Guest guest Posted December 24, 2011 Report Share Posted December 24, 2011 The website is another chat group called Autismweb, it's pretty good, they have a group like us that looks at alternate treatments.Try this link http://www.autismweb.com/forum/viewtopic.php?f=4 & t=25881 & p=186589#p186589If it doesn't work just google Autism GcMAF and it's one of the top choices.Keep me posted on your nagalase results, I should be getting my sons results soon and I will let you know what we find.Good luckTo: BorreliaMultipleInfectionsAndAutism From: krassi_G_2000@...Date: Sun, 25 Dec 2011 01:34:42 +0000Subject: Re: GcMAF Could you tell me where you read about number of parents reporting good results with GcMAF injections for their kids? We are about to do the nagalese test for my son and I have been trying to learn how kids respond to it (so far I have read only of adults and their reactions). We have been on one what it seems endless battle for viruses, parasites and bacteria for my son for the past 3 years (we have tried to address them with prescription meds, homeopathics, naturals) and he still has them, so I am very very hopeful that GcMAF may help, but what worries me is that I cannot find anough data showing how small children respond (well, I don't know in which category my son is now - he is 6 years old, so I guess I should say middle age children :). I am on Bradstreet's blog also but I cannot find the results of his studies on GcMAF and the stem cell therapy he did in Kiev. Merry Christmas to everybody in this group and hope the new 2012 year will bring lots of good answers to all of us! :) Krassi --- In BorreliaMultipleInfectionsAndAutism , Mason Kuhn wrote: > > > I will admit I don't totally understand all of this, but I have read quite a bit. > > The way I understand it Nagalase is released by cancer cells, HIV infection, and other viruses and bacteria (many believe that Bb - Lyme disease causing bacteria- releases it). Nagalase blocks the release of macrophages so it allows the bacteria or infection to persist. So if GcMAF is injected it is suppose to kick start the immune system by releasing more macrophages that will go eat the bacteria or virus that is releasing the Nagalase. > > I am a member of another group AutismWeb and there are a number of parents who have given their kids the GcMAF injections. Most of them are reporting very good results, some of them unbelievably good. This is why it is such an intriguing potential therapy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2011 Report Share Posted December 25, 2011 Hello we also going to Netherland for nagalase test and also for nitrotyrosin test and i also have read a lots of info for GcMAF but i do have only one consearn if we go that way that i dont realy have anyone to implemet the suringes to my son every day i live in very complicated country related to kids blood test and stuf like this and the only practitioner wich is informed well on GcMAF in England is not allowed by law to do anything about it so i m realy in THINKING mood what will i do if i go that way other wise this aproach for treatment of autism is realy my way of beleiving that the imunne sistem is corrupt and if we heal it everything else will come proper way of functioning and that road i went sins 1y with my iridologist hi is doing basicly that but with hurbs wich is a way slow proces i beleive but i wasent in a rush anyway as our case i a bit odd and dificult to healand beside that we are healthy at least rid off few yeast and viral load and flat feet and artrytus so for 1y is quet good for me if we take to a count that all that issues a bit stubborn there is not behaviour pluses yet but there is a tons ov fisical issues we rid of even the GPs and teachers saw it .Coud you please help me with the test results when we get them as i will not involve Gp if mine doesnt agree to help and if you have any info the way surringes are administrated and if i can do it my self unles it is in the vein(i didnt meet a info in the web yet but i will surch again)Thank you for your help and ideas and I hope the New Year will bring us Happines and Joy To: borreliamultipleinfectionsandautism Sent: Sunday, 25 December 2011, 1:51:31 Subject: RE: Re: GcMAF The website is another chat group called Autismweb, it's pretty good, they have a group like us that looks at alternate treatments.Try this link http://www.autismweb.com/forum/viewtopic.php?f=4 & t=25881 & p=186589#p186589If it doesn't work just google Autism GcMAF and it's one of the top choices.Keep me posted on your nagalase results, I should be getting my sons results soon and I will let you know what we find.Good luckTo: BorreliaMultipleInfectionsAndAutism