RE: Autistic son (and daughter) refuse to take ALL supplements...next stop: IV??

[Guest guest]

Our Lyme doc took my son off all his suplements when we started proper Lyme

treatment, and said just give him the essentials, i.e. antibiotics. They come as

sugary syrup and he takes them without complaining.

I have a friend who had the same from her doc, her son spat out all the

antibiotics for abotu the first 5 weeks. She got a little down him, and then

when he made the first improvements, he started taking them without fussing at

all. Since then she's been gradually adding the supplements back.

Lots of vitamins taste really disgusting but most abx are OK.

Lyme can give you an incredibly acute sense of taste and smell. Your kids may be

able to taste and smell all kinds of things

you're not aware of. Sometimes I spit things out in restaurants because they are

fulll of mould or contaminated with cleaning products, but my husband things

they are fine. If someone washes their hands using soap before touching meat to

ccok it, I find the perfume/soap taste overwhelming. I can smell when fruit is

going to go mouldy days or weeks before it does. My husband thought I was

bonkers so I lined up the oranges in order of when they were going to break out

in mould, and I was right!!

I don't think docs use IV for kids -. my doc certainly doesn't. I had IV for the

first few weeks. We had to sit still for a long time while the stuff drained in

(3 hours for adult dose) and it burned up the veins in the whole arm. I think it

might be easier getting kids to swallow stuff than collaborate with that.

>

> I want to know if there are any other parents out there that have had to go

this route with both and/or IV supplementation and IV antibiotics on their small

children? My kids are nearly 4 and 6 and absolutely REFUSE all supplementation

and medication and they are not getting any better. In fact, my son is

borderline failure to thrive (again! *sigh*) The DAN docs they've seen the last

year have been putting pressure on me with their GFCFSF diets (which they are

100% on) and try to make sure that I do 'everything I can' to make them

compliant or all the reason for their failure to thrive is me....yeah, right!!

One wise doc told me once that there are two things you can't make your children

do, sleep or eat!

>

> I am fed up with the negative pressure and trying to feed my kids the most

expensive diet foods and rotate XYZ for such and such days and low this and high

that....UGH! They are literally eating very little food! I refuse to let them

eat allergic foods and try to sneak even just drops of supplements into the

juice or DF milks but never at any levels that are beneficial or therapuetic by

any means! They sniff everything out and refuse to eat, PERIOD. I've been doing

this diet for two years now and refuse to give up (I'm not an idiot!) Let me

clarify that these DAN docs we're seeing for the last year just found out we all

have Lyme and DON'T treat for Lyme disease. I found another LLMD in the area

where we live and I'm going there in the morning to get the results of my Igenex

and other tests (YAY!!). I'm going to bring my son into this clinic to get him

started on testing and was just wondering (well, panicking is more like it) if

others here have had to do total IV intervention with everything...

>

> Did you have to get a PICC line put into your little ones?

> How often was IV antibiotics administered?

> How often did you get IV supplements?

> Did someone come to your house to do this?

> What were your costs for all this IV treatment?

> Anyone know of any other transdermal administered treatments offered to use on

my kids?

> Any suggestions or questions I could bring up with my LLMD tomorrow morning?

>

> Thanks in advance for all your support

>

> e

>

[Guest guest]

I can answer some of your questions about IV therapy. PICC lines can be placed in little ones. I have cared for PICC lines in babies just days old. They are placed under sedation. IV antibiotics are given at different schedules, depending on the medication. Some are given once a day, others every 6 or 8 hours, still others every 12 hours. It all depends on what is ordered. Same with IV supplements. I currently care for an adult (who is eating and taking supplements) who gets IV supplements once a week. I go to her house to start the IV and do the infusion. When she starts on IV antibiotics soon, I will be teaching her how to infuse herself. Home infusion nurses will come to the house and teach you what you need to know. If your children are refusing to eat, it is possible for them to receive Total Parenteral Nutrition through a PICC line or other surgically placed IV access device; which will supply all the basic requirements for life, but miss many of the micronutrients that we get from food without realizing it. There are some transdermal options for magnesium and glutathione, maybe others. I have not researched this area much, though I currently use 2 transdermal medications. I am not familiar with all the options in transdermal supplements. Anne M., BSN, MSN/IH, RNmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of jaimeehinmanSent: Wednesday, December 14, 2011 1:08 AMTo: BorreliaMultipleInfectionsAndAutism Subject: Autistic son (and daughter) refuse to take ALL supplements...next stop: IV?? I want to know if there are any other parents out there that have had to go this route with both and/or IV supplementation and IV antibiotics on their small children? My kids are nearly 4 and 6 and absolutely REFUSE all supplementation and medication and they are not getting any better. In fact, my son is borderline failure to thrive (again! *sigh*) The DAN docs they've seen the last year have been putting pressure on me with their GFCFSF diets (which they are 100% on) and try to make sure that I do 'everything I can' to make them compliant or all the reason for their failure to thrive is me....yeah, right!! One wise doc told me once that there are two things you can't make your children do, sleep or eat! I am fed up with the negative pressure and trying to feed my kids the most expensive diet foods and rotate XYZ for such and such days and low this and high that....UGH! They are literally eating very little food! I refuse to let them eat allergic foods and try to sneak even just drops of supplements into the juice or DF milks but never at any levels that are beneficial or therapuetic by any means! They sniff everything out and refuse to eat, PERIOD. I've been doing this diet for two years now and refuse to give up (I'm not an idiot!) Let me clarify that these DAN docs we're seeing for the last year just found out we all have Lyme and DON'T treat for Lyme disease. I found another LLMD in the area where we live and I'm going there in the morning to get the results of my Igenex and other tests (YAY!!). I'm going to bring my son into this clinic to get him started on testing and was just wondering (well, panicking is more like it) if others here have had to do total IV intervention with everything...Did you have to get a PICC line put into your little ones?How often was IV antibiotics administered?How often did you get IV supplements?Did someone come to your house to do this?What were your costs for all this IV treatment?Anyone know of any other transdermal administered treatments offered to use on my kids? Any suggestions or questions I could bring up with my LLMD tomorrow morning?Thanks in advance for all your support :)e__________ Information from ESET NOD32 Antivirus, version of virus signature database 6709 (20111213) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6709 (20111213) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com

