Re: LLMD in the Midwest

[Guest guest]

Yes, they are because their immune systems often back-fire when stimulated, and

they lack the toxin-secreting ability that others have, plus they have more

inflammation throughout the body, requiring gentle anti-inflammatories. Many of

your Naturopaths know this. A lot of your DAN's can treat, depending.

www.liafoundation.org does have a list of docs. The Kllinghardt website also

has a list of docs for referral. www.generationrescue.org also has people

throughout the U.S. who can tell you about local docs. It will end up being a

working together relationship. Keep in mind that many of the naturopaths and

autism recovery docs can treat in a manner that decreases tickborne disease

symptoms. When you have both autism and Lyme, it is important for the

practitioner to understand that those with autism need more complex and gentler

treatments, generally speaking. It might be better to start with an autism

recovery doc and move up to an LLMD. Oddly, you will likely have more success

of finding an autism recovery doc than an LLMD. But, it's good to look in your

area because you never know who you may have there. Each practitioner is very

different. It appears that a lot of kids are being recovered who have Lyme but

the practitioner didn't really know it, so it wasn't directly treated. I think

with a lot of recovery docs giving antibiotics for PANDAS, they are also

treating Lyme and Bartonella, without really knowing it.

Having spoke to some individuals in the field about the ratio of those treated

for Lyme also recovering from autism only from the Lyme treatments, it's appears

that there are additional components with autism, but definitely treating the

Lyme can bring about amazing results, depending, and if done carefully. Keep in

mind that many of us parents have Lyme and are not displaying as many symptoms

as our children, so if the body is working correctly, the Lyme can be held at

bay as the immune system is put back in place. This is, of course, a lot of

work.

Love and prayers,

Heidi N

>

> Are there any really good LLMDs in the Midwest? Would you please contact me

if there are? My son's local LLMD just stopped working with all asd kids in his

practice as they are " too hard to treat. " Thanks.

>

[Guest guest]

Thank you for the smart reply. That brings up a point I have been wondering

about for a long time: Can you recover an asd child who has active lyme? In

other words, can a child become " typical " while still having lyme? I have been

reluctant to treat for lyme for a long time now just because my son has so very

many things wrong with him it seemed like a waste to focus on just one of a

hundred or more issues. Maybe I passd lyme onto him and this was his original

insult but by now so very many insults have piled up that I am just trying to

target the worst of them. Or maybe, before even making any progress, you need

to line up a lyme specialist, a PANDAS specialist and a DAN etc. to work on the

kid simultaneously? So overwheling.

> >

> > Are there any really good LLMDs in the Midwest? Would you please contact me

if there are? My son's local LLMD just stopped working with all asd kids in his

practice as they are " too hard to treat. " Thanks.

> >

>

[Guest guest]

Out DAN! Doctor, Dr. Mielke, informed us she believes treating lyme is extremely

important... many children in her practice test positive for lyme and once they

lyme is addressed, the ASD symptoms often correct themselves. Our son was lyme

positive and although his ASD was not severe, she definitely felt that treating

the lyme was key in his particular case. We are very happy with how he is

doing. He's in a typical 2nd grade class with only speech supports. He

participates in typical scouts, tae kwon do, gymnastics. We also have him in a

pragmatic language and social skills group; both of which feel he is ready to

graduate from.

[Guest guest]

This would have to be true since some get Lyme and some get Lyme and autism.

Also, some rid their autism when they treat for Lyme and some still have it

after treating for Lyme. Some docs feel that most all with autism have Lyme,

but we know that most who recover are not directly treating Lyme; although, they

are certainly indirectly treating it by taking things to kill other pathogens

(which also kill Lyme) and boost immunity. Keep in mind that mercury seems to

be something that tips pleomorphic pathogens into taking us over. So, if you

were a carrier of a pleomorphic bacteria like Lyme, you may never have any

significant symptoms if you don't also have another stressor like mercury to tip

you into an immune dysfunction state. I really do feel that mercury has a lead

role in our epidemics today. But, of course, there are many other contributors.

I have seen reports that the nutrients are not crossing from the blood into the

spinal fluid due to receptors being damaged from immune stressors/dysfunction.

So, if this is true, then we have more to deal with than just pathogens and

toxins, but also lack of nutrients in the brain, even though the blood tests

normal. In addition, there is the lack of blood flow from capillary and vein

swellings. The healing of capillaries and veins might still be needed even

after the pathogen and toxin loads are down. So, unfortunately, each person has

a little different medical presentation. Generally speaking, inflammation,

digestion, and liver support need a lot of attention in the autism population.