From: krassi_G_2000@...Date: Sun, 25 Dec 2011 01:34:42 +0000Subject: Re: GcMAF Could you tell me where you read about number of parents reporting good results with GcMAF injections for their kids? We are about to do the nagalese test for my son and I have been trying to learn how kids respond to it (so far I have read only of adults and their reactions). We have been on one what it seems endless battle for viruses, parasites and bacteria for my son for the past 3 years (we have tried to address them with prescription meds, homeopathics, naturals) and he still has them, so I am very very hopeful that GcMAF may help, but what worries me is that I cannot find anough data showing how small children respond (well, I don't know in which category my son is now - he is 6 years old, so I guess I should say middle age children . I am on Bradstreet's blog also but I cannot find the results of his studies on GcMAF and the stem cell therapy he did in Kiev. Merry Christmas to everybody in this group and hope the new 2012 year will bring lots of good answers to all of us! Krassi > > > I will admit I don't totally understand all of this, but I have read quite a bit. > > The way I understand it Nagalase is released by cancer cells, HIV infection, and other viruses and bacteria (many believe that Bb - Lyme disease causing bacteria- releases it). Nagalase blocks the release of macrophages so it allows the bacteria or infection to persist. So if GcMAF is injected it is suppose to kick start the immune system by releasing more macrophages that will go eat the bacteria or virus that is releasing the Nagalase. > > I am a member of another group AutismWeb and there are a number of parents who have given their kids the GcMAF injections. Most of them are reporting very good results, some of them unbelievably good. This is why it is such an intriguing potential therapy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2011 Report Share Posted December 25, 2011 Hi,I live in the UK and want to do the Negalase test can I have address for the Netherlands plz?Thank you in advice.NuraSent from my iPhone Hello we also going to Netherland for nagalase test and also for nitrotyrosin test and i also have read a lots of info for GcMAF but i do have only one consearn if we go that way that i dont realy have anyone to implemet the suringes to my son every day i live in very complicated country related to kids blood test and stuf like this and the only practitioner wich is informed well on GcMAF in England is not allowed by law to do anything about it so i m realy in THINKING mood what will i do if i go that way other wise this aproach for treatment of autism is realy my way of beleiving that the imunne sistem is corrupt and if we heal it everything else will come proper way of functioning and that road i went sins 1y with my iridologist hi is doing basicly that but with hurbs wich is a way slow proces i beleive but i wasentin a rush anyway as our case i a bit odd and dificult to healand beside that we are healthy at least rid off few yeast and viral load and flat feet and artrytus so for 1y is quet good for me if we take to a count that all that issues a bit stubborn there is not behaviour pluses yet but there is a tons ov fisical issues we rid of even the GPs and teachers saw it .Coud you please help me with the test results when we get them as i will not involve Gp if mine doesnt agree to help and if you have any info the way surringes are administrated and if i can do it my self unles it is in the vein(i didnt meet a info in the web yet but i will surch again)Thank you for your help and ideas and I hope the New Year will bring us Happines and Joy To: borreliamultipleinfectionsandautism Sent: Sunday, 25 December 2011, 1:51:31 Subject: RE: Re: GcMAF The website is another chat group called Autismweb, it's pretty good, they have a group like us that looks at alternate treatments.Try this link http://www.autismweb.com/forum/viewtopic.php?f=4 & t=25881 & p=186589#p186589If it doesn't work just google Autism GcMAF and it's one of the top choices.Keep me posted on your nagalase results, I should be getting my sons results soon and I will let you know what we find.Good luckTo: BorreliaMultipleInfectionsAndAutism From: krassi_G_2000@...Date: Sun, 25 Dec 2011 01:34:42 +0000Subject: Re: GcMAF Could you tell me where you read about number of parents reporting good results with GcMAF injections for their kids? We are about to do the nagalese test for my son and I have been trying to learn how kids respond to it (so far I have read only of adults and their reactions).We have been on one what it seems endless battle for viruses, parasites and bacteria for my son for