Re: Autoimmune problem and TC?? Has anyone heard of this?? Holly

[Guest guest]

The closest laser clinic to our area listed on the Meditech website is over

three hours away.

So I don't see that working out for us. However, I think getting in touch with

a naturopath is an important piece for putting together our whole puzzle here.

I'd encourage anyone else considering surgery, or not, to to do the same.

There are many things your medical doctors can't tell you, simply because they

don't know. Likewise, there is a wealth of alternative treatments out there and

many complimentary natural healing applications as well.

Holly

________________________________

To: tetheredspinalcord

Sent: Thu, March 10, 2011 10:36:43 PM

Subject: RE: Autoimmune problem and TC?? Has anyone heard of this??

Holly

Holly were you able to access the list of laser practitioners in your area on

the Meditech website? I worked with my naturopath before and after surgery --

as you obviously know there are many things you can do to speed up healing,

etc. I am not well versed in children's nutrition (eg safe dosages, etc) so

best to see a naturopath if possible. Make sure you discuss with the naturopath

safe dosages/supplements that can be combined with medications -- there are some

things you need to stay away from while in hospital when on certain meds due to

interactions. I had to wait til I got home to get on certain things, while

there were some things I could do in hospital.

Dee

To: tetheredspinalcord

From: bluegrass.momma@...

Date: Thu, 10 Mar 2011 19:10:01 -0800

Subject: Re: Autoimmune problem and TC?? Has anyone heard of this??

My tricks include;

A vitamin supplement containing

10,000 I.U. Vitamin A,

500 I.U. Vit. C,

400 I.U. Vit. E,

15 mg of Zinc and

100 micrograms of selenium,

all of which are recommended to repair damaged tissue.

Plus, I'd like to add a high bioavailability protein supplement, I am interested

in a product which uses predigested fish fillets called Seacure.

http://www.naturedoc.com/information/scar_therapy.html

There is also the bioflex lazer, which has been mentioned on this group

http://bioflexlaser.com/patients/bioflex-home-units.php.

I'm going to see if there are any naturapaths in our area who have one,

and a naturapath may have suggestions to prevent excessive scar tissue as well.

My other secret weapon is this herb I know of that is really quite amazing.

It's called Chaparral, the Native Americans used to use it for everything, and

I think they were onto something. It could possibly cure whatever ales you,

including autoimmune responses.

Lastly, but certainly not least, my husband is getting a traditional Japanese

Reiki attunement, so he can give our son on going Reiki treatments.

http://www.reiki.org/

I hope I'm on the right track!

We see our NS Monday as well.

I'll keep you all posted!

Holly

________________________________

To: tetheredspinalcord

Sent: Thu, March 10, 2011 6:41:10 PM

Subject: Re: Autoimmune problem and TC?? Has anyone heard of this??

Can you share the tricks you are thinking might help. Did your son retether.

Who did his surgery?

>

> Yeah, that doesn't sound good, !

>

> I'm not sure about surgery either, for my son.

> I don't get why they usually automatically recommend it for children, but are

>so

>

> much more guarded with adults. I'm really torn over it.

>

> It would be nice if surgery were an easy answer, but it leaves so many

> questions. It's a tough call. But if we do it, I'm certainly going to take

>scar

>

> tissue prevention seriously. My son had surgery once and did well though, so

> maybe he will again.

>

> I've had autoimmune issues myself, and I suspect my son has a touch of IC

along

>

>

> with his neurogenic bladder, which may be autoimmune as well. I just hope

>there

>

> is a way to restore balance to healing from a detethering surgery. I've got a

> few tricks up my sleeve, but we'll see!

>

>

>

> ________________________________

>

> To: tetheredspinalcord

> Sent: Thu, March 10, 2011 3:55:50 PM

> Subject: Autoimmune problem and TC?? Has anyone heard of this??

>

>

> Hi everyone,

>

> In searching online I found the below posted by a Dr./patient that states

> everyone with TC also have autoimmune problems and are doomed to retether and

> continue to have problems. Just when I was starting to come around to thinking

>

> surgery is inevitable, now reading this scares the heck out of me. I hope it

>is

>

> OK that I copied and pasted the below so you could read.

>

>

> Below posted by KGreenburg on Brain communities 6/20/2010

>

> " I have a fatty filum AND a lipoma inside the cord where it's tethered. Two

> neurosurgeons convinced me to have release surgery and lipoma resection six

> years ago, and I've been in excruciating agony ever since because the surgery

> created scars that are progressively compressing my right sciatic nerve root.

>(I

>

> wear a fentanyl--synthetic morphine--patch in order to function but I'm in

> constant pain). And I will always be angry at myself because I'm a doctor but

I

>

>

> didn't do a careful enough job of researching the causes of a tethered cord

and

>

>

> the problems that almost always result from it (e.g., cord retethering and

> pressure on the cerebro-spinal fluid that may eventually cause Tarlov cysts

and

>

>

> disk tears and herniations).

>

> ALL spinal cord disorders are caused by genetic defects in the body's ability

>to

>

> synthesis collagen (a key protein in connective tissue) due to fetal damage in

> the COL1A1 and COL1A2 genes. This means that everyone with a spinal cord

defect

>

>

> also has autoimmune problems, most of which cause defective fibrinolytic

> processes that lead to excessive internal and external scar formation. And it

>is

>

> this scarring that causes cord retethering, nerve compression, and all kinds

of

>

>

> post-surgical traumas.

>

> So if you're an adult who can live with your spinal cord disorder, DON'T HAVE

> ANY KIND OF SURGERY. And if you do have surgery, make sure that your doctors

>put

>

> you on pre- and post-surgical antibiotics and anti-inflammatory medications

>that

>

> will reduce the inflammation in the damaged tissue (and POSSIBLY reduce their

> scarring) " .

>

>

>

>

>

>

>

>