Re: CHIP - New procedure for TCS?

[Guest guest]

Please Email me the articles as well.

Thanks.

Brande

mymocha@...

,

Here are the papers.

Chip

May I please have the PDF as well?

Thanks,

Filipi

lindafilipi@ cox.net

I would love a copy of those articles. Sure hope it's something that will

work for the long haul.

Thanks

Hi,

I am going to preface....All of the info I have is what I am inferring. I

have not had an opportunity to sit down with my ns and have a serious

discussion.. ..

My ns is leaning toward this procedure as well. While he has only called it

spine shortening, I believe it is called " Spine-Shortening Vertebral

Osteotomy "

I have a couple of PDF's of papers from The Journal of Neurosurgery: Spine.

If you would like them, send me a message and I will forward them on to you.

I have not read them completely, but thought I would offer them to everyone

that is interested. (Don't see a way to attach them here??)

My understanding is that this is a last ditch effort. At this point, I can't

say I am at that point, but getting more info from my doc might change my

mind.

Once I have had a chance to sit down with my ns, I will post more info.

Hope this helps someone.

Chip

>

> I have heard of this procedure but dont know of anyone who has had it yet.

> It will be interesting to see outcomes. I can certainly see where it might

> prevent further damage since it would take the tension off the cord but it

> sounds like something that only someone " desparate " would do and by the

> time they are desparate I wonder if they would already have permanent

> nerve damage ie could it really " reverse " B & B probs and pain? Can't wait

> to see more data on it, please share whatever info you get.

>:

>

>

>>

>

> Â

>

>

>

> My neuro found a surgical procedure for TCS. It is the removal of 1 or 2

> vertbreas from your spine. What I was told is this is only for people who

> have had recurrent tethering & those who had problems with their

> surgeries. My neuro found a doc at UCLA med center who does the surgery.

> My insurance will pay for the surgery but not the 2 week rehab stay. From

> what I have been told is your cord will always be tethered but you will

> not have anymore symptoms from it because it is not pulling. It is

> supposed to correct all pain, bowel/bladder problems. Has anyone heard of

> this if so has anyone had this done?

> Lynn

>

>

[Guest guest]

Brande,

     I sent you a zipped folder with 5 articles.

     If anyone else would like them, please let me know.  I will either

e-mail them to you or send you a link to a space on the internet where I keep

the articles.

Chip

________________________________

To: tetheredspinalcord

Sent: Monday, May 2, 2011 5:53 PM

Subject: Re: CHIP - New procedure for TCS?

 

Please Email me the articles as well.

Thanks.

Brande

mymocha@...

,

Here are the papers.

Chip

May I please have the PDF as well?

Thanks,

Filipi

lindafilipi@ cox.net

I would love a copy of those articles. Sure hope it's something that will

work for the long haul.

Thanks

Hi,

I am going to preface....All of the info I have is what I am inferring. I

have not had an opportunity to sit down with my ns and have a serious

discussion.. ..

My ns is leaning toward this procedure as well. While he has only called it

spine shortening, I believe it is called " Spine-Shortening Vertebral

Osteotomy "

I have a couple of PDF's of papers from The Journal of Neurosurgery: Spine.

If you would like them, send me a message and I will forward them on to you.

I have not read them completely, but thought I would offer them to everyone

that is interested. (Don't see a way to attach them here??)

My understanding is that this is a last ditch effort. At this point, I can't

say I am at that point, but getting more info from my doc might change my

mind.

Once I have had a chance to sit down with my ns, I will post more info.

Hope this helps someone.

Chip

>

> I have heard of this procedure but dont know of anyone who has had it yet.

> It will be interesting to see outcomes. I can certainly see where it might

> prevent further damage since it would take the tension off the cord but it

> sounds like something that only someone " desparate " would do and by the

> time they are desparate I wonder if they would already have permanent

> nerve damage ie could it really " reverse " B & B probs and pain? Can't wait

> to see more data on it, please share whatever info you get.

>:

>

>

>>

>

> Â

>

>

>

> My neuro found a surgical procedure for TCS. It is the removal of 1 or 2

> vertbreas from your spine. What I was told is this is only for people who

> have had recurrent tethering & those who had problems with their

> surgeries. My neuro found a doc at UCLA med center who does the surgery.

> My insurance will pay for the surgery but not the 2 week rehab stay. From

> what I have been told is your cord will always be tethered but you will

> not have anymore symptoms from it because it is not pulling. It is

> supposed to correct all pain, bowel/bladder problems. Has anyone heard of

> this if so has anyone had this done?