[Guest guest]

We had a local friend do a PIC line in her son. He is not autistic but does

have confirmed chronic lyme. She wrote up a story for my wife's resource

center and I think it might be worthwhile to repeat it here.

Note they were patients of Dr and spent a lot of money on trips and

treatment.

The machine she talks about is a Meissner DP100 rife machine that we bought

for my wife. She and many others here locally use it freely and many have

also reported some good successes.

I bet you know someone who has Chronic Lyme and doesn't realize it yet!

www.lyme-resource.com

--------------------------

is referring to me and my 8 year old son. I haven't been officially

diagnosed (and I am doing various things) but my son was diagnosed with Lyme

disease after he was hospitalized at age five. He was not able to walk and

losing cognitive ability. and his wife came to our home immediately

after wards to talk with us about Lyme disease. We had much to learn.

I don't recall the Rife machine being mentioned at that time; however, we

believed (as the doctors said) that 30 days of antibiotics and he would be

cured. Well, 18 months later, our son was still on antibiotics and even

taking it intravenously. For many months, we went to the hospital every day

so he could get his IV meds. I am sure had mentioned the Rife

machine, but it sounded too weird for us.

Finally, after my son's little body could not take antibiotics anymore and

his pic line kept coming out, we had to look at other options. The only

option our doctor gave us was a shot of antibiotics in the thigh muscle once

a week. We tried that once and my son could not walk due to the shot for a

day and a half--not to mention the psychological stress. We were desperate.

So, we tried the Rife machine and many hot tub baths. Our son was in a lot

of pain. After one month of the Rife machine, his pain stopped. After

several more months, his energy increased and his food sensitivities have

gotten better. He now is a happy, vibrant little boy.

Again, we were very skeptical. My husband has a physics and engineering

background and the Rife machine fascinated him but we were nervous to try it

on our son. Yet, the medicine has all been an experiment too. The Rife

machine has been a miracle for us.

Our son uses it once a week for 3.5 minutes. When he misses a week, his

symptoms come back. We know it is working. Last fall, he missed 20 days of

school because he was sick. This fall, he missed one. The Rife machine

(DP100) has been a miracle to us. And, we are thankful that and his

wife Roxanne sincerely want to help people.

> Autistic son

> (and daughter) refuse to take ALL supplements...next stop: IV??

>

> I want to know if there are any other parents out there that

> have had to go this route with both and/or IV supplementation

> and IV antibiotics on their small children? My kids are

> nearly 4 and 6 and absolutely REFUSE all supplementation and

> medication and they are not getting any better. In fact, my

> son is borderline failure to thrive (again! *sigh*) The DAN

> docs they've seen the last year have been putting pressure on

> me with their GFCFSF diets (which they are 100% on) and try

> to make sure that I do 'everything I can' to make them

> compliant or all the reason for their failure to thrive is

> me....yeah, right!! One wise doc told me once that there are

> two things you can't make your children do, sleep or eat!

>

> I am fed up with the negative pressure and trying to feed my

> kids the most expensive diet foods and rotate XYZ for such

> and such days and low this and high that....UGH! They are

> literally eating very little food! I refuse to let them eat

> allergic foods and try to sneak even just drops of

> supplements into the juice or DF milks but never at any

> levels that are beneficial or therapuetic by any means! They

> sniff everything out and refuse to eat, PERIOD. I've been

> doing this diet for two years now and refuse to give up (I'm

> not an idiot!) Let me clarify that these DAN docs we're

> seeing for the last year just found out we all have Lyme and

> DON'T treat for Lyme disease. I found another LLMD in the

> area where we live and I'm going there in the morning to get

> the results of my Igenex and other tests (YAY!!). I'm going

> to bring my son into this clinic to get him started on

> testing and was just wondering (well, panicking is more like

> it) if others here have had to do total IV intervention with

> everything...

>

> Did you have to get a PICC line put into your little ones?

> How often was IV antibiotics administered?

> How often did you get IV supplements?

