Re: Anyone have success with biofeedback for neurogenic bladder?

April 22, 2011

Holly,

I know of one family who used biofeedback for their daughter. It was successful,

but my understanding is that it was a long process, maybe 18 months or so if I

remember right. If you'd like I can put you in touch with the girl's mom...just

send me your email address.

Stacey

mom to Sofia age 5, vacterl

>

> Holly,

>

> I was diagnosed with the same bladder issues as your son. This confirmed

> Tethered Cord (Congenital), as the Urodynamic prove Tethered Cord beyond a

> doubt. I had surgery in February of this year, but still take Flomax (even

> though made for men, it works on females) and Bethenechol three times a day.

> I am hoping to come off of them in time.

>

> Has your son been diagnosed with Tethered cord as well as Chiari? It stopped

> my neuro decline-it takes 1 year to 1-1/2 years to allow time to heal the

> nerves and the firing of the nerves in the right organ.

>

> I hope your son finds some comfort.

>

> Description: small bird with a letter

>

> Beth Rhoads

>

> Decompressed Chiari; Cranial/Cervical instability with Fusion skull to C2-

> 12/10/10

>

> Tethered Cord S1-S2 released 2/4/11; POTS; Ehler Danlos Syndrome; Stickler

> Syndrome

>

>

> info@...

>

> " One day at a time with God "

>

> Description: bird items

>

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