Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 Just prior to my dx, I had extremely hyper-reflexes in one leg, almost absent in the other. I also had a positive Babinski also before the initial untethering. I still have hyper reflexes in one leg and absent in the other .... never has anyone said anything to the contrary that these were atypical of a tether - instead they say that it's all within the symptoms of a tether/retether. Depends on where the tether is, how much and where it has an affect. I have Lipomeningocele; very clear on MRI and extremely clear during surgery. Kathy Re: Intro and question Actually I thought hypo reflexes or absent was more consistent with TC, but you probably can also have increased as a symptom. It might be a question to ask and clarify though when you see the neurosurgeon. > > I have limited time so will simply post an intro and ask for replies, > please guide me if you need more info or there is anything I can clarify > and I will try. > > I have a 15 year old son diagnosed with Scheuermann's kyphosis in > February based on an Xray. This spine specialist then tested his > reflexes. These were abnormally fast. We were referred for an MRI. > This doctor then called us and said my son has TCS and he referred us to > a pediatric neurosurgeon for an appointment this Wednesday. He said, > and my son's chiropractor confirmed his opinion, that my son would need > TCS release surgery, to prevent neurological problems. > > However, my basic questions are these. > > 1) As far as we can tell my son has no other symptoms besides the fast > reflexes at this time. He doesn't have the dimple on the back, no > muscle weakness that we know of (unless in some way the deformity of the > vertebrae - Sh. Kyphosis is a symptom??), no bladder problems, etc. > > 2) He is 15, he is not a small child with symptoms, nor is he an adult > yet, so that is puzzling me as to whether or not he should have surgery. > My understanding from what I've read online is that children should > always have it, and that adults shouldn't unless they have severe enough > symptoms. > > I am not one to rush into surgery. The risks concern me. > > 3) Do symptoms of TCS develop gradually or overnight? I'm thinking if > symptoms start developing as he continues to grow we would still have > time to do the surgery. I understand that once symptoms are severe that > the surgery is less likely to help. > > 4) What is the risk of retethering after one surgery has been done? > seems like it's relatively high due to the scar tissue. He doesn't have > any now, why add some? > > 5) Can anyone direct me to studies that address the question of if > surgery is *necessary* when there are no current symptoms? > > So.... thank you for reading this email, and please respond if you have > any specific advice for me. > > Thank you, > -- > Jamison Griebenow, skookie@... > Blessed with husband Greg, Zachary c/s 8/95, > Helena Joy HBAC 8/00, and Beren Gustav HB 4/04 > ~~~~~~~ > Learn more about recovery from a difficult birth here: > http://www.midwiferytoday.com/articles/healing_trauma.asp > > You can't pray for what you want, but what you have instead > You can only offer up your heart and ask that you be led > ~ Newcomer > Quote Link to comment Share on other sites More sharing options...
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