How do you tell them you're sick? How do you ask for support/help?

[Guest guest]

HI Everyone! I've been absent for several months because I've been completely

overwhelmed and sick. Currently, my 6 yr old son (LIA) and myself are being

treated for Lyme and I am far worse off than he is currently (thank God its not

him again!). I've been so sick and stressed beyond belief that my immune system

finally crashed and I kicked up wicked shingles for two months. The protocol my

LLMD has me on is CRAZY, which of course you all can sympathize with 20 ways til

Sunday, and I finally just couldn't handle taking it anymore. I couldn't keep up

with the dosing schedule because I have so much on my plate with two kids on the

spectrum battling Lyme on top of myself, divorce, and scheduling/shuffling

little ones...I physically and emotionally can't take it anymore. I'm in a

really dark, depressing place right now and I cannot do this alone any more.

My question for the post comes from trying to reach out for more support. I have

family that is aware of my situation and I've asked for help so many times but

they either don't believe or don't understand how sick I am. They NEVER follow

through with what they promise to help with. There is a little bit of water

under the bridge with my grandparents supporting me and the kids through my

divorce and so it hasn't made things easy on my relationships with others but I

am honestly very hurt and angry that no one believes me about how sick I am and

desperate for help. I truly have NO ONE to help me outside of my grandmother and

my mother to assist me with the kids. I've been isolated from my old church

community and friends over the years because of my son's illnesses and huge

autism issues/rages that my relationships have suffered. I feared 6 months ago

that I wouldn't get through my protocol because I didn't have enough support to

help me and here I am 6 mos later now facing another 3-6 mos of more invasive

intervention all because my family and closest friends didn't get the message.

Am I being selfish? I feel as if they'd only help me if I said I had cancer and

only 1 yr to live. Anyone else go through this before? I'm now left to throw my

Hail pass to my remaining friends and family that aren't aware of what's

going on and post a health update on Facebook. But I don't want people to think

of me being a victim or just to show sympathy. I want some actual help to sweep

my floors, fold laundry, go grocery shopping or bring a GFCFSF meal that I don't

have to slave away cooking myself because I'm herxing so bad or too weak to

stand. I've delayed writing this post for months for fear that people won't

help me and I'll only look like I'm whining and complaining about my life. I'm

not being completely unreasonable...I've posted over the years in the past and

desperately asked for help when my son was at his worst health and ABSOLUTELY NO

ONE HELPED. I was really very surprised considering so many friends said they

cared and would help but then they didn't back up their promises. Many of these

people have come to me for help and I went far beyond what was expected not

because I wanted any credit or glory but because it was LOVE. Now I'm in a

desperate place and I'm scratching my head as to why its so hard of me to find

help. Can you tell I'm a bit jaded?

Any thoughts or examples of other people's letters they've written for help to

family and friends? Sorry if I sound a bit 'whiny' right now, I have so much

pain and inflammation flaring up right now and I can only imagine its a freakin'

yeast flare

Thanks for your help!

e

[Guest guest]

Unfortunately, your story is very similar to mine. Prayer is

definitely my biggest asset. In my research of Lyme, I came across

several doc reports stating that for their "poor" and disabled

patients, they try Samento first. They say about half can get back

to work just on Samento. They don't get 100% on it, but well enough

to get back to work to make more money to afford the additional

things needed. So, basically, it's touted as cost effective and

easy to do. It doesn't have a taste, just needs to be put in

filtered (not demineralized) water. You can Google to learn about

it, and it comes with directions. Keep in mind that many say one

drop can cause severe die-off, so starting with one drop is

typically done. See if you LLMD will allow something simpler like

Samento. And don't forget prayer. It has been my biggest help.