the past 3 years (we have tried to address them with prescription meds, homeopathics, naturals) and he still has them, so I am very very hopeful that GcMAF may help, but what worries me is that I cannot find anough data showing how small children respond (well, I don't know in which category my son is now - he is 6 years old, so I guess I should say middle age children . I am on Bradstreet's blog also but I cannot find the results of his studies on GcMAF and the stem cell therapy he did in Kiev.Merry Christmas to everybody in this group and hope the new 2012 year will bring lots of good answers to all of us! :)Krassi>> > I will admit I don't totally understand all of this, but I have read quite a bit. > > The way I understand it Nagalase is released by cancer cells, HIV infection, and other viruses and bacteria (many believe that Bb - Lyme disease causing bacteria- releases it). Nagalase blocks the release of macrophages so it allows the bacteria or infection to persist. So if GcMAF is injected it is suppose to kick start the immune system by releasing more macrophages that will go eat the bacteria or virus that is releasing the Nagalase. > > I am a member of another group AutismWeb and there are a number of parents who have given their kids the GcMAF injections. Most of them are reporting very good results, some of them unbelievably good. This is why it is such an intriguing potential therapy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2011 Report Share Posted December 25, 2011 I believe it is an intra muscular injection. We see Bradstreet on Jan 4, so I will be able to post more at that time.Keena Hello we also going to Netherland for nagalase test and also for nitrotyrosin test and i also have read a lots of info for GcMAF but i do have only one consearn if we go that way that i dont realy have anyone to implemet the suringes to my son every day i live in very complicated country related to kids blood test and stuf like this and the only practitioner wich is informed well on GcMAF in England is not allowed by law to do anything about it so i m realy in THINKING mood what will i do if i go that way other wise this aproach for treatment of autism is realy my way of beleiving that the imunne sistem is corrupt and if we heal it everything else will come proper way of functioning and that road i went sins 1y with my iridologist hi is doing basicly that but with hurbs wich is a way slow proces i beleive but i wasent in a rush anyway as our case i a bit odd and dificult to healand beside that we are healthy at least rid off few yeast and viral load and flat feet and artrytus so for 1y is quet good for me if we take to a count that all that issues a bit stubborn there is not behaviour pluses yet but there is a tons ov fisical issues we rid of even the GPs and teachers saw it .Coud you please help me with the test results when we get them as i will not involve Gp if mine doesnt agree to help and if you have any info the way surringes are administrated and if i can do it my self unles it is in the vein(i didnt meet a info in the web yet but i will surch again)Thank you for your help and ideas and I hope the New Year will bring us Happines and Joy To: borreliamultipleinfectionsandautism Sent: Sunday, 25 December 2011, 1:51:31 Subject: RE: Re: GcMAF The website is another chat group called Autismweb, it's pretty good, they have a group like us that looks at alternate treatments.Try this link http://www.autismweb.com/forum/viewtopic.php?f=4 & t=25881 & p=186589#p186589If it doesn't work just google Autism GcMAF and it's one of the top choices.Keep me posted on your nagalase results, I should be getting my sons results soon and I will let you know what we find.Good luckTo: BorreliaMultipleInfectionsAndAutism From: krassi_G_2000@...Date: Sun, 25 Dec 2011 01:34:42 +0000Subject: Re: GcMAF Could you tell me where you read about number of parents reporting good results with GcMAF injections for their kids? We are about to do the nagalese test for my son and I have been trying to learn how kids respond to it (so far I have read only of adults and their reactions). We have been on one what it seems endless battle for viruses, parasites and bacteria for my son for the past 3 years (we have tried to address them with prescription meds, homeopathics, naturals) and he still has them, so I am very very hopeful that GcMAF may help, but what worries me is that I cannot find anough data showing how small children respond (well, I don't know in which category my son is now - he is 6 years old, so I guess I should say middle age children . I am on Bradstreet's blog also but I cannot find the results of his studies on GcMAF and the stem cell