Jump to content
RemedySpot.com

Re: Central sensitization

Rate this topic


Guest guest

Recommended Posts

Guest guest

I was unofficially told this back when they thought it was my lumbar area that

was the problem and found nothing. I knew that there was more going on than what

they were looking at and eventually it turned out my issue was in the thoracic

area.

Sent via BlackBerry by AT & T

Central sensitization

Hi Everyone...

Has anyone been told that a part of their ongoing pain issue is Central

sensitization?? Basically your brain sending pain signals?

I am stuck in crazy limbo diagnosis- Central sensitization, fibro (due to

multiple points and eye/noise pain) and myofascial pain syndrome.

I do find the idea that our bodies are abnormally conditioned to " act " like they

are in pain to be very interesting.

Has anyone been told this, and being treated for this?

Link to comment
Share on other sites

Guest guest

That's why those that have pain in areas that are not hurt (legs, buttocks,

groin, feet, and even the back) have pain (me included). The brain/spinal cord

sends pain signals even though there's nothing to cause pain in those areas - we

haven't burned ourselves, we do not have leg injuries, etc.

Kathy

Central sensitization

Hi Everyone...

Has anyone been told that a part of their ongoing pain issue is Central

sensitization?? Basically your brain sending pain signals?

I am stuck in crazy limbo diagnosis- Central sensitization, fibro (due to

multiple points and eye/noise pain) and myofascial pain syndrome.

I do find the idea that our bodies are abnormally conditioned to " act " like

they are in pain to be very interesting.

Has anyone been told this, and being treated for this?

Link to comment
Share on other sites

Guest guest

What would be the treatment for this?? Thats the question. Because when you

spend all weekend on the couch and your biggest goal is washing your hair...

there is a problem. 

Subject: Re: Central sensitization

To: tetheredspinalcord

Date: Monday, April 11, 2011, 7:10 AM

 

That's why those that have pain in areas that are not hurt (legs,

buttocks, groin, feet, and even the back) have pain (me included). The

brain/spinal cord sends pain signals even though there's nothing to cause pain

in those areas - we haven't burned ourselves, we do not have leg injuries, etc.

Kathy

Central sensitization

Hi Everyone...

Has anyone been told that a part of their ongoing pain issue is Central

sensitization?? Basically your brain sending pain signals?

I am stuck in crazy limbo diagnosis- Central sensitization, fibro (due to

multiple points and eye/noise pain) and myofascial pain syndrome.

I do find the idea that our bodies are abnormally conditioned to " act " like

they are in pain to be very interesting.

Has anyone been told this, and being treated for this?

Link to comment
Share on other sites

Guest guest

Yep, it is a problem. For me, the doctors call it neuropathic pain with two

other terms that I can't recall but they involve the type of nerves involved in

producing the pain signals. I've been told I have RSD and a host of other dx's,

but it all comes down to nerves firing pain signals to areas that do not have

injury. They over-fire and over-fire causing a vicious circle. It's what most

of us deal with.

There is a theory that the longer this goes untreated, the harder it becomes to

treat so early intervention not only will help with the pain, but will help in

the long run. I think patients become impatient though and don't give meds a

good chance of working, sometimes patients are non-compliant with the dosing and

others don't stick with the doctor long enough for him/her to try all tricks

they have. It sometimes takes a while for a med to work and then there are

times when you have to have a host of meds to get help. Stick with it, give

things time to work, and remember, there is not a simple fix to this problem.

There are many meds that help control this pain from narcotics to

antidepressants to antiseizure meds along with meditation, biofeedback and

certain exercises.

I think because this type of pain is what we all deal with, it's sort of a

" don't need a hundred names for it - just give me something to control it " .

Kathy

Central sensitization

Hi Everyone...

Has anyone been told that a part of their ongoing pain issue is Central

sensitization?? Basically your brain sending pain signals?

I am stuck in crazy limbo diagnosis- Central sensitization, fibro (due to

multiple points and eye/noise pain) and myofascial pain syndrome.

I do find the idea that our bodies are abnormally conditioned to " act " like

they are in pain to be very interesting.

Has anyone been told this, and being treated for this?

Link to comment
Share on other sites

Guest guest

Interesting.

I am on all except antidepressants. I have to say the narcotics are NOT doing

their job, I think I made a HUGE mistake by going to this crazy massage that

was basically trying to get knots out so harshly he probably caused more pain!

I am starting a new PT program so hopefully it will help. Very annoyed. 

Subject: Re: Central sensitization

To: tetheredspinalcord

Date: Monday, April 11, 2011, 7:10 AM

That's why those that have pain in areas that are not hurt (legs, buttocks,

groin, feet, and even the back) have pain (me included). The brain/spinal cord

sends pain signals even though there's nothing to cause pain in those areas - we

haven't burned ourselves, we do not have leg injuries, etc.

Kathy

Central sensitization

Hi Everyone...

