Re: Age of Detetherings 's response??

[Guest guest]

Hi ...From where did you get this general rule about waiting as long

as possible. While we can't predict what is best for any given person,

the long term follow up does not support this but rather supports that in

general, the earlier the better? I recently read a textbook that reviewed

this issue. It is important to keep in mind (I know I sound like a broken

record) that those who had surgery and never thought about TCS again are

probably not on support groups Pls do correct me if your statement comes

from actual data versus observation or the word of one particular NSG.

Thanks so very much, Randee

In a message dated 4/6/2011 1:52:28 P.M. Central Daylight Time,

ltbunny192@... writes:

I was 23 and preparing for another surgery now. It doesn't matter what age

you start. General rule is younger you start mire scar tissue more

surgeries you end up neededinv think about it you mess with it young you need

to

fix it more often. If you ca. Hold out with out bowel bladder issues and pain

the longer you don't need surges the fewer you will have. Once you start

you usually have mote the. One.

This message was sent from s' iPhone. Apologies if it does not

format corectly.

On Apr 6, 2011, at 12:45 PM, " Brande " <_mymocha@..._

(mailto:mymocha@...) > wrote:

> I was 11 with my first, and 20 with my second. I had relatively the same

> complications both times, so it's been talked about that you fair better

as

> a child with this surgery, generally speaking.....for me, it didn't

matter.

>

> Brande

> _mymocha@..._ (mailto:mymocha@...)

>

> > I am just wondering at what age did some of you have your first

detether

> > surgery? Does anyone out there have a child who got detethered young?

I

> > have a daughter who got detethered at 5 months, and so I am wondering

if

> > this will help prevent some of the pain and problems that I read

about.

>

>

[Non-text portions of this message have been removed]

[Guest guest]

I agree with Randee, if surgery is a solution to reduce serveral probems ,

why not.

There is always a risk with this but 90% have moremore comfort in life.

The rule is you can't fix it complete , Make the best off it.

It's all quality of life

Jan Willem

-----Oorspronkelijk bericht-----

From: Randeejae@...

Sent: Thursday, April 07, 2011 1:45 AM

To: tetheredspinalcord

Subject: Re: Age of Detetherings 's response??

Hi ...From where did you get this general rule about waiting as long

as possible. While we can't predict what is best for any given person,

the long term follow up does not support this but rather supports that in

general, the earlier the better? I recently read a textbook that reviewed

this issue. It is important to keep in mind (I know I sound like a broken

record) that those who had surgery and never thought about TCS again are

probably not on support groups Pls do correct me if your statement

comes

from actual data versus observation or the word of one particular NSG.

Thanks so very much, Randee

In a message dated 4/6/2011 1:52:28 P.M. Central Daylight Time,

ltbunny192@... writes:

I was 23 and preparing for another surgery now. It doesn't matter what age

you start. General rule is younger you start mire scar tissue more

surgeries you end up neededinv think about it you mess with it young you

need to

fix it more often. If you ca. Hold out with out bowel bladder issues and

pain

the longer you don't need surges the fewer you will have. Once you start

you usually have mote the. One.

This message was sent from s' iPhone. Apologies if it does not

format corectly.

On Apr 6, 2011, at 12:45 PM, " Brande " <_mymocha@..._

(mailto:mymocha@...) > wrote:

> I was 11 with my first, and 20 with my second. I had relatively the same

> complications both times, so it's been talked about that you fair better

as

> a child with this surgery, generally speaking.....for me, it didn't

matter.

>

> Brande

> _mymocha@..._ (mailto:mymocha@...)

>

> > I am just wondering at what age did some of you have your first

detether

> > surgery? Does anyone out there have a child who got detethered young?

I

> > have a daughter who got detethered at 5 months, and so I am wondering

if

> > this will help prevent some of the pain and problems that I read

about.

>

>

[Non-text portions of this message have been removed]

[Guest guest]

In regards to those not showing symptoms like myself. Wait till you have a

symptom then surgery after a significant symptom is from my dr and a few others

at stanley children's hospital at columbia presbyterian in NYC. Like I

said I had a normal childhood and never would have know anything was wrong till

I aggravated my back lifting a 300lb person at work. In their experience some

kids who don't have surgery right away can live normal healthy lives. I had a

double tether and lipoma and a bunch of other stuff but was COMPLETELY fine till

2008. I had surgery was good again for a year. And a year later all symptoms

returned plus some new and worse. I've done all kinds of treatment and i'm in

pain management on heavy narcotics four times a day and can't carry my own

daughter. I'm finally coming to grips with having another surgery but as my

neuro explained now that I've had one I'll most likely have them rest of my life

unless I live in a bubble and do nothing and even then no real promise it would

keep me from tethering or scaring because every surgery causes more and more

scar tissue then the previous!

This message was sent from s' iPhone. Apologies if it does not format

corectly.

> Hi ...From where did you get this general rule about waiting as long

> as possible. While we can't predict what is best for any given person,

> the long term follow up does not support this but rather supports that in

> general, the earlier the better? I recently read a textbook that reviewed

> this issue. It is important to keep in mind (I know I sound like a broken

> record) that those who had surgery and never thought about TCS again are

> probably not on support groups Pls do correct me if your statement comes

> from actual data versus observation or the word of one particular NSG.

> Thanks so very much, Randee

>

>

> In a message dated 4/6/2011 1:52:28 P.M. Central Daylight Time,

> ltbunny192@... writes:

>

> I was 23 and preparing for another surgery now. It doesn't matter what age

> you start. General rule is younger you start mire scar tissue more

> surgeries you end up neededinv think about it you mess with it young you need

to

> fix it more often. If you ca. Hold out with out bowel bladder issues and pain

> the longer you don't need surges the fewer you will have. Once you start

> you usually have mote the. One.

