Guest guest Posted October 4, 2010 Report Share Posted October 4, 2010 Joy, or anyone else, let me explain my situation right now to see if anyone else can relate. And, of course, I'll see my pulm doc in the near future to try to figure this out: My gynecologist put me on Effexor XR 75 ml some years ago for hot flashes. It helped some but not completely but I continued to take it. About 18 months ago, I developed very, very dry mouth with sores on my tongue. Oral surgeon suggested most likely it was due to meds. So I started eliminating meds to see which may be the cause. I dropped the Effexor 'cause my primary said most antidepressants are to blame. I also stopped Advair. Well, the dry mouth was much improved. After my findings, I remember morning coughing was extreme but I didn't tie it to the above for some time. Each morning I very, very carefully would move in bed because any shift of my lungs the violent coughing would start and continue for 20-30 minutes. I found the coughing came from the back of the throat and it was post nasal drip, a white sputum-like plug that once my body coughed it up, all was fine. However, the heavy coughing was so bad, above the waist I felt so weak for about two hours. While sorting through my meds about three weeks ago, I discovered I had some of the Effexor left over and decided on my own to take it again. Lo and behold, as they say, the very next day the cough was much decreased. My energy level is 100% better. Still have hot flashes but that's so minor compared to the coughing in the morning. Does this make sense to anyone? Subject: Re: lung capacityTo: bronchiectasis Date: Sunday, October 3, 2010, 3:43 AM hi Suzanne,oh my I can commiserate! But, however, having really hit bottom this year barely able to walk around my own house, sitting on my couch staring out the window (lovely view tho) or dozing. I finally got back out with a wheelie-walker, same time I received the gift SmartVest from Electromed. My general health and outlook has improved 500%, stamina still yet to develop.Things seem to go in cycles - I've had really unwell low-capacity times while young and as young adult, it's always been up and down. Admittedly the down level is getting more so as I age, but not surprising.I wouldn't give up just yet! It can turn around, and my take on it is to enjoy what I can while I have it, as I do know it is kinda fragile, even a coughing fit sev days ago has hurt my back again making it painful to walk again - blast! At least I now know I must walk to get that back again and not leave it too long.I'm dead certain the SmartVest has really improved my lung capacity, as I'm able to 'clear out' daily.cheers,Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2010 Report Share Posted October 4, 2010 Hi there yes makes perfect sense to me. I have the voilent coughing every morning most likely post nasal drip. I was on seretide and because my voice became very hoarse and dry and coughed more during the day specialist took me off all puffers so not on any meds for bronch at all and feel so much better. still cough in the morning but not for long. Once I have the coffee it helps soothe the cough. Dont have much energy due to weight increase from thyroid prob but hopefully that will ease once I see heart specialist to make sure I can exercise more and not have an underlying angina or something cheers Lee To: bronchiectasis Sent: Tue, 5 October, 2010 1:23:40 PMSubject: Re: meds Joy, or anyone else, let me explain my situation right now to see if anyone else can relate. And, of course, I'll see my pulm doc in the near future to try to figure this out: My gynecologist put me on Effexor XR 75 ml some years ago for hot flashes. It helped some but not completely but I continued to take it. About 18 months ago, I developed very, very dry mouth with sores on my tongue. Oral surgeon suggested most likely it was due to meds. So I started eliminating meds to see which may be the cause. I dropped the Effexor 'cause my primary said most antidepressants are to blame. I also stopped Advair. Well, the dry mouth was much improved. After my findings, I remember morning coughing was extreme but I didn't tie it to the above for some time. Each morning I very, very carefully would move in bed because any shift of my lungs the violent coughing would start and continue for 20-30 minutes. I found the coughing came from the back of the throat and it was post nasal drip, a white sputum-like plug that once my body coughed it up, all was fine. However, the heavy coughing was so bad, above the waist I felt so weak for about two hours. While sorting through my meds about three weeks ago, I discovered I had some of the Effexor left over and decided on my own to take it again. Lo and behold, as they say, the very next day the cough was much decreased. My energy level is 100% better. Still have hot flashes but that's so minor compared to the coughing in the morning. Does this make sense to anyone? Subject: Re: lung capacityTo: bronchiectasis Date: Sunday, October 3, 2010, 3:43 AM hi Suzanne,oh my I can commiserate! But, however, having really hit bottom this year barely able to walk around my own house, sitting on my couch staring out the window (lovely view tho) or dozing. I finally got back