RE: I'm NEW! Howdy! oh and I'm overwhelmed too...help!

[Guest guest]

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> I'm NEW!

> Howdy! oh and I'm overwhelmed too...help!

>

> Hey there! My name is e and I'm new to this board. Just

> wanted to introduce myself and post some questions. I'm a

> newly divorced mom of two children on the Autism Spectrum:

> son, , is 5 1/2 yrs old with moderate/severe autism,

> OCD, ADHD, Mr. Sensory, somewhat verbal, has PICA, is

> lethargic, very underweight and pale with allergic shiners,

> barely eats food and NEVER TAKES SUPPLEMENTS ORALLY, has

> horrible tantrums and increased in self-injurious behavior

> and started hitting and kicking others more often now. My

> daughter Maddison, 3 1/2 yrs old is mildly on the spectrum

> and been diagnosed with 'Disruptive Behavior Disorder',

> Anxiety, Tantrums, Self Injurious behavior, Sensory issues,

> PICA, strong inability to self-regulate and has an insatiable

> appetite for mischief. She has aggressive hitting and

> screaming fits, including spitting and kicking as well. She,

> too, will not swallow any supplements but takes some liquid

> supplements in her 'milk' like a champ. I usually have to

> under dose many-most of her vitamins, medications etc because

> she refuses to take them.

>

> Both children have food allergies and sensitivities. Our

> entire family just so happen to also have Lyme disease. Which

> type? I don't know yet as I am completely new to the research

> and disease profiles. I've found a local LLMD in the San

> Francisco Bay Area where we live and he's ordered a BATTERY

> of initial tests including the Igenex test which I should

> know in a couple weeks the results of that along with

> everything else I took. My children and I do NOT have a

> history of tick bites but I contracted it from my ex-husband

> (their dad) who's had a history of bullseye rashes for over

> 20 years and never had the audacity to go get them checked

> out!!! I took a picture of them one day when they manifested

> back in 2007 and said " one day I'm going to find out what these are! "

>

> After a horrible event where my son almost lost his life at 8

> mos old from a congenital blocked bladder (that caused kidney

> reflux, kidney damage, toxic sepsis, etc), I noticed bullseye

> rashes manifesting on his bottom, trunk and left cheek. He

> had been in the hospital receiving numerous IV antibiotics

> and I never noticed a circular rash on him prior to the

> hospital stay. Even though had 'eczema' as a baby and

> was colicky (from pain), I never vaccinated him and fed him

> well and he hit all his milestones perfectly...after the

> hospital, he was banging his head on the ground within 6

> weeks of recovery and at the same time bullseye rashes were

> appearing off and on. No pediatrician diagnosed his rash as

> anything beyond 'eczema'.

>

> After both my children received grants to receive DAN! doctor

> protocol treatments with a popular medical group in TX, I

> noticed after a first round of Septra that my daugther

> manifested bullseye rashes on her bottom too. Let's just say

> after much poking and prodding the treating physician and

> mentioning that my son was complaining of migratory joint

> pain, low grade fevers, night sweats, very pale, blue lips,

> bullseye rashes, and dissecting his bloodwork with him saying

> exactly " I think my son has an underlying autoimmune disorder

> we're just not treating or haven't diagnosed yet " ...I was

> judged as being one of 'those' moms and essentially all my

> requests and complaints got ignored. From a DAN DOCTOR no less!!

>

> Now I'm starting initial supplement treatment for myself and

> getting ready to figure out antibiotic therapy after test

> results come back and I have to say, I'm a bit worried. I've

> heard so many testimonies about bad Herx reactions, negligent

> or well-meaning LLMD's not giving the right antibiotics, too

> much of this or that and I'm just completely overwhelmed with

> how I'm supposed to judge what treatment option is the right

> path and what's going to work the most efficiently. I know

> I'm probably speaking for many of ya'll about starting off

> right but let's just say I don't have any extra money for

> mistakes. With 3 of us to treat and about 5-9 years worth of

> undiagnosed Lyme, I'm deeply concerned and don't know where

> to go. My Lyme doc is a gentle and humble man so my gut is to

> trust him but I hear too many testimonies how antibiotics

> made so many people more sick than it helped and only

> alternative/naturopathic/homeopathic medicine worked the best.

>

> Can someone please calm my fears? My son is really sick, my

> daughter is fairing better but only eats liquid nutrition

> like as if she was an infant and I'm the MOST SICK I've ever

> been in my life. I know treatment is highly customized to fit

> each individual but I just need to know where to go to find

> out about each stage of treatment. For instance, initial

> dosages, types of antibiotics, treatment course, possible

> reactions, detox remedies and how through the course of

> treatment you're to measure your improvements, set-backs, OTC

> remedies, etc. Do I make any sense? I really want to know

> what to expect over the next year of treatment...

>

> Thanks for your time and support!

>

> e, Jack and Maddie

> San , CA

>

>

>

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