Re: re tether/ scar tissue - TIME

[Guest guest]

Maybe a stupid question- but how long does it take scar tissue to form? Years?

Months? Does it ever stop forming? 

Subject: Re: re tether/ scar tissue /US treatment

To: tetheredspinalcord

Date: Monday, April 11, 2011, 10:58 AM

 

It is not that the cord gets " restretched " down like it was but the scar

tissue

from the surgery or trauma can sometimes tether it wherever it now is still not

letting it float freely as it should which causes microtraumas as it is pulled

against with activity. 

________________________________

To: tetheredspinalcord

Sent: Sun, April 10, 2011 10:13:00 PM

Subject: Re: re tether/ scar tissue /US treatment

 

Unfortunately, or fortunately, however you see it, they now realize that

Growth Spurts are not the only thing

that causes us to continue to have problems with this Condition. Everyday

life, unfortunately, is what keeps us

having problems due to this Condition.........bending, twisting,

lifting......etc. But we can't stop living. If somebody

can explain this better, please do.

Brande

mymocha@...

I fully understand and agree with your point given that an infant goes

through growing spurts and if there is a re tether or scar tissue the cord

will be stretched again as the child grows and an additional op seems

logical to me. However, I was 47 when I had my first de tether so growth for

me and further stretching of the cord due to this should not be an issue ?

[Guest guest]

Hi ,

Have you done a pubmed or Google search for this question? If you google pubmed

you can join for free and then search for scar tissue formation or what querey

you want to put as the question. I'm not putting you off, but there are

questions that can be answered accurately and more precisely by researching

medical articles.

On a personal level - I was retethered within weeks of each untethering, but I

have no idea if it continues to grow (I hope not!)

Kathy

Re: re tether/ scar tissue /US treatment

Unfortunately, or fortunately, however you see it, they now realize that

Growth Spurts are not the only thing

that causes us to continue to have problems with this Condition. Everyday

life, unfortunately, is what keeps us

having problems due to this Condition.........bending, twisting,

lifting......etc. But we can't stop living. If somebody

can explain this better, please do.

Brande

mymocha@...

I fully understand and agree with your point given that an infant goes

through growing spurts and if there is a re tether or scar tissue the cord

will be stretched again as the child grows and an additional op seems

logical to me. However, I was 47 when I had my first de tether so growth for

me and further stretching of the cord due to this should not be an issue ?

[Guest guest]

Kathy,

Not at all, thank you! I was looking for a resource, everything I have is

scattered all over.

Subject: Re: re tether/ scar tissue /US treatment

To: tetheredspinalcord

Date: Monday, April 11, 2011, 10:58 AM

It is not that the cord gets " restretched " down like it was but the scar tissue

from the surgery or trauma can sometimes tether it wherever it now is still not

letting it float freely as it should which causes microtraumas as it is pulled

against with activity.

________________________________

To: tetheredspinalcord

Sent: Sun, April 10, 2011 10:13:00 PM

Subject: Re: re tether/ scar tissue /US treatment

Unfortunately, or fortunately, however you see it, they now realize that

Growth Spurts are not the only thing

that causes us to continue to have problems with this Condition. Everyday

life, unfortunately, is what keeps us

having problems due to this Condition.........bending, twisting,

lifting......etc. But we can't stop living. If somebody

can explain this better, please do.

Brande

mymocha@...

I fully understand and agree with your point given that an infant goes

through growing spurts and if there is a re tether or scar tissue the cord

will be stretched again as the child grows and an additional op seems

logical to me. However, I was 47 when I had my first de tether so growth for

me and further stretching of the cord due to this should not be an issue ?

[Guest guest]

Scar tissue can form at any time, some people are more prone to it than others.

________________________________

To: tetheredspinalcord

Sent: Mon, April 11, 2011 11:12:35 AM

Subject: Re: re tether/ scar tissue - TIME

 

Maybe a stupid question- but how long does it take scar tissue to form? Years?

Months? Does it ever stop forming? 

