Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 I have worked on infections with my kids for the past 5 1/2 years and we have done heavy metal detox the entire time. When the bugs(infections die off) they release metals so it is always an issue that needs to be dealt with. The environment is toxic and we are accumulating metals all the time and some sort of detox should be done all the time with some kind of binder(chlorella, pectins, microsilica ect) and then if metals are suspected then something like cilanto, matrix metals, pca can be used but the child should be monitored by a doc to be sure detox organs are handling well. Metals are generally the root of the problem to begin with. T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 I don't have an answer for you, but I did want to point out that excessive thirst for my son was always parasites. That symptom was completely eliminated while on mepron, but later returned to a lesser degree once that was discontinued. It later improved again on other antiparasitic meds. Personally, I do want to put my son on frequent, low dose rounds of ALA again, however, we have been struggling with sleep issues and the round the clock dosing is too much right now. If you can do it, I would say it is worth a try. Caryn > > Dear Group > The biggest " trend " (if we may call it so) in treating autism seems to be focused on the correction of the immune system, treating chronic infections and chronic inflammation. We all know how important the nutritional approach and cleaning the environment in the home is, the role of EMF and so many other pollutants we are not able to stop. > > While many of the most dear MDs for us still tend to point to the importance of chelation, I realize more MDs from different sources are pointing out that chelation is not necessary once the immune system has been corrected and the infections treated, the organism will start releasing metals by itself.... > > I wonder how valid this statements are each by itself, I have not chelated my little man since 5 years ago, and even then, it was not done for too long (7 IV caEdTA/PH Choline/ Vit c sessions to be precise), and I wonder if this might be the reason why our DS remains in a 3-2 step dance despite of the tremendous efforts done to help him. I don't mean to say he is the same kid he was after getting injured, I just keep wondering if that might be the secret key missing here to bring him back to his natural potential. His moods seem to remain unstable and the polydipsia he demonstrates is a high level one. He drinks so much water I have come to think he has diabetes insipidus... > > Can someone please shed some light on me??? I am getting confused doing lots of reading and comparing data from different sources, still...the word from a parent to another has enormous value to me. Please share your experience and opinion. > > Blessings to all and thank you for your time! > Isa > > Enviado desde mi oficina móvil BlackBerry® de Telcel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Isa, You are asking the same question I have been trying to find the answer as well, so very curious what responses you get. We have never done chelation either, only gentle detoxification through homeopathics, chlorella , MicroSilica, Immusist (this one for only the last 6 months) for total of 3 years. We just got back from our appointment with Dr. K and his ART testing showed my son's metals toxicity has been greatly reduced, so I guess the high doses chlorella and the other gentle detox have done some good job (my son loves chewing chlorella, so sometimes I loose track, he takes more then 50-60 tablets+capsules per day). However like you I cannot stop wondering if chelation is one of the big missing parts of the puzzle for us, because my son has made only small baby steps for the past 3 years, despite all treatments for parasites, strep, viruses (prescription and non-prescription) and big changes we have done for healthy living and clean food and diet. He remains non-verbal and cognitively and socially he is much much behind his peers. I also felt that even Dr. K was puzzled of the small progress my son has made for the 1.8 years we have been consulting with him. I bring the chelation question every time we see him and he always says that in our case it is not necessary. He recommended next to do the GcMAF injections (my son's nagalase level are quite high) and if this doesn't help with noticable improvements to go for the stem cell therapy. However, back to the chelation question – even if we decide to do stem cell therapy, I read everywhere that this treatment is most effective when the body is free of metals. I wish somebody could tell me for sure if chelation is indeed a must piece of the puzzle, but this question depends so much on the doctor you are consulting with – some say without chelation there is no true recovery, others say getting rid of the infections will be enough to start releasing metals by itself.... Please keep me posted on your findings, Krassi > > Dear Group > The biggest " trend " (if we may call it so) in treating autism seems to be focused on the correction of the immune system, treating chronic infections and chronic inflammation. We all know how important the nutritional approach and cleaning the environment in the home is, the role of EMF and so many other pollutants we are not able to stop. > > While many of the most dear MDs for us still tend to point to the importance of chelation, I realize more MDs from different sources are pointing out that chelation is not necessary once the immune system has been corrected and the infections treated, the organism will start