Re: TSC and urine Infections

[Guest guest]

Hi-- it wasn't clear from your post whether your daughter is using a new

catheter each time or not. When my son was instructed to begin daily cathing

again at the age of four (we cathed at infancy for a year and a half), we were

told to wash the catheters and reuse them. After at least six years of almost

continuous treatment for infections ,we finally begged the doctor for a scrip to

use a sterile catheter each time. Why they don't do this right off the bat is a

wonder, because I've never heard or met anyone who ha successfully done the

'recycling' of catheters and not risked infecitons. Of course, insurance

companies will balk.

That, along with a heavy, heavy dose of powerful antibiotics, took care of the

problem, and he has not had a UTI in five years. However, his urine/bladder will

always have a high level of bacteria in it. He is not treated for this

" low-level " infection unless he is in dire straits, in major pain, etc. he also

has become resistant to a couple of antibiotics so they don't WANT to treat him.

Hope this helps, Yleana