out with a wheelie-walker, same time I received the gift SmartVest from Electromed. My general health and outlook has improved 500%, stamina still yet to develop.Things seem to go in cycles - I've had really unwell low-capacity times while young and as young adult, it's always been up and down. Admittedly the down level is getting more so as I age, but not surprising.I wouldn't give up just yet! It can turn around, and my take on it is to enjoy what I can while I have it, as I do know it is kinda fragile, even a coughing fit sev days ago has hurt my back again making it painful to walk again - blast! At least I now know I must walk to get that back again and not leave it too long.I'm dead certain the SmartVest has really improved my lung capacity, as I'm able to 'clear out' daily.cheers,Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2010 Report Share Posted October 5, 2010 Ann- My sister in IL used to sell Effexor for a pharma co she used to work for. It was just a year ago or so. I am going to call her today and see if she has any idea what that could be that's makingyour cough so much easier to handle while on Effexor! I will ck w/ her and let you know! She had togo to hours and hours of training on the good and the bad on the drugs she sold, so I'll bet she knowsif it was the one that gave you mouth dryness and consequent sores.To: bronchiectasis Sent: Mon, October 4, 2010 10:23:40 PMSubject: Re: meds Joy, or anyone else, let me explain my situation right now to see if anyone else can relate. And, of course, I'll see my pulm doc in the near future to try to figure this out: My gynecologist put me on Effexor XR 75 ml some years ago for hot flashes. It helped some but not completely but I continued to take it. About 18 months ago, I developed very, very dry mouth with sores on my tongue. Oral surgeon suggested most likely it was due to meds. So I started eliminating meds to see which may be the cause. I dropped the Effexor 'cause my primary said most antidepressants are to blame. I also stopped Advair. Well, the dry mouth was much improved. After my findings, I remember morning coughing was extreme but I didn't tie it to the above for some time. Each morning I very, very carefully would move in bed because any shift of my lungs the violent coughing would start and continue for 20-30 minutes. I found the coughing came from the back of the throat and it was post nasal drip, a white sputum-like plug that once my body coughed it up, all was fine. However, the heavy coughing was so bad, above the waist I felt so weak for about two hours. While sorting through my meds about three weeks ago, I discovered I had some of the Effexor left over and decided on my own to take it again. Lo and behold, as they say, the very next day the cough was much decreased. My energy level is 100% better. Still have hot flashes but that's so minor compared to the coughing in the morning. Does this make sense to anyone? Subject: Re: lung capacityTo: bronchiectasis Date: Sunday, October 3, 2010, 3:43 AM hi Suzanne,oh my I can commiserate! But, however, having really hit bottom this year barely able to walk around my own house, sitting on my couch staring out the window (lovely view tho) or dozing. I finally got back out with a wheelie-walker, same time I received the gift SmartVest from Electromed. My general health and outlook has improved 500%, stamina still yet to develop.Things seem to go in cycles - I've had really unwell low-capacity times while young and as young adult, it's always been up and down. Admittedly the down level is getting more so as I age, but not surprising.I wouldn't give up just yet! It can turn around, and my take on it is to enjoy what I can while I have it, as I do know it is kinda fragile, even a coughing fit sev days ago has hurt my back again making it painful to walk again - blast! At least I now know I must walk to get that back again and not leave it too long.I'm dead certain the SmartVest has really improved my lung capacity, as I'm able to 'clear out' daily.cheers,Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2010 Report Share Posted October 10, 2010 hi Anne, wow, what an experience! I don't know Effexor XR, so can't comment, but certainly meds can have some strange s/effects. What I've noticed is that I sometimes have reacted badly to a med the 1st time, usually when in bad way. Then sometimes tried again w/out negative results. In this I can only deduce when I was too sick, plus taking a lot of meds already it was like my body rejected them. When things had settled down they were able to be effective - some not all. Have you linked the sore mouth/coughing to Advair and reducing oral thrush by rinsing mouth afterward, sometimes a bicarb tongue wash is good, add a tiny bit of vinegar is a refreshing fizzy mouthwash. Sometimes at night I suck a Funglin lozenge, also seems to prevent my mouth drying out, hope some of this helps, is relevant! joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 > The thread on Topamax is such a great example of what works for one, doesn't mean it will work on the next person with the same dx. I tried Topomax and nothing - no side-effects and no help. > > This reminds me of POT, you know, MJ. Tried it once years ago, nothing but a