Re: Doctors (OMG) Ridiculous!!!

[Guest guest]

I hear you. I am on my way to see a NS right now that my insurance claims knows

and has dealt with TC. I set my expectations low on this one.

Sent via BlackBerry by AT & T

Doctors (OMG) Ridiculous!!!

So I was very excited about my doctor appointment yesterday, I was hoping they

could do some serious trigger point injections and determine if they would help

me (along with PT)

The doctor had no idea what myofascial pain syndrome was, no idea what a " knot "

was, no idea what TC was... and no idea how and why he should do the trigger

point injections. Are you kidding me?!!!

I spent about 40 min in there and I honestly ended up telling him off. He had

the nerve to tell me that I should stop my " Polish " massage (I go

to Chinese massage), then NOT to do PT... but focus on acupuncture!!!! Oh and

get off my pain meds... then he was asking me if I have a drinking problem!!!!

Mind you he had a depressions screening (I answered yes to everything) and he

never even mentioned that.

Anyway I told him I am happy to try the trigger point injections and mail him a

nice letter with my diagnosis and result, and just like with TC it looks like

this will be the PATIENT doing all the work. I was that mad.

Of course then I got in my car and balled my eyes out. I am planning on calling

there today and asking if they set me up with the wrong physician? They

advertise that they treat this, but also have a walk in clinic. Maybe someone

screwed up?

Regardless I placed a call to my doc, and a new clinic to set something up. BUT

SERIOUSLY?? Totally ridiculous. 

[Guest guest]

Good luck ! I know, it's SAD that we have these expectations... 

Subject: Re: Doctors (OMG) Ridiculous!!!

To: tetheredspinalcord

Date: Wednesday, March 30, 2011, 10:13 AM

I hear you. I am on my way to see a NS right now that my insurance claims knows

and has dealt with TC. I set my expectations low on this one.

Sent via BlackBerry by AT & T

Doctors (OMG) Ridiculous!!!

So I was very excited about my doctor appointment yesterday, I was hoping they

could do some serious trigger point injections and determine if they would help

me (along with PT)

The doctor had no idea what myofascial pain syndrome was, no idea what a " knot "

was, no idea what TC was... and no idea how and why he should do the trigger

point injections. Are you kidding me?!!!

I spent about 40 min in there and I honestly ended up telling him off. He had

the nerve to tell me that I should stop my " Polish " massage (I go

to Chinese massage), then NOT to do PT... but focus on acupuncture!!!! Oh and

get off my pain meds... then he was asking me if I have a drinking problem!!!!

Mind you he had a depressions screening (I answered yes to everything) and he

never even mentioned that.

Anyway I told him I am happy to try the trigger point injections and mail him a

nice letter with my diagnosis and result, and just like with TC it looks like

this will be the PATIENT doing all the work. I was that mad.

Of course then I got in my car and balled my eyes out. I am planning on calling

there today and asking if they set me up with the wrong physician? They

advertise that they treat this, but also have a walk in clinic. Maybe someone

screwed up?

Regardless I placed a call to my doc, and a new clinic to set something up. BUT

SERIOUSLY?? Totally ridiculous. 

[Guest guest]

At least you won't be disappointed then...

I find that most people (MDs & therapists included, but especially insurance

companies) have very different definitions of " experienced " with TC than I

(and most people on this list) do. My first nsg said I was lucky to have

found someone so " experienced " in treating TC. He had done 12 surgeries!!!

He had even done an initial surgery on an adult with diastematomyelia

before. He stressed how rare this was and that most MDs will never even see

it in their entire career, so I was SO fortunate to have found someone with

so much experience. Couple that with knowing he was a very talented

neurosurgeon and the big list of possibilities if I didn't have the surgery

and I did it. Never got a second opinion (besides, a neurologist had told

me there wasn't anything he could do and I needed to see a neurosurgeon and

I knew he was a great neurologist). I wonder what Frim, Fuchs or even my

second (pedi) nsg would say about how " experienced " he was with his 12

cases????

I have been referred to PT so many times. My insurance company loves to send

me to their covered places. I have had some places the openly refused to

see me, saying they had no experience treating people with NTDs and didn't

feel comfortable (I respect those clinics that can admit when they don't

have the expertise and refer a patient elsewhere), but the insurance

company's definition is ... I don't even know... Best way --- if you are a

PT then you can treat someone with NTD b/c I'm sure you read about it once

in PT school.

Geezsh.

Jenn

> I hear you. I am on my way to see a NS right now that my insurance claims

> knows and has dealt with TC. I set my expectations low on this one.

>

>

> Sent via BlackBerry by AT & T

>

[Guest guest]

Hi ,

To back up just a bit - how did you end up with an appt. with this doctor? What

is his specialty?