> This message was sent from s' iPhone. Apologies if it does not

> format corectly.

>

> On Apr 6, 2011, at 12:45 PM, " Brande " <_mymocha@..._

> (mailto:mymocha@...) > wrote:

>

> > I was 11 with my first, and 20 with my second. I had relatively the same

> > complications both times, so it's been talked about that you fair better

> as

> > a child with this surgery, generally speaking.....for me, it didn't

> matter.

> >

> > Brande

> > _mymocha@..._ (mailto:mymocha@...)

> >

> > > I am just wondering at what age did some of you have your first

> detether

> > > surgery? Does anyone out there have a child who got detethered young?

> I

> > > have a daughter who got detethered at 5 months, and so I am wondering

> if

> > > this will help prevent some of the pain and problems that I read

> about.

> >

> >

>

>

[Guest guest]

I'd also like to add neither of you are drs nor am I or anyone here. It's all

opinions and if you guys continue to pick on others experience or opinions then

you wonder why no oneless comments or they leave the group we should be able to

reply to emails as I did without being personal attacked. You can state your

personal findings and such as I did without attacking what myself and my drs

feel to be true in my case everyone is different and you can state your

experience without knocking mine. Guess I'll go back into hiding or leave group

so tired of seeing same names and stories and theories being shoved down others

throats amyway.

This message was sent from s' iPhone. Apologies if it does not format

corectly.

>

>

> I agree with Randee, if surgery is a solution to reduce serveral probems ,

> why not.

> There is always a risk with this but 90% have moremore comfort in life.

> The rule is you can't fix it complete , Make the best off it.

> It's all quality of life

>

> Jan Willem

>

> -----Oorspronkelijk bericht-----

> From: Randeejae@...

> Sent: Thursday, April 07, 2011 1:45 AM

> To: tetheredspinalcord

> Subject: Re: Age of Detetherings 's response??

>

> Hi ...From where did you get this general rule about waiting as long

> as possible. While we can't predict what is best for any given person,

> the long term follow up does not support this but rather supports that in

> general, the earlier the better? I recently read a textbook that reviewed

> this issue. It is important to keep in mind (I know I sound like a broken

> record) that those who had surgery and never thought about TCS again are

> probably not on support groups Pls do correct me if your statement

> comes

> from actual data versus observation or the word of one particular NSG.

> Thanks so very much, Randee

>

> In a message dated 4/6/2011 1:52:28 P.M. Central Daylight Time,

> ltbunny192@... writes:

>

> I was 23 and preparing for another surgery now. It doesn't matter what age

> you start. General rule is younger you start mire scar tissue more

> surgeries you end up neededinv think about it you mess with it young you

> need to

> fix it more often. If you ca. Hold out with out bowel bladder issues and

> pain

> the longer you don't need surges the fewer you will have. Once you start

> you usually have mote the. One.

> This message was sent from s' iPhone. Apologies if it does not

> format corectly.

>

> On Apr 6, 2011, at 12:45 PM, " Brande " <_mymocha@..._

> (mailto:mymocha@...) > wrote:

>

> > I was 11 with my first, and 20 with my second. I had relatively the same

> > complications both times, so it's been talked about that you fair better

> as

> > a child with this surgery, generally speaking.....for me, it didn't

> matter.

> >

> > Brande

> > _mymocha@..._ (mailto:mymocha@...)

> >

> > > I am just wondering at what age did some of you have your first

> detether

> > > surgery? Does anyone out there have a child who got detethered young?

> I

> > > have a daughter who got detethered at 5 months, and so I am wondering

> if

> > > this will help prevent some of the pain and problems that I read

> about.

> >

> >

>

>

[Guest guest]

PM for you on this

Sorry for the misunderstanding but i give my point of view

-----Oorspronkelijk bericht-----

From:

Sent: Thursday, April 07, 2011 4:14 AM

To: tetheredspinalcord

Subject: Re: Age of Detetherings 's response??

I'd also like to add neither of you are drs nor am I or anyone here. It's

all opinions and if you guys continue to pick on others experience or

opinions then you wonder why no oneless comments or they leave the group we

should be able to reply to emails as I did without being personal attacked.

You can state your personal findings and such as I did without attacking

what myself and my drs feel to be true in my case everyone is different and

you can state your experience without knocking mine. Guess I'll go back into

hiding or leave group so tired of seeing same names and stories and theories

being shoved down others throats amyway.

[Guest guest]

I was told to wait by Dr. Frim unless we saw bladder changes, pain was not a

factor for surgery at all.

My bladder turned out to be bad.

So wait until you see signs of neurological decline.

Lindsey I hope you don't leave

>Hi ...From where did you get this general rule about waiting as long

> as possible. While we can't predict what is best for any given person,

>the long term follow up does not support this but rather supports that in

>general, the earlier the better? I recently read a textbook that reviewed

>this issue. It is important to keep in mind (I know I sound like a broken

>record) that those who had surgery and never thought about TCS again are

>probably not on support groups Pls do correct me if your statement comes

>from actual data versus observation or the word of one particular NSG.

>Thanks so very much, Randee

>

>

>In a message dated 4/6/2011 1:52:28 P.M. Central Daylight Time,

>ltbunny192@... writes:

>

>

>

>

>I was 23 and preparing for another surgery now. It doesn't matter what age

>you start. General rule is younger you start mire scar tissue more

>surgeries you end up neededinv think about it you mess with it young you need

to

>fix it more often. If you ca. Hold out with out bowel bladder issues and pain

>the longer you don't need surges the fewer you will have. Once you start

>you usually have mote the. One.