therapy he did in Kiev. Merry Christmas to everybody in this group and hope the new 2012 year will bring lots of good answers to all of us! Krassi > > > I will admit I don't totally understand all of this, but I have read quite a bit. > > The way I understand it Nagalase is released by cancer cells, HIV infection, and other viruses and bacteria (many believe that Bb - Lyme disease causing bacteria- releases it). Nagalase blocks the release of macrophages so it allows the bacteria or infection to persist. So if GcMAF is injected it is suppose to kick start the immune system by releasing more macrophages that will go eat the bacteria or virus that is releasing the Nagalase. > > I am a member of another group AutismWeb and there are a number of parents who have given their kids the GcMAF injections. Most of them are reporting very good results, some of them unbelievably good. This is why it is such an intriguing potential therapy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2011 Report Share Posted December 25, 2011 The European Laboratory of Nutrients - welcome To: "BorreliaMultipleInfectionsAndAutism " <BorreliaMultipleInfectionsAndAutism > Sent: Sunday, 25 December 2011, 13:49:17 Subject: Re: Re: GcMAF Hi,I live in the UK and want to do the Negalase test can I have address for the Netherlands plz?Thank you in advice.NuraSent from my iPhone Hello we also going to Netherland for nagalase test and also for nitrotyrosin test and i also have read a lots of info for GcMAF but i do have only one consearn if we go that way that i dont realy have anyone to implemet the suringes to my son every day i live in very complicated country related to kids blood test and stuf like this and the only practitioner wich is informed well on GcMAF in England is not allowed by law to do anything about it so i m realy in THINKING mood what will i do if i go that way other wise this aproach for treatment of autism is realy my way of beleiving that the imunne sistem is corrupt and if we heal it everything else will come proper way of functioning and that road i went sins 1y with my iridologist hi is doing basicly that but with hurbs wich is a way slow proces i beleive but i wasent in a rush anyway as our case i a bit odd and dificult to healand beside that we are healthy at least rid off few yeast and viral load and flat feet and artrytus so for 1y is quet good for me if we take to a count that all that issues a bit stubborn there is not behaviour pluses yet but there is a tons ov fisical issues we rid of even the GPs and teachers saw it .Coud you please help me with the test results when we get them as i will not involve Gp if mine doesnt agree to help and if you have any info the way surringes are administrated and if i can do it my self unles it is in the vein(i didnt meet a info in the web yet but i will surch again)Thank you for your help and ideas and I hope the New Year will bring us Happines and Joy To: borreliamultipleinfectionsandautism Sent: Sunday, 25 December 2011, 1:51:31 Subject: RE: Re: GcMAF The website is another chat group called Autismweb, it's pretty good, they have a group like us that looks at alternate treatments.Try this link http://www.autismweb.com/forum/viewtopic.php?f=4 & t=25881 & p=186589#p186589If it doesn't work just google Autism GcMAF and it's one of the top choices.Keep me posted on your nagalase results, I should be getting my sons results soon and I will let you know what we find.Good luckTo: BorreliaMultipleInfectionsAndAutism From: krassi_G_2000@...Date: Sun, 25 Dec 2011 01:34:42 +0000Subject: Re: GcMAF Could you tell me where you read about number of parents reporting good results with GcMAF injections for their kids? We are about to do the nagalese test for my son and I have been trying to learn how kids respond to it (so far I have read only of adults and their reactions). We have been on one what it seems endless battle for viruses, parasites and bacteria for my son for the past 3 years (we have tried to address them with prescription meds, homeopathics, naturals) and he still has them, so I am very very hopeful that GcMAF may help, but what worries me is that I cannot find anough data showing how small children respond (well, I don't know in which category my son is now - he is 6 years old, so I guess I should say middle age children . I am on Bradstreet's blog also but I cannot find the results of his studies on GcMAF and the stem cell therapy he did in Kiev. Merry Christmas to everybody in this group and hope the new 2012 year will bring lots of good answers to all of us! Krassi > > > I will admit I don't totally understand all of this, but I have read quite a bit. > > The way I understand it Nagalase