Re: Update - Kennedy - TCS surgery

[Guest guest]

That s great news!! Glad to hear it!!

e

________________________________

To: tetheredspinalcord

Sent: Sat, April 23, 2011 9:15:54 AM

Subject: Update - Kennedy - TCS surgery

 

Kennedy, my 11 month old, had her detethering surgery at Duke with Dr. Fuchs

Monday morning and is doing very well. We thought she had a fatty filum

terminale and a lipomyelomeningocele and that the cord ended at the level of the

L3. When they got in there, she did in fact have the fatty filum cut but the

other tether was not fat or tissue; rather, it was nerves that did not form

correctly in a bundle like a tail that was pulling on her spinal cord. The

nerves were all tested and were dead/not functioning so they were removed. They

also determined that the cord actually didn't end until the L5, wow! That sounds

like a lot of stretching in a relatively short time (prebirth - 11 months). Her

recovery from anasthesia was horrible but her overall recovery has been very

smooth. We just finished day 5 of being flat (due to the more invasive/intensive

surgery) and Kennedy's bed will be elevated 45 degrees today - Hurray!!!

You can follow her progress at: babycoller.blogspot.com

if you are interested.

Thanks for all the support!

~Martha

[Guest guest]

Good news! Hurray. carol

________________________________

To: tetheredspinalcord

Sent: Sat, April 23, 2011 6:15:54 AM

Subject: Update - Kennedy - TCS surgery

 

Kennedy, my 11 month old, had her detethering surgery at Duke with Dr. Fuchs

Monday morning and is doing very well. We thought she had a fatty filum

terminale and a lipomyelomeningocele and that the cord ended at the level of the

L3. When they got in there, she did in fact have the fatty filum cut but the

other tether was not fat or tissue; rather, it was nerves that did not form

correctly in a bundle like a tail that was pulling on her spinal cord. The

nerves were all tested and were dead/not functioning so they were removed. They

also determined that the cord actually didn't end until the L5, wow! That sounds

like a lot of stretching in a relatively short time (prebirth - 11 months). Her

recovery from anasthesia was horrible but her overall recovery has been very

smooth. We just finished day 5 of being flat (due to the more invasive/intensive

surgery) and Kennedy's bed will be elevated 45 degrees today - Hurray!!!

You can follow her progress at: babycoller.blogspot.com

if you are interested.

Thanks for all the support!

~Martha

[Guest guest]

Thrilled the surgery is over for Kennedy and for you!! Horrible to see

them have a rough wake up time may the rest of her recovery continue to

go well and to proceed quickly! Randee

In a message dated 4/23/2011 3:38:08 P.M. Central Daylight Time,

drwoo528@... writes:

Good news! Hurray. carol

________________________________

From: hollandmeh <_hollandmeh@..._ (mailto:hollandmeh@...) >

To: _tetheredspinalcord _

(mailto:tetheredspinalcord )

Sent: Sat, April 23, 2011 6:15:54 AM

Subject: Update - Kennedy - TCS surgery

Kennedy, my 11 month old, had her detethering surgery at Duke with Dr.

Fuchs

Monday morning and is doing very well. We thought she had a fatty filum

terminale and a lipomyelomeningocele and that the cord ended at the level

of the

L3. When they got in there, she did in fact have the fatty filum cut but

the

other tether was not fat or tissue; rather, it was nerves that did not

form

correctly in a bundle like a tail that was pulling on her spinal cord. The

nerves were all tested and were dead/not functioning so they were removed.

They

also determined that the cord actually didn't end until the L5, wow! That

sounds

like a lot of stretching in a relatively short time (prebirth - 11

months). Her

recovery from anasthesia was horrible but her overall recovery has been

very

smooth. We just finished day 5 of being flat (due to the more

invasive/intensive

surgery) and Kennedy's bed will be elevated 45 degrees today - Hurray!!!

You can follow her progress at: babycoller.blogspot.com

if you are interested.

Thanks for all the support!

~Martha

[Non-text portions of this message have been removed]

[Guest guest]

hollandmeh wrote:

> Kennedy, my 11 month old, had her detethering surgery at Duke with Dr. Fuchs

Monday morning

Martha, will keep her in my thoughts and prayers. Glad all went well.

--

Jamison Griebenow, skookie@...

Blessed with husband Greg, Zachary c/s 8/95,

Helena Joy HBAC 8/00, and Beren Gustav HB 4/04

~~~~~~~

Learn more about recovery from a difficult birth here:

http://www.midwiferytoday.com/articles/healing_trauma.asp

Our Lord refreshes us on the journey with some pleasant inns, but does

not encourage us to mistake them for home. ~~C.S.