>This message was sent from s' iPhone. Apologies if it does not

>format corectly.

>

>On Apr 6, 2011, at 12:45 PM, " Brande " <_mymocha@..._

>(mailto:mymocha@...) > wrote:

>

>> I was 11 with my first, and 20 with my second. I had relatively the same

>> complications both times, so it's been talked about that you fair better

>as

>> a child with this surgery, generally speaking.....for me, it didn't

>matter.

>>

>> Brande

>> _mymocha@..._ (mailto:mymocha@...)

>>

>> > I am just wondering at what age did some of you have your first

>detether

>> > surgery? Does anyone out there have a child who got detethered young?

>I

>> > have a daughter who got detethered at 5 months, and so I am wondering

>if

>> > this will help prevent some of the pain and problems that I read

>about.

>>

>>

>

>[Non-text portions of this message have been removed]

>

>

>

>

>

>

>

[Guest guest]

*, *

**

*I do appreciate your point of view and I happen to agree with you. I feel

bad that I didnt speak up sooner, but I had a feeling others wouldnt agree

and I was too " chicken " to say anything.*

**

*My son is 10 years old. He was diagnosed at 5 with a severely tethered cord

all tangled up in a lipoma.*

*His neurosurgeon did a detethering, which ended up being a " debulking " cuz

the Dr said he could not " safely " detether him all the way. My sons

neurosurgeon told me that he does NOT recommend any more detethering

attempts. He expressed the same concerns you had about scar tissue forming,

and my son needing more and more surgeries if he was to do another

detethering, and that more surgeries would make it even worse. *

*I am taking the Dr. advice and not going forward with any more surgeries.

As of right now, my son can walk, run, ride bikes, and play. I am not going

to risk taking that away from him. If the time comes when my son starts

losing those functions, or is in so much pain that it cannot be relieved

with pain meds, then I will consider another detethering attempt.*

**

*Please dont leave the group. *

**

*

*

>

>

> I'd also like to add neither of you are drs nor am I or anyone here. It's

> all opinions and if you guys continue to pick on others experience or

> opinions then you wonder why no oneless comments or they leave the group we

> should be able to reply to emails as I did without being personal attacked.

> You can state your personal findings and such as I did without attacking

> what myself and my drs feel to be true in my case everyone is different and

> you can state your experience without knocking mine. Guess I'll go back into

> hiding or leave group so tired of seeing same names and stories and theories

> being shoved down others throats amyway.

>

> This message was sent from s' iPhone. Apologies if it does not

> format corectly.

>

> On Apr 6, 2011, at 9:31 PM, " Jan Willem Weijers "

> wrote:

>

> >

> >

> > I agree with Randee, if surgery is a solution to reduce serveral probems

> ,

> > why not.

> > There is always a risk with this but 90% have moremore comfort in life.

> > The rule is you can't fix it complete , Make the best off it.

> > It's all quality of life

> >

> > Jan Willem

> >

> > -----Oorspronkelijk bericht-----

> > From: Randeejae@...

> > Sent: Thursday, April 07, 2011 1:45 AM

> > To: tetheredspinalcord

> > Subject: Re: Age of Detetherings 's response??

> >

> > Hi ...From where did you get this general rule about waiting as

> long

> > as possible. While we can't predict what is best for any given person,

> > the long term follow up does not support this but rather supports that in

> > general, the earlier the better? I recently read a textbook that reviewed

> > this issue. It is important to keep in mind (I know I sound like a broken

> > record) that those who had surgery and never thought about TCS again are

> > probably not on support groups Pls do correct me if your statement

> > comes

> > from actual data versus observation or the word of one particular NSG.

> > Thanks so very much, Randee

> >

> > In a message dated 4/6/2011 1:52:28 P.M. Central Daylight Time,

> > ltbunny192@... writes:

> >

> > I was 23 and preparing for another surgery now. It doesn't matter what

> age

> > you start. General rule is younger you start mire scar tissue more

> > surgeries you end up neededinv think about it you mess with it young you

> > need to

> > fix it more often. If you ca. Hold out with out bowel bladder issues and

> > pain

> > the longer you don't need surges the fewer you will have. Once you start

> > you usually have mote the. One.

> > This message was sent from s' iPhone. Apologies if it does not

> > format corectly.

> >

> > On Apr 6, 2011, at 12:45 PM, " Brande " <_mymocha@..._

> > (mailto:mymocha@...) > wrote:

> >

> > > I was 11 with my first, and 20 with my second. I had relatively the

> same

> > > complications both times, so it's been talked about that you fair

> better

> > as

> > > a child with this surgery, generally speaking.....for me, it didn't

> > matter.

> > >

> > > Brande

> > > _mymocha@..._ (mailto:mymocha@...)

> > >

> > > > I am just wondering at what age did some of you have your first

> > detether

> > > > surgery? Does anyone out there have a child who got detethered young?

> > I

> > > > have a daughter who got detethered at 5 months, and so I am wondering

> > if

> > > > this will help prevent some of the pain and problems that I read

> > about.