is released by cancer cells, HIV infection, and other viruses and bacteria (many believe that Bb - Lyme disease causing bacteria- releases it). Nagalase blocks the release of macrophages so it allows the bacteria or infection to persist. So if GcMAF is injected it is suppose to kick start the immune system by releasing more macrophages that will go eat the bacteria or virus that is releasing the Nagalase. > > I am a member of another group AutismWeb and there are a number of parents who have given their kids the GcMAF injections. Most of them are reporting very good results, some of them unbelievably good. This is why it is such an intriguing potential therapy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2011 Report Share Posted December 25, 2011 Thank youSent from my iPhone The European Laboratory of Nutrients - welcome To: "BorreliaMultipleInfectionsAndAutism " <BorreliaMultipleInfectionsAndAutism > Sent: Sunday, 25 December 2011, 13:49:17 Subject: Re: Re: GcMAF Hi,I live in the UK and want to do the Negalase test can I have address for the Netherlands plz?Thank you in advice.NuraSent from my iPhone Hello we also going to Netherland for nagalase test and also for nitrotyrosin test and i also have read a lots of info for GcMAF but i do have only one consearn if we go that way that i dont realy have anyone to implemet the suringes to my son every day i live in very complicated country related to kids blood test and stuf like this and the only practitioner wich is informed well on GcMAF in England is not allowed by law to do anything about it so i m realy in THINKING mood what will i do if i go that way other wise this aproach for treatment of autism is realy my way of beleiving that the imunne sistem is corrupt and if we heal it everything else will come proper way of functioning and that road i went sins 1y with my iridologist hi is doing basicly that but with hurbs wich is a way slow proces i beleive but i wasentin a rush anyway as our case i a bit odd and dificult to healand beside that we are healthy at least rid off few yeast and viral load and flat feet and artrytus so for 1y is quet good for me if we take to a count that all that issues a bit stubborn there is not behaviour pluses yet but there is a tons ov fisical issues we rid of even the GPs and teachers saw it .Coud you please help me with the test results when we get them as i will not involve Gp if mine doesnt agree to help and if you have any info the way surringes are administrated and if i can do it my self unles it is in the vein(i didnt meet a info in the web yet but i will surch again)Thank you for your help and ideas and I hope the New Year will bring us Happines and Joy To: borreliamultipleinfectionsandautism Sent: Sunday, 25 December 2011, 1:51:31 Subject: RE: Re: GcMAF The website is another chat group called Autismweb, it's pretty good, they have a group like us that looks at alternate treatments.Try this link http://www.autismweb.com/forum/viewtopic.php?f=4 & t=25881 & p=186589#p186589If it doesn't work just google Autism GcMAF and it's one of the top choices.Keep me posted on your nagalase results, I should be getting my sons results soon and I will let you know what we find.Good luckTo: BorreliaMultipleInfectionsAndAutism From: krassi_G_2000@...Date: Sun, 25 Dec 2011 01:34:42 +0000Subject: Re: GcMAF Could you tell me where you read about number of parents reporting good results with GcMAF injections for their kids? We are about to do the nagalese test for my son and I have been trying to learn how kids respond to it (so far I have read only of adults and their reactions).We have been on one what it seems endless battle for viruses, parasites and bacteria for my son for the past 3 years (we have tried to address them with prescription meds, homeopathics, naturals) and he still has them, so I am very very hopeful that GcMAF may help, but what worries me is that I cannot find anough data showing how small children respond (well, I don't know in which category my son is now - he is 6 years old, so I guess I should say middle age children . I am on Bradstreet's blog also but I cannot find the results of his studies on GcMAF and the stem cell therapy he did in Kiev.Merry Christmas to everybody in this group and hope the new 2012 year will bring lots of good answers to all of us! :)Krassi>> > I will admit I don't totally understand all of this, but I have read quite a bit. > > The way I understand it Nagalase is released by cancer cells, HIV infection, and other viruses and bacteria (many believe that Bb - Lyme disease causing bacteria- releases it). Nagalase blocks the release of macrophages so it allows the bacteria or infection to persist. So if