Guest guest Posted December 2, 2011 Report Share Posted December 2, 2011 Very interesting. I wonder if the positive feedback is from the pill version of this? And if you can only get it if you are a patient of this particular doctor? I would much rather try this first than the shots. Have been trying to get answers from DrB about GcMAF but no one is responding to my calls or emails in that office, correction, I had an in-take talk with a nurse who could not answer my questions and passed me onto another nurse who could not who gave me the voicemail of yet another nurse who never called or emailed back. What I wanted to know is whether or not we should aggressively treat Lyme and get that under control before trying GcMAF or not? We've seen good things from IVIG--however I have come to realize that it's a very expensive crutch that has not been strong enough, in my son's case, to overcome his insidious infections, Lyme etc. So I do not want yet another expensive crutch and need to know if we need to successfully treat this stuff before moving onto GcMAF or MAF 314, which I had never heard of until just now so thank you for telling the group about it. > > > > Has anyone else here run the Nagalese test? My son recently had it run and on a range of normal being 0.32-0.95 his is 0.97. Since we cannot afford GcMAF is anyone familiar with alternatives to this in order to reduce the Nagalese level? Is it just a matter of chipping away at the viral load? Is anyone working with DrK using GcMAF yet? Or using GcMAF on their own without a doctor? It seems to be a very promising treatment. A very smart member of LIA told me that before even being able to try GcMAF you would need to make sure the vitamin D level is adequate. Since most people with Lyme have low D levels, I have increased supplementing this to the whole family. I wonder if there can be a toxic level of D3 of if high doses of it are relatively harmless much like high doses of vitamin C? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2011 Report Share Posted December 2, 2011 Actually Ruggerio is not a doctor but professor in some University in Firenze and he developed the MAF 314, so No - you don't need to be his patient. From my understanding this probotic is without prescription in Europe, but I might be wrong. Simply they teach them for few days how to make the yogurt using milk, colostrum and then the probiotic cultures. They leave it for 48 hours to grow and then it's ready. This is one of the links that I learned about: http://dl.dropbox.com/u/38793300/GFM...JAE%202011.pdf I just don't understand why this probiotic is not more popular and all over all the autism forums, because it sounds so good to get the benefits of GcMAF from real cultured food, probably I am missing something > > > > > > Has anyone else here run the Nagalese test? My son recently had it run and on a range of normal being 0.32-0.95 his is 0.97. Since we cannot afford GcMAF is anyone familiar with alternatives to this in order to reduce the Nagalese level? Is it just a matter of chipping away at the viral load? Is anyone working with DrK using GcMAF yet? Or using GcMAF on their own without a doctor? It seems to be a very promising treatment. A very smart member of LIA told me that before even being able to try GcMAF you would need to make sure the vitamin D level is adequate. Since most people with Lyme have low D levels, I have increased supplementing this to the whole family. I wonder if there can be a toxic level of D3 of if high doses of it are relatively harmless much like high doses of vitamin C? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2011 Report Share Posted December 2, 2011 Since my son has a folate receptor disorder his avoidance of all milk products goes beyond just a basic allergy. I did not realize MAF 314 was milk based. But I would still be very interested in learning more as I have come to understand that for us we always have to weigh the benefits against the risks. Maybe a small exposure to casein would be less risky than a long needle for the GcMAF injection? I don't know. Would you please re-post the link? It would not open. I wonder how we could get ahold of some of this stuff? Thanks. > > > > > > > > Has anyone else here run the Nagalese test? My son recently had it run and on a range of normal being 0.32-0.95 his is 0.97. Since we cannot afford GcMAF is anyone familiar with alternatives to this in order to reduce the Nagalese level? Is it just a matter of chipping away at the viral load? Is anyone working with DrK using GcMAF yet? Or using GcMAF on their own without a doctor? It seems to be a very promising treatment. A very smart member of LIA told me that before even being able to try GcMAF you would need to make sure the vitamin D level is adequate. Since most people with Lyme have low D levels, I have increased supplementing this to the whole family. I wonder if there can be a toxic level of D3 of if high doses of it are relatively harmless much like high doses of vitamin C? