(seemingly) blaming all on tc

[Guest guest]

I'll let this be my last post on this subject - it was that all members were put

into the pot of all problems blamed on tcs that hit the nerve for me. As I

said, my patience runs thin at times - I am the first one to admit this.

Additionally, I agree - some do try to pin even the slightest issues on tc and

even if the smallest issues are tc, there are larger issues usually that need

addressing most of the time. The posts with; is this or that caused by tc can

get someone winded at times (that's when the delete button works well), but I

remember when I was first diagnosed and then after my initial untethering and

things started to fall apart for me - my world seemed to be collapsing and I

wondered if this or that was related. I now realize that sometimes it doesn't

matter - just treat it if it's interfering with life.

I can recall my shock at what was happening to my body and trying to deal with

all of that plus facing the real possibility of leaving work, the interruption

in not only my life, but my husband's and our children's lives - it was so

overwhelming and I kept thinking that there has to be an answer. I was new to

medical problems and I couldn't fathom that the spinal cord from just being

tethered could do such far reaching damage to my body. Again - it is

overwhelming in the beginning and if not for very, very patient people that I

reached out to over the Internet, I would have been a basket-case.

Now I find it fascinating because if I allow myself to wander to where I was at

first - running after getting " fixed " so hard and so fast - I go no where. I

take the " fixes " as they come and I feel blessed to not be worse and to have

learned so much from a personal experience.

So - that's where I stand. I understand the author's frustration, but even

more, I remember what it's like when you have just been diagnosed or start to

have symptoms. It's a very steep learning curve and you do eventually realize

that having a hundred diagnosis doesn't always help, that if it's related is not

as important as treating it (most of the time), and that you can live around

certain issues, but it takes time.

Kathy (And I do promise this is the last on the subject from me. ;-)

Re: Eye issues and Tethered Cord

Generally speaking, I do have to say that it does point to more of a Chiari

isse rather than Tethered Cord. Because

with alot of the eye issues with Chiari, it isn't that there is a problem

with the Eyes themselves, it is more that

the Brain is intrupting things different and it mimics an eye issue (Hope

that made sense). However, I do have

to say, I can see how it could be a Tethered Cord issue as

well......especially if it was a very tight Tether, more of

an extreme case.

Brande

mymocha@...

> In response to Brande and the question with eye issues and tethered

> cord... I started seeing black floaters at the same time that the pain in

> my heels and arches started. Both started at the exact same time, and the

> floaters are black squiggly/cobweb type things.

>

> Given my connective tissue disorder, I went to the ophthalmologist to rule

> out a retinal tear, and the ophthalmologist said that my eyes could not be

> any healthier. So, my question to the group is, is this more of a Chiari

> symptom, or more of a cord symptom like Brande was wondering?

>