> Lynn

>

>

[Guest guest]

Please email me the articles as well, patriciafischer@...

To: tetheredspinalcord

From: mymocha@...

Date: Mon, 2 May 2011 16:53:54 -0500

Subject: Re: CHIP - New procedure for TCS?

Please Email me the articles as well.

Thanks.

Brande

mymocha@...

,

Here are the papers.

Chip

May I please have the PDF as well?

Thanks,

Filipi

lindafilipi@ cox.net

I would love a copy of those articles. Sure hope it's something that will

work for the long haul.

Thanks

Hi,

I am going to preface....All of the info I have is what I am inferring. I

have not had an opportunity to sit down with my ns and have a serious

discussion.. ..

My ns is leaning toward this procedure as well. While he has only called it

spine shortening, I believe it is called " Spine-Shortening Vertebral

Osteotomy "

I have a couple of PDF's of papers from The Journal of Neurosurgery: Spine.

If you would like them, send me a message and I will forward them on to you.

I have not read them completely, but thought I would offer them to everyone

that is interested. (Don't see a way to attach them here??)

My understanding is that this is a last ditch effort. At this point, I can't

say I am at that point, but getting more info from my doc might change my

mind.

Once I have had a chance to sit down with my ns, I will post more info.

Hope this helps someone.

Chip

>

> I have heard of this procedure but dont know of anyone who has had it yet.

> It will be interesting to see outcomes. I can certainly see where it might

> prevent further damage since it would take the tension off the cord but it

> sounds like something that only someone " desparate " would do and by the

> time they are desparate I wonder if they would already have permanent

> nerve damage ie could it really " reverse " B & B probs and pain? Can't wait

> to see more data on it, please share whatever info you get.

>:

>

>

>>

>

> Â

>

>

>

> My neuro found a surgical procedure for TCS. It is the removal of 1 or 2

> vertbreas from your spine. What I was told is this is only for people who

> have had recurrent tethering & those who had problems with their

> surgeries. My neuro found a doc at UCLA med center who does the surgery.

> My insurance will pay for the surgery but not the 2 week rehab stay. From

> what I have been told is your cord will always be tethered but you will

> not have anymore symptoms from it because it is not pulling. It is

> supposed to correct all pain, bowel/bladder problems. Has anyone heard of

> this if so has anyone had this done?

> Lynn

>

>

[Guest guest]

Hi Chip and all intrested in this great subject

What i found out in all of the medical journals is the folowing: and plaese

Chip correct me if i am wrong.

it's only used by patients that have a form of lordosis (curvature of the

lumbar and cervical spine)

ore in combination with scolioses.

This technique is practical to shorten the curve right.

I have always looked like got a fat stumic but was and i am still a well

trained tall boy of almost 46

Do you know some results of older people Chip ?

In the Journals there is realy suspiciones between the curvature of the

lumbar and cervical spine and filum termale right.

In how far you Phd explained you this and in how far this operation solve a

other fast operation. (retethering that just look like one.

I wil send you a picture of my MRI so you can see wath it is.

For the rest, that are intrested to look at it

You can see it on

http://tetheredcord.nl/mri/001.jpg

So what do you think,

I know it is always dificult to not play the doctor

But this technical surgery is realtake pressure of the sacrum so it must be

maby solving the presure of the bladder.

When my bladder is filled i have more preddure on my legs and more pain in

my back.

Realy great Journals , i had only one in my archif

Jan Willem

-----Oorspronkelijk bericht-----

From: Chip Eaton

Sent: Tuesday, May 03, 2011 3:19 PM

To: tetheredspinalcord

Subject: Re: CHIP - New procedure for TCS?

Brande,

I sent you a zipped folder with 5 articles.

If anyone else would like them, please let me know. I will either

e-mail them to you or send you a link to a space on the internet where I

keep the articles.

Chip

________________________________

To: tetheredspinalcord

Sent: Monday, May 2, 2011 5:53 PM

Subject: Re: CHIP - New procedure for TCS?

Please Email me the articles as well.

Thanks.

Brande

mymocha@...

,

Here are the papers.

Chip

May I please have the PDF as well?

Thanks,

Filipi

lindafilipi@ cox.net

I would love a copy of those articles. Sure hope it's something that will

work for the long haul.

