Arm issues- Neurologists Opinion

[Guest guest]

Hi Everyone,

I went in last Thursday to see Dr. Frim for MRI/TC update. He also got me in to

see his associate, a neurologist, Dr. .Dr. took a really long time

examining me. His conclusions- I have some deficiency, MS OR some type of

disorder that is not allowing my nerves to conduct (I don't remember the name)

I am scheduled for an MRI of brain and neck, as well as an EMG. I also had some

blood work done to make sure everything is okay (had it done before surgery).

My spinal cord seems to be moving, that is the good news!

Anyone have any thoughts? Have you had this testing? Basically I am having

leg/arm/hand numbness and coordination issues. 

Thanks! 

[Guest guest]

Hi ,

I'm so glad you have someone that is looking into things for you and hope you

get answers. What type of coordination problems and exam issues did the

neurologist pick up, were they different from before surgery? So glad to hear

about the movement of cord, did you have the supine and prone MRI (flip flop)

that showed movement of your cord or could they tell with just the standard LS

MRI. MS is something I have also wondered about and have considered a spinal tap

to definitely rule out, but afraid to do with the TC. Apparently, the symptoms

can be really similar. Not familiar with the names of other conduction

disorders though. I hope they were able to schedule you for the tests soon.

>

> Hi Everyone,

> I went in last Thursday to see Dr. Frim for MRI/TC update. He also got me in

to see his associate, a neurologist, Dr. .Dr. took a really long time

examining me. His conclusions- I have some deficiency, MS OR some type of

disorder that is not allowing my nerves to conduct (I don't remember the name)

> I am scheduled for an MRI of brain and neck, as well as an EMG. I also had

some blood work done to make sure everything is okay (had it done before

surgery).

> My spinal cord seems to be moving, that is the good news!

> Anyone have any thoughts? Have you had this testing? Basically I am having

leg/arm/hand numbness and coordination issues. 

> Thanks! 

>

>

>

>

>

[Guest guest]

They did the flip flop MRI, and it looks like the cord is moving.Well I can't

stand on one leg, I have noticed it takes me longer and longer to get dressed

because I actually have to sit down when I put anything on.Very hard for me to

follow a finger etc.They were not there before the surgery, as far as I know of.

The only thing that was there was arm numbness and constant knots EVERYWHERE. I

have knots literally from the top of my head to my toes. And they don't go away,

I go for massage 1-2 times a week, and nothing works.I am starting to wonder if

the only thing the cord caused was pain and bladder issues... maybe the numbness

and the " electrical " pain was always something else.

I have everything scheduled for the next few weeks, so I will know in about 3

weeks what is going on (hopefully). The conduction disorders have " funny "

names... it's a bunch of letters.. I have tried to Google, no luck! They have

something to go with lack of myelin, so nerves don't conduct.

Getting sick and tired of dealing with this crap!

Subject: Re: Arm issues- Neurologists Opinion

To: tetheredspinalcord

Date: Monday, February 21, 2011, 4:13 PM

 

Hi ,

I'm so glad you have someone that is looking into things for you and hope you

get answers. What type of coordination problems and exam issues did the

neurologist pick up, were they different from before surgery? So glad to hear

about the movement of cord, did you have the supine and prone MRI (flip flop)

that showed movement of your cord or could they tell with just the standard LS

MRI. MS is something I have also wondered about and have considered a spinal tap

to definitely rule out, but afraid to do with the TC. Apparently, the symptoms

can be really similar. Not familiar with the names of other conduction

disorders though. I hope they were able to schedule you for the tests soon.

>

> Hi Everyone,

> I went in last Thursday to see Dr. Frim for MRI/TC update. He also got me in

to see his associate, a neurologist, Dr. .Dr. took a really long time

examining me. His conclusions- I have some deficiency, MS OR some type of

disorder that is not allowing my nerves to conduct (I don't remember the name)

> I am scheduled for an MRI of brain and neck, as well as an EMG. I also had

some blood work done to make sure everything is okay (had it done before

surgery).

> My spinal cord seems to be moving, that is the good news!

> Anyone have any thoughts? Have you had this testing? Basically I am having

leg/arm/hand numbness and coordination issues. 

> Thanks! 

>

>

>

>

>

[Guest guest]

Hi , Im glad you are getting that checked out. My Neuro thought I had MS

too because of reflex/coordination/weakness issues. My scans checked out ok,

showed some plaques but he said they were normal plaques (I didnt think there

were normal plaques but whatever) I didnt have the numbness you described in my

hands but I did have almost a CP type of motor movement. I would go to reach for

something and my hand wouldnt respond, then it would but in a very strange jerky

movement and I was constantly dropping whatever I picked up, couldnt open things

etc. My dominant hand was actually weaker than my other one. My family doc

wanted me to see a geneticist as she thought I had some strange enzyme

deficiency or something. So basically it all continued as (I had no insurance to

see more specialists for testing) and we had to just chalk it up to a messed up

spinal cord BUT after having a severe reaction to my meds and being forced to

stop all of them, all of

that disappeared. I was very very Thankful as I was afraid I was headed for a

nursing home.  I hope they figure out what is going on with you and I hope it

is as easy as that (although living in constant pain is surely not easy) 

