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Patient POV <http://www.patientpov.org/>

<http://www.patientpov.org/?feed=rss>

Just because nobody exactly asked doesn't mean that you don't have

something worth listening to.

Posted by Newman <http://www.patientpov.org/author/> on March

29, 2011

<http://www.patientpov.org/a-declaration-of-purpose/listening-to-patients-voices\

-from-the-underground>

You don’t have to look very far to find patients who feel nobody is

listening to them these days, even though there is a robust patient

empowerment and support community. Yet a wealth of stories are not being

told because they may not mesh with the agenda of advocacy or health

reform groups. That’s where Patient POV, for point of view, comes in. I

plan to solicit stories from patients who feel that they are not being

heard. They may have simmering inside them perspectives on what’s

lacking in health care that might hint at how it could be better. Many

patients may have helpful suggestions about how healthcare could be

reconfigured to make it more responsive to their needs and help other

patients like them. Families and caregivers also have plenty to say.

Where have I heard this before?

Rick

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