Thanks

Hi,

I am going to preface....All of the info I have is what I am inferring. I

have not had an opportunity to sit down with my ns and have a serious

discussion.. ..

My ns is leaning toward this procedure as well. While he has only called it

spine shortening, I believe it is called " Spine-Shortening Vertebral

Osteotomy "

I have a couple of PDF's of papers from The Journal of Neurosurgery: Spine.

If you would like them, send me a message and I will forward them on to you.

I have not read them completely, but thought I would offer them to everyone

that is interested. (Don't see a way to attach them here??)

My understanding is that this is a last ditch effort. At this point, I can't

say I am at that point, but getting more info from my doc might change my

mind.

Once I have had a chance to sit down with my ns, I will post more info.

Hope this helps someone.

Chip

>

> I have heard of this procedure but dont know of anyone who has had it yet.

> It will be interesting to see outcomes. I can certainly see where it might

> prevent further damage since it would take the tension off the cord but it

> sounds like something that only someone " desparate " would do and by the

> time they are desparate I wonder if they would already have permanent

> nerve damage ie could it really " reverse " B & B probs and pain? Can't wait

> to see more data on it, please share whatever info you get.

>:

>

>

>>

>

> Â

>

>

>

> My neuro found a surgical procedure for TCS. It is the removal of 1 or 2

> vertbreas from your spine. What I was told is this is only for people who

> have had recurrent tethering & those who had problems with their

> surgeries. My neuro found a doc at UCLA med center who does the surgery.

> My insurance will pay for the surgery but not the 2 week rehab stay. From

> what I have been told is your cord will always be tethered but you will

> not have anymore symptoms from it because it is not pulling. It is

> supposed to correct all pain, bowel/bladder problems. Has anyone heard of

> this if so has anyone had this done?

> Lynn

>

>

[Guest guest]

Jan Willem,

     This type of surgery is not only for people with lordosis or

scoliosis.  I have neither of these.  This surgery is commonly done for the

purpose to reduce the curvature of the spinal column, but is just starting to be

done for the purpose of helping people with a tethered cord.

     The surgery is a last resort for people that have had multiple

detethers, and the risks of further damage with another detether surgery are too

great.  The theory is that the spinal cord remains tethered, but by putting

slack in the spinal cord above, it will prevent the spinal cord from being

pulled at the tethered location.

Chip

________________________________

To: tetheredspinalcord

Sent: Tuesday, May 3, 2011 8:17 PM

Subject: Re: CHIP - New procedure for TCS?

 

Hi Chip and all intrested in this great subject

What i found out in all of the medical journals is the folowing: and plaese

Chip correct me if i am wrong.

it's only used by patients that have a form of lordosis (curvature of the

lumbar and cervical spine)

ore in combination with scolioses.

This technique is practical to shorten the curve right.

I have always looked like got a fat stumic but was and i am still a well

trained tall boy of almost 46

Do you know some results of older people Chip ?

In the Journals there is realy suspiciones between the curvature of the

lumbar and cervical spine and filum termale right.

In how far you Phd explained you this and in how far this operation solve a

other fast operation. (retethering that just look like one.

I wil send you a picture of my MRI so you can see wath it is.

For the rest, that are intrested to look at it

You can see it on

http://tetheredcord.nl/mri/001.jpg

So what do you think,

I know it is always dificult to not play the doctor

But this technical surgery is realtake pressure of the sacrum so it must be

maby solving the presure of the bladder.

When my bladder is filled i have more preddure on my legs and more pain in

my back.

Realy great Journals , i had only one in my archif

Jan Willem

-----Oorspronkelijk bericht-----

From: Chip Eaton

Sent: Tuesday, May 03, 2011 3:19 PM

To: tetheredspinalcord

Subject: Re: CHIP - New procedure for TCS?

Brande,

I sent you a zipped folder with 5 articles.

If anyone else would like them, please let me know. I will either

e-mail them to you or send you a link to a space on the internet where I

keep the articles.

Chip

________________________________

To: tetheredspinalcord

Sent: Monday, May 2, 2011 5:53 PM

Subject: Re: CHIP - New procedure for TCS?

Please Email me the articles as well.

Thanks.

Brande

mymocha@...

,

Here are the papers.

Chip

May I please have the PDF as well?

Thanks,

Filipi

lindafilipi@ cox.net

I would love a copy of those articles. Sure hope it's something that will

work for the long haul.

Thanks

Hi,

I am going to preface....All of the info I have is what I am inferring. I

have not had an opportunity to sit down with my ns and have a serious

discussion.. ..

