Re: Shoe, lyme, mold, Marcons

[Guest guest]

Please, what is the test for Marcons, name and lab phone number, for have had LD chronic lifelong plus sinuslifelong infecs. (Klebsiella for the last year, probably more not tested for), and all docs are pushing surgery, and none of them knows about Marcons nor cares to find out more. The high frontal sinuses are the ones that cause extreme pain and swelling. There has been a mold condition around this building in Florida for years and do not have an accessible mold doc nor funds for the ERMI, nor the means to move, but do have a Shaklee Air Source running most of the time. Anyone's thoughts?To: "BorreliaMultipleInfectionsAndAutism " <BorreliaMultipleInfectionsAndAutism >Sent: Mon, March 12, 2012 3:52:04 PMSubject: Shoe, lyme, mold, Marcons

I am wondering if anyone else has started the shoemaker approach? My son is on the spectrum and tested pos for Lyme via electro dermal (like zyto). He recently did the tests recommended by shoemaker with my lyme doc and he is genetically susceptible to bio toxins including mold and Lyme in particular. That apparently is why some people cant get rid of lyme. Has low MSH (melanocyte stimulating hormone) which disrupts many body processes, and very high IGF beta 1 a marker for widespread inflammation. Has high c4a which skyrockets when exposed to mold if susceptible. (you can google these for explanations).He also tests pos for Marcons, which is a resistant staph Infection with biofilm deep in the sinuses. Made me think of the face pressing everyone was talking about.I don't have much to add here, except to look into shoemaker and his work with Lyme docs.

25% of population is supposedly susceptible, so living in moldy house, or having Lyme or other toxin producing microbes can mess up the immune system and never get cleared. I was happy to see some actual blood work and with markers that have been successfully treated by this protocol.As we get through the protocol, I'll provide updates on my son's status. A big piece of the treatment is using a heavy duty binder called questran. Also treating the Marcons. But first need to be out of moldy place or remediate. Used an ERMI test to check for mold. Don't have time to be more detailed, but check latest book, Surviving Mold, and visit his website www.survivingmold.com. I think there is at least one other poster here who is following this path. Hope this helps

someone.Best, Sent from my iPad

[Guest guest]

From what I understand the Marcons testing, Thru a ENT, is a deep nasal culture

- ( its not very comfortable but its usually done quick enough you are fine in a

few minutes).

I don't know if infected tonsils could also play a role, but if you still have

your tonsils

maybe have them swabbed as well.

If your on any kind of antibx, need to be off the Antibx a week before testing.

Venting your home, by open windows can help if you cannot move, clean air vents,

clear away as much dust and mold that is visable; fix any leaks, pipes, roof,

etc..

Run fans in rooms/open a window that become humid - laundry room, hot ovens in

the kitchen, to keep the humidity down.

I suspect FL is very humid! You may want to purchase some of those products

sold at the hardware store that draw in moisture ( sorry cannot think of what

they are called) Not very costly at all. Can put them in closets to reduce

mositure/ dampness.

Theives oil, clove oil, lemon balm < all these essential oils could be helpful

to use.

Biopure us, also may sell some Riozol oils that are aslo helpful, I am not

certain which ones

maybe someone can speak to the helpful ones.

HTH's

Allie

>

> Please, what is the test for Marcons, name and lab phone number, for have had

LD

> chronic lifelong plus sinuslifelong infecs. (Klebsiella for the last year,

> probably more not tested for), and all docs are pushing surgery, and none of

> them knows about Marcons nor cares to find out more. The high frontal sinuses

> are the ones that cause extreme pain and swelling. There has been a mold

> condition around this building in Florida for years and do not have an

> accessible mold doc nor funds for the ERMI, nor the means to move, but do have

a

> Shaklee Air Source running most of the time. Anyone's thoughts?

>

>

>

> ________________________________

>

> To: " BorreliaMultipleInfectionsAndAutism "

> <BorreliaMultipleInfectionsAndAutism >

> Sent: Mon, March 12, 2012 3:52:04 PM

> Subject: Shoe, lyme, mold, Marcons

>

>

>

>

> I am wondering if anyone else has started the shoemaker approach? My son is on

> the spectrum and tested pos for Lyme via electro dermal (like zyto). He

recently

> did the tests recommended by shoemaker with my lyme doc and he is genetically

> susceptible to bio toxins including mold and Lyme in particular. That

apparently

> is why some people cant get rid of lyme. Has low MSH (melanocyte stimulating

> hormone) which disrupts many body processes, and very high IGF beta 1 a marker

> for widespread inflammation. Has high c4a which skyrockets when exposed to

mold

> if susceptible. (you can google these for explanations).