> > >

> > >

> >

> >

[Guest guest]

wow..I sure hope I didn't sound attacking. I was just trying to find out

if 's was an opinion or based on research she had read somewhere. I

so regret my question made you feel attacked and truly it was not the

intent. Randee

In a message dated 4/6/2011 10:26:13 P.M. Central Daylight Time,

carrie6615@... writes:

*, *

**

*I do appreciate your point of view and I happen to agree with you. I feel

bad that I didnt speak up sooner, but I had a feeling others wouldnt agree

and I was too " chicken " to say anything.*

**

*My son is 10 years old. He was diagnosed at 5 with a severely tethered

cord

all tangled up in a lipoma.*

*His neurosurgeon did a detethering, which ended up being a " debulking " cuz

the Dr said he could not " safely " detether him all the way. My sons

neurosurgeon told me that he does NOT recommend any more detethering

attempts. He expressed the same concerns you had about scar tissue

forming,

and my son needing more and more surgeries if he was to do another

detethering, and that more surgeries would make it even worse. *

*I am taking the Dr. advice and not going forward with any more surgeries.

As of right now, my son can walk, run, ride bikes, and play. I am not going

to risk taking that away from him. If the time comes when my son starts

losing those functions, or is in so much pain that it cannot be relieved

with pain meds, then I will consider another detethering attempt.*

**

*Please dont leave the group. *

**

*

*

>

>

> I'd also like to add neither of you are drs nor am I or anyone here. It's

> all opinions and if you guys continue to pick on others experience or

> opinions then you wonder why no oneless comments or they leave the group

we

> should be able to reply to emails as I did without being personal

attacked.

> You can state your personal findings and such as I did without attacking

> what myself and my drs feel to be true in my case everyone is different

and

> you can state your experience without knocking mine. Guess I'll go back

into

> hiding or leave group so tired of seeing same names and stories and

theories

> being shoved down others throats amyway.

>

> This message was sent from s' iPhone. Apologies if it does not

> format corectly.

>

> On Apr 6, 2011, at 9:31 PM, " Jan Willem Weijers "

> wrote:

>

> >

> >

> > I agree with Randee, if surgery is a solution to reduce serveral

probems

> ,

> > why not.

> > There is always a risk with this but 90% have moremore comfort in life.

> > The rule is you can't fix it complete , Make the best off it.

> > It's all quality of life

> >

> > Jan Willem

> >

> > -----Oorspronkelijk bericht-----

> > From: Randeejae@...

> > Sent: Thursday, April 07, 2011 1:45 AM

> > To: tetheredspinalcord

> > Subject: Re: Age of Detetherings 's response??

> >

> > Hi ...From where did you get this general rule about waiting as

> long

> > as possible. While we can't predict what is best for any given person,

> > the long term follow up does not support this but rather supports that

in

> > general, the earlier the better? I recently read a textbook that

reviewed

> > this issue. It is important to keep in mind (I know I sound like a

broken

> > record) that those who had surgery and never thought about TCS again

are

> > probably not on support groups Pls do correct me if your statement

> > comes

> > from actual data versus observation or the word of one particular NSG.

> > Thanks so very much, Randee

> >

> > In a message dated 4/6/2011 1:52:28 P.M. Central Daylight Time,

> > ltbunny192@... writes:

> >

> > I was 23 and preparing for another surgery now. It doesn't matter what

> age

> > you start. General rule is younger you start mire scar tissue more

> > surgeries you end up neededinv think about it you mess with it young

you

> > need to

> > fix it more often. If you ca. Hold out with out bowel bladder issues

and

> > pain

> > the longer you don't need surges the fewer you will have. Once you

start

> > you usually have mote the. One.

> > This message was sent from s' iPhone. Apologies if it does not

> > format corectly.

> >

> > On Apr 6, 2011, at 12:45 PM, " Brande " <_mymocha@..._

> > (mailto:mymocha@...) > wrote:

> >

> > > I was 11 with my first, and 20 with my second. I had relatively the

> same

> > > complications both times, so it's been talked about that you fair

> better

> > as

> > > a child with this surgery, generally speaking.....for me, it didn't

> > matter.

> > >

> > > Brande

> > > _mymocha@..._ (mailto:mymocha@...)

> > >

> > > > I am just wondering at what age did some of you have your first

> > detether

> > > > surgery? Does anyone out there have a child who got detethered

young?

> > I

> > > > have a daughter who got detethered at 5 months, and so I am

wondering

> > if

> > > > this will help prevent some of the pain and problems that I read

> > about.

> > >

> > >

> >

> > [Non-text portions of this message have been removed]

> >

> > [Non-text portions of this message have been removed]

> >

> > ------------------------------------

> >

> > NOT MEDICAL ADVICE. We Are Not Doctors.

> > Need help with list?Email Darlene: darlene_self@... or

> > : hollygolightly1916@...

> > Yahoo! Groups

> > Links

> >

> >

>

> [Non-text portions of this message have been removed]

>

>

>

[Non-text portions of this message have been removed]

------------------------------------

NOT MEDICAL ADVICE. We Are Not Doctors.

Need help with list?Email Darlene: darlene_self@... or

: hollygolightly1916@...

Yahoo! Groups Links

[Guest guest]

the initial question about age of detethering was from a mom of a, I

believe, 10month old. What is Dr. Frim's recommendation in the case of

infants,

do you know? thanks, Randee

In a message dated 4/6/2011 10:00:43 P.M. Central Daylight Time,

lilacs007@... writes:

I was told to wait by Dr. Frim unless we saw bladder changes, pain was not

a factor for surgery at all.

My bladder turned out to be bad.

So wait until you see signs of neurological decline.