Has anyone been told that a part of their ongoing pain issue is Central

sensitization?? Basically your brain sending pain signals?

I am stuck in crazy limbo diagnosis- Central sensitization, fibro (due to

multiple points and eye/noise pain) and myofascial pain syndrome.

I do find the idea that our bodies are abnormally conditioned to " act " like they

are in pain to be very interesting.

Has anyone been told this, and being treated for this?

Link to comment
Share on other sites

Guest guest

I'll be honest , treating the pain that comes from the tether is not easy

and takes a ton of patience and most of the time, lots of time put in by you and

your team/doctor.

Frustration comes easily because basically your life is on hold why you/they

find a treatment that works. However, I cannot emphasize enough that a good

relationship with your doctor is going to be key along with compliance and

willingness to try different meds. It's not up the doctor totally to make a

good relationship - it takes two to tango sometimes. The better relationship

you have with the prescribing doctor, the better life will be. If you find that

can't get along with the doctor - dump him/her and find another.

This does take tons of patience and staying with a doctor/team that is willing

to help you. I've seen people jump from doctor to doctor because one didn't fix

things during the first round or the person didn't like the dx - whatever - but

the key is being open, using common sense, knowing when you have a doctor that

is not going to work/will work, and sticking with a plan and affording yourself

patience.

It's a long road, but you'll get there -

Kathy

Central sensitization

Hi Everyone...

Has anyone been told that a part of their ongoing pain issue is Central

sensitization?? Basically your brain sending pain signals?

I am stuck in crazy limbo diagnosis- Central sensitization, fibro (due to

multiple points and eye/noise pain) and myofascial pain syndrome.

I do find the idea that our bodies are abnormally conditioned to " act " like

they are in pain to be very interesting.

Has anyone been told this, and being treated for this?

Link to comment
Share on other sites

Guest guest

I see her tomorrow. I do think she is great, but she has seriously overlooked

that this has been brewing for a long time. Although I don't blame her, I

overlooked it too and spent thousands of $ going to massage therapists since

last September.

I hope this time her and I can sit down and make some changes. It is really

impacting how my life is going, and I don't want to continue in this direction

any longer. Getting up and going to bed in pain/unhappy/depressed is no way to

live, especially when there are options available. 

Subject: Re: Central sensitization

To: tetheredspinalcord

Date: Monday, April 11, 2011, 7:10 AM

That's why those that have pain in areas that are not hurt (legs, buttocks,

groin, feet, and even the back) have pain (me included). The brain/spinal cord

sends pain signals even though there's nothing to cause pain in those areas - we

haven't burned ourselves, we do not have leg injuries, etc.

Kathy

Central sensitization

Hi Everyone...

Has anyone been told that a part of their ongoing pain issue is Central

sensitization?? Basically your brain sending pain signals?

I am stuck in crazy limbo diagnosis- Central sensitization, fibro (due to

multiple points and eye/noise pain) and myofascial pain syndrome.

I do find the idea that our bodies are abnormally conditioned to " act " like they

are in pain to be very interesting.

Has anyone been told this, and being treated for this?

Link to comment
Share on other sites

Guest guest

I havent been told or treated for it but it makes sense to me. The body can only

take so much. I know that I have a lot of pain in areas that there is absolutely

nothing wrong with so ??? Obviously my brain or spinal cord just isnt

processing

things right. The other day (for a couple of days) there was this one pinpoint

spot just inside my nose that was " buzzing " . I get those buzzes from the waist

down a lot but never higher so who knows. My CNS is just screwed. I dont

remember the article precisely but I read once that chronic pain actually alters

the gray matter in the brain. Maybe that has something to do with it, or just

spinal cord damage from being tethered so long. Seems like the Fibro, MPS and CS

are all part of each other.

________________________________

To: Tetheredspinalcord <tetheredspinalcord >

Sent: Sun, April 10, 2011 8:50:16 PM

Subject: Central sensitization

 

Hi Everyone...

Has anyone been told that a part of their ongoing pain issue is Central

sensitization?? Basically your brain sending pain signals?

I am stuck in crazy limbo diagnosis- Central sensitization, fibro (due to

multiple points and eye/noise pain) and myofascial pain syndrome.

I do find the idea that our bodies are abnormally conditioned to " act " like they

are in pain to be very interesting.

Has anyone been told this, and being treated for this?

Link to comment
Share on other sites

Guest guest

EMG came out perfect. But I was told here, and by my NSG that it's not the most

reliable test.I know my leg pain is very much electrical, and I have trouble

walking on my right leg. 

Subject: Re: Central sensitization

To: tetheredspinalcord

Date: Monday, April 11, 2011, 11:11 AM

 

,

Not sure if this would apply but, have you done an EMG? Curious what they would

find if they did a nerve conductivity test.

Sent via BlackBerry by AT & T

Central sensitization

 

Hi Everyone...

Has anyone been told that a part of their ongoing pain issue is Central

sensitization?? Basically your brain sending pain signals?