releasing metals by itself.... > > I wonder how valid this statements are each by itself, I have not chelated my little man since 5 years ago, and even then, it was not done for too long (7 IV caEdTA/PH Choline/ Vit c sessions to be precise), and I wonder if this might be the reason why our DS remains in a 3-2 step dance despite of the tremendous efforts done to help him. I don't mean to say he is the same kid he was after getting injured, I just keep wondering if that might be the secret key missing here to bring him back to his natural potential. His moods seem to remain unstable and the polydipsia he demonstrates is a high level one. He drinks so much water I have come to think he has diabetes insipidus... > > Can someone please shed some light on me??? I am getting confused doing lots of reading and comparing data from different sources, still...the word from a parent to another has enormous value to me. Please share your experience and opinion. > > Blessings to all and thank you for your time! > Isa > > Enviado desde mi oficina móvil BlackBerry® de Telcel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Chelation has been the #1 intervention for us in terms of improvement even though we did not begin until my daughter was almost 17y in 2001. A simple and relatively inexpensive Hair Elements Test - how to in files of http://health.groups.yahoo.com/group/Autism-Mercury/ Searching this same group on http://onibasu.com/ can give you some idea of parent reports, protocol etc. Several years ago, I had many amalgams removed. I was reluctant to have caps redone to see what was under them. I took a chance and began using EDTA - it took me a long time to recover from that indiscretion. Cutler's book on amalgam illness is well worth the read/price. This site http://www.dartmouth.edu/~toxmetal/toxic-metals/index.html gives some insight re chronic and acute exposure for mercury and others. What convinced me was to read some of the followup of the Minamata survivors. With no active intervention, the prognosis is not good. Although the urine porphyrin test for mercury and other metals is a fussy one -many false negatives if the specimen is not handled right[correct preservative, and no exposure to light], this lab seems to have a good track record for this testing.http://www.labbio.net/ Reps have been at some Autism One conferences. We had it done several years ago and even though we had chelated for some time - still a big load of metal showed. fwiw, my little grandson 12y now was a lead and mercury mess as a toddler - lead levels up to 50 and a very positive hair test for the mercury. His mom, my oldest was willing to do some of the same interventions for him as her younger sister was doing. He turned from a seemingly deaf, flapping, hyperactive, troubled sleep, garbled speech, texture sensitive etc toddler to a happy functional little guy. He entered K w no school supports - happy, social, empathetic and much healthier. If he were mine, he would have had a longer than 10 mos effort but only so much a grandma can do. His aunt was not so fortunate but her life quality is much improved. > > > > Dear Group > > The biggest " trend " (if we may call it so) in treating autism seems to be focused on the correction of the immune system, treating chronic infections and chronic inflammation. We all know how important the nutritional approach and cleaning the environment in the home is, the role of EMF and so many other pollutants we are not able to stop. > > > > While many of the most dear MDs for us still tend to point to the importance of chelation, I realize more MDs from different sources are pointing out that chelation is not necessary once the immune system has been corrected and the infections treated, the organism will start releasing metals by itself.... > > > > I wonder how valid this statements are each by itself, I have not chelated my little man since 5 years ago, and even then, it was not done for too long (7 IV caEdTA/PH Choline/ Vit c sessions to be precise), and I wonder if this might be the reason why our DS remains in a 3-2 step dance despite of the tremendous efforts done to help him. I don't mean to say he is the same kid he was after getting injured, I just keep wondering if that might be the secret key missing here to bring him back to his natural potential. His moods seem to remain unstable and the polydipsia he demonstrates is a high level one. He drinks so much water I have come to think he has diabetes insipidus... > > > > Can someone please shed some light on me??? I am getting confused doing lots of reading and comparing data from different sources, still...the word from a parent to another has enormous value to me. Please share your experience and opinion. > > > > Blessings to all and thank you for your time! > > Isa > > > > Enviado desde mi oficina móvil BlackBerry® de Telcel > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Dear All,Thank you to all who answered my question.Krassi, as you can see, there seems to be a good amount of experience pointing to chelation being positive for the kids. I have read Andy Cutler's book Amalgam Illness back and forth, and though I have not tried it yet w my son, my gut feeling towards it is quite positive. I even have calculated and measured the lowest dose he should be taking according to Andy's guidelines.At the present time, I am scared about messing him up and causing him a setback now that he finally seems to be happy and integrating himself to school and peers... This is mainly what stops me from starting it on my own. is under doctor S (in austin, NSCA) care, he has been giving him an anti-viral protocol for 5 mos now, like