Love and prayers,

Heidi N

HI Everyone! I've been absent for several months because I've been

completely overwhelmed and sick. Currently, my 6 yr old son (LIA)

and myself are being treated for Lyme and I am far worse off than he

is currently (thank God its not him again!). I've been so sick and

stressed beyond belief that my immune system finally crashed and I

kicked up wicked shingles for two months. The protocol my LLMD has

me on is CRAZY, which of course you all can sympathize with 20 ways

til Sunday, and I finally just couldn't handle taking it anymore. I

couldn't keep up with the dosing schedule because I have so much on

my plate with two kids on the spectrum battling Lyme on top of

myself, divorce, and scheduling/shufflin

g little ones...I

physically and emotionally can't take it anymore. I'm in a really

dark, depressing place right now and I cannot do this alone any

more.

My question for the post comes from trying to reach out for more

support. I have family that is aware of my situation and I've

asked for help so many times but they either don't believe or

don't understand how sick I am. They NEVER follow through with

what they promise to help with. There is a little bit of water

under the bridge with my grandparents supporting me and the kids

through my divorce and so it hasn't made things easy on my

relationships with others but I am honestly very hurt and angry

that no one believes me about how sick I am and desperate for

help. I truly have NO ONE to help me outside of my grandmother and

my mother to assist me with the kids. I've been isolated from my

old church community and friends over the years because of my

son's illnesses and huge autism issues/rages that my relationships

have suffered. I feared 6 months ago that I wouldn't get through

my protocol because I didn't have enough support to help me and

here I am 6 mos later now facing another 3-6 mos of more invasive

intervention all because my family and closest friends didn't get

the message.

Am I being selfish? I feel as if they'd only help me if I said I

had cancer and only 1 yr to live. Anyone else go through this

before? I'm now left to throw my Hail pass to my remaining

friends and family that aren't aware of what's going on and post a

health update on Facebook. But I don't want people to think of me

being a victim or just to show sympathy. I want some actual help

to sweep my floors, fold laundry, go grocery shopping or bring a

GFCFSF meal that I don't have to slave away cooking myself because

I'm herxing so bad or too weak to stand. I've delayed writing this

post for months for fear that people won't help me and I'll only

look like I'm whining and complaining about my life. I'm not being

completely unreasonable...I've posted over the years in the

past and desperately asked for help when my son was at his worst

health and ABSOLUTELY NO ONE HELPED. I was really very surprised

considering so many friends said they cared and would help but

then they didn't back up their promises. Many of these people have

come to me for help and I went far beyond what was expected not

because I wanted any credit or glory but because it was LOVE. Now

I'm in a desperate place and I'm scratching my head as to why its

so hard of me to find help. Can you tell I'm a bit jaded?

Any thoughts or examples of other people's letters they've written

for help to family and friends? Sorry if I sound a bit 'whiny'

right now, I have so much pain and inflammation flaring up right

now and I can only imagine its a freakin' yeast flare

Thanks for your help!

e

[Guest guest]

Are you seeing Dr S? I was on som many meds with him.

I was under so much stress, but somehow, treating bartonella on rifampin caused

my strep to rage and I did not feel better until I went on augmentin for PANDAS.

This eliminated my overwhelming anxiety.

Beyond my husband, no one is really there for us either. This is comon.

>

> HI Everyone! I've been absent for several months because I've been completely

overwhelmed and sick. Currently, my 6 yr old son (LIA) and myself are being

treated for Lyme and I am far worse off than he is currently (thank God its not

him again!). I've been so sick and stressed beyond belief that my immune system

finally crashed and I kicked up wicked shingles for two months. The protocol my

LLMD has me on is CRAZY, which of course you all can sympathize with 20 ways til

Sunday, and I finally just couldn't handle taking it anymore. I couldn't keep up

with the dosing schedule because I have so much on my plate with two kids on the

spectrum battling Lyme on top of myself, divorce, and scheduling/shuffling

little ones...I physically and emotionally can't take it anymore. I'm in a

really dark, depressing place right now and I cannot do this alone any more.

