Re: UPDATE: took son to see LLMD & he refuses to do IV antibiotics!! HELP!

[Guest guest]

You may think I am really awful for saying this, but have you ever seen a vet or

good animal person force a dog or whatever to swallow medicine? You basically

hold their nose till they need to open their mouth for breath, shove the

medicine in, hold their mouth shut then blow up their nostrils which give them

an involuntary swallow reflex.

I've done this to my son in the past. It doesn't hurt, but he hated it and when

he realised I was never giving up, he just started taking the medicine without

fussing.

Nowadays he occasionally says he doesn't want his medicine and it is enough to

bribe him with the offer of a sweet.

I agree with your view about the shaman type thing. The last thing your

medically traumatised son needs is yet more weird stuff in his life. He needs to

get on with being a normal kid, and for his medical treatment to take a low

profile in his daily life.

Do you think your son has sensed that you are at the end of your tether over

this? I wonder if he feels it is worth fighting this medicine thing, because he

can tell you probably don't have the fight left in you to win this battle? My

son does that. he knows exactly when I just cannot take it any more and will

capitulate. Our autistic kids are supposed to lack empathy but sometimes I think

they are telepathic.

Hope it goes better in the future....

All the best,

VH

>

> I don't understand why so many MD's, especially DAN Docs, think that just

because my son gives some eye contact, throws a little charm and might answer a

question or two...means somehow he's not really THAT autistic and any and all

refusal of taking his medications and supplements are all my fault???

>

> Can you believe this? Anyone else have this happen? What did you do?

>

> My LLMD (the one I'm seeing for myself) was trying to talk loudly to my 5 yr

old ASD son as if he was DEAF and said " Are you going to be a good boy and take

your medicine? If you don't then you're going to get shots! What's it going to

be? Shots or medicine? " I just sat there and froze to see if he'd actually

respond which verbally he can't because he's not that far along for one. Two,

he's barely learning to go to the bathroom without a diaper and can barely say

the alphabet or read numbers...he has NO CLUE what the doctor is saying and my

poor lil guy was just looking at me like, " what the? " then he shy'd away and hid

behind me.

>

> What am I going to do? How much more do I need to prove to these doctors that

no matter how much I have sacrificially done everything in my power to coerce,

bribe, force, or ignore, gently suggest or happily do the 'mommy song and dance'

over every stinkin' food or supplement...it doesnt matter!! He will NOT take it.

He cries and cries so much with such FEAR that nothing I can do will help.

>

> Just so you all understand, my son has been in and out of the hospital since

he was born. He nearly died at 8 mos old and since then has never been the same

boy. He's been so traumatized with needles, probes, xrays, ultrasounds,

medications, diet changes, specialty XYZ .... that he's just fed up. ly I

am too. I'm doing the very best I can but I honestly can't do this anymore. I

don't want to do IV out of 'convenience' if that makes any sense. Nothing is

convenient about poking my baby over and over again let alone at all.

>

> The doc referred me to take my son to some 'spiritual bioenergy healer' gal

but I'm not into that. I'm a Christian and believe strongly in faith and healing

and bioenergy science all makes perfect sense to me but I'm not going to let a

shaman work on my son. Sorry I draw the line there and if anyone here has done

this for themselves or their kids I am absolutely not passing judgment, this is

just a personal thing for me. Basically the doc wants me to get some spiritual

work done on him first before we treat him and I get where he's coming from...he

wants to help deal with the deeper level stuff about releasing fear and helping

take his meds, etc. but I'm not going to do that just to prove that my son may

or may not respond to that treatment. I'm trying to save money for meds, not

spread it out over experimental, non-essential therapy.

>

> Anyone else with extremely difficult, non-cooperative autistic children that

DO NOT take their medications? What did you do?

>

> Thanks for helping this very stressed out mom! AHHHHG!

>

[Guest guest]

Yes! I do this exact method to help him swallow stuff. Its been an ugly mess

everywhere! I've done this to my daughter and she is WAY worse unfortunately

because she has a strong gag reflex from having GERD most her life. She's one of

those kids that can vomit on command and extremely emotional with high anxiety.

You'd think I was strangling my kids to kill them with the way they respond when

I try to force medication. They are suspicious of me when I give them their

juice or dairy free milk now. I used to be able to make smoothies (short lived

due to texture) and tons of Popsicles with all their meds or supplements and

they ate them all! I miss those days!

So basically I think my kids are traumatized to the 'inth' degree. Every time I

get to that level they are just so fearful and traumatized they just dont trust

me anymore. I'm not afraid to hold them down and force meds to help them but I

just think they are flipped out completely. They take IV's and shots well

though-that is the crazy part!! My daughter is so sweet and after her most

recent gentomycin shots to her thighs, she nervously told the doctors " Thank

you! " because she knows she has to do that in order to get better. Weird? Cute?

Intelligent, I think! They've been sick so many times that I think they know

that if the doctor is doing this to them, they know they are really sick and

they have to do it 'or else'. They just can't do things via orally...

Think I should push the shots and IV issue?? I'd rather have a PICC line put in

so he doesnt have repeat pokes. I just don't want him to be in pain everyday.

> >

> > I don't understand why so many MD's, especially DAN Docs, think that just

because my son gives some eye contact, throws a little charm and might answer a

question or two...means somehow he's not really THAT autistic and any and all

refusal of taking his medications and supplements are all my fault???

> >

> > Can you believe this? Anyone else have this happen? What did you do?

