Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 I've seen manitol on the labels of "sugarless" gums, too. It's interesting to hear about your hospital experiences in Australia, Thereza. Hope you and your animal friends are doing well now . Kay Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 I guess we all need to start chewing the gum with Mannitol.......I'll get some for sure. I am not going to participate in the Mannitol study at Mayo, but if there are any people in WI, MN that are close to Rochester and might be interested in the study you can call 1- for Aksamit. He is the principal investigator for this study or I talked with Hammel the study coordinator @ . They will pay you $900 at the end of the study. They are also doing this study in UK,Germany, Australia, New Zealand, Chile, Belgium, Netherlands & Argentina. I am anxious to see my local Dr. in May to ask him if I can try hypertonic saline.......it seems most everyone has tried it, or is on it so I am hoping it will thin the mucus for me. I have found the Ipratropium Bromide/Albuterol Sulfate opens up my airways but the mucus does not seem to come out any easier. As you all know, very hard work! Sharyn To: bronchiectasis Sent: Wed, April 20, 2011 10:21:18 AMSubject: Re: Re: Mannitol I've seen manitol on the labels of "sugarless" gums, too. It's interesting to hear about your hospital experiences in Australia, Thereza. Hope you and your animal friends are doing well now . Kay Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 Haven't had Mannitol, but saline around 4-6% seems to loosen without thinning too much - works great. joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 Those that live in Florida and want to participate in the study can call , University of Miami. They have 2 locations, Boca Raton and Miami. I did not qualify as I did not have the required amount of Infections. EILEEN Subject: Re: Re: nebulised drug - PulmozymeTo: bronchiectasis Date: Monday, April 11, 2011, 12:35 PM Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 The chewing gum is called Airways & Eclipse. I don't know if it is available in the US. A few years ago someone on the group looked into it & it wasn't available. Keep well everyone. Theresa Subject: Re: Re: nebulised drug - PulmozymeTo: bronchiectasis Date: Monday, April 11, 2011, 12:35 PM Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 I have bought Eclipse here in Texas. It is manufactured in my home state of Illinois. As I recall when I contacted them previously, they are located in Peoria, Illinois. The company home is in Chicago where two of my three children live. I will check on the availability of Airways. Norma To: bronchiectasis Sent: Thu, April 21, 2011 11:47:20 PMSubject: Re: Re: Mannitol The chewing gum is called Airways & Eclipse. I don't know if it is available in the US. A few years ago someone on the group looked into it & it wasn't available. Keep well everyone. Theresa Subject: Re: Re: nebulised drug - PulmozymeTo: bronchiectasis Date: Monday, April 11, 2011, 12:35 PM Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 I wondered myself how the very small amount of manitol in a stick of gum would be able to have an effect on one's lungs? Never know, though. Did you say you think it helps your breathing to chew this gum, or it helps get mucus up? Kay Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 I've seen Eclipse here in California, too. Kay Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 That's funny that Eclipse in made in Peoria, IL. cuz I know that Chickletsare made in Rockford,IL.! The plant smells so good when we drive byit- my sister lives in Rockford, and I was raised near Peoria. Subject: Re: Re: nebulised drug - PulmozymeTo: bronchiectasis Date: Monday, April 11, 2011, 12:35 PM Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 I am looking fwd to asking my son's pulm dr @ Mayo in early May. So let meget this right: there are studies, being done worldwide, and including Mayowhere they are testing this Mannitol as a treatment for Bronchiectasis oror for all lung diseases? And there are apparently different forms of thismannitol, since they surely don't put the same type in chewing gum asthese doctors are apparently interested in calling a treatment forpulmonology issues? This is very exciting if it is possible for usto get an 'approved' med for bronchiectasis. I always say thatthese sports stars that earn $$Millions$$ for a few years ofplay, and these medical researchers that fight for every $$they get for more studies, should switch incomes. Theseresearchers are priceless... Subject: Re: Re: nebulised drug - PulmozymeTo: bronchiectasis Date: Monday, April 11, 2011, 12:35 PM Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 Hi e, I always say thatthese sports stars that earn $$Millions$$ for a few years ofplay, and these medical researchers that fight for every $$they get for more studies, should switch incomes. Theseresearchers are priceless..................................You are so right!!!EILEEN Subject: Re: Re: nebulised drug - PulmozymeTo: bronchiectasis Date: Monday, April 11, 2011, 12:35 PM Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 I tried to call their Peoria office today, but it was