My ns is leaning toward this procedure as well. While he has only called it

spine shortening, I believe it is called " Spine-Shortening Vertebral

Osteotomy "

I have a couple of PDF's of papers from The Journal of Neurosurgery: Spine.

If you would like them, send me a message and I will forward them on to you.

I have not read them completely, but thought I would offer them to everyone

that is interested. (Don't see a way to attach them here??)

My understanding is that this is a last ditch effort. At this point, I can't

say I am at that point, but getting more info from my doc might change my

mind.

Once I have had a chance to sit down with my ns, I will post more info.

Hope this helps someone.

Chip

>

> I have heard of this procedure but dont know of anyone who has had it yet.

> It will be interesting to see outcomes. I can certainly see where it might

> prevent further damage since it would take the tension off the cord but it

> sounds like something that only someone " desparate " would do and by the

> time they are desparate I wonder if they would already have permanent

> nerve damage ie could it really " reverse " B & B probs and pain? Can't wait

> to see more data on it, please share whatever info you get.

>:

>

>

>>

>

> Â

>

>

>

> My neuro found a surgical procedure for TCS. It is the removal of 1 or 2

> vertbreas from your spine. What I was told is this is only for people who

> have had recurrent tethering & those who had problems with their

> surgeries. My neuro found a doc at UCLA med center who does the surgery.

> My insurance will pay for the surgery but not the 2 week rehab stay. From

> what I have been told is your cord will always be tethered but you will

> not have anymore symptoms from it because it is not pulling. It is

> supposed to correct all pain, bowel/bladder problems. Has anyone heard of

> this if so has anyone had this done?

> Lynn

>

>

[Guest guest]

Hi Chip thanks,

And is it ok if i give you e-mail to a friend.

She love to ask you more questions

On short term i introduce her to the forum.

but try it and it didn't work so send her the posts about this subject.

Most dutch are not familair with Yahoo

She had already three surgery's

She had also the best surgion we have here in the NL so he must be known

with this techniqeu i hope.

Anyway the info is great.

Finaly something that proof technics getting better , but i am curius to

find more after 3 -5 year post op.

Jan Willem

-----Oorspronkelijk bericht-----

From: Chip Eaton

Sent: Wednesday, May 04, 2011 2:40 PM

To: tetheredspinalcord

Subject: Re: CHIP - New procedure for TCS?

Jan Willem,

This type of surgery is not only for people with lordosis or scoliosis.

I have neither of these. This surgery is commonly done for the purpose to

reduce the curvature of the spinal column, but is just starting to be done

for the purpose of helping people with a tethered cord.

The surgery is a last resort for people that have had multiple

detethers, and the risks of further damage with another detether surgery are

too great. The theory is that the spinal cord remains tethered, but by

putting slack in the spinal cord above, it will prevent the spinal cord from

being pulled at the tethered location.

Chip

[Guest guest]

Jan Willem,

     Of course it's OK to give my contact info to someone else.

     There have been a few people before me to have this type of surgery for

a tethered cord, but I don't know any of them.

Chip

________________________________

To: tetheredspinalcord

Cc: Marit

Sent: Wednesday, May 4, 2011 9:39 AM

Subject: Re: CHIP - New procedure for TCS?

 

Hi Chip thanks,

And is it ok if i give you e-mail to a friend.

She love to ask you more questions

On short term i introduce her to the forum.

but try it and it didn't work so send her the posts about this subject.

Most dutch are not familair with Yahoo

She had already three surgery's

She had also the best surgion we have here in the NL so he must be known

with this techniqeu i hope.

Anyway the info is great.

Finaly something that proof technics getting better , but i am curius to

find more after 3 -5 year post op.

Jan Willem

-----Oorspronkelijk bericht-----

From: Chip Eaton

Sent: Wednesday, May 04, 2011 2:40 PM

To: tetheredspinalcord

Subject: Re: CHIP - New procedure for TCS?

Jan Willem,

This type of surgery is not only for people with lordosis or scoliosis.

I have neither of these. This surgery is commonly done for the purpose to

reduce the curvature of the spinal column, but is just starting to be done

for the purpose of helping people with a tethered cord.

The surgery is a last resort for people that have had multiple

detethers, and the risks of further damage with another detether surgery are

too great. The theory is that the spinal cord remains tethered, but by

putting slack in the spinal cord above, it will prevent the spinal cord from

being pulled at the tethered location.

Chip