Lindsey I hope you don't leave

On Wed Apr 6th, 2011 6:45 PM CDT _Randeejae@..._

(mailto:Randeejae@...) wrote:

>Hi ...From where did you get this general rule about waiting as

long

> as possible. While we can't predict what is best for any given person,

>the long term follow up does not support this but rather supports that in

>general, the earlier the better? I recently read a textbook that reviewed

>this issue. It is important to keep in mind (I know I sound like a broken

>record) that those who had surgery and never thought about TCS again are

>probably not on support groups Pls do correct me if your statement

comes

>from actual data versus observation or the word of one particular NSG.

>Thanks so very much, Randee

>

>

>In a message dated 4/6/2011 1:52:28 P.M. Central Daylight Time,

>_ltbunny192@..._ (mailto:ltbunny192@...) writes:

>

>

>

>

>I was 23 and preparing for another surgery now. It doesn't matter what

age

>you start. General rule is younger you start mire scar tissue more

>surgeries you end up neededinv think about it you mess with it young you

need to

>fix it more often. If you ca. Hold out with out bowel bladder issues and

pain

>the longer you don't need surges the fewer you will have. Once you start

>you usually have mote the. One.

>This message was sent from s' iPhone. Apologies if it does not

>format corectly.

>

>On Apr 6, 2011, at 12:45 PM, " Brande " <__mymocha@..._

(mailto:_mymocha@...) _

>(mailto:_mymocha@..._ (mailto:mymocha@...) ) > wrote:

>

>> I was 11 with my first, and 20 with my second. I had relatively the

same

>> complications both times, so it's been talked about that you fair

better

>as

>> a child with this surgery, generally speaking.....for me, it didn't

>matter.

>>

>> Brande

>> __mymocha@..._ (mailto:_mymocha@...) _

(mailto:_mymocha@..._ (mailto:mymocha@...) )

>>

>> > I am just wondering at what age did some of you have your first

>detether

>> > surgery? Does anyone out there have a child who got detethered young?

>I

>> > have a daughter who got detethered at 5 months, and so I am wondering

>if

>> > this will help prevent some of the pain and problems that I read

>about.

>>

>>

>

>[Non-text portions of this message have been removed]

>

>

>

>

>

>

>[Non-text portions of this message have been removed]

>

[Guest guest]

Thanks, . This was all I was asking. Randee

In a message dated 4/6/2011 9:04:05 P.M. Central Daylight Time,

ltbunny192@... writes:

In regards to those not showing symptoms like myself. Wait till you have a

symptom then surgery after a significant symptom is from my dr and a few

others at stanley children's hospital at columbia presbyterian in NYC.

Like I said I had a normal childhood and never would have know anything

was wrong till I aggravated my back lifting a 300lb person at work. In their

experience some kids who don't have surgery right away can live normal

healthy lives. I had a double tether and lipoma and a bunch of other stuff but

was COMPLETELY fine till 2008. I had surgery was good again for a year. And

a year later all symptoms returned plus some new and worse. I've done all

kinds of treatment and i'm in pain management on heavy narcotics four times

a day and can't carry my own daughter. I'm finally coming to grips with

having another surgery but as my neuro explained now that I've had one I'll

most likely have them rest of my life unless I live in a bubble and do

nothing and even then no real promise it would keep me from tethering or

scaring

because every surgery causes more and more scar tissue then the previous!

This message was sent from s' iPhone. Apologies if it does not

format corectly.

On Apr 6, 2011, at 7:45 PM, _Randeejae@..._ (mailto:Randeejae@...)

wrote:

> Hi ...From where did you get this general rule about waiting as

long

> as possible. While we can't predict what is best for any given person,

> the long term follow up does not support this but rather supports that

in

> general, the earlier the better? I recently read a textbook that

reviewed

> this issue. It is important to keep in mind (I know I sound like a

broken

> record) that those who had surgery and never thought about TCS again are

> probably not on support groups Pls do correct me if your statement

comes

> from actual data versus observation or the word of one particular NSG.

> Thanks so very much, Randee

>

>

> In a message dated 4/6/2011 1:52:28 P.M. Central Daylight Time,

> _ltbunny192@..._ (mailto:ltbunny192@...) writes:

>

> I was 23 and preparing for another surgery now. It doesn't matter what

age

> you start. General rule is younger you start mire scar tissue more

> surgeries you end up neededinv think about it you mess with it young you

need to

> fix it more often. If you ca. Hold out with out bowel bladder issues and

pain

> the longer you don't need surges the fewer you will have. Once you start

> you usually have mote the. One.

> This message was sent from s' iPhone. Apologies if it does not

> format corectly.

>

> On Apr 6, 2011, at 12:45 PM, " Brande " <__mymocha@..._

(mailto:_mymocha@...) _

> (mailto:_mymocha@..._ (mailto:mymocha@...) ) > wrote:

>

> > I was 11 with my first, and 20 with my second. I had relatively the

same

> > complications both times, so it's been talked about that you fair

better

> as

> > a child with this surgery, generally speaking.....for me, it didn't

> matter.

> >

> > Brande

> > __mymocha@..._ (mailto:_mymocha@...) _

(mailto:_mymocha@..._ (mailto:mymocha@...) )

> >

> > > I am just wondering at what age did some of you have your first

> detether

> > > surgery? Does anyone out there have a child who got detethered

young?

> I

> > > have a daughter who got detethered at 5 months, and so I am

wondering

> if

> > > this will help prevent some of the pain and problems that I read

> about.