GcMAF is injected it is suppose to kick start the immune system by releasing more macrophages that will go eat the bacteria or virus that is releasing the Nagalase. > > I am a member of another group AutismWeb and there are a number of parents who have given their kids the GcMAF injections. Most of them are reporting very good results, some of them unbelievably good. This is why it is such an intriguing potential therapy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2011 Report Share Posted December 26, 2011 Here is some more food for thought (and maybe something to ask Bradstreet): I have been searching the internet the last few days trying to learn everything I can about Nagalase and GcMAF. While there are some suggestions that bacteria can secrete Nagalase there isn't any peer reviewed literature about it. There IS a ton of literature about how viruses secrete it, so this makes we wonder........ My son was very positive on both his Western Blots, this April will be two years on antibiotics. During the first year we observed an incredible amount of growth: He said his first word after 10 days of being on antibiotics, incredible increases in eye contact, interaction with peers, reduction in repetitive movements, ect. The last year we have seen a slow improvement, but nothing like the first year and now he has kind of plateaued over that last few months. My son also tested positive for HH6, and Epson Barr: both viral infections that are not affected by antibiotics. What if Lyme was/is the root of the problems and the antibiotics and herbal supplements we have used have either killed the Lyme or at least got it under control, but the reason he still displays autistic symptoms, still gets sick frequently, has extremely low vitamin D, and has huge bags under his eyes is because of the viral infections of HH6 and Epson Barr. Being co-morbid with all these bacteria and viruses could be the reason why only antibiotics/herbals don't fully heal our kids and if a person has all these different problems going on just the GcMAF injections might not be enough to kill ALL the problems (or maybe they need a lot of injections). Thanks for listening to the long random thoughts of a dad and husband of two Lyme sufferers who so desperately is looking for answers and is anxiously waiting their Nagalase results. To: BorreliaMultipleInfectionsAndAutism From: georgiasand32@...Date: Mon, 26 Dec 2011 01:39:26 +0000Subject: Re: GcMAF My son takes 6,000 IU of D3 a day in preparation for GcMAF. Curious to know if anyone is doing this will also getting IVIG? Would like to seriously address Lyme for at least a few months before adding in GcMAF. This is a very expensive treatment and am afraid it will be yet another pricey crutch--IVIG has worked wonders but it wears off. I am hoping the combination of the two will be enough to sustain the gains we see immediately after IVIG infusions. His Nagalese levels were barely elevated but am not sure how much this has to do with IVIG being in his system. It could actually be much higher if IVIG were stopped.>> One of my doctors, whom I have high respect for (which is rare), has told me> that autoimmunity is caused by intracellular infections. This is where the> infectious organism is inside cells and the immune system is trying to take> out the infected cells in an effort to clear the infection. When the> infection is cleared, the autoimmune symptoms go away. He treats autoimmune> disorders with anti-infectives and has better success than many other> rheumatologists.> > > > How much Vit. D do you supplement with? If I take just 5,000 IU of Vit. D,> my blood levels will start to go down. I need to take at least 10,000 IU to> maintain and up to 15,000 to raise my levels significantly.> > > > Anne M., BSN, MSN/IH, RN> > mcfighter@...> > > > From: BorreliaMultipleInfectionsAndAutism > [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of> Mason Kuhn> Sent: Saturday, December 24, 2011 8:24 AM> To: borreliamultipleinfectionsandautism > Subject: GcMAF> > > > > > > I wanted to pick everyone's brain on this topic. I recently had my wife and> son tested for Nagalase, haven't got the results back yet, but I suspect a> high level since they have always have very low vitamin D levels even though> we use supplements. > > > > Here is my question about GcMAF, some think that Lyme disease can cause a> pathogen induced autoimmune reaction (the Bb bacteria bores into a organ> like the brain and our immune system tries to attack the bacteria, but> mistakenly attacks the organ). Autoimmune diseases are caused by an> overactive immune system, so if Lyme is causing our immune system to attack> itself wouldn't producing more Macrophages make it worse? > > > > Or maybe the theory of a pathogen induced autoimmunity is incorrect, maybe> it's the persistent infection that is causing the dysregulation and high> levels of Nagalase is causing the immune system to not get to those> infections. > > > > What do you guys think? > > > > Thanks > > > > PS- Merry Christmas and Happy Holidays! At the end of the year I sit down> with my wife and we think about all that we are thankful for and this> support group is at the top of my list. I have learned so much from your> posts and have seen my son improve so much with some of your supplement> recommendations. > > thanks!