>

> He also tests pos for Marcons, which is a resistant staph Infection with

biofilm

> deep in the sinuses. Made me think of the face pressing everyone was talking

> about.

>

> I don't have much to add here, except to look into shoemaker and his work with

> Lyme docs. 25% of population is supposedly susceptible, so living in moldy

> house, or having Lyme or other toxin producing microbes can mess up the immune

> system and never get cleared. I was happy to see some actual blood work and

with

> markers that have been successfully treated by this protocol.

>

> As we get through the protocol, I'll provide updates on my son's status.

>

> A big piece of the treatment is using a heavy duty binder called questran.

Also

> treating the Marcons. But first need to be out of moldy place or remediate.

Used

> an ERMI test to check for mold.

>

> Don't have time to be more detailed, but check latest book, Surviving Mold,

and

> visit his website www.survivingmold.com. I think there is at least one other

> poster here who is following this path.

>

> Hope this helps someone.

>

> Best,

>

>

>

> Sent from my iPad

>

[Guest guest]

I forgot to mention that my son has been on the BEGS spray, and its been very

helpful for him. ( BEGS is a antibx nasal spray - sold thru Hopkinton Pharm

prescription is required)

Allie

> >

> > Please, what is the test for Marcons, name and lab phone number, for have

had LD

> > chronic lifelong plus sinuslifelong infecs. (Klebsiella for the last year,

> > probably more not tested for), and all docs are pushing surgery, and none of

> > them knows about Marcons nor cares to find out more. The high frontal

sinuses

> > are the ones that cause extreme pain and swelling. There has been a mold

> > condition around this building in Florida for years and do not have an

> > accessible mold doc nor funds for the ERMI, nor the means to move, but do

have a

> > Shaklee Air Source running most of the time. Anyone's thoughts?

> >

> >

> >

> > ________________________________

> > From: " teknea@ " <teknea@>

> > To: " BorreliaMultipleInfectionsAndAutism "

> > <BorreliaMultipleInfectionsAndAutism >

> > Sent: Mon, March 12, 2012 3:52:04 PM

> > Subject: Shoe, lyme, mold, Marcons

> >

> >

> >

> >

> > I am wondering if anyone else has started the shoemaker approach? My son is

on

> > the spectrum and tested pos for Lyme via electro dermal (like zyto). He

recently

> > did the tests recommended by shoemaker with my lyme doc and he is

genetically

> > susceptible to bio toxins including mold and Lyme in particular. That

apparently

> > is why some people cant get rid of lyme. Has low MSH (melanocyte stimulating

> > hormone) which disrupts many body processes, and very high IGF beta 1 a

marker

> > for widespread inflammation. Has high c4a which skyrockets when exposed to

mold

> > if susceptible. (you can google these for explanations).

> >

> > He also tests pos for Marcons, which is a resistant staph Infection with

biofilm

> > deep in the sinuses. Made me think of the face pressing everyone was talking

> > about.

> >

> > I don't have much to add here, except to look into shoemaker and his work

with

> > Lyme docs. 25% of population is supposedly susceptible, so living in moldy

> > house, or having Lyme or other toxin producing microbes can mess up the

immune

> > system and never get cleared. I was happy to see some actual blood work and

with

> > markers that have been successfully treated by this protocol.

> >

> > As we get through the protocol, I'll provide updates on my son's status.

> >

> > A big piece of the treatment is using a heavy duty binder called questran.

Also

> > treating the Marcons. But first need to be out of moldy place or remediate.

Used

> > an ERMI test to check for mold.

> >

> > Don't have time to be more detailed, but check latest book, Surviving Mold,

and

> > visit his website www.survivingmold.com. I think there is at least one

other

> > poster here who is following this path.

> >

> > Hope this helps someone.

> >

> > Best,

> >

> >

> >

> > Sent from my iPad

> >

>

[Guest guest]

I hope this is not a downer, just our experience.

We (daughter and I) are positive for Lyme and co-infections, started with an

LLMD.

Our Dr. was very much into Shoemaker. I believe Shoemaker, think it is valid,

for sure, but personally couldn't get into the whole entire protocol- I don't

think it is necessarily a given that high C4a is always mold- it can indicate

chronic Lyme, too.

