Re: (tsc)migraine with orgasm/pain tolerance

March 6, 2011

I understand, neck surgery is very frightening! I'm glad it went well and helped

her though! Unfortunately, I do not have a doc that is working with me on this

particular thing. I was without insurance forever and once I got it, I had so

many other pressing things to take care of. Once I get out to CO, I am going to

try to find a good Neurosurgeon to hook up with As for pain, yes, I have a

very high tolerance. I walked (if youÂ could call it that)Â with a broken pelvis

for four days before going to the hospital. It comes from years and years of

being in pain as a child (from TC, broken bones etc) and being told to " be

quiet, its growing pains! " Â It really wasn't their fault, no one had a clue how

much pain I was in as I have always been very stoic. When I was 2 or 3, I tried

to drink Drano. When it started burning my lips I spit it out (thankfully) and

wiped it down on my chest and across my face. My uncle was babysitting but he

had fallen asleep on

the floor watchng tv. The acid was literally eating my skin away but rather

than go to him to wake him up, I ran down the hall, fell in bed and quietly

cried myself to sleep. My Grandmother came home at about 3am from work and found

me with half my face gone and a hole in my chest. Then, I was in so many

accidents, broken bones...they all thought I was just accident prone,

clutsy...now looking back all those falls were probably due to leg weakness,

" short circuits " etc, not sure why the bones broke so easy. Once I had a cast on

both feet/legs to the knee, a cast on one arm and a sling on the other from all

different accidents. I have no idea why my parents werent investigated for child

abuse!! LOL I also have no idea why I have never had a bone scan. But, I want to

say, this pain tolerance/stoicness is not a good quality to have. Regardless of

if I complain of pain or let others know I'm in pain, " I " still feel it and my

body holds all that. Having a

high tolerance just means I keep my mouth shut, it doesnt mean it doesnt hurt

me as bad as the next. Its not good. For all you Moms out there, listen to your

kids, and encourage them to let you know how their feeling, good and bad Â

Subject: Re: Just curious...anyone else get migraine with orgasm?

To: tetheredspinalcord

Date: Saturday, March 5, 2011, 7:15 PM

Hi ,

My daughter has tsc, chiari, and cranial instability. You describe what sounds

like dynamic instability. Certain head positions seem to trigger the migraine?

The instability has irritates the brainstem from the bony elements in

C-1 and C-2. Her symptoms are different than yours, but she is only 14 :-)

I hope you are able to find answers soon. Best wishes,

's mom

Just curious...anyone else get migraine with orgasm?

Cant remember if we discussed this or not....I dont think so. Not always but

occasionally when I orgasm I get a migraine immediately. I can feel the headache

coming on as the orgasm builds and if I stop sometimes it will ease back off.

Sometimes its too late at that point. If I continue to the end when that is

happening it is a major event. The first time it happened it lasted for several

days and I eventually wound up going to the ER when I realized my BP was

230/118. They thought I was stroking out and that cost me over $10,000 so I dont

go to ER anymore. I don't know if it is just my neck (fractured C5 & 6, lots of

arthritis)or if it is TC related, so thought I would ask if anyone else has it.

It does seem to be positional. If I have my head " forward " it does it every time

so I have to be very conscious of how I hold my head (just what I want to be

concentrating on LOL) My cervical MRI was viewed by a Chiari doc and he said I

didn't have it and I do not

think I am tethered right now. Ideas?

March 6, 2011

, are you moving to CO? I've heard Dr. Oro is a fantastic NS, and I

even considered traveling to see him if I couldn't get in to Dr. Green in Miami.

Patty

March 6, 2011

Iâ€™ve studied energy and the energy body extensively for the past 4 1/2 years.

Might I suggest one possibility, based on my research.

Most cultures have some sort of understanding and explanation of energy in the

body.

India â€“ Chakraâ€™s Prana

Orient â€“ Qi

Even the Mayan tradition has itâ€™s form.

According to some of these philosophiesâ€¦ orgasm is the extreme movement of

energy. The senses get overloaded and the surge of energy creates the orgasm.

This surge of energy can be healing as well as just feel real good. In the

female, this surge of energy is cleansing and helps balance the energy body.

Itâ€™s almost like a reboot of the brain, especially if multiple orgasms occur.

Stress is the number one cause of imbalance.

Voicing/sounding is a practice by the ancient folk of India during such energy

movement.

If when this surge of energy leaves the lower body and is traveling upwardsâ€¦

and it does not have a way to move out of the body, it can indeed create

migraines. Any high energy can do this.

My suggestionâ€¦ to see if this explanation is true for youâ€¦. Scream your head

off! LET IT RIP! If you feel something, anything, give it a soundâ€¦ whatever

your feeling, assign a sound to it, and express. Ieâ€¦ when harry met sallyâ€¦

It will move the energy out of the body and it will increase the pleasure level

to new heights. Plus it will blow your lovers mind. J

If privacy is a concern, grab a pillow and hold over your own mouthâ€¦ it will

suppress most of the volume.

Side note:

There are Energy Healers out thereâ€¦ some extremely talented, in helping move

energy through the body and releasing. Another option would be to find one and

see them when you have one of these types of headaches. See if they can shift

it.

From my experience, I have shifted migraines brought on by intense energy. I

utilize a computer as well as hands on techniques.

So farâ€¦ with my clients, Iâ€™ve not met a migraine I cannot shift within 20

mins, completely release it in under an hour.

Anyone interested in learning more, let me know, I can suggest several books.

For those of you who like to research the web, look up energy medicine.

jc