>

> My question for the post comes from trying to reach out for more support. I

have family that is aware of my situation and I've asked for help so many times

but they either don't believe or don't understand how sick I am. They NEVER

follow through with what they promise to help with. There is a little bit of

water under the bridge with my grandparents supporting me and the kids through

my divorce and so it hasn't made things easy on my relationships with others but

I am honestly very hurt and angry that no one believes me about how sick I am

and desperate for help. I truly have NO ONE to help me outside of my grandmother

and my mother to assist me with the kids. I've been isolated from my old church

community and friends over the years because of my son's illnesses and huge

autism issues/rages that my relationships have suffered. I feared 6 months ago

that I wouldn't get through my protocol because I didn't have enough support to

help me and here I am 6 mos later now facing another 3-6 mos of more invasive

intervention all because my family and closest friends didn't get the message.

>

> Am I being selfish? I feel as if they'd only help me if I said I had cancer

and only 1 yr to live. Anyone else go through this before? I'm now left to throw

my Hail pass to my remaining friends and family that aren't aware of what's

going on and post a health update on Facebook. But I don't want people to think

of me being a victim or just to show sympathy. I want some actual help to sweep

my floors, fold laundry, go grocery shopping or bring a GFCFSF meal that I don't

have to slave away cooking myself because I'm herxing so bad or too weak to

stand. I've delayed writing this post for months for fear that people won't

help me and I'll only look like I'm whining and complaining about my life. I'm

not being completely unreasonable...I've posted over the years in the past and

desperately asked for help when my son was at his worst health and ABSOLUTELY NO

ONE HELPED. I was really very surprised considering so many friends said they

cared and would help but then they didn't back up their promises. Many of these

people have come to me for help and I went far beyond what was expected not

because I wanted any credit or glory but because it was LOVE. Now I'm in a

desperate place and I'm scratching my head as to why its so hard of me to find

help. Can you tell I'm a bit jaded?

>

> Any thoughts or examples of other people's letters they've written for help to

family and friends? Sorry if I sound a bit 'whiny' right now, I have so much

pain and inflammation flaring up right now and I can only imagine its a freakin'

yeast flare

>

> Thanks for your help!

>

> e

>

[Guest guest]

Hi Caryn! No I see Dr. P in the same practice (if I think that's who you're

saying Dr. S is). I just took a combo of Rifampin, Doxy, and Valtrex (to keep

the shingles at bay) and he's prescribed Questran 4 times per day along with

alternating bentonite with charcoal. Tons of other herbs and dozens of

supplements between then and then of course doing the whole clean diet thing. I

got a week of grace I call it within 3 weeks of taking the Rifampin/Doxy/Valtrex

rounds and really felt something worked there but now I'm cycling back to

feeling pretty crappy again. Bartonella is my first priority coinfection

followed by Babesia but Dr. P is really just trying to hit the viruses, bacteria

and mold (I had insane migraines and now they are GONE). I am at this weird dark

wall where nothing is getting through, I'm not herxing with anything he gives

me, not noticing any other breakthroughs and the IV treatments he's giving me I

now am over sensitized to and have blown out my veins every time followed by

rashes and swelling. My body is just freaking out because of the anxiety and

stress so I'm trying to get a game plan together for help but i don't know just

how to ask for it without seeming needy. He said " Give me 3 months. I can't kill

all the bugs but I can guarantee that if you follow protocol consistently for 3

months you'll be feeling a whole hell of a lot better. If we don't get you to

turn a page, to shift your immune system NOW, results are going to be

disastrous. "

Thanks for your input

> >

> > HI Everyone! I've been absent for several months because I've been

completely overwhelmed and sick. Currently, my 6 yr old son (LIA) and myself are

being treated for Lyme and I am far worse off than he is currently (thank God

its not him again!). I've been so sick and stressed beyond belief that my immune

system finally crashed and I kicked up wicked shingles for two months. The

protocol my LLMD has me on is CRAZY, which of course you all can sympathize with

20 ways til Sunday, and I finally just couldn't handle taking it anymore. I

couldn't keep up with the dosing schedule because I have so much on my plate

with two kids on the spectrum battling Lyme on top of myself, divorce, and

scheduling/shuffling little ones...I physically and emotionally can't take it

anymore. I'm in a really dark, depressing place right now and I cannot do this

alone any more.