> >

> >

>

> [Non-text portions of this message have been removed]

>

> [Non-text portions of this message have been removed]

>

>

[Non-text portions of this message have been removed]

[Guest guest]

Ty and good for him! Like I

Said I went 23 years before my dr finally felt the surgery was needed to prevent

possible loss of bladder function ( I had an increase in kidney stones so they

got suspicious also had worsening Hydronofrosis (bad speller sorry!) of the

Kidneys! If you ever notice your son complaining of back pain because hes so

young He might benefit from yoga and acupuncture! My doc feels younger they are

when pain starts keeping the body in motion Also helps defer surgeries. Might be

something to keep in the back of your mind. I'm not flexible enough for yoga

anymore but kids usually bend better! I have done the acupuncture and man did I

love the release it gave and lasts a few months. Also a great alternative to

pain meds. But as far as meds I'm on Opana ER it's a great 12 hour acting narc.

No high feelings no withdrawal!! Keep it in back of your mind and please feel

free to email me if you ever have any questions I love to share my experiences

but like I always state. I'm not a dr. And every body is different and unique! I

hope he continues to live a happy healthy normal childhood and you guys can

postpone surgeries like I did if it works for you but you just never know our

body's are delicate and they do what they want! But I hate to report I'm having

my next one hopefully asap bc I hate not being able to play with my 2yo like I

want. Hopping this surgery gives me a good year or two with her while she needs

me lifting and etc then by 5-6 she's hopefully be independent please don't help

me stage lol!!

This message was sent from s' iPhone. Apologies if it does not format

corectly.

> *, *

> **

> *I do appreciate your point of view and I happen to agree with you. I feel

> bad that I didnt speak up sooner, but I had a feeling others wouldnt agree

> and I was too " chicken " to say anything.*

> **

> *My son is 10 years old. He was diagnosed at 5 with a severely tethered cord

> all tangled up in a lipoma.*

> *His neurosurgeon did a detethering, which ended up being a " debulking " cuz

> the Dr said he could not " safely " detether him all the way. My sons

> neurosurgeon told me that he does NOT recommend any more detethering

> attempts. He expressed the same concerns you had about scar tissue forming,

> and my son needing more and more surgeries if he was to do another

> detethering, and that more surgeries would make it even worse. *

> *I am taking the Dr. advice and not going forward with any more surgeries.

> As of right now, my son can walk, run, ride bikes, and play. I am not going

> to risk taking that away from him. If the time comes when my son starts

> losing those functions, or is in so much pain that it cannot be relieved

> with pain meds, then I will consider another detethering attempt.*

> **

> *Please dont leave the group. *

> **

> *

> *

>

>

>>

>>

>> I'd also like to add neither of you are drs nor am I or anyone here. It's

>> all opinions and if you guys continue to pick on others experience or

>> opinions then you wonder why no oneless comments or they leave the group we

>> should be able to reply to emails as I did without being personal attacked.

>> You can state your personal findings and such as I did without attacking

>> what myself and my drs feel to be true in my case everyone is different and

>> you can state your experience without knocking mine. Guess I'll go back into

>> hiding or leave group so tired of seeing same names and stories and theories

>> being shoved down others throats amyway.

>>

>> This message was sent from s' iPhone. Apologies if it does not

>> format corectly.

>>

>> On Apr 6, 2011, at 9:31 PM, " Jan Willem Weijers "

>> wrote:

>>

>>>

>>>

>>> I agree with Randee, if surgery is a solution to reduce serveral probems

>> ,

>>> why not.

>>> There is always a risk with this but 90% have moremore comfort in life.

>>> The rule is you can't fix it complete , Make the best off it.

>>> It's all quality of life

>>>

>>> Jan Willem

>>>

>>> -----Oorspronkelijk bericht-----

>>> From: Randeejae@...

>>> Sent: Thursday, April 07, 2011 1:45 AM

>>> To: tetheredspinalcord

>>> Subject: Re: Age of Detetherings 's response??

>>>

>>> Hi ...From where did you get this general rule about waiting as

>> long

>>> as possible. While we can't predict what is best for any given person,

>>> the long term follow up does not support this but rather supports that in

>>> general, the earlier the better? I recently read a textbook that reviewed

>>> this issue. It is important to keep in mind (I know I sound like a broken

>>> record) that those who had surgery and never thought about TCS again are

>>> probably not on support groups Pls do correct me if your statement

>>> comes

>>> from actual data versus observation or the word of one particular NSG.

>>> Thanks so very much, Randee

>>>

>>> In a message dated 4/6/2011 1:52:28 P.M. Central Daylight Time,

>>> ltbunny192@... writes:

>>>

>>> I was 23 and preparing for another surgery now. It doesn't matter what

>> age

>>> you start. General rule is younger you start mire scar tissue more

>>> surgeries you end up neededinv think about it you mess with it young you

>>> need to

>>> fix it more often. If you ca. Hold out with out bowel bladder issues and

>>> pain

>>> the longer you don't need surges the fewer you will have. Once you start

>>> you usually have mote the. One.

>>> This message was sent from s' iPhone. Apologies if it does not

>>> format corectly.

>>>

>>> On Apr 6, 2011, at 12:45 PM, " Brande " <_mymocha@..._

>>> (mailto:mymocha@...) > wrote:

>>>

>>>> I was 11 with my first, and 20 with my second. I had relatively the

>> same

>>>> complications both times, so it's been talked about that you fair

>> better

>>> as

>>>> a child with this surgery, generally speaking.....for me, it didn't

>>> matter.

>>>>

>>>> Brande

>>>> _mymocha@..._ (mailto:mymocha@...)

>>>>

>>>>> I am just wondering at what age did some of you have your first

>>> detether

>>>>> surgery? Does anyone out there have a child who got detethered young?

>>> I

>>>>> have a daughter who got detethered at 5 months, and so I am wondering

>>> if

>>>>> this will help prevent some of the pain and problems that I read

>>> about.

