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Hi Rick

Could it be that if you have a tight achilles tendon(s) you would also have

hammer toes? I have both of both on each leg/foot and since I had the L

achilles lengthened MANY years ago (age 11) my big toe tendon is

non-operative i.e. the toe won't touch the ground at any point and the toe

tendon is very weak. On the R foot though, although I had the achilles

lengthened aged 12, I have a huge hammer toe and large toe knuckle. Wonder

what causes that?

Just interested....

Thanks

Nina

Bristol, UK

--

>

>

>

>

> Dybowski said the following on 3/21/2011 1:44 PM:

>> Thanks!

>> Unfortunately they messed up my appointment, I was scheduled for the

>> 21st of April!I think my doc is trained in Rehab also, my PT is pelvic

>> only.... which I am no longer doing. No results after 14 sessions :(I am

>> looking into this as well as Botox

>>

> I did botox for my aductors and toes, it works for about 90 days. The

> physician must be very skillful in order to get exactly the right

> muscles. Would you believe your toe muscles (that cause hammer toes) are

> on the inside lower part of your calf?

>

> Good luck

> Rick

>

>

>

----------------------

Ms Nina Bunton

Graduate School Senior Administrator

Graduate School of Engineering

Room 3.37, Merchant Venturers Building

Woodland Road

Bristol BS8 1UB

Email: nina.bunton@...

Tel: 0

Fax: TBC

Mobile: 0777 2470 111

Working hours: Monday-Friday 8.30-4.00

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Just had my clawed toes repaired three weeks ago (tendon releases done on all

toes with a procedure on the big toe along with bones snipped at the

joints and pins placed in all toes except the smallest) - I was told that the

claw toes are from muscle imbalance (in our case). The surgery is not a piece

of cake. By the time the pins in my toes are removed next week, I'll have been

nonweight-bearing for four weeks.

Because I do not have great balance, I haven't been able to use crutches and

have to use a wheelchair. I was told that I will not be healed for at least six

months and as long as nine (swelling, pain, etc). It'll be worth it in the end

because my toes were so bad - I have to have the other foot done in Sept.

I used to have botox injected into my calves to not only try to alleviate the

clawing, but also the spasticity in my ankles and calves. The first time it was

injected it lasted about 6 mos. Next time a few months longer and with each

round of injections the effects lasted longer and longer until it hit about 18

mos. I recently found a neurologist who does botox injections and have an appt.

in May to start injections again.

As Rick said, you want to make sure they are well-trained with botox. Too much

and you will have a weak muscle and possibly lose the function until the botox

wears off. If I remember correctly, at my last botox appt for my calves (quite

a while ago) they injected three vials, but you have to work up to that amount.

The botox worked wonders though and really looking forward to having the relief

again (but not the injections - unless things have changed, it's not fun because

they do the injections via EMG to find the spastic/over-active muscle).

In Dec. I had botox injected into my bladder wall to prevent leaking and it

worked! I still had slight leaking, but the bladder dumping stopped. I'm just

now starting to return to where I was before the bladder injections and planning

on having it done as soon as I recuperate enough from the above foot surgery.

Kathy

Botox

Dybowski said the following on 3/21/2011 1:44 PM:

> Thanks!

> Unfortunately they messed up my appointment, I was scheduled for the 21st of

April!I think my doc is trained in Rehab also, my PT is pelvic only.... which I

am no longer doing. No results after 14 sessions :(I am looking into this as

well as Botox

>

I did botox for my aductors and toes, it works for about 90 days. The

physician must be very skillful in order to get exactly the right

muscles. Would you believe your toe muscles (that cause hammer toes) are

on the inside lower part of your calf?

Good luck

Rick

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Hi Nina,

My right achilles tendon is tight and I somewhat still have hammer toes.

The left is flacid, like drop foot, I can not raise the toe end of my

foot up, just wont go. I wear expensive light weight hiking boots for

ankle support and the foot drop. Also custom orthotics. I used to wear

an AFO on left foot/leg. See archives around 7-8 years ago. My right

foot big toe is pinned straight (xray looks like 2 1/2 inch deck screw

in it), 2nd and 3rd toes I had the tendon release and transfer. I am

sure it is caused from the nerve damage related to TSC just like the

other muscle/nerve damage we have relating to TSC. I had the surgery

around 2002 I think, no serious problems since the surgery though. Can

not walk barefoot, even on carpet, too hypersensitive.

Rick

Nina Bunton, Graduate School of Engineering said the following on

3/22/2011 3:43 AM:

> Hi Rick

>

> Could it be that if you have a tight achilles tendon(s) you would also have

> hammer toes? I have both of both on each leg/foot and since I had the L

> achilles lengthened MANY years ago (age 11) my big toe tendon is

> non-operative i.e. the toe won't touch the ground at any point and the toe

> tendon is very weak. On the R foot though, although I had the achilles

> lengthened aged 12, I have a huge hammer toe and large toe knuckle. Wonder

> what causes that?

>

> Just interested....

>

> Thanks

>

> Nina

> Bristol, UK

>

>

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Kathy I predict that you will have good results. The procedure

sounds familiar, I do believe thats what I had. I had to have no weight

bearing for 10 weeks. The pin is still in my big to though. Good luck

Rick

DK Moulton said the following on 3/22/2011 4:46 AM:

> Just had my clawed toes repaired three weeks ago (tendon releases done on all

toes with a procedure on the big toe along with bones snipped at the

joints and pins placed in all toes except the smallest) - I was told that the

claw toes are from muscle imbalance (in our case). The surgery is not a piece

of cake. By the time the pins in my toes are removed next week, I'll have been

nonweight-bearing for four weeks.

>

> Because I do not have great balance, I haven't been able to use crutches and

have to use a wheelchair. I was told that I will not be healed for at least six

months and as long as nine (swelling, pain, etc). It'll be worth it in the end

because my toes were so bad - I have to have the other foot done in Sept.

>

> I used to have botox injected into my calves to not only try to alleviate the

clawing, but also the spasticity in my ankles and calves. The first time it was

injected it lasted about 6 mos. Next time a few months longer and with each

round of injections the effects lasted longer and longer until it hit about 18

mos. I recently found a neurologist who does botox injections and have an appt.

in May to start injections again.

>

> As Rick said, you want to make sure they are well-trained with botox. Too

much and you will have a weak muscle and possibly lose the function until the

botox wears off. If I remember correctly, at my last botox appt for my calves

(quite a while ago) they injected three vials, but you have to work up to that

amount. The botox worked wonders though and really looking forward to having

the relief again (but not the injections - unless things have changed, it's not

fun because they do the injections via EMG to find the spastic/over-active

muscle).

>

> In Dec. I had botox injected into my bladder wall to prevent leaking and it

worked! I still had slight leaking, but the bladder dumping stopped. I'm just

now starting to return to where I was before the bladder injections and planning

on having it done as soon as I recuperate enough from the above foot surgery.

>

> Kathy

>

>

> Botox

>

>

>

> Dybowski said the following on 3/21/2011 1:44 PM:

> > Thanks!

> > Unfortunately they messed up my appointment, I was scheduled for the 21st

of April!I think my doc is trained in Rehab also, my PT is pelvic only.... which

I am no longer doing. No results after 14 sessions :(I am looking into this as

well as Botox

> >

> I did botox for my aductors and toes, it works for about 90 days. The

> physician must be very skillful in order to get exactly the right

> muscles. Would you believe your toe muscles (that cause hammer toes) are

> on the inside lower part of your calf?

>

> Good luck

> Rick

>

>

>

>

>

>

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