closed due to the Easter holidays. Our son in Chicago lives near Wrigley Field and worked across the street from the Wrigley Building before their office moved to ton. To: bronchiectasis Sent: Fri, April 22, 2011 10:39:04 AMSubject: Re: Re: Mannitol That's funny that Eclipse in made in Peoria, IL. cuz I know that Chickletsare made in Rockford,IL.! The plant smells so good when we drive byit- my sister lives in Rockford, and I was raised near Peoria. Subject: Re: Re: nebulised drug - PulmozymeTo: bronchiectasis Date: Monday, April 11, 2011, 12:35 PM Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 Hi everyone, Thank you for the tip on the gum. I plan to find some today and try it. I have been really congested lately in my sinuses and lungs because I ate a lot of baked goods with gluten. That seems to trigger mucous in me. Also it is allergy season and I am always congested then. Thank goodness for my vest which I asked my doctor for after reading your information about it online. I am also going to ask for the saline for my nebulizer next time I see him. I follow all you have to say but rarely respond. Maybe, I don't follow the protocol for such a group, but when I do respond no one answers back. Therefore, I usually just read comments which are very helpful. Thank you again for the great information. Cindi W. To: bronchiectasis Sent: Fri, April 22, 2011 3:38:38 PMSubject: Re: Re: Mannitol I tried to call their Peoria office today, but it was closed due to the Easter holidays. Our son in Chicago lives near Wrigley Field and worked across the street from the Wrigley Building before their office moved to ton. To: bronchiectasis Sent: Fri, April 22, 2011 10:39:04 AMSubject: Re: Re: Mannitol That's funny that Eclipse in made in Peoria, IL. cuz I know that Chickletsare made in Rockford,IL.! The plant smells so good when we drive byit- my sister lives in Rockford, and I was raised near Peoria. Subject: Re: Re: nebulised drug - PulmozymeTo: bronchiectasis Date: Monday, April 11, 2011, 12:35 PM Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 Cindi..If you are that congested, maybe try calling you doc and see if he can call in a script for Hypo-Tonic Saline. One thing about it: You alsohave to do 2 puffs of Albuterol / Xopenex. about 10mins priorto doing the Saline. I have my son do the 2 puffs of Xopenexthen have him do his vest, then the nebulizer. I think that givesthe Xopenex time to open up his airways, so the saline is eventhat much more effective. The doc should do both scriptsautomatically. If he/she has ever been educated on thisHypoTonic Saline, he/she will know that you need bothscripts.I think you will find quick relief from all of your congestion.I believe it took about 1-2 weeks for my son to havea positive reaction to it. It is $55 for me to be a self-pay at the CF Pharmacy where I get the med. My inswill cover $20 of it, so now I pay $35, which is alwayswelcome, a little savings, I mean!Best wishes, ! e Subject: Re: Re: nebulised drug - PulmozymeTo: bronchiectasis Date: Monday, April 11, 2011, 12:35 PM Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 Hi, Thank you for the information. I will print it out and take it to my doctor. Cindi W To: bronchiectasis Sent: Sat, April 23, 2011 11:33:36 AMSubject: Re: Re: Mannitol Cindi..If you are that congested, maybe try calling you doc and see if he can call in a script for Hypo-Tonic Saline. One thing about it: You alsohave to do 2 puffs of Albuterol / Xopenex. about 10mins priorto doing the Saline. I have my son do the 2 puffs of Xopenexthen have him do his vest, then the nebulizer. I think that givesthe Xopenex time to open up his airways, so the saline is eventhat much more effective. The doc should do both scriptsautomatically. If he/she has ever been educated on thisHypoTonic Saline, he/she will know that you need bothscripts.I think you will find quick relief from all of your congestion.I believe it took about 1-2 weeks for my son to havea positive reaction to it. It is $55 for me to be a self-pay at the CF Pharmacy where I get the med. My inswill cover $20 of it, so now I pay $35, which is alwayswelcome, a little savings, I mean!Best wishes, ! e Subject: Re: Re: nebulised drug - PulmozymeTo: bronchiectasis Date: Monday, April 11, 2011, 12:35 PM Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 h i Cindi I'm so sorry no-one has replied to you!! Sometimes it seems to happen - things get really quiet at time, no-one writing, then times like now when lots people posting. I find then I can only respond to the ones that do relate to me more so... But do keep looking in, I don't think there's any rules against that, I've heard there are many so-called 'lurkers' who don't write in often & that's fine. but don't give up hope, I'm sure it wasn't intentional not to reply to you - maybe no-one knew an answer to give you perhaps!! cheers, Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2011 Report Share Posted April 24, 2011 Hi Joy, Thank you for sharing that. I truly have learned a lot from just from reading the emails and tips that members give. I just have never been much of a technological person and wondered if I was breaching protocol in some way. If I am not, than I am sure it is because no one had