> > > > > > __________ Information from ESET NOD32 Antivirus, version of virus signature> database 6739 (20111224) __________> > The message was checked by ESET NOD32 Antivirus.> > http://www.eset.com> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2011 Report Share Posted December 27, 2011 I think you start low and ramp up and test results determine the duration. dr. U says that the nagalase test results are coming to her in batches.m she will not get any The nagalase test cost $65 + the overnight shipping expenses and is done with Vitamin Diagnostics in NJ. This is how far we are, not sure how much we will need to pay after that for the injections if we start the treatment plan, but from what I have read - most people pay between $600 - $1000 per month for the injections, which are once per week in the arm. I don't know if we will have to order the injections from Europe or hopefully Dr. K's office will have them pre-measured for us. I still don't know if the amount of the GcMAF in the injections is based on weight of the patient or how much off is his nagalase result, does anybody know? Krassi > > > > > > One of my doctors, whom I have high respect for (which is rare), has told me > > > that autoimmunity is caused by intracellular infections. This is where the > > > infectious organism is inside cells and the immune system is trying to take > > > out the infected cells in an effort to clear the infection. When the > > > infection is cleared, the autoimmune symptoms go away. He treats autoimmune > > > disorders with anti-infectives and has better success than many other > > > rheumatologists. > > > > > > > > > > > > How much Vit. D do you supplement with? If I take just 5,000 IU of Vit. D, > > > my blood levels will start to go down. I need to take at least 10,000 IU to > > > maintain and up to 15,000 to raise my levels significantly. > > > > > > > > > > > > Anne M., BSN, MSN/IH, RN > > > > > > mcfighter@ > > > > > > > > > > > > From: BorreliaMultipleInfectionsAndAutism > > > [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of > > > Mason Kuhn > > > Sent: Saturday, December 24, 2011 8:24 AM > > > To: borreliamultipleinfectionsandautism > > > Subject: GcMAF > > > > > > > > > > > > > > > > > > > > > I wanted to pick everyone's brain on this topic. I recently had my wife and > > > son tested for Nagalase, haven't got the results back yet, but I suspect a > > > high level since they have always have very low vitamin D levels even though > > > we use supplements. > > > > > > > > > > > > Here is my question about GcMAF, some think that Lyme disease can cause a > > > pathogen induced autoimmune reaction (the Bb bacteria bores into a organ > > > like the brain and our immune system tries to attack the bacteria, but > > > mistakenly attacks the organ). Autoimmune diseases are caused by an > > > overactive immune system, so if Lyme is causing our immune system to attack > > > itself wouldn't producing more Macrophages make it worse? > > > > > > > > > > > > Or maybe the theory of a pathogen induced autoimmunity is incorrect, maybe > > > it's the persistent infection that is causing the dysregulation and high > > > levels of Nagalase is causing the immune system to not get to those > > > infections. > > > > > > > > > > > > What do you guys think? > > > > > > > > > > > > Thanks > > > > > > > > > > > > PS- Merry Christmas and Happy Holidays! At the end of the year I sit down > > > with my wife and we think about all that we are thankful for and this > > > support group is at the top of my list. I have learned so much from your > > > posts and have seen my son improve so much with some of your supplement > > > recommendations. > > > > > > thanks! > > > > > > > > > > > > > > > > > > __________ Information from ESET NOD32 Antivirus, version of virus signature > > > database 6739 (20111224) __________ > > > > > > The message was checked by ESET NOD32 Antivirus. > > > > > > http://www.eset.