Kathy

Doctors (OMG) Ridiculous!!!

So I was very excited about my doctor appointment yesterday, I was hoping they

could do some serious trigger point injections and determine if they would help

me (along with PT)

The doctor had no idea what myofascial pain syndrome was, no idea what a

" knot " was, no idea what TC was... and no idea how and why he should do the

trigger point injections. Are you kidding me?!!!

I spent about 40 min in there and I honestly ended up telling him off. He had

the nerve to tell me that I should stop my " Polish " massage (I go to Chinese

massage), then NOT to do PT... but focus on acupuncture!!!! Oh and get off my

pain meds... then he was asking me if I have a drinking problem!!!! Mind you he

had a depressions screening (I answered yes to everything) and he never even

mentioned that.

Anyway I told him I am happy to try the trigger point injections and mail him

a nice letter with my diagnosis and result, and just like with TC it looks like

this will be the PATIENT doing all the work. I was that mad.

Of course then I got in my car and balled my eyes out. I am planning on

calling there today and asking if they set me up with the wrong physician? They

advertise that they treat this, but also have a walk in clinic. Maybe someone

screwed up?

Regardless I placed a call to my doc, and a new clinic to set something up.

BUT SERIOUSLY?? Totally ridiculous.

[Guest guest]

Well they wanted me to go to U of Chicago, but the wait is 3 months +, Dr. Frim

tried to get me in but they are swamped.I am having major issues at work and

can't take any more time off.

So I ran this place by Dr. Frim and my PCP, and scheduled an appointment.

When I called I specifically asked for these injections and spoke with a nurse

to make sure they treat this.

And so I went. He is certified in pain management. 

Subject: Re: Doctors (OMG) Ridiculous!!!

To: tetheredspinalcord

Date: Wednesday, March 30, 2011, 10:13 AM

I hear you. I am on my way to see a NS right now that my insurance claims knows

and has dealt with TC. I set my expectations low on this one.

Sent via BlackBerry by AT & T

Doctors (OMG) Ridiculous!!!

So I was very excited about my doctor appointment yesterday, I was hoping they

could do some serious trigger point injections and determine if they would help

me (along with PT)

The doctor had no idea what myofascial pain syndrome was, no idea what a

" knot " was, no idea what TC was... and no idea how and why he should do the

trigger point injections. Are you kidding me?!!!

I spent about 40 min in there and I honestly ended up telling him off. He had

the nerve to tell me that I should stop my " Polish " massage (I go to Chinese

massage), then NOT to do PT... but focus on acupuncture!!!! Oh and get off my

pain meds... then he was asking me if I have a drinking problem!!!! Mind you he

had a depressions screening (I answered yes to everything) and he never even

mentioned that.

Anyway I told him I am happy to try the trigger point injections and mail him

a nice letter with my diagnosis and result, and just like with TC it looks like

this will be the PATIENT doing all the work. I was that mad.

Of course then I got in my car and balled my eyes out. I am planning on

calling there today and asking if they set me up with the wrong physician? They

advertise that they treat this, but also have a walk in clinic. Maybe someone

screwed up?

Regardless I placed a call to my doc, and a new clinic to set something up.

BUT SERIOUSLY?? Totally ridiculous.

[Guest guest]

Yeah...you think he would mind if I did a word for word transcription email

while talking to him in his office or maybe I should do play by play tweets

instead? LOL.

Sent via BlackBerry by AT & T

Re: Doctors (OMG) Ridiculous!!!

At least you won't be disappointed then...

I find that most people (MDs & therapists included, but especially insurance

companies) have very different definitions of " experienced " with TC than I

(and most people on this list) do. My first nsg said I was lucky to have

found someone so " experienced " in treating TC. He had done 12 surgeries!!!

He had even done an initial surgery on an adult with diastematomyelia

before. He stressed how rare this was and that most MDs will never even see

it in their entire career, so I was SO fortunate to have found someone with

so much experience. Couple that with knowing he was a very talented

neurosurgeon and the big list of possibilities if I didn't have the surgery

and I did it. Never got a second opinion (besides, a neurologist had told

me there wasn't anything he could do and I needed to see a neurosurgeon and

I knew he was a great neurologist). I wonder what Frim, Fuchs or even my

second (pedi) nsg would say about how " experienced " he was with his 12

cases????

I have been referred to PT so many times. My insurance company loves to send

me to their covered places. I have had some places the openly refused to

see me, saying they had no experience treating people with NTDs and didn't

feel comfortable (I respect those clinics that can admit when they don't

have the expertise and refer a patient elsewhere), but the insurance

company's definition is ... I don't even know... Best way --- if you are a

PT then you can treat someone with NTD b/c I'm sure you read about it once

in PT school.