said, he has done some progress, not as much as we expected, but some. Dr S told us he would not need chelation after this protocol (9 mos of this), but somehow I am worried about his difficulty in making steps forward.Just like u said Krassi, he is still NV and his cognition is way below his peers at school.To be honest, I feel confused. Did you guys get regressions/crisis while chelating? How did you manage this?Thank you friends!IsaEnviado desde mi oficina móvil BlackBerry® de TelcelSender: BorreliaMultipleInfectionsAndAutism Date: Mon, 19 Mar 2012 19:48:13 -0000To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: To chelate or not to chelate, that is the question.. Chelation has been the #1 intervention for us in terms of improvement even though we did not begin until my daughter was almost 17y in 2001. A simple and relatively inexpensive Hair Elements Test - how to in files of http://health.groups.yahoo.com/group/Autism-Mercury/ Searching this same group on http://onibasu.com/ can give you some idea of parent reports, protocol etc. Several years ago, I had many amalgams removed. I was reluctant to have caps redone to see what was under them. I took a chance and began using EDTA - it took me a long time to recover from that indiscretion. Cutler's book on amalgam illness is well worth the read/price. This site http://www.dartmouth.edu/~toxmetal/toxic-metals/index.html gives some insight re chronic and acute exposure for mercury and others. What convinced me was to read some of the followup of the Minamata survivors. With no active intervention, the prognosis is not good. Although the urine porphyrin test for mercury and other metals is a fussy one -many false negatives if the specimen is not handled right[correct preservative, and no exposure to light], this lab seems to have a good track record for this testing.http://www.labbio.net/ Reps have been at some Autism One conferences. We had it done several years ago and even though we had chelated for some time - still a big load of metal showed. fwiw, my little grandson 12y now was a lead and mercury mess as a toddler - lead levels up to 50 and a very positive hair test for the mercury. His mom, my oldest was willing to do some of the same interventions for him as her younger sister was doing. He turned from a seemingly deaf, flapping, hyperactive, troubled sleep, garbled speech, texture sensitive etc toddler to a happy functional little guy. He entered K w no school supports - happy, social, empathetic and much healthier. If he were mine, he would have had a longer than 10 mos effort but only so much a grandma can do. His aunt was not so fortunate but her life quality is much improved. > >> > Dear Group> > The biggest " trend " (if we may call it so) in treating autism seems to be focused on the correction of the immune system, treating chronic infections and chronic inflammation. We all know how important the nutritional approach and cleaning the environment in the home is, the role of EMF and so many other pollutants we are not able to stop. > > > > While many of the most dear MDs for us still tend to point to the importance of chelation, I realize more MDs from different sources are pointing out that chelation is not necessary once the immune system has been corrected and the infections treated, the organism will start releasing metals by itself.... > > > > I wonder how valid this statements are each by itself, I have not chelated my little man since 5 years ago, and even then, it was not done for too long (7 IV caEdTA/PH Choline/ Vit c sessions to be precise), and I wonder if this might be the reason why our DS remains in a 3-2 step dance despite of the tremendous efforts done to help him. I don't mean to say he is the same kid he was after getting injured, I just keep wondering if that might be the secret key missing here to bring him back to his natural potential. His moods seem to remain unstable and the polydipsia he demonstrates is a high level one. He drinks so much water I have come to think he has diabetes insipidus...> > > > Can someone please shed some light on me??? I am getting confused doing lots of reading and comparing data from different sources, still...the word from a parent to another has enormous value to me. Please share your experience and opinion.> > > > Blessings to all and thank you for your time!> > Isa> > > > Enviado desde mi oficina móvil BlackBerry® de Telcel> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 My Dear Isa, The 1st thing that comes to mind with this one is MP of LWT is having a special right now...a consult & Zyto may help you right now.... Other than that as you know we have a Long history of chelation under our belt w/great docs.....'s actually dumping more w/the Immusist & naturals than he was on the hard core stuff. I saw quite a bit of immprovement w/a good ionic footbath as well....the best is the Ion Cleanse....even if you only do the " Pay-Per-Cleanse " & sorta rent it....we've started doing them again recently, w/good gains..it just gets the crap our faster/better. We have a friend that's been doing the IonCleanse for 2 years (recovering her cancer naturally)....her footbaths were pretty clear after 2 years till she started using the Immusist...major detox...she can't believe how much stuff she's detoxing after adding the Immusist (just make sure & pack w/minerals right after the footbath)....my kids beg for a footbath http://www.amajordifference.com/landing.asp Hugs! Rita > > > > > > Dear Group > > > The biggest " trend " (if we may call it so) in treating autism seems to be focused on the correction of the immune system, treating chronic infections and chronic inflammation. We