Re: Scale (pain.pdf)

January 13, 2011

I made a pdf-file of it

I saw it , Realy usefull site for us too

ore as zip file:

1 file : painlist.pdf

I wish your daughter all the best, so sorry she is going through so much, I

hope that the facility she goes to has a great program for her.

All the best,

Subject: Scale

Date: Wednesday, January 12, 2011, 7:30 PM

My daughter (28) is in the hospital now trying to get her pain under

control. Her 4th detethering surgery was 2 years ago and she has not bounced

back since. Her pain has not been controlled. We have seen three different

pain management people and none of them have worked out. The first had her

so doped up all she did was sleep. We are now on the 3rd and she moved so

slow that Beth has begun a downward spiral. Duke believes is related to

inactivity. Not sure I agree with that. She has lost a lot of tone in her

legs and feet, to the point of literally just draggin them. She went from

walking unassisted in Oct. to walking with a cane, to a walker, to mainly a

wheelchair now. All in just a couple of months. She is now having some

bladder issues. They are trying to get her pain better managed then move her

to a rehab facility for some inpatient rehab.

I am just wondering how you guys feel about the pain scale. The Dr.s and

nurses come in and ask her about her pain, when she tells them sometimes

they question her like they don't believe that hse is in that much pain. To

be honest, I have questioned her myself. I have seen her when her pain was

without doubt a 10, heart racing, sweating bullets, BP high. But, I have

also seen her say 10 around a mouthfull of pizza. When questioned she says

that it's different pain. The throbbing causes her to sweat and have high

rates, the shocks are equally as painful but don't cause her to react the

same way. It's so hard to know.

I don't want to question her and I don't want them looking at us like we are

abusing things. Somtimes they even make negative notes in her charts about

it. What are some of your experiences or ideas on this?

Livvie

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