Once they also get supplemented nutrients, improvements should be seen. With

autism we must not only rid the pathogens and toxins, but we also need to assist

the body to be able to carry out the daily functions. They aren't just ill,

they have impairments throughout their body and nerves. Individuals who quickly

get Lyme symptoms are often being quickly healed because their bodies haven't

broke down yet. Once the body has broken down, now it's a lot more work to get

to the healing state.

I like to look at the pneumonia examples. Some people die from infections even

though they are on antibiotics. The docs say that the antibiotics don't work

well enough if the person has also other stressors to their immune system. So,

with chronic Lyme, often antibiotics are not enough. We must also make the

person well enough to have a good working body. In addition, docs say, if the

person was well in the first place, they never would have gotten the bacteria

infection. So, having a good working body is key to immune function, and very

important in warding off infections. Of course, there are a few infections that

no one can ward off, but symptoms from pleomorphic infections, like Lyme, do

appear to be directly related to the person's overall health and stress.

The thing is to see what is available in your area unless you want to travel.

But, for me, I like to make work what is around me. So, if you have a PANDAS

doc that is good, it might be less stressful to use that doc. For me, I joined

a local autism forum, biomed or not, and payed attention to which docs they

used. Whichever doc was getting the most results is the one I chose. The reason

the forum doesn't have to be about biomed is because even advocacy forums will

mention docs, just not details about treatments.

Love and prayers,

Heidi N

> > >

> > > Are there any really good LLMDs in the Midwest? Would you please contact

me if there are? My son's local LLMD just stopped working with all asd kids in

his practice as they are " too hard to treat. " Thanks.

> > >

> >

>

[Guest guest]

Can you recommend a good forum to find an LLMD in?

> > > >

> > > > Are there any really good LLMDs in the Midwest? Would you please

contact me if there are? My son's local LLMD just stopped working with all asd

kids in his practice as they are " too hard to treat. " Thanks.

> > > >

> > >

> >

>

[Guest guest]

The best place to start is local Lyme forums - for your state. On mine,

I learned every doc in the state who treats Lyme long-term, which is

only a couple. I learned that most are using alternative practitioners,

since I don't think there are any LLMDs in my state left. The people on

the forums say that they were all run out of town by the state medical

board which was sued for - let's just say there were complaints on the

way they regulate things. Lyme politics is really an unbelievable and

shocking situation. This is why people on the Lyme forums do not

mention their docs' names. They want to keep the few they have left

from being " run out of town. " We don't get much into politics here, but

you will find lots of it on the typical Lyme forums. You will see a lot

of shocking posts concerning the taboo surrounding Lyme treatments.

There are local Lyme support group meetings, and all kinds of tidbits

that you will learn about from your local forums. But to be honest, I

am not a fan of long-term antibiotics, mostly because of the complaints

I hear about them. I just don't hear bad things from people using

herbs, so it's my favorite choice. Not that their aren't complaints, I

guess I just like the complaints about herbs better than the complaints

about antibiotics. But, if there were a great doc near me that had a

success record using long-term antibiotics, I might give them a try.

This is why you need to see what's around you. If you are willing to

travel, and most on my local Lyme forums do, then that is another

option. So, just start with your local Lyme forums for your state. In

the Yahoo Groups search, put in your state and Lyme. States like

Arizona, Washington and California have great choices. But, there are

many states with very low amounts of practitioner choices.

Love and prayers,

Heidi N

Can you recommend a good forum to find an LLMD in?

[Guest guest]

There are llmd's in the midwest. Please go to the ILADS website and you can

fill out a form and request info on a doc in your area. They will write

back to you and tell you if there is a doc in your area and give that info

to you.

> Can you recommend a good forum to find an LLMD in?

>

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>>>>> Are there any really good LLMDs in the Midwest? Would you please contact

>>>>> me if there are? My son's local LLMD just stopped working with all asd

>>>>> kids in his practice as they are " too hard to treat. " Thanks.

>>>>>

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[Guest guest]

I like mine.She is very thorough.We are in K.C.,Mo. E-mail me if you

would like more info..Who is your Doctor you are referring to?

Tammy F.

Are there any really good LLMDs in the Midwest? Would you

please contact me if there are? My son's local LLMD just

stopped working with all asd kids in his practice as they

are "too hard to treat." Thanks.

[Guest guest]

tammy looking to move out that way, can you send me the name missvermont94@...

From: Tammy F.

Sent: Sunday, October 23, 2011 2:56 PM

To: BorreliaMultipleInfectionsAndAutism

Subject: Re: LLMD in the Midwest

I like mine.She is very thorough.We are in K.C.,Mo. E-mail me if you would like more info..Who is your Doctor you are referring to? Tammy F.

Are there any really good LLMDs in the Midwest? Would you please contact me if there are? My son's local LLMD just stopped working with all asd kids in his practice as they are "too hard to treat." Thanks.