I am stuck in crazy limbo diagnosis- Central sensitization, fibro (due to

multiple points and eye/noise pain) and myofascial pain syndrome.

I do find the idea that our bodies are abnormally conditioned to " act " like they

are in pain to be very interesting.

Has anyone been told this, and being treated for this?

Link to comment
Share on other sites

Guest guest

,

Not sure if this would apply but, have you done an EMG? Curious what they would

find if they did a nerve conductivity test.

Sent via BlackBerry by AT & T

Central sensitization

 

Hi Everyone...

Has anyone been told that a part of their ongoing pain issue is Central

sensitization?? Basically your brain sending pain signals?

I am stuck in crazy limbo diagnosis- Central sensitization, fibro (due to

multiple points and eye/noise pain) and myofascial pain syndrome.

I do find the idea that our bodies are abnormally conditioned to " act " like they

are in pain to be very interesting.

Has anyone been told this, and being treated for this?

Link to comment
Share on other sites

Guest guest

Too my knowledge there is no treatment for it. That is why chronic pain is

debilitating. But you just have to learn to live with it, finding whatever helps

to get as much " normalcy " as possible whether thats meds, meditation, whatever.

This is why people take the antidepressant line of drugs to try to alter the

chemistry in the body which sends these signals out. There is no way to " fix "

it...although evidently some people are going to Germany and being put into

Ketamine comas for a week to reset their CNS. This is something that some PN

doctors recognize and that is why some of them keep their patients on an

epidural pain pump for awhile after surgery to reset the CNS. I have also heard

that they do this with amputations and it can help prevent phantom pain

(although had never heard of ketamine being used until recently) 

________________________________

To: tetheredspinalcord

Sent: Mon, April 11, 2011 8:44:36 AM

Subject: Re: Central sensitization

 

What would be the treatment for this?? Thats the question. Because when you

spend all weekend on the couch and your biggest goal is washing your hair...

there is a problem. 

Subject: Re: Central sensitization

To: tetheredspinalcord

Date: Monday, April 11, 2011, 7:10 AM

 

That's why those that have pain in areas that are not hurt (legs, buttocks,

groin, feet, and even the back) have pain (me included). The brain/spinal cord

sends pain signals even though there's nothing to cause pain in those areas - we

haven't burned ourselves, we do not have leg injuries, etc.

Kathy

Central sensitization

Hi Everyone...

Has anyone been told that a part of their ongoing pain issue is Central

sensitization?? Basically your brain sending pain signals?

I am stuck in crazy limbo diagnosis- Central sensitization, fibro (due to

multiple points and eye/noise pain) and myofascial pain syndrome.

I do find the idea that our bodies are abnormally conditioned to " act " like they

are in pain to be very interesting.

Has anyone been told this, and being treated for this?

Link to comment
Share on other sites

Guest guest

Oh wow! That is very interesting. Now I don't know if I told you this but Dr.

Frim said no more epidurals for me. I have no space in my lower back, only mid.

I wonder how this will work when I have a child! O.O

I guess that would make total sense. Almost like in MS/cancer where they try to

reset the cells/neurons... 

My major concern is having children in the next 2 years or so. Nevermind this

wedding we are planning for. I really need to get some answers ASAP.

I am just wondering how I bring all of this up to her and have this addressed. I

am sad we let it get this far.  Have been spending a lot of time in pain and

feeling sorry for myself. More than when I was DX with TC.I would like to not

lose my job etc. and get working on trying to fix this. I am up for anything at

this point. If the ketamine had a 50% chance of working I would take some

vacation time LOL 

Subject: Re: Central sensitization

To: tetheredspinalcord

Date: Monday, April 11, 2011, 7:10 AM

 

That's why those that have pain in areas that are not hurt (legs, buttocks,

groin, feet, and even the back) have pain (me included). The brain/spinal cord

sends pain signals even though there's nothing to cause pain in those areas - we

haven't burned ourselves, we do not have leg injuries, etc.

Kathy

Central sensitization

Hi Everyone...

Has anyone been told that a part of their ongoing pain issue is Central

sensitization?? Basically your brain sending pain signals?

I am stuck in crazy limbo diagnosis- Central sensitization, fibro (due to

multiple points and eye/noise pain) and myofascial pain syndrome.

I do find the idea that our bodies are abnormally conditioned to " act " like they

are in pain to be very interesting.

Has anyone been told this, and being treated for this?

Link to comment
Share on other sites

Guest guest

If I'm not mistaken, aren't EMGs notoriously inconsistent when diagnosing

damaged muscles/nerves with TC. I know there have been a lot of people to

pass through the list that had obvious functional deficits with a normal

EMG. I've never had one, but have read a lot of people who have had them

with obvious deficits and the results were normal.

Jenn

>

>

> ,

>

> Not sure if this would apply but, have you done an EMG? Curious what they

> would find if they did a nerve conductivity test.

>

>

> Sent via BlackBerry by AT & T

>

>

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...