RE: Topamax Warning by FDA

[Guest guest]

I think I've heard that some people here use tomapax? Just passing along this

article I read today about it's link to birth defects in case anyone is

interested.

Dee

http://www.drbuttar.com/blog/?p=1858

> To: tetheredspinalcord

> From: patriciafischer@...

> Date: Fri, 18 Mar 2011 09:04:00 +0000

> Subject: RE: New here

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> Please visit my blog. I just started it but I want to hear from others that

are living with TCS. It will also give information on what I am learning as I go

through my second untethering surgery. http://beegeelover.blogspot.com/

>

> Please feel free to leave comments.

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> To: tetheredspinalcord

> From: patientperspective@...

> Date: Thu, 17 Mar 2011 23:17:02 +0000

> Subject: New here

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> Hi,

> I had an MRI recently, and it might only be because my massage therapist asked

to see a copy of it that I read the MRI and saw the last conclusion said that

the findings were of a tethered cord (lower lying conus and fatty filum

terminale).

> My doctor and his nurse never specifically mentioned it to me. I also have

degeneration in my spine (in my neck which showed up in xray) and changes in

L3-L5.

>

> The TC really explains my urinary frequency/urgency and some problems with

incontinence that I've experienced, as well as the random pain and weakness in

my legs that I experience.

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> I brought up to my doctor that the TC was never mentioned to me and he more or

less interrupted me and said that when he looks at an MRI, it's his job to

determine if I am a surgical candidate or not. I do recall him saying that

people in my situation can often end up worse after surgery, and I suppose from

what I've read in some places online that that can be the case with TC release,

if that is what he meant.

>

> Why would he not feel the need to tell me about the TC? did he think I was

better off not knowing if there was nothing he could do?

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> I am having a cortisone injection in my lumbar area next week. I guess this is

for the degeneration/inflammation that I have.

> Is there anything else you would suggest that I do, or ask for?

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> Is it true that bending at the waist and flexing and extending my neck are

pulling on my cord each time and damaging it? Are there certain movements you

try to avoid? What about sleeping, is there a way you position yourself to limit

stretching the cord? any more suggestions?

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> thank you

> Margaret

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[Guest guest]

I'm not surprised. Most anti-epileptics are known to cause birth defects (or

increase the risk).

Jenn

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> I think I've heard that some people here use tomapax? Just passing along

> this article I read today about it's link to birth defects in case anyone is

> interested.

>

> Dee

>

> http://www.drbuttar.com/blog/?p=1858

>

>