FW: OT [LymeInfo] [blog] Lyme Policy Wonk: Speak Up Now! The IDSA Is Revising Its Lyme Guidelines And Patient Viewpoints Matter

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[LymeInfo] [blog] Lyme Policy Wonk: Speak Up Now! The IDSA Is

Revising Its Lyme Guidelines And Patient Viewpoints Matter

Speak Up Now! The IDSA Is Revising Its Lyme Guidelines And Patient

Viewpoints Matter

Blog: Lyme Policy Wonk, published by the California Lyme Disease

Association, Inc.

Written by: Lorraine , JD, MBA and Chief Executive

OfficerLymeDisease.org (formerly CALDA).

October 3, 2011

http://www.lymedisease.org/news/lymepolicywonk/831.html

The treatment guidelines of Infectious Diseases Society of America (IDSA)

are more than 5 years old. That means they will be taken off the National

Guidelines Clearinghouse in January. It also means that the IDSA is now

revising those guidelines. According to the Institute of Medicine, guideline

developers must consider patient values and preferences to be considered

trustworthy. Our last survey found that 80% of patients would not choose to

be treated under the IDSA guidelines. So patient trust in IDSA Lyme

treatment guidelines a big issue. But when was the last time the IDSA asked

you what you valued or what you preferred in the treatment of Lyme disease?

The answer is: NEVER. It's time we do something about that. We are

conducting a survey to find out what you think is important about treatment

options, choices, risks and benefits. Our last survey drew over 4,000

responses. Let's do it again and remind the IDSA that patient values are

central to treatment guidelines!

Read the complete blog entry, complete the survey and join the conversation:

http://www.lymedisease.org/news/lymepolicywonk/831.html

You can follow additional posts on Lyme policy at

http://www.lymepolicywonk.org/ You can contact Lorraine , JD, MBA at

lbjohnson@...

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