Guest guest Posted January 27, 2012 Report Share Posted January 27, 2012 This is an outrage!! I cannot believe they are calling this a mental disorder. I had spoken to a LLMD a few years ago, where he told me the FBI was interested in this, because the fibers found in the persons skin,once take out could not even burned - nothing would break down the fibers. This is just like the dismissile of vaccine damage! http://dfw.cbslocal.com/2012/01/26/cdc-releases-results-of-morgellons-disease-in\ vestigation/ Response from Casey, Morgellons patient and founder of the E. Holman Foundation: First and foremost, I want to thank the CDC for making a very preliminary effort to investigate this emerging infectious disease that should be of great concern to everybody worldwide. The study is flawed from the very beginning in the method of patient selections. Only one of these patients was familiar to me and was known to have the symptoms and manifestations we identify as Morgellons Disease. Sadly, that patient is now deceased. The CDC was strongly resistant to any dialogue with those of us who offered to provide information on what we describe as manifestations of Morgellons Disease. The CDC describes purulent drainage and associated with the lesions which were investigated in the study. I have seen thousands of Morgellons lesions and one remarkable finding is that Morgellons lesions are never purulent and rarely ever is a Morgellons patient found to have any signs of infection within or surrounding the lesion. It appears that the patients selected by the CDC for this study were not patients who exhibited the characteristic symptoms that we know to be consistent with Morgellons. It is unfortunate for all that valuable resources were used rather recklessly and no advancement was made in the understanding of this unique pathological condition. In the absence of and resistance to any dialogue or collaboration, the CDC has unfortunately chosen the wrong patient population to study. Thus the results lend no further insight into this mysterious condition. Delusional Parasitosis and neurotic excoriations are conditions that could easily be mistaken for Morgellons, especially if the investigators are unfamiliar with what we have found to be consistent with Morgellons. Science is a moving target, and as new scientific information emerges the views of scientists will shift. We are at the very beginning of the Morgellons saga in terms of scientific investigation, and people need to keep an open mind about a disease that is disfiguring, disabling, poorly understood and very frightening. As more physicians and researchers are becoming actively involved with the condition WE identify as Morgellons, science will be forthcoming and a better understanding of the etiology will be determined. The E. Holman Foundation will be holding our annual conference in Austin, TX on March 24th and 25th of 2012. A lot of new information will be presented by Morgellons researchers. This year we have some interesting new speakers. Dermatologist Mayne will discuss a structured dermatological approach to Morgellons Disease. Microbiologist nne Middelveen will discuss her findings from examining the evidence under light microscopy. The conference is geared primarilytoward medical professionals but everyone is invited to attend. For more information on our upcoming conference, please visit our website at www.thecehf.org Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.