Re: pediatric nsg Louisville Kentucky- scoliosis correction and connection

[Guest guest]

Let me correct myself.. I had a curve that I wore a brace for and did some type

of work outs for. I still have a curve, but I guess the brace attempts to stop

progression.

I just did a basic search on TC and Scoliosis and both are indeed common if you

are looking for a surgeon who deals with

both.http://www.ninds.nih.gov/disorders/tethered_cord/tethered_cord.htm

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2150652/This is a study on TC and

congenital kyphosis I cam across.

Subject: Re: ISO pediatric nsg Louisville Kentucky area for 2nd opinion

To: tetheredspinalcord

Date: Friday, April 1, 2011, 7:01 AM

 

Let me add, based on Jenn's advice, that someone experienced with TCS and with

Scheuermann's kyphosis or at least scoliosis, would be highly beneficial!

Thanks loads!

>

> Hi all,

>

> can anyone refer me to a pediatric nsg in the Louisville Kentucky area?

> I'm looking for someone to go to for a second opinion, and ideally,

> someone who is conservative as far as recommending TCS release surgery,

> ie who is not always going to recommend surgery necessarily.

>

> 15 yo ds diagnosed with TCS and we saw Dr. Gump of Gump and Moriarty on

> Wednesday afternoon. Were favorably impressed in general. He

> recommends TCS release surgery. He says Scheuermann's kyphosis likely

> caused by tension on cord, while allowing there are no guarantees of

> that. Currently this is the only symptom (if it is that) our son has.

> We are looking to get a second opinion before we dive into anything as

> invasive as this.

>

> We will travel in the area, so someone in Lexington, southern Indiana,

> Cincinnati, Indianapolis, etc, is within reach.

>

> Thanks for any replies.

>

>

> --

[Guest guest]

I would think that this would be dangerous in someone with TC (that is still

tethered). The curves develop (either A/P or laterally) because the cord

just can't stretch anymore as length to the spinal column is added with

growth. Stopping it from curving with TC that is tethered sounds dangerous

to me (don't know for sure that it is, but since the curve is the body's

compensation mechanism, it would seem risky to try to stop it until the

tether has been treated)

Jenn

On Fri, Apr 1, 2011 at 10:01 AM, Dybowski wrote:

>

>

> Let me correct myself.. I had a curve that I wore a brace for and did some

> type of work outs for. I still have a curve, but I guess the brace attempts

> to stop progression.

>

>

>

>

[Guest guest]

I had the brace as a kid to clarify.

From that study it looks like they did both at same time.

Was trying to point out that I bet a lot of ped neurosurgeons work with this.

>I would think that this would be dangerous in someone with TC (that is still

>tethered). The curves develop (either A/P or laterally) because the cord

>just can't stretch anymore as length to the spinal column is added with

>growth. Stopping it from curving with TC that is tethered sounds dangerous

>to me (don't know for sure that it is, but since the curve is the body's

>compensation mechanism, it would seem risky to try to stop it until the

>tether has been treated)

>

>Jenn

>

>On Fri, Apr 1, 2011 at 10:01 AM, Dybowski wrote:

>

>>

>>

>> Let me correct myself.. I had a curve that I wore a brace for and did some

>> type of work outs for. I still have a curve, but I guess the brace attempts

>> to stop progression.

>>

>>

>>

>>

>

>

>

[Guest guest]

,

I figured you did. But, if that was a non-surgical option she was

considering for her son - would give me pause. That's all.

Jenn

>

>

> I had the brace as a kid to clarify.

> From that study it looks like they did both at same time.

> Was trying to point out that I bet a lot of ped neurosurgeons work with

> this.

>

>

>

>

> >I would think that this would be dangerous in someone with TC (that is

> still

> >tethered). The curves develop (either A/P or laterally) because the cord

> >just can't stretch anymore as length to the spinal column is added with

> >growth. Stopping it from curving with TC that is tethered sounds dangerous

> >to me (don't know for sure that it is, but since the curve is the body's

> >compensation mechanism, it would seem risky to try to stop it until the

> >tether has been treated)

> >

> >Jenn

> >

> >On Fri, Apr 1, 2011 at 10:01 AM, Dybowski <lilacs007@...

> >wrote:

> >

> >>

> >>

> >> Let me correct myself.. I had a curve that I wore a brace for and did

> some

> >> type of work outs for. I still have a curve, but I guess the brace

> attempts

> >> to stop progression.

> >>

> >>

> >>

> >>

> >

> >

> >

[Guest guest]

Hi guys, sounds like you're saying using a brace without doing untethering first

could be dangerous? Yes, I agree, and that is basically what the nsg was saying

when we talked to him. It does seem like if we are wanting to use a brace, we'd

have to do TCS release surgery first.

> > >

> > >>

> > >>

> > >> Let me correct myself.. I had a curve that I wore a brace for and did

> > some

> > >> type of work outs for. I still have a curve, but I guess the brace

> > attempts

> > >> to stop progression.

> > >>

> > >>

> > >>

> > >>

> > >

> > >

> > >