Guest guest Posted October 21, 2011 Report Share Posted October 21, 2011 hi I just noticed polyp like structures inside my 9 yr old's nostrils, one much more pronounced on one side than the other, noticable when looking up her nose at the correct angle, i don't think it is normal anatomy. through the ol' Dr. Google I came up with nasal polyp. My daughter does have primary immune defieciency, a CVID, which can put her at risk for these but now I am remembering her birthmother saying something casually about her having Cystic Fibrosis, our adoption case worker and I dismissed it as she meant Cystic Breasts since she was kinda ditzy + so casual about it, but now it's got me thinking do I have something else to worry about. anyone's kiddo have these polyps as part of their immune disorder? anyone have any experience with CF? thanks, Roseann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2011 Report Share Posted October 21, 2011 my son and I bvoth have CVID, his IgG3 is very low and he has IgA def and my IgG1 is low. I have had nasal polyps before, my old clinical immunologist (which closed his practice and I have been looking for a new one, anyone know of a good one) used oral iodine I think on me and it went away, he did a scope up my nose, was a bit painful. I have always wondered about cystic fibrosis with my son but no one will entertain the idea... deborah > > > hi > > I just noticed polyp like structures inside my 9 yr old's nostrils, one much more pronounced on one side than the other, noticable when looking up her nose at the correct angle, i don't think it is normal anatomy. > > through the ol' Dr. Google I came up with nasal polyp. > > My daughter does have primary immune defieciency, a CVID, which can put her at risk for these but now I am remembering her birthmother saying something casually about her having Cystic Fibrosis, our adoption case worker and I dismissed it as she meant Cystic Breasts since she was kinda ditzy + so casual about it, but now it's got me thinking do I have something else to worry about. > > anyone's kiddo have these polyps as part of their immune disorder? anyone have any experience with CF? > > thanks, > > Roseann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2011 Report Share Posted October 22, 2011 I was just telling a family member of mine, how in the past when I would point out all the issues with my children, they offered no suggestions, just shrugged their shoulders. Everytime I wanted to see a specialist I had to ask. Anyhow, what I mean is I remember reading about cystic fibrosis having different levels and such. I would learn alot about it, and then request from your doc the kind of specialist you think you might need to explore further, like a geneticist or a specialist in another area, depending upon what you learn in your research. Don't depend on your local doc to know everything; be assertive. I remember reading about selenium deficiency during pregnancy being related to cystic fibrosis. I remember thinking, " how weird that lack of selenium in pregnancy is related to cystic fibrosis when you usually hear people say that it's strictly genetic. " Love and prayers, Heidi N my son and I bvoth have CVID, his IgG3 is very low and he has IgA def and my IgG1 is low. I have had nasal polyps before, my old clinical immunologist (which closed his practice and I have been looking for a new one, anyone know of a good one) used oral iodine I think on me and it went away, he did a scope up my nose, was a bit painful. I have always wondered about cystic fibrosis with my son but no one will entertain the idea... deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2011 Report Share Posted October 23, 2011 I have nasal polyps and one that gets quite large if I eat foods that I am allergic to. I only figured it out recently. Reg. docs just offer nasal sprays. > > > hi > > I just noticed polyp like structures inside my 9 yr old's nostrils, one much more pronounced on one side than the other, noticable when looking up her nose at the correct angle, i don't think it is normal anatomy. > > through the ol' Dr. Google I came up with nasal polyp. > > My daughter does have primary immune defieciency, a CVID, which can put her at risk for these but now I am remembering her birthmother saying something casually about her having Cystic Fibrosis, our adoption case worker and I dismissed it as she meant Cystic Breasts since she was kinda ditzy + so casual about it, but now it's got me thinking do I have something else to worry about. > > anyone's kiddo have these polyps as part of their immune disorder? anyone have any experience with CF? > > thanks, > > Roseann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2011 Report Share Posted October 24, 2011 I have nasal polyps. If I could afford it I would have them removed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2011 Report Share Posted October 25, 2011 I am asthmatic since 5 years old and was told nasal polyps are common with asthma. I also know people who have had them removed and they grow back unfortunately.. My theory is inflammation is causing them in myself anyway. > > > > It looks like they are fairly common in immuno-comprimised adults...i'm curious if it is so with our kiddos as well. > thanks everyone, it looked like there were some homeopathic remedies that indicated nasal polyps. > My interest is finding other kids that have them and not necessarily having cystic fibrosis (guess, I just want there to be an out from that dx) > > Roseann > Re: HELP : nasal polyps? > > > > > > > > I have nasal polyps. If I could afford it I would have them removed. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2011 Report Share Posted October 26, 2011 No experience with polyps, but we have found nasal and sinus issues to be parasites. I believe asmtha is as well. Obviously not the popular opinion, but one you might try out in your house. Caryn > > > > > > > > It looks like they are fairly common in immuno-comprimised adults...i'm curious if it is so with our kiddos as well. > > thanks everyone, it looked like there were some homeopathic remedies that indicated nasal polyps. > > My interest is finding other kids that have them and not necessarily having cystic fibrosis (guess, I just want there to be an out from that dx) > > > > Roseann > > Re: HELP : nasal polyps? > > > > > > > > > > > > > > > > I have nasal polyps. If I could afford it I would have them removed. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2011 Report Share Posted October 26, 2011 nasal polyps can be a sign of mold illness: http://www.sinusitiswellness.com/ we have discovered a connection between sinus disease and infection (unknown until CAT scan) and living in a mold contaminated house. Dr D here has an excellent protocol. You might have to read into his articles on fungal sinutitus and T Cell upregulation to get a idea of what this involves. The paper is a bit old and I think he has revised a bit here and there. Kids and I were all found to have issues and are being treated. Robin > > > hi > > I just noticed polyp like structures inside my 9 yr old's nostrils, one much more pronounced on one side than the other, noticable when looking up her nose at the correct angle, i don't think it is normal anatomy. > > through the ol' Dr. Google I came up with nasal polyp. > > My daughter does have primary immune defieciency, a CVID, which can put her at risk for these but now I am remembering her birthmother saying something casually about her having Cystic Fibrosis, our adoption case worker and I dismissed it as she meant Cystic Breasts since she was kinda ditzy + so casual about it, but now it's got me thinking do I have something else to worry about. > > anyone's kiddo have these polyps as part of their immune disorder? anyone have any experience with CF? > > thanks, > > Roseann > Quote Link to comment Share on other sites More sharing options...
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