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Spinal Fusion

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Hi Kathy,

I may have missed this, but why are they recommending that you have a fusion

done? Just curious if other less invasive approaches might apply.

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It's part of a surgery to release tension on the tether. It's called a

vertebral column subtraction ostemony (sp) and although fairly new to the

general public, the research shows that it was done as early as the 90's to

relieve the pressure on the tether. I've had five untetherings and two

pseudomeningocele repairs. Because of the surgeries I've already had, I'm no

longer a decent candidate for an untethering (been told by two nsgs that they

would not recommend an untethering because of the previous surgeries).

Because it shortens the spine, the theory is that the tension is relieved on the

spinal cord which in turn hopefully relieves some symptoms. Chip, a

long-standing member of our list, had it done with great results.

Kathy

Spinal Fusion

Hi Kathy,

I may have missed this, but why are they recommending that you have a fusion

done? Just curious if other less invasive approaches might apply.

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Gotcha. Just a personal observation, but I think there is a higher chance for

the fusion to take in the lumbar compared to your toes due to the differences in

function and workload.

Also, the possibility of a fusion failing is more attributed to rejection. I

think it makes a difference if they use your own bone fragments to fuse with

instead of donated bone mass. Since they are removing bone in your procedure

they should be able to use some of that same material to fuse.

The last thing is to follow post op recovery directions to a " T " . I had a brace

that I wore during that period. I think you can request to get one done if they

don't offer it to you. The other thing is that I did not do any bending or

lifting during that period. I used one of those grabbers if I needed to pick

something up and had others move heavy stuff for me.

I think if you follow the above you should have a greater chance of success.

Sent via BlackBerry by AT & T

Re: Spinal Fusion

It's part of a surgery to release tension on the tether. It's called a

vertebral column subtraction ostemony (sp) and although fairly new to the

general public, the research shows that it was done as early as the 90's to

relieve the pressure on the tether. I've had five untetherings and two

pseudomeningocele repairs. Because of the surgeries I've already had, I'm no

longer a decent candidate for an untethering (been told by two nsgs that they

would not recommend an untethering because of the previous surgeries).

Because it shortens the spine, the theory is that the tension is relieved on the

spinal cord which in turn hopefully relieves some symptoms. Chip, a

long-standing member of our list, had it done with great results.

Kathy

Spinal Fusion

Hi Kathy,

I may have missed this, but why are they recommending that you have a fusion

done? Just curious if other less invasive approaches might apply.

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Guest guest

Thanks - Great advice. I've learned my lesson of not following " at home "

directions from untetherings. Good idea about using your own bone; I will

definitely discuss this with the nsg.

Thank you again -

Kathy

Spinal Fusion

Hi Kathy,

I may have missed this, but why are they recommending that you have a fusion

done? Just curious if other less invasive approaches might apply.

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Share on other sites

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Hi Kathy,

My now 5 year old had a spinal fusion as well because she has had so many

untetherings and was not improving. It has been 2 tears since she had it and

although she has needed one more untethering I must say she has been much much

better since the fusion! It has become harder for her to tether and she does

have more pain free days. I wish you all the best

Corinn

> It's part of a surgery to release tension on the tether. It's called a

vertebral column subtraction ostemony (sp) and although fairly new to the

general public, the research shows that it was done as early as the 90's to

relieve the pressure on the tether. I've had five untetherings and two

pseudomeningocele repairs. Because of the surgeries I've already had, I'm no

longer a decent candidate for an untethering (been told by two nsgs that they

would not recommend an untethering because of the previous surgeries).

>

> Because it shortens the spine, the theory is that the tension is relieved on

the spinal cord which in turn hopefully relieves some symptoms. Chip, a

long-standing member of our list, had it done with great results.

>

> Kathy

>

> Spinal Fusion

>

> Hi Kathy,

>

> I may have missed this, but why are they recommending that you have a fusion

done? Just curious if other less invasive approaches might apply.

>

>

>

>

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Thanks Corinn! I hope she continues to have more and more pain free days. I'm

leaning towards having this surgery - it's pretty much the only hope I've been

given.

Thank you again,

Kathy

Spinal Fusion

>

> Hi Kathy,

>

> I may have missed this, but why are they recommending that you have a fusion

done? Just curious if other less invasive approaches might apply.

>

>

>

>

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