anything to add to my comments. Thanks again. Cindi W. To: bronchiectasis Sent: Sun, April 24, 2011 12:50:33 AMSubject: Re: Re: Mannitol h i CindiI'm so sorry no-one has replied to you!! Sometimes it seems to happen - things get really quiet at time, no-one writing, then times like now when lots people posting. I find then I can only respond to the ones that do relate to me more so...But do keep looking in, I don't think there's any rules against that, I've heard there are many so-called 'lurkers' who don't write in often & that's fine.but don't give up hope, I'm sure it wasn't intentional not to reply to you - maybe no-one knew an answer to give you perhaps!!cheers,Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2011 Report Share Posted April 25, 2011 Have you been tested for gluten intolerance? Might help to know your status. Kay Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2011 Report Share Posted April 25, 2011 Kay Airways helps clear my head. It might help with the sputum. Keep well everyone. Theresa Subject: Re: Re: nebulised drug - PulmozymeTo: bronchiectasis Date: Monday, April 11, 2011, 12:35 PM Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2011 Report Share Posted April 25, 2011 I called Wrigley Corporate Office in Peoria, Illinois today. The lady I spoke with told me that mannitol was put in Eclipse gum as a sweetener. I noticed today that the Reclast infusion that I had on March 18 also has mannitol in it. Norma To: bronchiectasis Sent: Mon, April 25, 2011 8:08:12 PMSubject: Re: Re: Mannitol Kay Airways helps clear my head. It might help with the sputum. Keep well everyone. Theresa Subject: Re: Re: nebulised drug - PulmozymeTo: bronchiectasis Date: Monday, April 11, 2011, 12:35 PM Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2011 Report Share Posted April 25, 2011 I wonder if it could be the strong mint in that gum? My acid reflux can't tolerate mint gums, unfortunately. Kay Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2011 Report Share Posted April 25, 2011 Yes, manitol is a sugar. Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2011 Report Share Posted April 26, 2011 That sounds logical. I cannot tolerate mint, chocolate, spicy foods, acidic foods, etc. due to reflux. Norma To: bronchiectasis Sent: Tue, April 26, 2011 12:10:23 AMSubject: Re: Re: Mannitol I wonder if it could be the strong mint in that gum? My acid reflux can't tolerate mint gums, unfortunately. Kay Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2011 Report Share Posted April 26, 2011 I have been tested. I am not intolerant according to testing. I do react to eating gluten, however. It makes me very congested. I try to eat gluten free and usually stay healthier. Cindi W To: bronchiectasis Sent: Mon, April 25, 2011 3:18:56 PMSubject: Re: Re: Mannitol Have you been tested for gluten intolerance? Might help to know your status. Kay Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2011 Report Share Posted April 28, 2011 Norma - thanks for the information on the Wrigley Eclispe gum. I have not purchased any yet - it seems when I get out, I forget. Will make a note to get it the next time I am out. I had a very interesting conversation today with the manager of our American Homepatient mgr. I had to get a new Acapella and he called to tell me it was in and I went to pick it up. He's a real chatty guy and was a male nurse in the operating room before he became mgr. of the home health care place. He knows quite a bit about bronch. and is always interested in what I am doing with the disease. He is the one that got me started with the nebulizer. Anyway, he asked if I had ever heard of Flimm Fighter Percussor. I had not heard of it. He used it on me. You can google it to see what it looks like.... it basically does the same thing as the Vest but is a small hand held appliance you use on your chest exactly where you want to loosen the mucus and it vibrates very strongly. I was wondering if any of you have used it? To: bronchiectasis Sent: Mon, April 25, 2011 10:53:14 PMSubject: Re: Re: Mannitol I called Wrigley Corporate Office in Peoria, Illinois today. The lady I spoke with told me that mannitol was put in Eclipse gum as a sweetener. I noticed today that the Reclast infusion that I had on March 18 also has mannitol in it. Norma To: bronchiectasis Sent: Mon, April 25, 2011 8:08:12 PMSubject: Re: Re: Mannitol Kay Airways helps clear my head. It might help with the sputum. Keep well everyone. Theresa Subject: Re: Re: nebulised drug - PulmozymeTo: bronchiectasis Date: Monday, April 11, 2011, 12:35 PM Re: nebulised drug - Pulmozyme I use Empire Blue Cross for health insurance and pay US$1,500/month premium for individual coverage. Co-pay for a big box of pulmozyme is $5. No problem whatsoever to get it.On the other hand, am also currently undergoing chemo for CLL/leukemia. Cost is $33,000/week but my co-pay is $10. Thanks Alan, Best of luck with your leukemia treatment. Is Empire in the Northeast U.S.? I'm in CA and we pay $1568 per mo. to Anthem Blue Cross and have $4,000 deductibles, each, per yr. Not good insurance, that's for sure. Kay Quote Link to comment Share on other sites More sharing options...
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