headache, same with cigarettes only I puked. Tried pot again about 5 years ago, nothing. Has anyone tried medical pot for neuro pain? Rick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 Rick, I don't know anyone who has tried gov't sanctioned medical marijuana (don't know anyone in those states with TC - or at least in those states w/TC and w/a Rx for medical marijuana). But - I do know people that have used marijuana to control their pain and they do it with success. I have a friend that says that marijuana helps his pain and (especially) spasticity more than any Rx has. But if you live in a state where medical marijuana is legal, I would think it would be easy to get a Rx for it. I swear... if you watch Judge Judy it seems like every litigant from CA has a Rx for it. And they are young, healthy looking, 20-somethings. They all seem to claim that they were involved in a car accident at some point and got their Rx after that. Yet, they are typically on the show suing for some sort of very high impact activity. Makes me think that it doesn't take much to get a Rx for it in CA. Jenn > > > This reminds me of POT, you know, MJ. Tried it once years ago, nothing > but a headache, same with cigarettes only I puked. Tried pot again about > 5 years ago, nothing. > > Has anyone tried medical pot for neuro pain? > > Rick > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 Hi Rick, Yes two years ago but it was very expencif so quit. For me THC works only for the nerve pain and i sleep quicker. But most make a big mistake " the smoke it with a joint. For this reason i reduce smoking (was is till a bad habbit) The medical THC here in the Netherlands is high quality and much higher then in a coffeeshop. So i used it pure with a inhalator called Vaporisor. The problem with ordeneary POT is the quality. The medical THC has a high dosis THCV in it. You use CBC the normal street stuf , This relaxed only. The CBD is also important , thats a muscle relaxant THCV make it realy a heavy medicine. Problem it works for short time and you need more and more. Overhere it has the same qualification like alcohol and heavy medicines. You not alowed to drive a car etc. long term problems , you get addicted from it. Like morphinepils Why you must not smoke it , Because the smoke is to hot for you lungs. A inalator has cold water ore for the bitter taste I used a little lemonade syrup like crandberie The prize wat to high , but it works good. Hope you have something in this info. -----Oorspronkelijk bericht----- From: Rick Sent: Monday, March 28, 2011 7:55 AM To: tetheredspinalcord Subject: Re: meds > The thread on Topamax is such a great example of what works for one, > doesn't mean it will work on the next person with the same dx. I tried > Topomax and nothing - no side-effects and no help. > > This reminds me of POT, you know, MJ. Tried it once years ago, nothing but a headache, same with cigarettes only I puked. Tried pot again about 5 years ago, nothing. Has anyone tried medical pot for neuro pain? Rick ------------------------------------ NOT MEDICAL ADVICE. We Are Not Doctors. Need help with list?Email Darlene: darlene_self@... or : hollygolightly1916@... Yahoo! Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 Rick, I did last year because I had to.. And nothing. It helped initially for " mild " pain and as everything progressed I was in pain again. I personally don't like feeling so tired. But you never know, it may work for you >Hi Rick, > >Yes two years ago but it was very expencif so quit. > >For me THC works only for the nerve pain and i sleep quicker. > >But most make a big mistake " the smoke it with a joint. > >For this reason i reduce smoking (was is till a bad habbit) > >The medical THC here in the Netherlands is high quality and much higher then >in a coffeeshop. > >So i used it pure with a inhalator called Vaporisor. > > >The problem with ordeneary POT is the quality. >The medical THC has a high dosis THCV in it. > >You use CBC the normal street stuf , This relaxed only. >The CBD is also important , thats a muscle relaxant >THCV make it realy a heavy medicine. > >Problem it works for short time and you need more and more. >Overhere it has the same qualification like alcohol and heavy medicines. >You not alowed to drive a car etc. > >long term problems , you get addicted from it. Like morphinepils > >Why you must not smoke it , Because the smoke is to hot for you lungs. >A inalator has cold water ore for the bitter taste >I used a little lemonade syrup like crandberie > >The prize wat to high , but it works good. > >Hope you have something in this info. > > > > >-----Oorspronkelijk bericht----- >From: Rick >Sent: Monday, March 28, 2011 7:55 AM >To: tetheredspinalcord >Subject: Re: meds > > >> The thread on Topamax is such a great example of what works for one, >> doesn't mean it will work on the next person with the same dx. I tried >> Topomax and nothing - no side-effects and no help. >> >> > >This reminds me of POT, you know, MJ. Tried it once years ago, nothing >but a headache, same with cigarettes only I puked. Tried pot again about >5 years ago, nothing. > >Has anyone tried medical pot for neuro pain? > >Rick > > > > > > >------------------------------------ > >NOT MEDICAL ADVICE. We Are Not