> >

> > My question for the post comes from trying to reach out for more support. I

have family that is aware of my situation and I've asked for help so many times

but they either don't believe or don't understand how sick I am. They NEVER

follow through with what they promise to help with. There is a little bit of

water under the bridge with my grandparents supporting me and the kids through

my divorce and so it hasn't made things easy on my relationships with others but

I am honestly very hurt and angry that no one believes me about how sick I am

and desperate for help. I truly have NO ONE to help me outside of my grandmother

and my mother to assist me with the kids. I've been isolated from my old church

community and friends over the years because of my son's illnesses and huge

autism issues/rages that my relationships have suffered. I feared 6 months ago

that I wouldn't get through my protocol because I didn't have enough support to

help me and here I am 6 mos later now facing another 3-6 mos of more invasive

intervention all because my family and closest friends didn't get the message.

> >

> > Am I being selfish? I feel as if they'd only help me if I said I had cancer

and only 1 yr to live. Anyone else go through this before? I'm now left to throw

my Hail pass to my remaining friends and family that aren't aware of what's

going on and post a health update on Facebook. But I don't want people to think

of me being a victim or just to show sympathy. I want some actual help to sweep

my floors, fold laundry, go grocery shopping or bring a GFCFSF meal that I don't

have to slave away cooking myself because I'm herxing so bad or too weak to

stand. I've delayed writing this post for months for fear that people won't

help me and I'll only look like I'm whining and complaining about my life. I'm

not being completely unreasonable...I've posted over the years in the past and

desperately asked for help when my son was at his worst health and ABSOLUTELY NO

ONE HELPED. I was really very surprised considering so many friends said they

cared and would help but then they didn't back up their promises. Many of these

people have come to me for help and I went far beyond what was expected not

because I wanted any credit or glory but because it was LOVE. Now I'm in a

desperate place and I'm scratching my head as to why its so hard of me to find

help. Can you tell I'm a bit jaded?

> >

> > Any thoughts or examples of other people's letters they've written for help

to family and friends? Sorry if I sound a bit 'whiny' right now, I have so much

pain and inflammation flaring up right now and I can only imagine its a freakin'

yeast flare

> >

> > Thanks for your help!

> >

> > e

> >

>

[Guest guest]

Thanks Heidi! Prayer is the ONLY reason why I'm as far as I am now. Thank GOD I

have that help and resource. 2 put 10,000 to flight

>

> Unfortunately, your story is very similar to mine. Prayer is definitely

> my biggest asset. In my research of Lyme, I came across several doc

> reports stating that for their " poor " and disabled patients, they try

> Samento first. They say about half can get back to work just on

> Samento. They don't get 100% on it, but well enough to get back to work

> to make more money to afford the additional things needed. So,

> basically, it's touted as cost effective and easy to do. It doesn't

> have a taste, just needs to be put in filtered (not demineralized)

> water. You can Google to learn about it, and it comes with directions.

> Keep in mind that many say one drop can cause severe die-off, so

> starting with one drop is typically done. See if you LLMD will allow

> something simpler like Samento. And don't forget prayer. It has been

> my biggest help.

>

> Love and prayers,

>

> Heidi N

>

>

>

>

> HI Everyone! I've been absent for several months because I've been

> completely overwhelmed and sick. Currently, my 6 yr old son (LIA) and

> myself are being treated for Lyme and I am far worse off than he is

> currently (thank God its not him again!). I've been so sick and stressed

> beyond belief that my immune system finally crashed and I kicked up

> wicked shingles for two months. The protocol my LLMD has me on is CRAZY,

> which of course you all can sympathize with 20 ways til Sunday, and I

> finally just couldn't handle taking it anymore. I couldn't keep up with

> the dosing schedule because I have so much on my plate with two kids on

> the spectrum battling Lyme on top of myself, divorce, and

> scheduling/shufflin

> g little ones...I physically and emotionally can't take it anymore. I'm

> in a really dark, depressing place right now and I cannot do this alone

> any more.