Geezsh.

Jenn

> I hear you. I am on my way to see a NS right now that my insurance claims

> knows and has dealt with TC. I set my expectations low on this one.

>

>

> Sent via BlackBerry by AT & T

>

[Guest guest]

My appointment went as much as expected. Looked over my stuff but really didn't

see anything that could be done. Never mentioned TSC until I brought it up, but

had very little to say about it. Good bedside manner though. Just wish I didn't

have to pay $40 co-pay.

Sent my stuff to Dr. Frim 2 weeks ago, so waiting to hear what he says.

Sent via BlackBerry by AT & T

Doctors (OMG) Ridiculous!!!

So I was very excited about my doctor appointment yesterday, I was hoping they

could do some serious trigger point injections and determine if they would help

me (along with PT)

The doctor had no idea what myofascial pain syndrome was, no idea what a

" knot " was, no idea what TC was... and no idea how and why he should do the

trigger point injections. Are you kidding me?!!!

I spent about 40 min in there and I honestly ended up telling him off. He had

the nerve to tell me that I should stop my " Polish " massage (I go to Chinese

massage), then NOT to do PT... but focus on acupuncture!!!! Oh and get off my

pain meds... then he was asking me if I have a drinking problem!!!! Mind you he

had a depressions screening (I answered yes to everything) and he never even

mentioned that.

Anyway I told him I am happy to try the trigger point injections and mail him

a nice letter with my diagnosis and result, and just like with TC it looks like

this will be the PATIENT doing all the work. I was that mad.

Of course then I got in my car and balled my eyes out. I am planning on

calling there today and asking if they set me up with the wrong physician? They

advertise that they treat this, but also have a walk in clinic. Maybe someone

screwed up?

Regardless I placed a call to my doc, and a new clinic to set something up.

BUT SERIOUSLY?? Totally ridiculous.

[Guest guest]

Oh NO!! SIGH...I know you were soooooo looking forward to getting some relief

now that you have a dx! Well, hopefully you can get into someone else SOON!

________________________________

To: Tetheredspinalcord <tetheredspinalcord >

Sent: Wed, March 30, 2011 9:16:49 AM

Subject: Doctors (OMG) Ridiculous!!!

 

So I was very excited about my doctor appointment yesterday, I was hoping they

could do some serious trigger point injections and determine if they would help

me (along with PT)

The doctor had no idea what myofascial pain syndrome was, no idea what a " knot "

was, no idea what TC was... and no idea how and why he should do the trigger

point injections. Are you kidding me?!!!

I spent about 40 min in there and I honestly ended up telling him off. He had

the nerve to tell me that I should stop my " Polish " massage (I go

to Chinese massage), then NOT to do PT... but focus on acupuncture!!!! Oh and

get off my pain meds... then he was asking me if I have a drinking problem!!!!

Mind you he had a depressions screening (I answered yes to everything) and he

never even mentioned that.

Anyway I told him I am happy to try the trigger point injections and mail him a

nice letter with my diagnosis and result, and just like with TC it looks like

this will be the PATIENT doing all the work. I was that mad.

Of course then I got in my car and balled my eyes out. I am planning on calling

there today and asking if they set me up with the wrong physician? They

advertise that they treat this, but also have a walk in clinic. Maybe someone

screwed up?

Regardless I placed a call to my doc, and a new clinic to set something up. BUT

SERIOUSLY?? Totally ridiculous. 

[Guest guest]

LOLOL 

________________________________

To: tetheredspinalcord

Sent: Wed, March 30, 2011 12:19:01 PM

Subject: Re: Doctors (OMG) Ridiculous!!!

 

Yeah...you think he would mind if I did a word for word transcription email

while talking to him in his office or maybe I should do play by play tweets

instead? LOL.

Sent via BlackBerry by AT & T

Re: Doctors (OMG) Ridiculous!!!

At least you won't be disappointed then...

I find that most people (MDs & therapists included, but especially insurance

companies) have very different definitions of " experienced " with TC than I

(and most people on this list) do. My first nsg said I was lucky to have

found someone so " experienced " in treating TC. He had done 12 surgeries!!!

He had even done an initial surgery on an adult with diastematomyelia

before. He stressed how rare this was and that most MDs will never even see

it in their entire career, so I was SO fortunate to have found someone with

so much experience. Couple that with knowing he was a very talented

neurosurgeon and the big list of possibilities if I didn't have the surgery

and I did it. Never got a second opinion (besides, a neurologist had told

me there wasn't anything he could do and I needed to see a neurosurgeon and

I knew he was a great neurologist). I wonder what Frim, Fuchs or even my

second (pedi) nsg would say about how " experienced " he was with his 12

cases????