all know how important the nutritional approach and cleaning the environment in the home is, the role of EMF and so many other pollutants we are not able to stop. > > > > > > While many of the most dear MDs for us still tend to point to the importance of chelation, I realize more MDs from different sources are pointing out that chelation is not necessary once the immune system has been corrected and the infections treated, the organism will start releasing metals by itself.... > > > > > > I wonder how valid this statements are each by itself, I have not chelated my little man since 5 years ago, and even then, it was not done for too long (7 IV caEdTA/PH Choline/ Vit c sessions to be precise), and I wonder if this might be the reason why our DS remains in a 3-2 step dance despite of the tremendous efforts done to help him. I don't mean to say he is the same kid he was after getting injured, I just keep wondering if that might be the secret key missing here to bring him back to his natural potential. His moods seem to remain unstable and the polydipsia he demonstrates is a high level one. He drinks so much water I have come to think he has diabetes insipidus... > > > > > > Can someone please shed some light on me??? I am getting confused doing lots of reading and comparing data from different sources, still...the word from a parent to another has enormous value to me. Please share your experience and opinion. > > > > > > Blessings to all and thank you for your time! > > > Isa > > > > > > Enviado desde mi oficina móvil BlackBerry® de Telcel > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Isa, There was no regression/crisis in either of our family members. I began at the high end of the recommended dose for my daughter-big mistake. Once we lowered dose to very minimal and worked up gradually, things were much better. She's prone to seizures but chelation didn't provoke any that I can relate. I, too, was afraid to begin. In retrospect, I'm sorry I did not find the information sooner. The difference between doing chelation w a young toddler and a teen in our family shows remarkably how those young ones can recover if heavy metal poisoning is the root of their problem. Go w your mommy gut. Do the hair test to confirm. > > > > > > Dear Group > > > The biggest " trend " (if we may call it so) in treating autism seems to be focused on the correction of the immune system, treating chronic infections and chronic inflammation. We all know how important the nutritional approach and cleaning the environment in the home is, the role of EMF and so many other pollutants we are not able to stop. > > > > > > While many of the most dear MDs for us still tend to point to the importance of chelation, I realize more MDs from different sources are pointing out that chelation is not necessary once the immune system has been corrected and the infections treated, the organism will start releasing metals by itself.... > > > > > > I wonder how valid this statements are each by itself, I have not chelated my little man since 5 years ago, and even then, it was not done for too long (7 IV caEdTA/PH Choline/ Vit c sessions to be precise), and I wonder if this might be the reason why our DS remains in a 3-2 step dance despite of the tremendous efforts done to help him. I don't mean to say he is the same kid he was after getting injured, I just keep wondering if that might be the secret key missing here to bring him back to his natural potential. His moods seem to remain unstable and the polydipsia he demonstrates is a high level one. He drinks so much water I have come to think he has diabetes insipidus... > > > > > > Can someone please shed some light on me??? I am getting confused doing lots of reading and comparing data from different sources, still...the word from a parent to another has enormous value to me. Please share your experience and opinion. > > > > > > Blessings to all and thank you for your time! > > > Isa > > > > > > Enviado desde mi oficina móvil BlackBerry® de Telcel > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Krassi, I think some find that dmsa is also very helpful in the viral department. It might be worth a try if your son is eliminating well. In the same boat here...but have to ditto 's comments that the bugs release metals. Sent from my iPad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Has anyone had problems with dmsa? I seem to become very mineral depleted. I am very much in agreement with chelation if its done properly. Misty Re: To chelate or not to chelate, that is the question.. Krassi, I think some find that dmsa is also very helpful in the viral department. It might be worth a try if your son is eliminating well. In the same boat here...but have to ditto 's comments that the bugs release metals. Sent from my iPad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 I used dmsa 10 years ago with my son when he was 5.5 years till 6.5 years and by the end I could see that his hair was brittle on the ends and he was depleted of minerals and he even lost language. However, I think in the long run it probably helped him a lot and maybe we just did it too long. He progressed very well for the next 8 years and was working his way out of the spectrum all together. I did think that by now people we're using something better than dmsa though. Debbie Gravois -- Re: To chelate or not to chelate, that is the question.. Krassi,I think some find that dmsa is also very helpful in the viral department. It might be worth a try if your son is eliminating well. In the same boat here...but have to ditto 's comments that the bugs release metals. Sent from my iPad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Hi