Guest guest Posted February 7, 2000 Report Share Posted February 7, 2000 I sent copies of Kari's Diagnosis, pre & post-surgery records. Along with chiari infor from Medline & info from neurosurgeon sites to her internist and asked him to review, that we would see him after surgery. 2 wks after her surgery...The internist (who also specializes in Sleeping disorders) agreed to be responsible for aftercare and had heard of Chiari and appreciate the information...he said he began to research it himself to be ready. He showed us how to test for Horner's syndrome...he ran a tongue depressor over her forehead and at the same spot it would drag and then stop completely above the eye that was symptomatic....and he had to tug it to get it to move...then he did the dilation with a light. Her one eye dilated very slowly and had a slight droopiness. He actually seemed relieved that she finally had a diagnosis...her symptoms had puzzeled him and this Chiari diagnosis and surgery made sense to him. He did the nureological, balance (heel-toe walk, arms extended shut eyes touch nose) & tested her strength to see her improvements... he also called in all his staff and told them that Kari and her mother's persistence was a valuable lesson to learn regarding not to dismiss a patient because you can't find an answer or you feel they complain too much...that he and his staff should have listened better! I wish I could clone him...but my suggestion is too try to set this up before the surgery. Dori Hope this helps! mom of 23 y/o Kari 3mths post-op Chiari, graph & C1-2 " kate " wrote: original article:/group/chiari/?start=31466 > Hi all, > I am going to see Dr. Heffez at the end of the month and have surgery scheduled for March 1st. I see a doc in Denver who sees mostly CFIDS patients. He is leaving this week for the CDC to start a study on CFIDS.HE will be gone for four months. So I called my PA to tell him what is going on so that if I needed any help with anything after surgery he would be aware of what would be happening. He told me that he was no longer comfortable treating me because he has no idea what to do with cervical and foramen magnum compression.Yhe MD. he works with is a twit, and no one is covering for my doc in Denver. Not many people want to " deal with " CFIDS people.( and it seems that was an inaccurate dx anyway) SOOOO........ Here is my question: For those of you who have had surgery have you needed a GP afterwards for anything? And how did they react to you? It's only 2 1/2 weeks till I leave for Chicago. I don't know if I can even get into see someone before then,and that's after finding someone. Then I have to explain this all to them and deal with their possible skepticism. This feels like to much right now. I feel silly to be in this possition but I just assumed someone would be covering for my doc since he works at a major hospital. I guess it's because he is not a primary care doc.But my symptoms are so weird that no one else wants to deal. So now i'm left hanging. Does anyone have any idea of what I should do? Will having Dr. H be enough? Chicago is far away. > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2012 Report Share Posted February 2, 2012 I have heard him give presentations at professional conferences. He is very knowledgeable about both Lyme and autism. I have never dealt with his as a patient. Anne M., BSN, MSN/IH, RNmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of keenahartley@...Sent: Thursday, February 02, 2012 9:59 AMTo: BorreliaMultipleInfectionsAndAutism Subject: Need doc advice The doctor who is currently treating my son using ZYTO, Cowden etc. refuses to prescribe Mepron for his babesia, give rife frequencies, or administer anymore LEDs. She recommended a Dr. Wulfman in VT as he has autism and Lyme experience. Anyone no this guy? Keena__________ Information from ESET NOD32 Antivirus, version of virus signature database 6852 (20120202) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6852 (20120202) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2012 Report Share Posted February 3, 2012 keena if you are using any of yasko's protocols just be aware that dr w does not know anything about them. you can email me privately if you'd like to discuss more...susie I have heard him give presentations at professional conferences. He is very knowledgeable about both Lyme and autism. I have never dealt with his as a patient. Anne M., BSN, MSN/IH, RNmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of keenahartley@...Sent: Thursday, February 02, 2012 9:59 AMTo: BorreliaMultipleInfectionsAndAutism Subject: Need doc advice The doctor who is currently treating my son using ZYTO, Cowden etc. refuses to prescribe Mepron for his babesia, give rife frequencies, or administer anymore LEDs. She recommended a Dr. Wulfman in VT as he has autism and Lyme experience. Anyone no this guy? Keena__________ Information from ESET NOD32 Antivirus, version of virus signature database 6852 (20120202) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus! signature database 6852 (20120202) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2012 Report Share Posted February 5, 2012 I know have met Dr. Wulfman. He's a great doctor and very knowledgeable; also teaching faculty at one of the Vermont universities. Very highly recommended. I met him at Lyme conferences, including Lyme Induced Autism. Marty To: BorreliaMultipleInfectionsAndAutism Sent: Thursday, February 2, 2012 12:58 PMSubject: Need doc advice The doctor who is currently treating my son using ZYTO, Cowden etc. refuses to prescribe Mepron for his babesia, give rife frequencies, or administer anymore LEDs. She recommended a Dr. Wulfman in VT as he has autism and Lyme experience. Anyone no this guy? Keena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2012 Report Share Posted February 7, 2012 He's phenomenal. To: BorreliaMultipleInfectionsAndAutism From: keenahartley@...Date: Thu, 2 Feb 2012 17:58:44 +0000Subject: Need doc advice The doctor who is currently treating my son using ZYTO, Cowden etc. refuses to prescribe Mepron for his babesia, give rife frequencies, or administer anymore LEDs. She recommended a Dr. Wulfman in VT as he has autism and Lyme experience. Anyone no this guy? Keena Quote Link to comment Share on other sites More sharing options...
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