Re: Re: HELP : nasal polyps?

[Guest guest]

Thanks Deborah,

did your son ever have nasal polyps?

the little bit I looked at has nasal polyps in children <10 as a "marker" for CF, in adults they seem to be able to explain it being from other sources.

What did you see in your son that made you think CF?

appreciate your insight.

Roseann

Re: HELP : nasal polyps?

my son and I bvoth have CVID, his IgG3 is very low and he has IgA def and my IgG1 is low. I have had nasal polyps before, my old clinical immunologist (which closed his practice and I have been looking for a new one, anyone know of a good one) used oral iodine I think on me and it went away, he did a scope up my nose, was a bit painful. I have always wondered about cystic fibrosis with my son but no one will entertain the idea...

deborah

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> > hi > > I just noticed polyp like structures inside my 9 yr old's nostrils, one much more pronounced on one side than the other, noticable when looking up her nose at the correct angle, i don't think it is normal anatomy. > > through the ol' Dr. Google I came up with nasal polyp. > > My daughter does have primary immune defieciency, a CVID, which can put her at risk for these but now I am remembering her birthmother saying something casually about her having Cystic Fibrosis, our adoption case worker and I dismissed it as she meant Cystic Breasts since she was kinda ditzy + so casual about it, but now it's got me thinking do I have something else to worry about.

> > anyone's kiddo have these polyps as part of their immune disorder? anyone have any experience with CF? > > thanks, > > Roseann

>

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[Guest guest]

It looks like they are fairly common in immuno-comprimised adults...i'm curious if it is so with our kiddos as well.

thanks everyone, it looked like there were some homeopathic remedies that indicated nasal polyps.

My interest is finding other kids that have them and not necessarily having cystic fibrosis (guess, I just want there to be an out from that dx)

Roseann

Re: HELP : nasal polyps?

I have nasal polyps. If I could afford it I would have them removed.

[Guest guest]

Ah yes, the continuing saga of inflammation! thanks!

Roseann

Re: HELP : nasal polyps?

> > > > > > > > I have nasal polyps. If I could afford it I would have them removed.

> >

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