>>>>

>>>>

>>>

>>>

[Guest guest]

See this is why I hate that some drs jump To surgery on infants. They don't give

them a chance to try and live a normal life. Who knows if they could I did for

23 years. 23 years! before I had symptoms! All I'm saying is why can't they wait

till a little after a year old see if the child can potty train see if they

tippy toe walk give them a chance! Why do invase expensive procedures when they

can't say 100% that they have a defect in bowel and bladder if pressure is high

or risk of kidney diease etc that's another story but patents whos child only

shows a dimple or bump etc if your child is happy healthy otherwise why not give

them a chance! Waiting 12 months or a little longer isn't that big of deal. If I

can go 23 years played basketball ran track cross county and was an EMT lifting

100-200 lb patients 10-20 times a day I think kids with no symptoms except

dimples and marks deserve a chance. Thank god my drs gave me a chance! AGAIN IS

IS MOSTLY OPINION BUT MY DRS GAVE ME A CHANCE AND I THANK THEM FOR IT ILL BE 26

in JUNE AND ONLY GETTING MY SECOND SURGERY. I THINK THAT'S PRETTY GOOD TRACK

RECORD!

This message was sent from s' iPhone. Apologies if it does not format

corectly.

> I was told to wait by Dr. Frim unless we saw bladder changes, pain was not a

factor for surgery at all.

> My bladder turned out to be bad.

> So wait until you see signs of neurological decline.

> Lindsey I hope you don't leave

>

>

>

> >Hi ...From where did you get this general rule about waiting as long

> > as possible. While we can't predict what is best for any given person,

> >the long term follow up does not support this but rather supports that in

> >general, the earlier the better? I recently read a textbook that reviewed

> >this issue. It is important to keep in mind (I know I sound like a broken

> >record) that those who had surgery and never thought about TCS again are

> >probably not on support groups Pls do correct me if your statement comes

> >from actual data versus observation or the word of one particular NSG.

> >Thanks so very much, Randee

> >

> >

> >In a message dated 4/6/2011 1:52:28 P.M. Central Daylight Time,

> >ltbunny192@... writes:

> >

> >

> >

> >

> >I was 23 and preparing for another surgery now. It doesn't matter what age

> >you start. General rule is younger you start mire scar tissue more

> >surgeries you end up neededinv think about it you mess with it young you need

to

> >fix it more often. If you ca. Hold out with out bowel bladder issues and pain

> >the longer you don't need surges the fewer you will have. Once you start

> >you usually have mote the. One.

> >This message was sent from s' iPhone. Apologies if it does not

> >format corectly.

> >

> >On Apr 6, 2011, at 12:45 PM, " Brande " <_mymocha@..._

> >(mailto:mymocha@...) > wrote:

> >

> >> I was 11 with my first, and 20 with my second. I had relatively the same

> >> complications both times, so it's been talked about that you fair better

> >as

> >> a child with this surgery, generally speaking.....for me, it didn't

> >matter.

> >>

> >> Brande

> >> _mymocha@..._ (mailto:mymocha@...)

> >>

> >> > I am just wondering at what age did some of you have your first

> >detether

> >> > surgery? Does anyone out there have a child who got detethered young?

> >I

> >> > have a daughter who got detethered at 5 months, and so I am wondering

> >if

> >> > this will help prevent some of the pain and problems that I read

> >about.

> >>

> >>

> >

> >

[Guest guest]

*,*

*Cameron is actually having an MRI tomorrow to evaluate his Chiari ( 4mm as

of 2 years ago) and to look at his spinal cord to see if he has developed a

syrinx, or anything... He has been having increasing pain over the past 2

months, but his Dr said could just be due to a growth spurt, and when the

growth spurt slows down, his cord will adjust to the temporary stretching.

*

*You are so right about everybody being different. The neuro told me that he

has kids who have TC and NO symptoms, and some with TC and have many

symptoms. He said everyones spinal cord tolerates stretching differently.

The Dr. did tell me absolutely NO yoga or bending for Cameron. *

**

*Thanks for your advice!!*

* Cameron has an appt on 4/21 to get the results of tomorrows MRI, I will

keep you posted.*

**

*

*

>

>

> Ty and good for him! Like I

> Said I went 23 years before my dr finally felt the surgery was needed to

> prevent possible loss of bladder function ( I had an increase in kidney

> stones so they got suspicious also had worsening Hydronofrosis (bad speller

> sorry!) of the Kidneys! If you ever notice your son complaining of back pain

> because hes so young He might benefit from yoga and acupuncture! My doc

> feels younger they are when pain starts keeping the body in motion Also

> helps defer surgeries. Might be something to keep in the back of your mind.

> I'm not flexible enough for yoga anymore but kids usually bend better! I

> have done the acupuncture and man did I love the release it gave and lasts a

> few months. Also a great alternative to pain meds. But as far as meds I'm on

> Opana ER it's a great 12 hour acting narc. No high feelings no withdrawal!!

> Keep it in back of your mind and please feel free to email me if you ever

> have any questions I love to share my experiences but like I always state.

> I'm not a dr. And every body is different and unique! I hope he continues to

> live a happy healthy normal childhood and you guys can postpone surgeries

> like I did if it works for you but you just never know our body's are

> delicate and they do what they want! But I hate to report I'm having my next

> one hopefully asap bc I hate not being able to play with my 2yo like I want.

> Hopping this surgery gives me a good year or two with her while she needs me

> lifting and etc then by 5-6 she's hopefully be independent please don't help

> me stage lol!!