> >

> > My LLMD (the one I'm seeing for myself) was trying to talk loudly to my 5 yr

old ASD son as if he was DEAF and said " Are you going to be a good boy and take

your medicine? If you don't then you're going to get shots! What's it going to

be? Shots or medicine? " I just sat there and froze to see if he'd actually

respond which verbally he can't because he's not that far along for one. Two,

he's barely learning to go to the bathroom without a diaper and can barely say

the alphabet or read numbers...he has NO CLUE what the doctor is saying and my

poor lil guy was just looking at me like, " what the? " then he shy'd away and hid

behind me.

> >

> > What am I going to do? How much more do I need to prove to these doctors

that no matter how much I have sacrificially done everything in my power to

coerce, bribe, force, or ignore, gently suggest or happily do the 'mommy song

and dance' over every stinkin' food or supplement...it doesnt matter!! He will

NOT take it. He cries and cries so much with such FEAR that nothing I can do

will help.

> >

> > Just so you all understand, my son has been in and out of the hospital since

he was born. He nearly died at 8 mos old and since then has never been the same

boy. He's been so traumatized with needles, probes, xrays, ultrasounds,

medications, diet changes, specialty XYZ .... that he's just fed up. ly I

am too. I'm doing the very best I can but I honestly can't do this anymore. I

don't want to do IV out of 'convenience' if that makes any sense. Nothing is

convenient about poking my baby over and over again let alone at all.

> >

> > The doc referred me to take my son to some 'spiritual bioenergy healer' gal

but I'm not into that. I'm a Christian and believe strongly in faith and healing

and bioenergy science all makes perfect sense to me but I'm not going to let a

shaman work on my son. Sorry I draw the line there and if anyone here has done

this for themselves or their kids I am absolutely not passing judgment, this is

just a personal thing for me. Basically the doc wants me to get some spiritual

work done on him first before we treat him and I get where he's coming from...he

wants to help deal with the deeper level stuff about releasing fear and helping

take his meds, etc. but I'm not going to do that just to prove that my son may

or may not respond to that treatment. I'm trying to save money for meds, not

spread it out over experimental, non-essential therapy.

> >

> > Anyone else with extremely difficult, non-cooperative autistic children that

DO NOT take their medications? What did you do?

> >

> > Thanks for helping this very stressed out mom! AHHHHG!

> >

>

[Guest guest]

Hi e,

This is really difficult. I really do NOT envy your position.

If you can afford it, it might be worth tying to see another really good

pediatric LLMD to get a second opinion on the IV or PICC issue.

I think you need to see someone who is committed to treating Lyme with

antibiotics, which many DAN doctors are apparently not. That way, if they say

no, at least you will know they have really good reasons for thinking it will

not work.

Have you read up on PICC lines in children?

http://www.cpmc.org/learning/documents/piccline-ped-ws.html

This is just one link, there are many more.

There are lots of blogs by adult Lyme patients reporting their experiences with

PICC lines, it would probably give you lots of info to read some of those too.

I'm so sorry to hear you are in this position.

VH

> > >

> > > I don't understand why so many MD's, especially DAN Docs, think that just

because my son gives some eye contact, throws a little charm and might answer a

question or two...means somehow he's not really THAT autistic and any and all

refusal of taking his medications and supplements are all my fault???

> > >

> > > Can you believe this? Anyone else have this happen? What did you do?

> > >

> > > My LLMD (the one I'm seeing for myself) was trying to talk loudly to my 5

yr old ASD son as if he was DEAF and said " Are you going to be a good boy and

take your medicine? If you don't then you're going to get shots! What's it going

to be? Shots or medicine? " I just sat there and froze to see if he'd actually

respond which verbally he can't because he's not that far along for one. Two,

he's barely learning to go to the bathroom without a diaper and can barely say

the alphabet or read numbers...he has NO CLUE what the doctor is saying and my

poor lil guy was just looking at me like, " what the? " then he shy'd away and hid

behind me.

> > >

> > > What am I going to do? How much more do I need to prove to these doctors

that no matter how much I have sacrificially done everything in my power to

coerce, bribe, force, or ignore, gently suggest or happily do the 'mommy song

and dance' over every stinkin' food or supplement...it doesnt matter!! He will

NOT take it. He cries and cries so much with such FEAR that nothing I can do

will help.

> > >

> > > Just so you all understand, my son has been in and out of the hospital

since he was born. He nearly died at 8 mos old and since then has never been the

same boy. He's been so traumatized with needles, probes, xrays, ultrasounds,

medications, diet changes, specialty XYZ .... that he's just fed up. ly I

am too. I'm doing the very best I can but I honestly can't do this anymore. I

don't want to do IV out of 'convenience' if that makes any sense. Nothing is

convenient about poking my baby over and over again let alone at all.

> > >

> > > The doc referred me to take my son to some 'spiritual bioenergy healer'

gal but I'm not into that. I'm a Christian and believe strongly in faith and

healing and bioenergy science all makes perfect sense to me but I'm not going to

let a shaman work on my son. Sorry I draw the line there and if anyone here has

done this for themselves or their kids I am absolutely not passing judgment,

this is just a personal thing for me. Basically the doc wants me to get some

spiritual work done on him first before we treat him and I get where he's coming

from...he wants to help deal with the deeper level stuff about releasing fear

and helping take his meds, etc. but I'm not going to do that just to prove that

my son may or may not respond to that treatment. I'm trying to save money for

meds, not spread it out over experimental, non-essential therapy.

> > >

> > > Anyone else with extremely difficult, non-cooperative autistic children

that DO NOT take their medications? What did you do?

> > >

> > > Thanks for helping this very stressed out mom! AHHHHG!

> > >

> >

>