>

> My question for the post comes from trying to reach out for more

> support. I have family that is aware of my situation and I've asked for

> help so many times but they either don't believe or don't understand how

> sick I am. They NEVER follow through with what they promise to help

> with. There is a little bit of water under the bridge with my

> grandparents supporting me and the kids through my divorce and so it

> hasn't made things easy on my relationships with others but I am

> honestly very hurt and angry that no one believes me about how sick I am

> and desperate for help. I truly have NO ONE to help me outside of my

> grandmother and my mother to assist me with the kids. I've been isolated

> from my old church community and friends over the years because of my

> son's illnesses and huge autism issues/rages that my relationships have

> suffered. I feared 6 months ago that I wouldn't get through my protocol

> because I didn't have enough support to help me and here I am 6 mos

> later now facing another 3-6 mos of more invasive intervention all

> because my family and closest friends didn't get the message.

>

> Am I being selfish? I feel as if they'd only help me if I said I had

> cancer and only 1 yr to live. Anyone else go through this before? I'm

> now left to throw my Hail pass to my remaining friends and family

> that aren't aware of what's going on and post a health update on

> Facebook. But I don't want people to think of me being a victim or just

> to show sympathy. I want some actual help to sweep my floors, fold

> laundry, go grocery shopping or bring a GFCFSF meal that I don't have to

> slave away cooking myself because I'm herxing so bad or too weak to

> stand. I've delayed writing this post for months for fear that people

> won't help me and I'll only look like I'm whining and complaining about

> my life. I'm not being completely unreasonable...I've posted over the

> years in the past and desperately asked for help when my son was at his

> worst health and ABSOLUTELY NO ONE HELPED. I was really very surprised

> considering so many friends said they cared and would help but then they

> didn't back up their promises. Many of these people have come to me for

> help and I went far beyond what was expected not because I wanted any

> credit or glory but because it was LOVE. Now I'm in a desperate place

> and I'm scratching my head as to why its so hard of me to find help. Can

> you tell I'm a bit jaded?

>

> Any thoughts or examples of other people's letters they've written for

> help to family and friends? Sorry if I sound a bit 'whiny' right now, I

> have so much pain and inflammation flaring up right now and I can only

> imagine its a freakin' yeast flare

>

> Thanks for your help!

>

> e

>

[Guest guest]

Hi,

I just read your posts and am wondering if we are seeing the same Dr. P...in

California (Los Altos?). We went to our almost 3 year old son to him originally

as a DAN doctor, and after the many test, we found out he actually has

Lyme...LIA! It was a completer shocker to us. Turns out, my husband and I both

have Lyme also. Thank goodness, my 4 1/2 year old daughter does not have it.

Life with a Lyme diagnosis has turned our lives upside down. We're taking a ton

of supplements, herbs and meds, and will eventually be starting the antibiotics.

Hang in there. There is nothing easy about any of this.

Elaine

> > >

> > > HI Everyone! I've been absent for several months because I've been

completely overwhelmed and sick. Currently, my 6 yr old son (LIA) and myself are

being treated for Lyme and I am far worse off than he is currently (thank God

its not him again!). I've been so sick and stressed beyond belief that my immune

system finally crashed and I kicked up wicked shingles for two months. The

protocol my LLMD has me on is CRAZY, which of course you all can sympathize with

20 ways til Sunday, and I finally just couldn't handle taking it anymore. I

couldn't keep up with the dosing schedule because I have so much on my plate

with two kids on the spectrum battling Lyme on top of myself, divorce, and

scheduling/shuffling little ones...I physically and emotionally can't take it

anymore. I'm in a really dark, depressing place right now and I cannot do this

alone any more.

> > >

> > > My question for the post comes from trying to reach out for more support.

I have family that is aware of my situation and I've asked for help so many

times but they either don't believe or don't understand how sick I am. They

NEVER follow through with what they promise to help with. There is a little bit

of water under the bridge with my grandparents supporting me and the kids

through my divorce and so it hasn't made things easy on my relationships with

others but I am honestly very hurt and angry that no one believes me about how

sick I am and desperate for help. I truly have NO ONE to help me outside of my

grandmother and my mother to assist me with the kids. I've been isolated from my

old church community and friends over the years because of my son's illnesses

and huge autism issues/rages that my relationships have suffered. I feared 6

months ago that I wouldn't get through my protocol because I didn't have enough

support to help me and here I am 6 mos later now facing another 3-6 mos of more

invasive intervention all because my family and closest friends didn't get the

message.

