Re: Hopkins or Cleveland Clinic surgery experience?

February 6, 2011

Hi ,

Â my now 5yr old has had three surgeries at Hopkins most recently this past

July. I absolutely love them.I live in Massachusetts but I take her there for

her care.She is treated by neurosurgeon Carson Sr and she had general

peds surg Dylan She is also treated there in there GI clinicÂ by Dr

Carla Au Yeung for check ups and I love them!!.IÂ have taken her her many

places and I must say that they have been the best overall.The bedside manner of

the nurses and staff is excellent as well as with the surgeons and their staff.

If I call with a concern they make every effort to rectify the situation in a

timely manner and help me get to the bottom of the matter even being miles

away.They speak with my daughters doctors here and always do whatever is

necessary to help.They accommodate us and make sure that the total care of both

patient and family is taken care of.I'm not sure if this helps you and if you

have more specific questions I would

be more than happy to answer them.I know how difficult this choice can be and

if I may do anything to ease that process I am wiling. Hope this was helpful and

good luck.I wish you the best!

Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â

Corinn

Subject: Hopkins or Cleveland Clinic surgery experience?

To: tetheredspinalcord

Date: Saturday, February 5, 2011, 4:21 PM

Â

I would appreciate hearing from anyone that had surgery at either Hopkins

or Cleveland Clinic. How has your outcome been, surgeon, etc.

Thanks,

February 6, 2011

Thanks. Did your daughter have successful TC surgery with Dr. Carson? Have you

heard of Dr. Jallo and who is better with TC surgery for adults?

Thanks,

>

> Subject: Hopkins or Cleveland Clinic surgery experience?

> To: tetheredspinalcord

> Date: Saturday, February 5, 2011, 4:21 PM

>

> Â

>

> I would appreciate hearing from anyone that had surgery at either Hopkins

or Cleveland Clinic. How has your outcome been, surgeon, etc.

> Thanks,

>

February 6, 2011

Fantastic! Always love to hear about good experiences and good recommendations!

Thanks Â

Subject: Hopkins or Cleveland Clinic surgery experience?

To: tetheredspinalcord

Date: Saturday, February 5, 2011, 4:21 PM

Â

I would appreciate hearing from anyone that had surgery at either Hopkins

or Cleveland Clinic. How has your outcome been, surgeon, etc.

Thanks,

February 6, 2011

Hopkins or Cleveland Clinic surgery experience?

> To: tetheredspinalcord

> Date: Saturday, February 5, 2011, 4:21 PM

>

> Ã‚Â

>

> I would appreciate hearing from anyone that had surgery at either Hopkins

or Cleveland Clinic. How has your outcome been, surgeon, etc.

> Thanks,

>

February 6, 2011

I've had two releases by Dr. Jallo and I absolutely love him. He was so good to

me considering I live 8 hours away. Scheduled my pre op visit a day or two b/f

my surgery date...did much of the consulting over the phone after I sent him my

films. He will still answer my emails within a day of when I send them. my 1st

surgery was just a release and he had to deal with a failed surgery by another

surgeon that never should have operated on me. my 2nd was a release and he

dealt with my tarlov cyst. Hopkins was fabulous! The nursing staff was

excellent! Hardly any pain now except for a neuropathy in my right leg that is

a constant issue, but nothing like b/f the surgery. I was originally referred

to Dr. Carson, but when I called, he wasn't taking any patients. I think that

was during the time when he was writing his book or working on the made for TV

movie about his life...

Good luck with your decision!

Hopkins or Cleveland Clinic surgery experience?

> To: tetheredspinalcord

> Date: Saturday, February 5, 2011, 4:21 PM

>

> Â

>

> I would appreciate hearing from anyone that had surgery at either

Hopkins or Cleveland Clinic. How has your outcome been, surgeon, etc.

> Thanks,

>

February 6, 2011

Thanks , Wow there is a movie about Carson! Is he suppose to be better

then? Did I understand you that you had surgery before you ever saw Jallo? Did

you retether after the surgery with Jallo? Was it due to scar tissue formation.

I would appreciate if you could explain what he did. Does he do a sacral or

lumbar laminectomy or by scope. How does he close the dura? Duraplasty or

gelfoam, etc? Sorry for so many questions. How big was your Tarlov cyst, I

also have a very small one, but I didn't think that caused any problems.

Why did he think you didn't need surgery to begin with. Does he recommend just

living with TC and not doing surgery?

Again thank you for your help with this.

> >

> > From: stvtm <stvtm@>

> > Subject: Hopkins or Cleveland Clinic surgery experience?

> > To: tetheredspinalcord

> > Date: Saturday, February 5, 2011, 4:21 PM

> >

> > Â

> >

> > I would appreciate hearing from anyone that had surgery at either

Hopkins or Cleveland Clinic. How has your outcome been, surgeon, etc.

> > Thanks,

> >

February 6, 2011

Thanks, Can you tell me why your he needed two surgeries and what they were?

Was the second surgery needed due to scar tissue formation?

Thanks,

> >

> > From: stvtm <stvtm@>

> > Subject: Hopkins or Cleveland Clinic surgery experience?

> > To: tetheredspinalcord

> > Date: Saturday, February 5, 2011, 4:21 PM

> >

> > Ã‚Â

> >

> > I would appreciate hearing from anyone that had surgery at either

Hopkins or Cleveland Clinic. How has your outcome been, surgeon, etc.