Dd and I did test and both had 1 gene of the 'dreaded' HLA gene, and one gene

okay.

Through some Zyto, Macrons came up, too.

We spent 6 months (!) on the Qeustran powder, $$ on all kinds of testing, mold

inspection w/minor repair in garage, ERMI testing, new Hepa air purifiers in

rooms,

BEG spray with pulsed antibiotics.

At 6 months, it seemed never ending, I did not see improvements-

I wanted to get down to the business of treating Lyme and co-infections.

I was honest about how I felt after 6 months of this (and yes, we were on some

antibiotics, herbals, detox) but it was always this Shoemaker protocol we

couldn't seem to get off.

We switched LLMD's 2 weeks ago, to a better match for us.

Detox is huge, of course, and I try my best everyday to support that in us both

while treating.

> > >

> > > Please, what is the test for Marcons, name and lab phone number, for have

had LD

> > > chronic lifelong plus sinuslifelong infecs. (Klebsiella for the last

year,

> > > probably more not tested for), and all docs are pushing surgery, and none

of

> > > them knows about Marcons nor cares to find out more. The high frontal

sinuses

> > > are the ones that cause extreme pain and swelling. There has been a mold

> > > condition around this building in Florida for years and do not have an

> > > accessible mold doc nor funds for the ERMI, nor the means to move, but do

have a

> > > Shaklee Air Source running most of the time. Anyone's thoughts?

> > >

> > >

> > >

> > > ________________________________

> > > From: " teknea@ " <teknea@>

> > > To: " BorreliaMultipleInfectionsAndAutism "

> > > <BorreliaMultipleInfectionsAndAutism >

> > > Sent: Mon, March 12, 2012 3:52:04 PM

> > > Subject: Shoe, lyme, mold, Marcons

> > >

> > >

> > >

> > >

> > > I am wondering if anyone else has started the shoemaker approach? My son

is on

> > > the spectrum and tested pos for Lyme via electro dermal (like zyto). He

recently

> > > did the tests recommended by shoemaker with my lyme doc and he is

genetically

> > > susceptible to bio toxins including mold and Lyme in particular. That

apparently

> > > is why some people cant get rid of lyme. Has low MSH (melanocyte

stimulating

> > > hormone) which disrupts many body processes, and very high IGF beta 1 a

marker

> > > for widespread inflammation. Has high c4a which skyrockets when exposed to

mold

> > > if susceptible. (you can google these for explanations).

> > >

> > > He also tests pos for Marcons, which is a resistant staph Infection with

biofilm

> > > deep in the sinuses. Made me think of the face pressing everyone was

talking

> > > about.

> > >

> > > I don't have much to add here, except to look into shoemaker and his work

with

> > > Lyme docs. 25% of population is supposedly susceptible, so living in moldy

> > > house, or having Lyme or other toxin producing microbes can mess up the

immune

> > > system and never get cleared. I was happy to see some actual blood work

and with

> > > markers that have been successfully treated by this protocol.

> > >

> > > As we get through the protocol, I'll provide updates on my son's status.

> > >

> > > A big piece of the treatment is using a heavy duty binder called questran.

Also

> > > treating the Marcons. But first need to be out of moldy place or

remediate. Used

> > > an ERMI test to check for mold.

> > >

> > > Don't have time to be more detailed, but check latest book, Surviving

Mold, and

> > > visit his website www.survivingmold.com. I think there is at least one

other

> > > poster here who is following this path.

> > >

> > > Hope this helps someone.

> > >

> > > Best,

> > >

> > >

> > >

> > > Sent from my iPad

> > >

> >

>

[Guest guest]

I think your right and its a lot tougher than parents realize especially if you

been at this a while and been knocking down walls to get better, with various

treatments.

The 4-3-53 HLA genotype is one of those that Dr. Shoemaker classifies as

" multisusceptible, " People who have one of these genotypes are susceptible to a

variety of biotoxin illnesses, including mold illness and Lyme disease.

Sorry about this, but he has called these the " dreaded " genotypes. He finds one

or two of these genotypes in people who have CFS that does not reverse, even

after he has cleared out the biotoxins using cholestyramine.

I suspect that these multisusceptible people may have to clear a partial block

in their methylation cycle as part of their treatment. The methylation cycle

block treatment was adopted from autism research and was applied on a

theoretical biochemical basis to " pure " CFS. The " simplified treatment approach "

for doing this has been in use for only a few years.