> > >

> > > Am I being selfish? I feel as if they'd only help me if I said I had

cancer and only 1 yr to live. Anyone else go through this before? I'm now left

to throw my Hail pass to my remaining friends and family that aren't aware

of what's going on and post a health update on Facebook. But I don't want people

to think of me being a victim or just to show sympathy. I want some actual help

to sweep my floors, fold laundry, go grocery shopping or bring a GFCFSF meal

that I don't have to slave away cooking myself because I'm herxing so bad or too

weak to stand. I've delayed writing this post for months for fear that people

won't help me and I'll only look like I'm whining and complaining about my life.

I'm not being completely unreasonable...I've posted over the years in the past

and desperately asked for help when my son was at his worst health and

ABSOLUTELY NO ONE HELPED. I was really very surprised considering so many

friends said they cared and would help but then they didn't back up their

promises. Many of these people have come to me for help and I went far beyond

what was expected not because I wanted any credit or glory but because it was

LOVE. Now I'm in a desperate place and I'm scratching my head as to why its so

hard of me to find help. Can you tell I'm a bit jaded?

> > >

> > > Any thoughts or examples of other people's letters they've written for

help to family and friends? Sorry if I sound a bit 'whiny' right now, I have so

much pain and inflammation flaring up right now and I can only imagine its a

freakin' yeast flare

> > >

> > > Thanks for your help!

> > >

> > > e

> > >

> >

>

[Guest guest]

e!

oh my goodnessyou have every right to be angry!! It is a tremendous burden many

of us carry..you carry...i am a single mom with a kid on the spectrum with

health issues and recently started getting my own health issues...and yes i have

one aunt who is the only one who ever stops by to visit..and i cant ever talk

about my health issues or my son because she doesnt believe me.

I have turned to God big time...I start every day askin God for strength and

protection...I couldnt do it without him.

I am here if you want talk to someone offlist. us single moms got stick

together:)

I never got tested for lyme but im sure I have autoimmune issues and im sure I

got some really nasty stuff im fighting and what has really helped me is the MMS

its cheap to compared to other stuff:)

the goverment is poisoning our food supply and air...so more and more people

will be getting sicker and sicker..we just have to be strong and ask for Gods

protection .

channa

>

> Unfortunately, your story is very similar to mine. Prayer is definitely

> my biggest asset. In my research of Lyme, I came across several doc

> reports stating that for their " poor " and disabled patients, they try

> Samento first. They say about half can get back to work just on

> Samento. They don't get 100% on it, but well enough to get back to work

> to make more money to afford the additional things needed. So,

> basically, it's touted as cost effective and easy to do. It doesn't

> have a taste, just needs to be put in filtered (not demineralized)

> water. You can Google to learn about it, and it comes with directions.

> Keep in mind that many say one drop can cause severe die-off, so

> starting with one drop is typically done. See if you LLMD will allow

> something simpler like Samento. And don't forget prayer. It has been

> my biggest help.

>

> Love and prayers,

>

> Heidi N

>

>

>

>

> HI Everyone! I've been absent for several months because I've been

> completely overwhelmed and sick. Currently, my 6 yr old son (LIA) and

> myself are being treated for Lyme and I am far worse off than he is

> currently (thank God its not him again!). I've been so sick and stressed

> beyond belief that my immune system finally crashed and I kicked up

> wicked shingles for two months. The protocol my LLMD has me on is CRAZY,

> which of course you all can sympathize with 20 ways til Sunday, and I

> finally just couldn't handle taking it anymore. I couldn't keep up with

> the dosing schedule because I have so much on my plate with two kids on

> the spectrum battling Lyme on top of myself, divorce, and

> scheduling/shufflin

> g little ones...I physically and emotionally can't take it anymore. I'm

> in a really dark, depressing place right now and I cannot do this alone

> any more.