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2011 Report Share Posted December 29, 2011 Idman, Do you only need the KMAF? What are the other four remedies you mentioned in your post? Did Dr. K tell you much about the KMAF? I looked it up and there wasn't much information on the Bio Pure website. This does sound very promising. If it does the same thing as the injections this option would be much cheaper and much less tramatic on the kids. Thanks, Mason To: BorreliaMultipleInfectionsAndAutism From: iroble2007@...Date: Thu, 29 Dec 2011 06:02:42 +0000Subject: Re: GcMAF I just came back a visit from DK and he told me to use instead of injection of GCMAF a homeophatic remedy call K.MAF and you can only order a Bio-pure uerope with other four remedies and you can take all together each one five drops and he said to me it works very good better then the injection . I didn't order yet but I will as soon as possible.Happy Holiday all of you and I wish all of us a Good Year.HAPPY NEW YEAR!!!!Idman>> Yes, the general believe is that the immune dsyfunction has allowed all > kinds of pathogens to stock-pile. Therefore, many recommend to treat > all pathogen types (worms, protozoa, bacteria, viruses, yeast, etc.) At > this point, it is not known which is the "thing" that started the immune > system on it's wayward manner. We just know that by the time they have > significant chronic symptoms, they have stockpiled many pathogens and > toxins. I have seen adults with Lyme post on here and YouTube videos > that they got symptoms seen in autism; and recovered individuals from > autism relapse from a vaccine (after recovered) or from going off the > diets and treatments used to gain their recovery. So, we know that the > symptoms wax and wane, which would point to pleomorphic pathogens, but > we still just don't know the specifics. Probably, any of many immune > stressors could cause the downward spiral of the immune system. After > all, the current generation has many different things than the past > generations, less sun, more junk food, more aluminum exposure, BPA > exposure, etc. These things were not present until my teen years, which > is when hyperactivity first started showing up in children. Plus, it > was the 70's when Lyme was supposedly noticed. In addition, the > vaccines have had a lot of changes, such as in what animal/human they > are grown in, and what metals/MSG, etc. that they contain. Also, > electrosmog has really grown. There are many things to blame, and most > seem to need to address several areas to restore their health.> > To add to this maze, I have learned that chelators also inhibit > viruses. Thus, are we getting better because we rid the toxins or are > inhibiting viruses? I have also seen posts where people said they > dumped more metals by treating for Lyme or viruses than by chelating. > This is why each has to struggle to find their recovery journey, which > will vary due to many factors; yet most will still need to address core > issues (inflammation, digestion, immune system off-balance, toxins, > various pathogen types, nutrients, poor circulation through the neck and > brain, etc.)> > Love and prayers,> > Heidi N> > > What if Lyme was/is the root of the problems and the antibiotics and > herbal supplements we have used have either killed the Lyme or at least > got it under control, but the reason he still displays autistic > symptoms, still gets sick frequently, has extremely low vitamin D, and > has huge bags under his eyes is because of the viral infections of HH6 > and Epson Barr.> > Being co-morbid with all these bacteria and viruses could be the reason > why only antibiotics/> herbals don't fully heal our kids and if a person has all these > different problems going on just the GcMAF injections might not be > enough to kill ALL the problems (or maybe they need a lot of injections).> > Thanks for listening to the long random thoughts of a dad and husband of > two Lyme sufferers who so desperately is looking for answers and is > anxiously waiting their Nagalase results.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2011 Report Share Posted December 29, 2011 Byron, this is all the info for the homeopathics. They do not list ingredients on site. LMK if you want me to call to find out. Can you help me order the zeolite? Re: GcMAF , All homeopathics are on the BioPure Europe web site. Here is the link to the K.MAF: http://www.biopure.eu/usa/products/homeo-k/homeo-kmaf-50ml.php and on the same web site are other homeopathics you can order as well: http://www.biopure.eu/usa/products/homeo-k/index.php > > Idman, > > Can you please post how to order the K.MAF homeopathic remedy. I can't find it online. > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
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