RE: Autoimmune problem and TC?? Has anyone heard of this?? - Kellie

[Guest guest]

Kellie -

I remember feeling so torn when I joined this group and heard some people's not

so great experiences with surgery -- when I was deciding whether or not to have

surgery myself. There is no way to know for sure how your surgery will turn

out, but do know that many people do have successful surgeries -- I for one am

glad I went ahead, and wish I'd done it sooner. Although it was not miraculous

for me (I have other spinal issues as well), I am left with much less leg pain

and the hope that I have halted or slowed down neuro damage. I am 3 years

post-op with a spinal fusion thrown in this summer.

I get mixed up with who has what, so can't remember your specifics. I had a

tight fatty/filum. No lipoma. All you can do is make the best decision based

on your situation, research and your neurosurgeon's recommendations and go with

that. There are risks doing the surgery, but also not doing it. Wisdom from

others in this group helped me ask my neurosurgeon the right questions and make

my decision -- but in the end it was my decision, as I heard from people who had

both bad outcomes and good ones.

Dee

To: tetheredspinalcord

From: redgecko97@...

Date: Thu, 10 Mar 2011 17:29:05 -0800

Subject: Re: Autoimmune problem and TC?? Has anyone heard of this??

Well, I'm not sure weather or not to thank you for this information. I joined

this group to ease my concerns of surgery. The fact remains that I can not going

on living this way and need the surgery. I just printed this information and

will take it to my surgeon Monday.