Guest guest Posted January 18, 2012 Report Share Posted January 18, 2012 Is your doc Lyme literate? Each doc has their own way of interpreting symptoms and testing. The amount of people who say they tested negative and only tested positive after starting to get well, or even after years of trying to get well, is a grand amount. Of all the many posts I have seen, I think I have only seen one who didn't test positive for band 41. But, any other band being positive is important. Of course there is a chance of all that you mentioned. It appears that most with Lyme or rather chronic health complaints, have many pathogens (bacterial, viral, protozoa, etc.). So, most people on these health forums end up treating long-term for many pathogen types. One doc I heard at a conference says he treats the main pathogen he feels is causing the most symptoms and tackles it from many directions and with several things. Many of the same antibiotics used for Strep are used for tickborne infections. Mycoplasmas, themselves, have been linked to serious chronic symptoms, so having that infection, alone, is enough to be very concerned. I see that you are on a good start. Sorry to tell you that this journey is a lot more longer and confusing than we would like. Love and prayers, Heidi N > > Hi there. My son is 10 and was diagnosed this summer with PANDAS. He has high strep titers and also has high IgG and IgM titers to mycoplasma pneumonia. Our doctor also tested myself and my other kids for these and for Lyme. The kids all came back negative for Lyme and I had one IgM band positive - band 39. I have had two additional western blog tests run since and in the 2nd & 3rd I did not show positive to band 39 but did to band 41. > > In the meantime my son with PANDAS has been retested for Lyme and he now shows one positive band - band 83. > > I am wondering what you all think of these results. I know 41 could be something else but I have read very conflicting things. Band 83 is supposed to be specific for Lyme I think. Any chance these be false positives or a virus or other infection could be causing these unclear results. > > Ruth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 He is an immunologist but I don't think he treats a lot of Lyme disease, himself. I imagine he has a better understanding of it than your typical doc, though. My son is currently on Biaxin, which is supposed to be effective for Lyme, strep, and mycoplasma P. I think he is unsure as to whether we have merely been exposed to Lyme, or whether there is Lyme disease, and wants to see if the immune system can clear it. I do think he has a good understanding of the other infections we are dealing with. I am not doing anything to treat Lyme in myself, since my testing has been so inconclusive. I do have elevated IgG (but not IgM) titers to mycoplasma P, Epstein Barr, and HHV6. THe HHV6 ones are quite elevated. How does one know if the past infections are causing a problems, or if you've effectively cleared them?Ruth Is your doc Lyme literate? Each doc has their own way of interpreting symptoms and testing. The amount of people who say they tested negative and only tested positive after starting to get well, or even after years of trying to get well, is a grand amount. Of all the many posts I have seen, I think I have only seen one who didn't test positive for band 41. But, any other band being positive is important. Of course there is a chance of all that you mentioned. It appears that most with Lyme or rather chronic health complaints, have many pathogens (bacterial, viral, protozoa, etc.). So, most people on these health forums end up treating long-term for many pathogen types. One doc I heard at a conference says he treats the main pathogen he feels is causing the most symptoms and tackles it from many directions and with several things. Many of the same antibiotics used for Strep are used for tickborne infections. Mycoplasmas, themselves, have been linked to serious chronic symptoms, so having that infection, alone, is enough to be very concerned. I see that you are on a good start. Sorry to tell you that this journey is a lot more longer and confusing than we would like. Love and prayers, Heidi N > > Hi there. My son is 10 and was diagnosed this summer with PANDAS. He has high strep titers and also has high IgG and IgM titers to mycoplasma pneumonia. Our doctor also tested myself and my other kids for these and for Lyme. The kids all came back negative for Lyme and I had one IgM band positive - band 39. I have had two additional western blog tests run since and in the 2nd & 3rd I did not show positive to band 39 but did to band 41. > > In the meantime my son with PANDAS has been retested for Lyme and he now shows one positive band - band 83. > > I am wondering what you all think of these results. I know 41 could be something else but I have read very conflicting things. Band 83 is supposed to be specific for Lyme I think. Any chance these be false positives or a virus or other infection could be causing these unclear results. > > Ruth > Quote Link to comment Share on other sites More sharing options...
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