> Did someone come to your house to do this?

> What were your costs for all this IV treatment?

> Anyone know of any other transdermal administered treatments

> offered to use on my kids?

> Any suggestions or questions I could bring up with my LLMD

> tomorrow morning?

>

> Thanks in advance for all your support

>

> e

>

>

>

> ------------------------------------

>

>

[Guest guest]

Thank you all very much for your information! I made a new post and update on

my visit with the LLMD for my son...he does NOT want to do IV antibiotics or

shots even when I told him that I can't make my son cooperate...check out the

new post...

>

> We had a local friend do a PIC line in her son. He is not autistic but does

> have confirmed chronic lyme. She wrote up a story for my wife's resource

> center and I think it might be worthwhile to repeat it here.

>

> Note they were patients of Dr and spent a lot of money on trips and

> treatment.

>

> The machine she talks about is a Meissner DP100 rife machine that we bought

> for my wife. She and many others here locally use it freely and many have

> also reported some good successes.

>

>

> I bet you know someone who has Chronic Lyme and doesn't realize it yet!

> www.lyme-resource.com

>

> --------------------------

> is referring to me and my 8 year old son. I haven't been officially

> diagnosed (and I am doing various things) but my son was diagnosed with Lyme

> disease after he was hospitalized at age five. He was not able to walk and

> losing cognitive ability. and his wife came to our home immediately

> after wards to talk with us about Lyme disease. We had much to learn.

>

> I don't recall the Rife machine being mentioned at that time; however, we

> believed (as the doctors said) that 30 days of antibiotics and he would be

> cured. Well, 18 months later, our son was still on antibiotics and even

> taking it intravenously. For many months, we went to the hospital every day

> so he could get his IV meds. I am sure had mentioned the Rife

> machine, but it sounded too weird for us.

>

> Finally, after my son's little body could not take antibiotics anymore and

> his pic line kept coming out, we had to look at other options. The only

> option our doctor gave us was a shot of antibiotics in the thigh muscle once

> a week. We tried that once and my son could not walk due to the shot for a

> day and a half--not to mention the psychological stress. We were desperate.

>

>

> So, we tried the Rife machine and many hot tub baths. Our son was in a lot

> of pain. After one month of the Rife machine, his pain stopped. After

> several more months, his energy increased and his food sensitivities have

> gotten better. He now is a happy, vibrant little boy.

>

> Again, we were very skeptical. My husband has a physics and engineering

> background and the Rife machine fascinated him but we were nervous to try it

> on our son. Yet, the medicine has all been an experiment too. The Rife

> machine has been a miracle for us.

>

> Our son uses it once a week for 3.5 minutes. When he misses a week, his

> symptoms come back. We know it is working. Last fall, he missed 20 days of

> school because he was sick. This fall, he missed one. The Rife machine

> (DP100) has been a miracle to us. And, we are thankful that and his

> wife Roxanne sincerely want to help people.

>

>

> > Autistic son

> > (and daughter) refuse to take ALL supplements...next stop: IV??

> >

> > I want to know if there are any other parents out there that

> > have had to go this route with both and/or IV supplementation

> > and IV antibiotics on their small children? My kids are

> > nearly 4 and 6 and absolutely REFUSE all supplementation and

> > medication and they are not getting any better. In fact, my

> > son is borderline failure to thrive (again! *sigh*) The DAN

> > docs they've seen the last year have been putting pressure on

> > me with their GFCFSF diets (which they are 100% on) and try

> > to make sure that I do 'everything I can' to make them

> > compliant or all the reason for their failure to thrive is

> > me....yeah, right!! One wise doc told me once that there are

> > two things you can't make your children do, sleep or eat!

> >

> > I am fed up with the negative pressure and trying to feed my

> > kids the most expensive diet foods and rotate XYZ for such

> > and such days and low this and high that....UGH! They are

> > literally eating very little food! I refuse to let them eat

> > allergic foods and try to sneak even just drops of

> > supplements into the juice or DF milks but never at any

> > levels that are beneficial or therapuetic by any means! They

> > sniff everything out and refuse to eat, PERIOD. I've been

> > doing this diet for two years now and refuse to give up (I'm

> > not an idiot!) Let me clarify that these DAN docs we're

> > seeing for the last year just found out we all have Lyme and

> > DON'T treat for Lyme disease. I found another LLMD in the

> > area where we live and I'm going there in the morning to get

> > the results of my Igenex and other tests (YAY!!). I'm going

> > to bring my son into this clinic to get him started on

> > testing and was just wondering (well, panicking is more like

> > it) if others here have had to do total IV intervention with

> > everything...

> >

> > Did you have to get a PICC line put into your little ones?

> > How often was IV antibiotics administered?

> > How often did you get IV supplements?

> > Did someone come to your house to do this?

> > What were your costs for all this IV treatment?

> > Anyone know of any other transdermal administered treatments

> > offered to use on my kids?

> > Any suggestions or questions I could bring up with my LLMD

> > tomorrow morning?

> >

> > Thanks in advance for all your support

> >

> > e

> >

> >

> >

> > ------------------------------------

> >

> >