Doctors. >Need help with list?Email Darlene: darlene_self@... or >: hollygolightly1916@... > Yahoo! Groups >Links > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 Medical Cannabis works great for nerve pain for a lot of people. Helps with sleeping, muscle spasms, neuroexcitability...well the list goes on. The key is to get medical grade and to use the right strain. The strains are very specific in their action. Some give energy, some give rest. Some are better for muscle relaxants, some nausea, some are better for vasodilation for those with migraines. You really cant just " smoke the stuff off the street " and expect good results there is absolutely no comparison. Also, as Jan Willem mentioned, it is the CBD that brings the pain relief, not the THC. The CBD comes from the leaf and stems, not necessarily the bud and it works better when ingested rather than smoked or even vaporized. There is a lot more too it than just rolling a joint and getting a buzz. Go to Cannabispatientnet (they have a youtube channel too) and watch some of the testimonials. Just as with narcotics, I'm sure you might have to try different strains and possibly use different strains for different activities but at least you dont have to worry about toasting your liver, kidneys or stomach...and if you use edibles or a vaporizer you dont have to worry about your lungs either. It can also be very helpful in dealing with the side effects of some of the narcotics ie nausea etc.  ________________________________ To: tetheredspinalcord Sent: Mon, March 28, 2011 7:22:25 AM Subject: Re: meds  Rick, I did last year because I had to.. And nothing. It helped initially for " mild " pain and as everything progressed I was in pain again. I personally don't like feeling so tired. But you never know, it may work for you >Hi Rick, > >Yes two years ago but it was very expencif so quit. > >For me THC works only for the nerve pain and i sleep quicker. > >But most make a big mistake " the smoke it with a joint. > >For this reason i reduce smoking (was is till a bad habbit) > >The medical THC here in the Netherlands is high quality and much higher then >in a coffeeshop. > >So i used it pure with a inhalator called Vaporisor. > > >The problem with ordeneary POT is the quality. >The medical THC has a high dosis THCV in it. > >You use CBC the normal street stuf , This relaxed only. >The CBD is also important , thats a muscle relaxant >THCV make it realy a heavy medicine. > >Problem it works for short time and you need more and more. >Overhere it has the same qualification like alcohol and heavy medicines. >You not alowed to drive a car etc. > >long term problems , you get addicted from it. Like morphinepils > >Why you must not smoke it , Because the smoke is to hot for you lungs. >A inalator has cold water ore for the bitter taste >I used a little lemonade syrup like crandberie > >The prize wat to high , but it works good. > >Hope you have something in this info. > > > > >-----Oorspronkelijk bericht----- >From: Rick >Sent: Monday, March 28, 2011 7:55 AM >To: tetheredspinalcord >Subject: Re: meds > > >> The thread on Topamax is such a great example of what works for one, >> doesn't mean it will work on the next person with the same dx. I tried >> Topomax and nothing - no side-effects and no help. >> >> > >This reminds me of POT, you know, MJ. Tried it once years ago, nothing >but a headache, same with cigarettes only I puked. Tried pot again about >5 years ago, nothing. > >Has anyone tried medical pot for neuro pain? > >Rick > > > > > > >------------------------------------ > >NOT MEDICAL ADVICE. We Are Not Doctors. >Need help with list?Email Darlene: darlene_self@... or >: hollygolightly1916@... > Yahoo! Groups >Links > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 Yes, it is easy to get a medical marijuana card in CA. I don't have or need one, but know several people who do. ________________________________ To: tetheredspinalcord Sent: Sun, March 27, 2011 11:53:46 PM Subject: Re: meds  Rick, I don't know anyone who has tried gov't sanctioned medical marijuana (don't know anyone in those states with TC - or at least in those states w/TC and w/a Rx for medical marijuana). But - I do know people that have used marijuana to control their pain and they do it with success. I have a friend that says that marijuana helps his pain and (especially) spasticity more than any Rx has. But if you live in a state where medical marijuana is legal, I would think it would be easy to get a Rx for it. I swear... if you watch Judge Judy it seems like every litigant from CA has a Rx for it. And they are young, healthy looking, 20-somethings. They all seem to claim that they were involved in a car accident at some point and got their Rx after that. Yet, they are typically on the show suing for some sort of very high impact activity. Makes me think that it doesn't take much to get a Rx for it in CA. Jenn > > > This reminds me of POT, you know, MJ. Tried it once years ago, nothing > but a headache, same with cigarettes only I puked. Tried pot again about > 5 years ago, nothing. > > Has anyone tried medical pot for neuro pain? > > Rick > Quote Link to comment Share on other sites More sharing options...
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