Debbie, did you use minerals at the same time during the course of the day on the days you administered dmsa. Re: To chelate or not to chelate, that is the question.. Krassi, I think some find that dmsa is also very helpful in the viral department. It might be worth a try if your son is eliminating well. In the same boat here...but have to ditto 's comments that the bugs release metals. Sent from my iPad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 I remember we gave a lot of supplements yes...don't remember the details but it was a handful and remember that's when I learned about milk thistle and melatonin but yes we did give a lot of supplements on those days. Debbie -- Re: To chelate or not to chelate, that is the question.. Krassi,I think some find that dmsa is also very helpful in the viral department. It might be worth a try if your son is eliminating well. In the same boat here...but have to ditto 's comments that the bugs release metals. Sent from my iPad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 What dose did you use and how often did you dose? > > I used dmsa 10 years ago with my son when he was 5.5 years till 6.5 years > and by the end I could see that his hair was brittle on the ends and he was > depleted of minerals and he even lost language. However, I think in the > long run it probably helped him a lot and maybe we just did it too long. He > progressed very well for the next 8 years and was working his way out of the > spectrum all together. > I did think that by now people we're using something better than dmsa though > Debbie Gravois > > > > > -- Re: To chelate or not to > chelate, that is the question.. > > > > Krassi, > > I think some find that dmsa is also very helpful in the viral department. It > might be worth a try if your son is eliminating well. In the same boat here. > .but have to ditto 's comments that the bugs release metals. > > > > Sent from my iPad > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 Acc to Cutler, you want to keep supplements in place all the time even on chelation days. Adding in the ALA helps to combat the fatigue here. You can also chelate w ALA only - it needs to be on a 3 hour schedule of you do any ALA. Much info @ http://health.groups.yahoo.com/group/Autism-Mercury/ You can search this group through http://onibasu.com/http://onibasu.com/ for specific topic. > > > > I used dmsa 10 years ago with my son when he was 5.5 years till 6.5 years > > and by the end I could see that his hair was brittle on the ends and he was > > depleted of minerals and he even lost language. However, I think in the > > long run it probably helped him a lot and maybe we just did it too long. He > > progressed very well for the next 8 years and was working his way out of the > > spectrum all together. > > I did think that by now people we're using something better than dmsa though > > Debbie Gravois > > > > > > > > > > -- Re: To chelate or not to > > chelate, that is the question.. > > > > > > > > Krassi, > > > > I think some find that dmsa is also very helpful in the viral department. It > > might be worth a try if your son is eliminating well. In the same boat here. > > .but have to ditto 's comments that the bugs release metals. > > > > > > > > Sent from my iPad > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 It was 10 years ago, about 10 1/2 so I definitely couldn't tell you that. It was kind of complicated and several doses a day and I believe we were all kind of learning as we go, even Dr. El-Dahr. I do remember that we did it for a year and just before that is when I noticed the brittle ends of his hair and I had been noticing the loss of language for a month or two. If I had it to do again...and who knows, I may, I would look at other drugs or better yet, natural means and I would do it possibly a shorter period of time. I will never know if the chelation is why he did so well for the following years or if it was just too strong for him and he would have done better without it. The doctor was glas that I did it and I remember keeping track of what was coming out in the urine. Debbie -- Re: To chelate or not to> chelate, that is the question..> > > > Krassi,> > I think some find that dmsa is also very helpful in the viral department. It> might be worth a try if your son is eliminating well. In the same boat here.> .but have to ditto 's comments that the bugs release metals. > > > > Sent from my iPad> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 misty, i believe my son became depleted of minerals..on dmsa i was told its only necessary to supplement magnesium and zinc per RFA group....but believe you need all the minerals when using dmsa.. channa > > I used dmsa 10 years ago with my son when he was 5.5 years till 6.5 years > and by the end I could see that his hair was brittle on the ends and he was > depleted of minerals and he even lost language. However, I think in the > long run it probably helped him a lot and maybe we just did it too long. He > progressed very well for the next 8 years and was working his way out of the > spectrum all together. > I did think that by now people we're using something better than dmsa though > Debbie Gravois > > > > > -- Re: To chelate or not to > chelate, that is the question.. > > > > Krassi, > > I think some find that dmsa is also very helpful in the viral department. It > might be worth a try if your son is eliminating well. In the same boat here. > .but have to ditto 's comments that the bugs release metals. > > > > Sent from my iPad > Quote Link to comment Share on other sites More sharing options...
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