Re: Pulling sensation in spine??

[Guest guest]

Hi ,

I did prior to surgery.Was having a very hard time standing up for long periods

of time, like something didn't feel right.

I have not experienced that sensation since surgery, however I do have a lot of

muscular issues and they overshadow all other pain now.

Subject: Pulling sensation in spine??

To: tetheredspinalcord

Date: Friday, March 11, 2011, 11:56 AM

 

It is the issue of this really bad pulling sensation or pressure episodes

down my spine, like it is hard to move, and I can't even describe it that I am

having the most trouble with. Light exercise makes it worse, and now pretty

frequent. And it starts higher than lumbar area, all the way to tailbone, even

chest and intercostals spasms which make it difficult to breathe deep and at the

same time having paresthesias in leg and foot. I assume it is the cord being

stretched that I am feeling, but not sure. Anybody else experience this?

[Guest guest]

Thanks . I have it with standing also and almost everything now,

definitely progressing. Did Dr. Frim say that feeling was your cord being

pulled down?

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> Subject: Pulling sensation in spine??

> To: tetheredspinalcord

> Date: Friday, March 11, 2011, 11:56 AM

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> It is the issue of this really bad pulling sensation or pressure

episodes down my spine, like it is hard to move, and I can't even describe it

that I am having the most trouble with. Light exercise makes it worse, and now

pretty frequent. And it starts higher than lumbar area, all the way to tailbone,

even chest and intercostals spasms which make it difficult to breathe deep and

at the same time having paresthesias in leg and foot. I assume it is the cord

being stretched that I am feeling, but not sure. Anybody else experience this?

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[Guest guest]

Yes he did, and I have not experienced it since (thank god). It's a very weird

feeling.Do you have bladder issues?

Subject: Re: Pulling sensation in spine??

To: tetheredspinalcord

Date: Friday, March 11, 2011, 12:20 PM

 

Thanks . I have it with standing also and almost everything now,

definitely progressing. Did Dr. Frim say that feeling was your cord being

pulled down?

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> Subject: Pulling sensation in spine??

> To: tetheredspinalcord

> Date: Friday, March 11, 2011, 11:56 AM

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> It is the issue of this really bad pulling sensation or pressure

episodes down my spine, like it is hard to move, and I can't even describe it

that I am having the most trouble with. Light exercise makes it worse, and now

pretty frequent. And it starts higher than lumbar area, all the way to tailbone,

even chest and intercostals spasms which make it difficult to breathe deep and

at the same time having paresthesias in leg and foot. I assume it is the cord

being stretched that I am feeling, but not sure. Anybody else experience this?

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[Guest guest]

Hi, I am Mom to a 21/2 year old, she had surgery at 5 months for tethered cord

found on MRI after 2 Kidney and Blood infections.

She started walking at 15 months, recently I have noticed her up on her toes

more, she will not sit on hard chairs and does not sit with her legs

straight out in front of her, We had an MRI last month that came back

inconclusive, so Neurosurgeon wants urodynamics done.

This week she started asking to be carried down stairs instead of walking. She

does not talk, so it is very difficult for me to understand what she is feeling.

She also hates being wiped during diaper change.

The neurosurgeon says it is very unlikely she would retether with her type of

fatty filum tether.

Any input would be great !!

Thanks,

________________________________

To: tetheredspinalcord

Sent: Fri, March 11, 2011 1:29:59 PM

Subject: Re: Pulling sensation in spine??

Yes he did, and I have not experienced it since (thank god). It's a very weird

feeling.Do you have bladder issues?

Subject: Re: Pulling sensation in spine??

To: tetheredspinalcord

Date: Friday, March 11, 2011, 12:20 PM

Thanks . I have it with standing also and almost everything now,

definitely progressing. Did Dr. Frim say that feeling was your cord being

pulled down?

>

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> Subject: Pulling sensation in spine??

> To: tetheredspinalcord

> Date: Friday, March 11, 2011, 11:56 AM

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> It is the issue of this really bad pulling sensation or pressure

episodes

>down my spine, like it is hard to move, and I can't even describe it that I am

>having the most trouble with. Light exercise makes it worse, and now pretty

>frequent. And it starts higher than lumbar area, all the way to tailbone, even

>chest and intercostals spasms which make it difficult to breathe deep and at

the

>same time having paresthesias in leg and foot. I assume it is the cord being

>stretched that I am feeling, but not sure. Anybody else experience this?

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[Guest guest]

That is good to know, but bad as far as causing neurological decline, I thought

it was. Yes, I have severe urgency problems confirmed by bad urodynamics, told

bladder damage irreversible. I am so sorry for what you are going through. I'm

not sure I could cope if I end up worse after surgery, so I put off making a

decision. I hope the new pain clinic will help you.

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> > From: stvtm <stvtm@>

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> > Subject: Pulling sensation in spine??

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> > To: tetheredspinalcord

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> > Date: Friday, March 11, 2011, 11:56 AM

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> > It is the issue of this really bad pulling sensation or pressure

episodes down my spine, like it is hard to move, and I can't even describe it

that I am having the most trouble with. Light exercise makes it worse, and now

pretty frequent. And it starts higher than lumbar area, all the way to tailbone,

even chest and intercostals spasms which make it difficult to breathe deep and

at the same time having paresthesias in leg and foot. I assume it is the cord

being stretched that I am feeling, but not sure. Anybody else experience this?

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[Guest guest]

Hi ,

 

Yes I have had this off and on for as long as I can remember.  I've been to

urgent care for shots in my lower back numerous times before my tether was found

last year.  You are not alone.

Subject: Pulling sensation in spine??

To: tetheredspinalcord

Date: Friday, March 11, 2011, 12:56 PM

 

It is the issue of this really bad pulling sensation or pressure episodes down

my spine, like it is hard to move, and I can't even describe it that I am having

the most trouble with. Light exercise makes it worse, and now pretty frequent.

And it starts higher than lumbar area, all the way to tailbone, even chest and

intercostals spasms which make it difficult to breathe deep and at the same time

having paresthesias in leg and foot. I assume it is the cord being stretched

that I am feeling, but not sure. Anybody else experience this?