I'm NEW! Howdy! oh and I'm overwhelmed too...help!

[Guest guest]

Hey there! My name is e and I'm new to this board. Just wanted to introduce

myself and post some questions. I'm a newly divorced mom of two children on the

Autism Spectrum: son, , is 5 1/2 yrs old with moderate/severe autism,

OCD, ADHD, Mr. Sensory, somewhat verbal, has PICA, is lethargic, very

underweight and pale with allergic shiners, barely eats food and NEVER TAKES

SUPPLEMENTS ORALLY, has horrible tantrums and increased in self-injurious

behavior and started hitting and kicking others more often now. My daughter

Maddison, 3 1/2 yrs old is mildly on the spectrum and been diagnosed with

'Disruptive Behavior Disorder', Anxiety, Tantrums, Self Injurious behavior,

Sensory issues, PICA, strong inability to self-regulate and has an insatiable

appetite for mischief. She has aggressive hitting and screaming fits, including

spitting and kicking as well. She, too, will not swallow any supplements but

takes some liquid supplements in her 'milk' like a champ. I usually have to

under dose many-most of her vitamins, medications etc because she refuses to

take them.

Both children have food allergies and sensitivities. Our entire family just so

happen to also have Lyme disease. Which type? I don't know yet as I am

completely new to the research and disease profiles. I've found a local LLMD in

the San Francisco Bay Area where we live and he's ordered a BATTERY of initial

tests including the Igenex test which I should know in a couple weeks the

results of that along with everything else I took. My children and I do NOT have

a history of tick bites but I contracted it from my ex-husband (their dad) who's

had a history of bullseye rashes for over 20 years and never had the audacity to

go get them checked out!!! I took a picture of them one day when they manifested

back in 2007 and said " one day I'm going to find out what these are! "

After a horrible event where my son almost lost his life at 8 mos old from a

congenital blocked bladder (that caused kidney reflux, kidney damage, toxic

sepsis, etc), I noticed bullseye rashes manifesting on his bottom, trunk and

left cheek. He had been in the hospital receiving numerous IV antibiotics and I

never noticed a circular rash on him prior to the hospital stay. Even though

had 'eczema' as a baby and was colicky (from pain), I never vaccinated

him and fed him well and he hit all his milestones perfectly...after the

hospital, he was banging his head on the ground within 6 weeks of recovery and

at the same time bullseye rashes were appearing off and on. No pediatrician

diagnosed his rash as anything beyond 'eczema'.

After both my children received grants to receive DAN! doctor protocol

treatments with a popular medical group in TX, I noticed after a first round of

Septra that my daugther manifested bullseye rashes on her bottom too. Let's just

say after much poking and prodding the treating physician and mentioning that my

son was complaining of migratory joint pain, low grade fevers, night sweats,

very pale, blue lips, bullseye rashes, and dissecting his bloodwork with him

saying exactly " I think my son has an underlying autoimmune disorder we're just

not treating or haven't diagnosed yet " ...I was judged as being one of 'those'

moms and essentially all my requests and complaints got ignored. From a DAN

DOCTOR no less!!

Now I'm starting initial supplement treatment for myself and getting ready to

figure out antibiotic therapy after test results come back and I have to say,

I'm a bit worried. I've heard so many testimonies about bad Herx reactions,

negligent or well-meaning LLMD's not giving the right antibiotics, too much of

this or that and I'm just completely overwhelmed with how I'm supposed to judge

what treatment option is the right path and what's going to work the most

efficiently. I know I'm probably speaking for many of ya'll about starting off

right but let's just say I don't have any extra money for mistakes. With 3 of us

to treat and about 5-9 years worth of undiagnosed Lyme, I'm deeply concerned and

don't know where to go. My Lyme doc is a gentle and humble man so my gut is to

trust him but I hear too many testimonies how antibiotics made so many people

more sick than it helped and only alternative/naturopathic/homeopathic medicine

worked the best.

Can someone please calm my fears? My son is really sick, my daughter is fairing

better but only eats liquid nutrition like as if she was an infant and I'm the

MOST SICK I've ever been in my life. I know treatment is highly customized to

fit each individual but I just need to know where to go to find out about each

stage of treatment. For instance, initial dosages, types of antibiotics,

treatment course, possible reactions, detox remedies and how through the course

of treatment you're to measure your improvements, set-backs, OTC remedies, etc.

Do I make any sense? I really want to know what to expect over the next year of

treatment...

Thanks for your time and support!

e, Jack and Maddie

San , CA