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2011 Report Share Posted December 3, 2011 Sorry, not sure why I didn't paste it correctly before. Here are all the links I have about this product: http://hivskeptic.files.wordpress.com/2011/07/cdb269-pacini-and-ruggiero.pdf http://dl.dropbox.com/u/38793300/GFMAF%20IJAE%202011.pdf http://www.marcoruggiero.org/pdf/3-%20Poster%20ICAR%202011%20GcMAF%20%5BPunzi%20\ Morucci%5D.jpg This youtube video shows the snipping off of two sugars to create GcMAF (or DBPMAF). Please let me know if you have again problems opening the files. Krassi > > > > > > > > > > Has anyone else here run the Nagalese test? My son recently > > had it run and on a range of normal being 0.32-0.95 his is 0.97. > > Since we cannot afford GcMAF is anyone familiar with alternatives to > > this in order to reduce the Nagalese level? Is it just a matter of > > chipping away at the viral load? Is anyone working with DrK using > > GcMAF yet? Or using GcMAF on their own without a doctor? It seems to > > be a very promising treatment. A very smart member of LIA told me > > that before even being able to try GcMAF you would need to make sure > > the vitamin D level is adequate. Since most people with Lyme have > > low D levels, I have increased supplementing this to the whole > > family. I wonder if there can be a toxic level of D3 of if high > > doses of it are relatively harmless much like high doses of vitamin C? > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 Is there any speculation why the negative behaviors were created from GcMAF? Does DrB think that Lyme needs to be treated before starting GcMAF? I wonder if it would be as effective if the patient had Lyme. > > > > > > > > Has anyone else here run the Nagalese test? My son recently had it run and on a range of normal being 0.32-0.95 his is 0.97. Since we cannot afford GcMAF is anyone familiar with alternatives to this in order to reduce the Nagalese level? Is it just a matter of chipping away at the viral load? Is anyone working with DrK using GcMAF yet? Or using GcMAF on their own without a doctor? It seems to be a very promising treatment. A very smart member of LIA told me that before even being able to try GcMAF you would need to make sure the vitamin D level is adequate. Since most people with Lyme have low D levels, I have increased supplementing this to the whole family. I wonder if there can be a toxic level of D3 of if high doses of it are relatively harmless much like high doses of vitamin C? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2011 Report Share Posted December 11, 2011 DrB is reportedly saying he is getting good results with GcMAF but I only know 2 families personally and one may be seeing slight gains, the other stopped due to negative behaviors but is planning to start again. > > > > > > > > > > Has anyone else here run the Nagalese test? My son recently had it run and on a range of normal being 0.32-0.95 his is 0.97. Since we cannot afford GcMAF is anyone familiar with alternatives to this in order to reduce the Nagalese level? Is it just a matter of chipping away at the viral load? Is anyone working with DrK using GcMAF yet? Or using GcMAF on their own without a doctor? It seems to be a very promising treatment. A very smart member of LIA told me that before even being able to try GcMAF you would need to make sure the vitamin D level is adequate. Since most people with Lyme have low D levels, I have increased supplementing this to the whole family. I wonder if there can be a toxic level of D3 of if high doses of it are relatively harmless much like high doses of vitamin C? > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2011 Report Share Posted December 11, 2011 I don't know for sure but doubting DrB treats lyme. > > > > > > > > > > Has anyone else here run the Nagalese test? My son recently had it run and on a range of normal being 0.32-0.95 his is 0.97. Since we cannot afford GcMAF is anyone familiar with alternatives to this in order to reduce the Nagalese level? Is it just a matter of chipping away at the viral load? Is anyone working with DrK using GcMAF yet? Or using GcMAF on their own without a doctor? It seems to be a very promising treatment. A very smart member of LIA told me that before even being able to try GcMAF you would need to make sure the vitamin D level is adequate. Since most people with Lyme have low D levels, I have increased supplementing this to the whole family. I wonder if there can be a toxic level of D3 of if high doses of it are relatively harmless much like high doses of vitamin C? > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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