Guest guest Posted January 7, 2012 Report Share Posted January 7, 2012 I just looked up what Namenda is. Interesting it's an alzheimer's drug. We are all taking Longvida, similar to Enhansa without the piperine, and seeing good results, especially language. Longivda is being used in the Alzheimer's community with good results when the disease is not in a progressed state. Also in the down syndrome community. What does the glutamate levels mean? Glad you are seeing good things!! We get crankiness (crying easily, irritable) each time we increase the dosage, then improvements in language. No issues with hyperactivity here, but that isn't really an issue for my kids unless they eat a high phenol meal. Longvida doesn't give us the phenol reaction that Enhansa gave. Please keep us posted on Namenda! na > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2012 Report Share Posted January 7, 2012 I just looked up what Namenda is. Interesting it's an alzheimer's drug. We are all taking Longvida, similar to Enhansa without the piperine, and seeing good results, especially language. Longivda is being used in the Alzheimer's community with good results when the disease is not in a progressed state. Also in the down syndrome community. What does the glutamate levels mean? Glad you are seeing good things!! We get crankiness (crying easily, irritable) each time we increase the dosage, then improvements in language. No issues with hyperactivity here, but that isn't really an issue for my kids unless they eat a high phenol meal. Longvida doesn't give us the phenol reaction that Enhansa gave. Please keep us posted on Namenda! na > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2012 Report Share Posted January 7, 2012 Very interesting, I am going to look into Longivda. The brain needs glutamate a certain amount of glutamate. At normal levels, glutamate aids in memory and learning, but if levels are too high, glutamate appears to overstimulate nerve cells, killing off key brain cells. I am not all together certain what creates dangerously elevated glutamate, I have read studies linking it to mercury poisoning, head trauma etc. All I know is my son's is very high and this is linked to brain cell death so it is very upsetting. I would be interested in finding a natural alternative to lowering glutamate rather than keeping him on Namenda indefinitely. > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2012 Report Share Posted January 7, 2012 Very interesting, I am going to look into Longivda. The brain needs glutamate a certain amount of glutamate. At normal levels, glutamate aids in memory and learning, but if levels are too high, glutamate appears to overstimulate nerve cells, killing off key brain cells. I am not all together certain what creates dangerously elevated glutamate, I have read studies linking it to mercury poisoning, head trauma etc. All I know is my son's is very high and this is linked to brain cell death so it is very upsetting. I would be interested in finding a natural alternative to lowering glutamate rather than keeping him on Namenda indefinitely. > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Yasko claims Nerve Calm RNA helps > > > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Yasko claims Nerve Calm RNA helps > > > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Dr. Blaylock writes lot about glutamates and excitotoxicity. He my be a good source.Keena Very interesting, I am going to look into Longivda. The brain needs glutamate a certain amount of glutamate. At normal levels, glutamate aids in memory and learning, but if levels are too high, glutamate appears to overstimulate nerve cells, killing off key brain cells. I am not all together certain what creates dangerously elevated glutamate, I have read studies linking it to mercury poisoning, head trauma etc. All I know is my son's is very high and this is linked to brain cell death so it is very upsetting. I would be interested in finding a natural alternative to lowering glutamate rather than keeping him on Namenda indefinitely. > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Dr. Blaylock writes lot about glutamates and excitotoxicity. He my be a good source.Keena Very interesting, I am going to look into Longivda. The brain needs glutamate a certain amount of glutamate. At normal levels, glutamate aids in memory and learning, but if levels are too high, glutamate appears to overstimulate nerve cells, killing off key brain cells. I am not all together certain what creates dangerously elevated glutamate, I have read studies linking it to mercury poisoning, head trauma etc. All I know is my son's is very high and this is linked to brain cell death so it is very upsetting. I would be interested in finding a natural alternative to lowering glutamate rather than keeping him on Namenda indefinitely. > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Thanks for the info on glutamate. I just did a quick google search and it looks like there are some studies showing that curcumin reduces glutamate levels. I guess that could be one reason for the positive effects we are seeing. Are there foods one needs to avoid for glutamate issues? Obviously MSG...but anything else? Thanks, na > > > > > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Thanks for the info on glutamate. I just did a quick google search and it looks like there are some studies showing that curcumin reduces glutamate levels. I guess that could be one reason for the positive effects we are seeing. Are there foods one needs to avoid for glutamate issues? Obviously MSG...but anything else? Thanks, na > > > > > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Hi na! Would you mind sharing what dose of the Longvida are you using for how much weight? Thanks, Bethany > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Hi na! Would you mind sharing what dose of the Longvida are you using for how much weight? Thanks, Bethany > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Hi Bethany !! I started both of my kids at 1/2 a cap for a few days, then went to 3/4th cap for about two weeks. We are at one full cap now. One cap is equivalent to 500 mg. I know that with Enhansa we had to go much slower because there were side effects like sleep issues and hyperactivity at night, but we did see good things with Enhansa, too. I think Longvida has soy lecithin in it which is part of the phosolipid layer which makes it absorbable...so this may be an issue for some. Longvida gave us viral die-off and it came in waves, typically with each increase in dosage. My daughter developed yeast from all the viral die-off, but we were able to get it under control in a few days with candidase. The curcumin acts as an anti-fungal, too, so I think that is why we didn't get crazy yeast problems. My son didn't have any yeast issues come up, surprisingly! How is your son doing with the anti-viral protocol? na > > > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Hi Bethany !! I started both of my kids at 1/2 a cap for a few days, then went to 3/4th cap for about two weeks. We are at one full cap now. One cap is equivalent to 500 mg. I know that with Enhansa we had to go much slower because there were side effects