Subject: Arm issues- Neurologists Opinion

To: " Tetheredspinalcord " <tetheredspinalcord >

Date: Monday, February 21, 2011, 11:01 AM

 

Hi Everyone,

I went in last Thursday to see Dr. Frim for MRI/TC update. He also got me in to

see his associate, a neurologist, Dr. .Dr. took a really long time

examining me. His conclusions- I have some deficiency, MS OR some type of

disorder that is not allowing my nerves to conduct (I don't remember the name)

I am scheduled for an MRI of brain and neck, as well as an EMG. I also had some

blood work done to make sure everything is okay (had it done before surgery).

My spinal cord seems to be moving, that is the good news!

Anyone have any thoughts? Have you had this testing? Basically I am having

leg/arm/hand numbness and coordination issues. 

Thanks! 

[Guest guest]

Just reading this

I go in ten min. to the SB team

It is on my list to talk about

Later this evening maby a know a little more

JW

Arm issues- Neurologists Opinion

Hi Everyone,

I went in last Thursday to see Dr. Frim for MRI/TC update. He also got me in

to see his associate, a neurologist, Dr. .Dr. took a really long

time examining me. His conclusions- I have some deficiency, MS OR some type

of disorder that is not allowing my nerves to conduct (I don't remember the

name)

I am scheduled for an MRI of brain and neck, as well as an EMG. I also had

some blood work done to make sure everything is okay (had it done before

surgery).

My spinal cord seems to be moving, that is the good news!

Anyone have any thoughts? Have you had this testing? Basically I am having

leg/arm/hand numbness and coordination issues.

Thanks!

[Guest guest]

,

I just had a thought, maybe not helpful at all but just in case, I wondered if

spinal fluid was sent for lab analysis during your surgery. You would think if

they are opening up your dura they would send a sample of spinal fluid for

testing, perhaps you could get your medical records or ask your Dr. The

presence of oligoclonal bands is suggestive of MS. Perhaps the analysis would

be helpful in ruling something else in or out too. Also, I can't stand on one

leg either, but I thought that goes along with weakness from the TC, and I

imagine that would take a while to recover after surgery.

>

> >

>

> > Hi Everyone,

>

> > I went in last Thursday to see Dr. Frim for MRI/TC update. He also got me in

to see his associate, a neurologist, Dr. .Dr. took a really long time

examining me. His conclusions- I have some deficiency, MS OR some type of

disorder that is not allowing my nerves to conduct (I don't remember the name)

>

> > I am scheduled for an MRI of brain and neck, as well as an EMG. I also had

some blood work done to make sure everything is okay (had it done before

surgery).

>

> > My spinal cord seems to be moving, that is the good news!

>

> > Anyone have any thoughts? Have you had this testing? Basically I am having

leg/arm/hand numbness and coordination issues. 

>

> > Thanks! 

>

> >

>

> >

>

> >

>

> >

>

> >

[Guest guest]

I wonder whats up with all the head to toe knots? By knots do you mean spasming?

or hard nodules in your muscles? Isnt that suggestive of Fibromyalgia? Are you

lacking in Magnesium? I supplement magnesium to help my spasming (and my

bowels). I was on another list with a lady that had some wierd neuro muscle

thing going on and her muscles would actually spasm so hard that it looked like

a snake moving under her skin. It was(is) absolutely horrible (she posted a

video for us). I forget what its called but I surely hope that isnt what you are

talking about with the knots.

Subject: Re: Arm issues- Neurologists Opinion

To: tetheredspinalcord

Date: Tuesday, February 22, 2011, 11:30 AM

 

,

I just had a thought, maybe not helpful at all but just in case, I wondered if

spinal fluid was sent for lab analysis during your surgery. You would think if

they are opening up your dura they would send a sample of spinal fluid for

testing, perhaps you could get your medical records or ask your Dr. The presence

of oligoclonal bands is suggestive of MS. Perhaps the analysis would be helpful

in ruling something else in or out too. Also, I can't stand on one leg either,

but I thought that goes along with weakness from the TC, and I imagine that

would take a while to recover after surgery.

>

> >

>

> > Hi Everyone,

>

> > I went in last Thursday to see Dr. Frim for MRI/TC update. He also got me in

to see his associate, a neurologist, Dr. .Dr. took a really long time

examining me. His conclusions- I have some deficiency, MS OR some type of

disorder that is not allowing my nerves to conduct (I don't remember the name)

>

> > I am scheduled for an MRI of brain and neck, as well as an EMG. I also had

some blood work done to make sure everything is okay (had it done before

surgery).

>

> > My spinal cord seems to be moving, that is the good news!

>

> > Anyone have any thoughts? Have you had this testing? Basically I am having

leg/arm/hand numbness and coordination issues. 

>

> > Thanks! 

>

> >

>

> >

>

> >

>

> >

>

> >