I have been referred to PT so many times. My insurance company loves to send

me to their covered places. I have had some places the openly refused to

see me, saying they had no experience treating people with NTDs and didn't

feel comfortable (I respect those clinics that can admit when they don't

have the expertise and refer a patient elsewhere), but the insurance

company's definition is ... I don't even know... Best way --- if you are a

PT then you can treat someone with NTD b/c I'm sure you read about it once

in PT school.

Geezsh.

Jenn

> I hear you. I am on my way to see a NS right now that my insurance claims

> knows and has dealt with TC. I set my expectations low on this one.

>

>

> Sent via BlackBerry by AT & T

>

[Guest guest]

, Dr. Frim didn't get back to you? That is very strange since he e-mails me

with answers to my stupid questions at 2 am!His nurse is

Skiba lskiba@....

Did you e-mail him? Thats very unlike him.

Their front desk staff told me he does not see adult patients, so there may be

some kind of mix up.

Sorry about your appointment

Subject: Re: Doctors (OMG) Ridiculous!!!

To: tetheredspinalcord

Date: Wednesday, March 30, 2011, 10:13 AM

I hear you. I am on my way to see a NS right now that my insurance claims knows

and has dealt with TC. I set my expectations low on this one.

Sent via BlackBerry by AT & T

Doctors (OMG) Ridiculous!!!

So I was very excited about my doctor appointment yesterday, I was hoping they

could do some serious trigger point injections and determine if they would help

me (along with PT)

The doctor had no idea what myofascial pain syndrome was, no idea what a

" knot " was, no idea what TC was... and no idea how and why he should do the

trigger point injections. Are you kidding me?!!!

I spent about 40 min in there and I honestly ended up telling him off. He had

the nerve to tell me that I should stop my " Polish " massage (I go to Chinese

massage), then NOT to do PT... but focus on acupuncture!!!! Oh and get off my

pain meds... then he was asking me if I have a drinking problem!!!! Mind you he

had a depressions screening (I answered yes to everything) and he never even

mentioned that.

Anyway I told him I am happy to try the trigger point injections and mail him

a nice letter with my diagnosis and result, and just like with TC it looks like

this will be the PATIENT doing all the work. I was that mad.

Of course then I got in my car and balled my eyes out. I am planning on

calling there today and asking if they set me up with the wrong physician? They

advertise that they treat this, but also have a walk in clinic. Maybe someone

screwed up?

Regardless I placed a call to my doc, and a new clinic to set something up.

BUT SERIOUSLY?? Totally ridiculous.

[Guest guest]

It has been my experience that the pedi nsg that will see adults, the front

office staff doesn't seem to know about it all the time. I know when I first

found my pedi nsg, I contacted the front office and asked if he saw adult

patients and they said no. Eventually, they transferred me to his RNs voice

mail and she said that he will see some adult patients if he thinks their

case is severe enough that he thinks a regular adult nsg would not be able

to handle the job. I think you're right. The key is getting to that nsg's

RN.

I remember when I would be there for an appt, and would call my name, the

office staff looked at me as if I had 3 heads. Where was my child????

Geezsh.

Jenn

On Wed, Mar 30, 2011 at 4:16 PM, Dybowski wrote:

>

>

> His nurse is Skiba lskiba@....

> Did you e-mail him? Thats very unlike him.

> Their front desk staff told me he does not see adult patients, so there may

> be some kind of mix up.

>

>

>

[Guest guest]

Dr. Frim directed me to contact Postma. She had me send my stuff to her.

Sent via BlackBerry by AT & T

Doctors (OMG) Ridiculous!!!

So I was very excited about my doctor appointment yesterday, I was hoping they

could do some serious trigger point injections and determine if they would help

me (along with PT)

The doctor had no idea what myofascial pain syndrome was, no idea what a

" knot " was, no idea what TC was... and no idea how and why he should do the

trigger point injections. Are you kidding me?!!!

I spent about 40 min in there and I honestly ended up telling him off. He had

the nerve to tell me that I should stop my " Polish " massage (I go to Chinese

massage), then NOT to do PT... but focus on acupuncture!!!! Oh and get off my

pain meds... then he was asking me if I have a drinking problem!!!! Mind you he

had a depressions screening (I answered yes to everything) and he never even

mentioned that.

Anyway I told him I am happy to try the trigger point injections and mail him

a nice letter with my diagnosis and result, and just like with TC it looks like

this will be the PATIENT doing all the work. I was that mad.

Of course then I got in my car and balled my eyes out. I am planning on

calling there today and asking if they set me up with the wrong physician? They

advertise that they treat this, but also have a walk in clinic. Maybe someone

screwed up?

Regardless I placed a call to my doc, and a new clinic to set something up.

BUT SERIOUSLY?? Totally ridiculous.