>

> My question for the post comes from trying to reach out for more

> support. I have family that is aware of my situation and I've asked for

> help so many times but they either don't believe or don't understand how

> sick I am. They NEVER follow through with what they promise to help

> with. There is a little bit of water under the bridge with my

> grandparents supporting me and the kids through my divorce and so it

> hasn't made things easy on my relationships with others but I am

> honestly very hurt and angry that no one believes me about how sick I am

> and desperate for help. I truly have NO ONE to help me outside of my

> grandmother and my mother to assist me with the kids. I've been isolated

> from my old church community and friends over the years because of my

> son's illnesses and huge autism issues/rages that my relationships have

> suffered. I feared 6 months ago that I wouldn't get through my protocol

> because I didn't have enough support to help me and here I am 6 mos

> later now facing another 3-6 mos of more invasive intervention all

> because my family and closest friends didn't get the message.

>

> Am I being selfish? I feel as if they'd only help me if I said I had

> cancer and only 1 yr to live. Anyone else go through this before? I'm

> now left to throw my Hail pass to my remaining friends and family

> that aren't aware of what's going on and post a health update on

> Facebook. But I don't want people to think of me being a victim or just

> to show sympathy. I want some actual help to sweep my floors, fold

> laundry, go grocery shopping or bring a GFCFSF meal that I don't have to

> slave away cooking myself because I'm herxing so bad or too weak to

> stand. I've delayed writing this post for months for fear that people

> won't help me and I'll only look like I'm whining and complaining about

> my life. I'm not being completely unreasonable...I've posted over the

> years in the past and desperately asked for help when my son was at his

> worst health and ABSOLUTELY NO ONE HELPED. I was really very surprised

> considering so many friends said they cared and would help but then they

> didn't back up their promises. Many of these people have come to me for

> help and I went far beyond what was expected not because I wanted any

> credit or glory but because it was LOVE. Now I'm in a desperate place

> and I'm scratching my head as to why its so hard of me to find help. Can

> you tell I'm a bit jaded?

>

> Any thoughts or examples of other people's letters they've written for

> help to family and friends? Sorry if I sound a bit 'whiny' right now, I

> have so much pain and inflammation flaring up right now and I can only

> imagine its a freakin' yeast flare

>

> Thanks for your help!

>

> e

>

[Guest guest]

Yep that's him Elaine! He's a good man and I trust him. He's been able to pin

point the source of my migraines (mold) and get me on an intense dosing schedule

but because of the tremendous schedule I have now being a single mom (divorce)

and with absolutely no support from my ex-inlaws, I'm left to manage all this on

my own. I couldn't handle the dosing schedule anymore so I just stopped cold

turkey and told Dr. P I needed to regroup due to tremendous stress and lack of

support. Let's just say he summed it all up as " jaimee, if you don't give me 3

months to help you turn a corner, it will be disastrous for you. I can't kill

all the bugs but I can guarantee you'll feel a whole hell of a lot better. "

Sound like him? Haha...bless him! I am really afraid that now I'm facing a

serious time of intense treatment for 3 months and I won't have support. The

bigger fear I have is once I announce to the world that I have Lyme disease,

I'll be pushing more people away from me than anyone coming to my aid. I want

people to know I struggle but my friends know I'm not a 'victim' type

personality. That being said, my son was so sick for years and the same friends

knew how much I needed help and not a single one came to my aid. Its really hard

to juggle my emotions with 'do I tell them or don't I tell them?'

I read someone else's opinion about reporting the Lyme disease to their friends

and family and equated it to announcing that they have AIDS and got it through

an STD and how that information should be kept private. I fear that when I tell

my friends and family that I got it from my ex-husband through sexual

transmission, they will have more of an 'eww' response instead of compassion. I

have to be careful how I tell this as well so it doesn't appear to be slander.