like sleep issues and hyperactivity at night, but we did see good things with Enhansa, too. I think Longvida has soy lecithin in it which is part of the phosolipid layer which makes it absorbable...so this may be an issue for some. Longvida gave us viral die-off and it came in waves, typically with each increase in dosage. My daughter developed yeast from all the viral die-off, but we were able to get it under control in a few days with candidase. The curcumin acts as an anti-fungal, too, so I think that is why we didn't get crazy yeast problems. My son didn't have any yeast issues come up, surprisingly! How is your son doing with the anti-viral protocol? na > > > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 oh...sorry. My kids are about 40 lbs and 25 lbs. My daughter, the smaller one, is really doing well on it. LOTS of language, brighter eyes, gross motor is better, muscle tone improvement. I think my son may need to go up a little more on dosage to get the full effect, but we are taking it slow. I know many kids take 600mg 2x/day of enhansa with good results. > > > > > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 oh...sorry. My kids are about 40 lbs and 25 lbs. My daughter, the smaller one, is really doing well on it. LOTS of language, brighter eyes, gross motor is better, muscle tone improvement. I think my son may need to go up a little more on dosage to get the full effect, but we are taking it slow. I know many kids take 600mg 2x/day of enhansa with good results. > > > > > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Keena, thanks for the tip. I've just been reading this site with much interest: http://arizonaadvancedmedicine.com/articles/msg.html Do you need an rx for Longvida? Is it covered by insurance? Enhansa is not covered by our insurance so am looking for an alternative. How does it differ from Enhansa and is it as strong? > > > > > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Keena, thanks for the tip. I've just been reading this site with much interest: http://arizonaadvancedmedicine.com/articles/msg.html Do you need an rx for Longvida? Is it covered by insurance? Enhansa is not covered by our insurance so am looking for an alternative. How does it differ from Enhansa and is it as strong? > > > > > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 No, not a prescription. I found it on Amazon for about $35 from Nutrivene...that seems to be the cheapest price. I'm not sure if it's as strong as Enhansa. Like I said, we had a lot of side effects from Enhansa that may or may not have been because of it's strength. On less than 35mg of Enhansa, my son was hyper and had sleep disturbances that seemed to get worse with each dose. I did notice his language was better on Enhansa, but I'm seeing the same thing with Longivida minus the crazy behavior. My daughter didn't have quite the same reaction to Enhansa, but she's also not on the spectrum. Have you done Enhansa? What are your thoughts? Did your insurance cover Namenda? na > > > > > > > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 We were up to 2400mg of Enhansa a day and did not see a thing and it's so expensive that I've just dropped down to 600mg in the morning until we run out. Insurance does cover Namenda and I am very happy with it so far. > > > > > > > > > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 We were up to 2400mg of Enhansa a day and did not see a thing and it's so expensive that I've just dropped down to 600mg in the morning until we run out. Insurance does cover Namenda and I am very happy with it so far. > > > > > > > > > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 One thing to take note of is most types of curcumin are very high in oxalates. That really caused problems for my son. To: BorreliaMultipleInfectionsAndAutism Sent: Sunday, January 8, 2012 6:10 PMSubject: Re: Namenda No, not a prescription. I found it on Amazon for about $35 from Nutrivene...that seems to be the cheapest price. I'm not sure if it's as strong as Enhansa. Like I said, we had a lot of side effects from Enhansa that may or may not have been because of it's strength. On less than 35mg of Enhansa, my son was hyper and had sleep disturbances that seemed to get worse with each dose. I did notice his language was better on Enhansa, but I'm seeing the same thing with Longivida minus the crazy behavior. My daughter didn't have quite the same reaction to Enhansa, but she's also not on the spectrum. Have you done Enhansa? What are your thoughts? Did your insurance cover Namenda? na> > > > >> > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels.> > > > >> > > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 One thing to take note of is most types of curcumin are very high in oxalates. That really caused problems for my son. To: BorreliaMultipleInfectionsAndAutism Sent: Sunday, January 8, 2012 6:10 PMSubject: Re: Namenda No, not a prescription. I found it on Amazon for about $35 from Nutrivene...that seems to be the cheapest price. I'm not sure if it's as strong as Enhansa. Like I said, we had a lot of side effects from Enhansa that may or may not have been because of it's strength. On less than 35mg of Enhansa, my son was hyper and had sleep disturbances that seemed to get worse with each dose. I did notice his language was better on Enhansa, but I'm seeing the same thing with Longivida minus the crazy behavior. My daughter didn't have quite the same reaction to Enhansa, but she's also not on the spectrum. Have you done Enhansa? What are your thoughts? Did your insurance cover Namenda? na> > > > >> > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels.> > > > >> > > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Oh wow...that's interesting that you saw nothing at that dosage. I don't know much about Enhansa but some people mentioned that the piperine might cause detoxification issues for some kids. So glad to hear the Namenda is working well! - thank you for reminder about oxalates. I'm pretty sure Enhansa was tested by the oxalate yahoo group and was found to be low-oxalate...go figure! I don't know if that's the same with other versions of curcumin. na > > > > > > > > > > > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Oh wow...that's interesting that you saw nothing at that dosage. I don't know much about Enhansa but some people mentioned that the piperine might cause detoxification issues for some kids. So glad to hear the Namenda is working well! - thank you for reminder about oxalates. I'm pretty sure Enhansa was tested by the oxalate yahoo group and was found to be low-oxalate...go figure! I don't know if that's the same with other versions of curcumin. na > > > > > > > > > > > > > > My son is on the one month trial of Namenda and slowly increasing the dose each week. It is up to us at what dose we would like to stay at. The first couple of weeks have been great. Just increased and he seems more hyperactive, but still good. Curious to know what other people are seeing with Namenda and at what dose they have settled on? I am not sure if the maximum dose of 10mg in the a.m. and p.m. is necessarily the best even though my son has very high glutamate levels. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.