Subject: Re: re tether/ scar tissue /US treatment

To: tetheredspinalcord

Date: Monday, April 11, 2011, 10:58 AM

 

It is not that the cord gets " restretched " down like it was but the scar tissue

from the surgery or trauma can sometimes tether it wherever it now is still not

letting it float freely as it should which causes microtraumas as it is pulled

against with activity. 

________________________________

To: tetheredspinalcord

Sent: Sun, April 10, 2011 10:13:00 PM

Subject: Re: re tether/ scar tissue /US treatment

 

Unfortunately, or fortunately, however you see it, they now realize that

Growth Spurts are not the only thing

that causes us to continue to have problems with this Condition. Everyday

life, unfortunately, is what keeps us

having problems due to this Condition.........bending, twisting,

lifting......etc. But we can't stop living. If somebody

can explain this better, please do.

Brande

mymocha@...

I fully understand and agree with your point given that an infant goes

through growing spurts and if there is a re tether or scar tissue the cord

will be stretched again as the child grows and an additional op seems

logical to me. However, I was 47 when I had my first de tether so growth for

me and further stretching of the cord due to this should not be an issue ?

[Guest guest]

Hi ,

It's so hard at first - unfortunately, I can recall the panic I had for months

after the diagnosis and when things started to fall apart. It seemed surreal

.... I was the person who always had things go right and to be one that had the

bad outcome didn't sit well for a long time. You do get to the other side

though and you learn where to look for information, how to bring it up to your

doctor, and how to establish a life around this condition.

Kathy

Re: re tether/ scar tissue /US treatment

Unfortunately, or fortunately, however you see it, they now realize that

Growth Spurts are not the only thing

that causes us to continue to have problems with this Condition. Everyday

life, unfortunately, is what keeps us

having problems due to this Condition.........bending, twisting,

lifting......etc. But we can't stop living. If somebody

can explain this better, please do.

Brande

mymocha@...

I fully understand and agree with your point given that an infant goes

through growing spurts and if there is a re tether or scar tissue the cord

will be stretched again as the child grows and an additional op seems

logical to me. However, I was 47 when I had my first de tether so growth for

me and further stretching of the cord due to this should not be an issue ?

[Guest guest]

Dybowski said the following on 4/11/2011 10:12 AM:

> Maybe a stupid question- but how long does it take scar tissue to form? Years?

Months? Does it ever stop forming?

>

How about " it depends " .

Some people days, others never.

My surgery was Dec 1997, my follow up mri's do not show any scar tissue.

Rick

[Guest guest]

I retethered after my first surgery in June 2010 and had my last surgery in

March. I am feeling better but still suffer with some pain and my left leg and

foot are very week and numb. My bladder also does not function. But overall I

figure these are things I can learn to live with and adapt to if I have to. The

worst part for me is that I had to apply for disability benefits as my doctor's

do not know when or if things will improve to the point that I will ever be able

to work a full time job again. That breaks my heart because I am a mental health

therapist and work with children. I feel like I spent all that time in school

and now I cannot even utilize my degree. TCS is a life changing event and we

have to find a way to live with it and find happiness.

To: tetheredspinalcord

From: kmoulton@...

Date: Mon, 11 Apr 2011 12:53:04 -0400

Subject: Re: re tether/ scar tissue - TIME

Hi ,

It's so hard at first - unfortunately, I can recall the panic I had for months

after the diagnosis and when things started to fall apart. It seemed surreal

.... I was the person who always had things go right and to be one that had the

bad outcome didn't sit well for a long time. You do get to the other side

though and you learn where to look for information, how to bring it up to your

doctor, and how to establish a life around this condition.

Kathy

Re: re tether/ scar tissue /US treatment

Unfortunately, or fortunately, however you see it, they now realize that

Growth Spurts are not the only thing

that causes us to continue to have problems with this Condition. Everyday

life, unfortunately, is what keeps us

having problems due to this Condition.........bending, twisting,

lifting......etc. But we can't stop living. If somebody

can explain this better, please do.

Brande

mymocha@...

I fully understand and agree with your point given that an infant goes

through growing spurts and if there is a re tether or scar tissue the cord

will be stretched again as the child grows and an additional op seems

logical to me. However, I was 47 when I had my first de tether so growth for

me and further stretching of the cord due to this should not be an issue ?