And new things are developed and discovered all the time. Dr. Shoemaker wrote

he thinks that if MSH supplementation were made legal, many of his tough cases

would be helped.

Still waiting for MSH ( and I do not know what that stands for!!).

This is not anything I have heard from any DR to test for, however I had other

reasons to look into this. Its genetic maternal testing, www.23andme.com

It gives you a long list of risk factors ( not mold) But it did tell me I had a

high risk factor

to Celiac - never have tested for but have taken the challenge to remove Gluten

from my diet.

And it was correct about my eye color, texture of my hair and where my relatives

came from.

There are lots of other things the testing shows, if you have a high/low risk

for.

And can connect you with others with the same Haplogroup

Allie

> > > >

> > > > Please, what is the test for Marcons, name and lab phone number, for

have had LD

> > > > chronic lifelong plus sinuslifelong infecs. (Klebsiella for the last

year,

> > > > probably more not tested for), and all docs are pushing surgery, and

none of

> > > > them knows about Marcons nor cares to find out more. The high frontal

sinuses

> > > > are the ones that cause extreme pain and swelling. There has been a

mold

> > > > condition around this building in Florida for years and do not have an

> > > > accessible mold doc nor funds for the ERMI, nor the means to move, but

do have a

> > > > Shaklee Air Source running most of the time. Anyone's thoughts?

> > > >

> > > >

> > > >

> > > > ________________________________

> > > > From: " teknea@ " <teknea@>

> > > > To: " BorreliaMultipleInfectionsAndAutism "

> > > > <BorreliaMultipleInfectionsAndAutism >

> > > > Sent: Mon, March 12, 2012 3:52:04 PM

> > > > Subject: Shoe, lyme, mold, Marcons

> > > >

> > > >

> > > >

> > > >

> > > > I am wondering if anyone else has started the shoemaker approach? My son

is on

> > > > the spectrum and tested pos for Lyme via electro dermal (like zyto). He

recently

> > > > did the tests recommended by shoemaker with my lyme doc and he is

genetically

> > > > susceptible to bio toxins including mold and Lyme in particular. That

apparently

> > > > is why some people cant get rid of lyme. Has low MSH (melanocyte

stimulating

> > > > hormone) which disrupts many body processes, and very high IGF beta 1 a

marker

> > > > for widespread inflammation. Has high c4a which skyrockets when exposed

to mold

> > > > if susceptible. (you can google these for explanations).

> > > >

> > > > He also tests pos for Marcons, which is a resistant staph Infection with

biofilm

> > > > deep in the sinuses. Made me think of the face pressing everyone was

talking

> > > > about.

> > > >

> > > > I don't have much to add here, except to look into shoemaker and his

work with

> > > > Lyme docs. 25% of population is supposedly susceptible, so living in

moldy

> > > > house, or having Lyme or other toxin producing microbes can mess up the

immune

> > > > system and never get cleared. I was happy to see some actual blood work

and with

> > > > markers that have been successfully treated by this protocol.

> > > >

> > > > As we get through the protocol, I'll provide updates on my son's status.

> > > >

> > > > A big piece of the treatment is using a heavy duty binder called

questran. Also

> > > > treating the Marcons. But first need to be out of moldy place or

remediate. Used

> > > > an ERMI test to check for mold.

> > > >

> > > > Don't have time to be more detailed, but check latest book, Surviving

Mold, and

> > > > visit his website www.survivingmold.com. I think there is at least one

other

> > > > poster here who is following this path.

> > > >

> > > > Hope this helps someone.

> > > >

> > > > Best,

> > > >

> > > >

> > > >

> > > > Sent from my iPad

> > > >

> > >

> >

>

[Guest guest]

Re Marcons testing...from Shoe website...Effective immediately, nasal cultures to isolate and identify coag negstaphs will be run by Diagnostic Laboratory Medicine, Bedford,Massachusetts. DLM is run by Dr. ph Musto; reach him at orjmusto@.... The lab is CLIA certified.The lab website is www.dlmlabs.com. Note the plural labs in the website andsingular lab in Dr. Musto’s email address.Cost is $50 for negative culture and $85 for positive culture andantibiograms. Cultures are not run through insurance, fee-for-service only.Billing is monthly; patients will be furnished with a HCFA form forsubmission on their own to their insurance carriers.Sent from my iPad