Guest guest]

I was given VFend when I left the hospital after my bout with Pseudonyms Pneumonia and it had a $2,000 deductible. I needed a 4 month supply which was out of site for me and I think most of us. My Pharmacist told me to call Pfizer, I did and received an 8 month supply free of charge as my income was low enough to qualify.

EILEEN

Subject: inhaled antibiotic, ColistinTo: bronchiectasis Date: Monday, September 26, 2011, 5:35 PM

Hi All,

Has anyone in this group used the inhaled antibiotic, Colistin? My infectious disease doctor prescribed this inhaled antibiotic for me to use 15 days each month after my most recent hospitalizat[The entire original message is not included]

[Guest guest]

I was given VFend when I left the hospital after my bout with Pseudonyms Pneumonia and it had a $2,000 deductible. I needed a 4 month supply which was out of site for me and I think most of us. My Pharmacist told me to call Pfizer, I did and received an 8 month supply free of charge as my income was low enough to qualify.

EILEEN

Subject: inhaled antibiotic, ColistinTo: bronchiectasis Date: Monday, September 26, 2011, 5:35 PM

Hi All,

Has anyone in this group used the inhaled antibiotic, Colistin? My infectious disease doctor prescribed this inhaled antibiotic for me to use 15 days each month after my most recent hospitalizat[The entire original message is not included]

[Guest guest]

http://clickshirt.gr/login.php?fypyru=831 & laravenyz=89