He visits the kids every weekend and once he finds out I publicly shared with

mutual friends and family that he's the one who gave it to us, it will not go

well. He's a bit in denial yet he's the one that was covered in bullseye rashes

off and on for the 9 years we were together (I had NO idea what Lyme was and I

thought at best it was ringworm) and it was a picture of his rashes I came to

show Dr. P at a conference to help determine what I was dealing with in regards

to my son's autism and illnesses. I didn't know that I would end up being the

worst off amongst all of us.

Dr.P refuses to prescribe anymore antibiotics and proceed with the next 3 month

until he has a meeting with some of my family to help advocate for my treatment

and lay down the rules for support. This is fine and dandy but the only people

that will come are the only ones helping with my kids and they can't support me

anymore than they are. I pray that they enlist some other people for help

because I can't possibly do anything else to trumpet my cause.

It seems that if I personally ask for help, people come up with a ton of excuses

but that they'll still pray for me (which they don't). On the contrary, there is

more effectiveness when someone else is your voice and fights for you and for

some reason it works better. I think it removes the victim-like voice and puts a

greater emphasis on finding support.

There you have it actually....I rambled on only to reveal what my real issue is:

I want someone to fight for ME this time.

> > > >

> > > > HI Everyone! I've been absent for several months because I've been

completely overwhelmed and sick. Currently, my 6 yr old son (LIA) and myself are

being treated for Lyme and I am far worse off than he is currently (thank God

its not him again!). I've been so sick and stressed beyond belief that my immune

system finally crashed and I kicked up wicked shingles for two months. The

protocol my LLMD has me on is CRAZY, which of course you all can sympathize with

20 ways til Sunday, and I finally just couldn't handle taking it anymore. I

couldn't keep up with the dosing schedule because I have so much on my plate

with two kids on the spectrum battling Lyme on top of myself, divorce, and

scheduling/shuffling little ones...I physically and emotionally can't take it

anymore. I'm in a really dark, depressing place right now and I cannot do this

alone any more.

> > > >

> > > > My question for the post comes from trying to reach out for more

support. I have family that is aware of my situation and I've asked for help so

many times but they either don't believe or don't understand how sick I am. They

NEVER follow through with what they promise to help with. There is a little bit

of water under the bridge with my grandparents supporting me and the kids

through my divorce and so it hasn't made things easy on my relationships with

others but I am honestly very hurt and angry that no one believes me about how

sick I am and desperate for help. I truly have NO ONE to help me outside of my

grandmother and my mother to assist me with the kids. I've been isolated from my

old church community and friends over the years because of my son's illnesses

and huge autism issues/rages that my relationships have suffered. I feared 6

months ago that I wouldn't get through my protocol because I didn't have enough

support to help me and here I am 6 mos later now facing another 3-6 mos of more

invasive intervention all because my family and closest friends didn't get the

message.

> > > >

> > > > Am I being selfish? I feel as if they'd only help me if I said I had

cancer and only 1 yr to live. Anyone else go through this before? I'm now left

to throw my Hail pass to my remaining friends and family that aren't aware

of what's going on and post a health update on Facebook. But I don't want people

to think of me being a victim or just to show sympathy. I want some actual help

to sweep my floors, fold laundry, go grocery shopping or bring a GFCFSF meal

that I don't have to slave away cooking myself because I'm herxing so bad or too

weak to stand. I've delayed writing this post for months for fear that people

won't help me and I'll only look like I'm whining and complaining about my life.

I'm not being completely unreasonable...I've posted over the years in the past

and desperately asked for help when my son was at his worst health and

ABSOLUTELY NO ONE HELPED. I was really very surprised considering so many

friends said they cared and would help but then they didn't back up their

promises. Many of these people have come to me for help and I went far beyond

what was expected not because I wanted any credit or glory but because it was

LOVE. Now I'm in a desperate place and I'm scratching my head as to why its so

hard of me to find help. Can you tell I'm a bit jaded?

> > > >

> > > > Any thoughts or examples of other people's letters they've written for

help to family and friends? Sorry if I sound a bit 'whiny' right now, I have so

much pain and inflammation flaring up right now and I can only imagine its a

freakin' yeast flare

> > > >

> > > > Thanks for your help!

> > > >

> > > > e

> > > >

> > >

> >

>