Guest guest Posted April 8, 2011 Report Share Posted April 8, 2011 hi Alan, sorry can't give any hints - far as I know it's not used commonly in Australia - except maybe for CF. I've have long-term bronch, since infancy, never been dx with it. cheers joy h, Aust Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2011 Report Share Posted April 10, 2011 I just started to use Pulmozyme and it works!! I think this is an opportunity for everyone on this list to start pushing to get this drug into wider application and acceptance by insurance companies. Why is a private for-profit insurance company rather than doctor able to decide the fate of people suffering from this terrible chronic disease? Could be a MAJOR relief for a LOT of people!! > > Hello Alan! Yes I can tell you that without ANY doubt Pulomozyme is a MIRACLE drug for Bronchiectasis! My young 8yr old son was on it for 2 years. Then we had to put him back on my crap health insurance. They immediately refused 2pay for it. $2300 per month is not really feasible for a self pay patient. United HealthCare said my son is not " cost effective " . Sammy immediately went from NO symptoms to coughing up a lung 10 or more times a day. Pulmozyme nearly cured him, his pulmonologist @ Mayo Clinic told us & the appeals board @ United Health. They didn't care. Sam is now nebulizing Plan B~ HypoTonic Saline. Not even close to pulmozyme BUT @ $55 a month we can't complain! He's no longer coughing (again) and has his energy back! We go to Mayo in early May, then we'll know for sure if the HypoTonic Saline is really working. The docs call it HypoSal, by the way. See if your ins co will pay 4 pulmozyme~its wonderful, but off label if u don't have CF. Best of luck! e > Quote Link to comment Share on other sites More sharing options...
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