>

> This message was sent from s' iPhone. Apologies if it does not

> format corectly.

>

>

>

> > *, *

>

> > **

> > *I do appreciate your point of view and I happen to agree with you. I

> feel

> > bad that I didnt speak up sooner, but I had a feeling others wouldnt

> agree

> > and I was too " chicken " to say anything.*

> > **

> > *My son is 10 years old. He was diagnosed at 5 with a severely tethered

> cord

> > all tangled up in a lipoma.*

> > *His neurosurgeon did a detethering, which ended up being a " debulking "

> cuz

> > the Dr said he could not " safely " detether him all the way. My sons

> > neurosurgeon told me that he does NOT recommend any more detethering

> > attempts. He expressed the same concerns you had about scar tissue

> forming,

> > and my son needing more and more surgeries if he was to do another

> > detethering, and that more surgeries would make it even worse. *

> > *I am taking the Dr. advice and not going forward with any more

> surgeries.

> > As of right now, my son can walk, run, ride bikes, and play. I am not

> going

> > to risk taking that away from him. If the time comes when my son starts

> > losing those functions, or is in so much pain that it cannot be relieved

> > with pain meds, then I will consider another detethering attempt.*

> > **

> > *Please dont leave the group. *

> > **

> > *

> > *

> >

> >

> >>

> >>

> >> I'd also like to add neither of you are drs nor am I or anyone here.

> It's

> >> all opinions and if you guys continue to pick on others experience or

> >> opinions then you wonder why no oneless comments or they leave the group

> we

> >> should be able to reply to emails as I did without being personal

> attacked.

> >> You can state your personal findings and such as I did without attacking

> >> what myself and my drs feel to be true in my case everyone is different

> and

> >> you can state your experience without knocking mine. Guess I'll go back

> into

> >> hiding or leave group so tired of seeing same names and stories and

> theories

> >> being shoved down others throats amyway.

> >>

> >> This message was sent from s' iPhone. Apologies if it does not

> >> format corectly.

> >>

> >> On Apr 6, 2011, at 9:31 PM, " Jan Willem Weijers "

> >> wrote:

> >>

> >>>

> >>>

> >>> I agree with Randee, if surgery is a solution to reduce serveral

> probems

> >> ,

> >>> why not.

> >>> There is always a risk with this but 90% have moremore comfort in life.

> >>> The rule is you can't fix it complete , Make the best off it.

> >>> It's all quality of life

> >>>

> >>> Jan Willem

> >>>

> >>> -----Oorspronkelijk bericht-----

> >>> From: Randeejae@...

> >>> Sent: Thursday, April 07, 2011 1:45 AM

> >>> To: tetheredspinalcord

> >>> Subject: Re: Age of Detetherings 's response??

> >>>

> >>> Hi ...From where did you get this general rule about waiting as

> >> long

> >>> as possible. While we can't predict what is best for any given person,

> >>> the long term follow up does not support this but rather supports that

> in

> >>> general, the earlier the better? I recently read a textbook that

> reviewed

> >>> this issue. It is important to keep in mind (I know I sound like a

> broken

> >>> record) that those who had surgery and never thought about TCS again

> are

> >>> probably not on support groups Pls do correct me if your statement

> >>> comes

> >>> from actual data versus observation or the word of one particular NSG.

> >>> Thanks so very much, Randee

> >>>

> >>> In a message dated 4/6/2011 1:52:28 P.M. Central Daylight Time,

> >>> ltbunny192@... writes:

> >>>

> >>> I was 23 and preparing for another surgery now. It doesn't matter what

> >> age

> >>> you start. General rule is younger you start mire scar tissue more

> >>> surgeries you end up neededinv think about it you mess with it young

> you

> >>> need to

> >>> fix it more often. If you ca. Hold out with out bowel bladder issues

> and

> >>> pain

> >>> the longer you don't need surges the fewer you will have. Once you

> start

> >>> you usually have mote the. One.

> >>> This message was sent from s' iPhone. Apologies if it does not

> >>> format corectly.

> >>>

> >>> On Apr 6, 2011, at 12:45 PM, " Brande " <_mymocha@..._

> >>> (mailto:mymocha@...) > wrote:

> >>>

> >>>> I was 11 with my first, and 20 with my second. I had relatively the

> >> same

> >>>> complications both times, so it's been talked about that you fair

> >> better

> >>> as

> >>>> a child with this surgery, generally speaking.....for me, it didn't

> >>> matter.

> >>>>

> >>>> Brande

> >>>> _mymocha@..._ (mailto:mymocha@...)

> >>>>

> >>>>> I am just wondering at what age did some of you have your first

> >>> detether

> >>>>> surgery? Does anyone out there have a child who got detethered young?

> >>> I

> >>>>> have a daughter who got detethered at 5 months, and so I am wondering

> >>> if

> >>>>> this will help prevent some of the pain and problems that I read

> >>> about.

> >>>>

> >>>>

> >>>

> >>>

[Guest guest]

said the following on 4/6/2011 10:27 PM:

> Like I Said I went 23 years before my dr finally felt the surgery was needed

to prevent possible loss of bladder function ( I had an increase in

, I went 43 years before surgery and I was symptomatic for TSC

since I could walk. But in the late 50's through 90's symptomatic of

what? No one knew. I was too clumsy to play sports and had bladder/bowel

issues but no pain. No diagnosis except IBS. Something must have

happened in 1996 because I went downhill fast. Had a MRI and finally my

whole past life could be explained. As I recall the MRI was invented in

1984. 43 years was too long to wait but I am betting 42 years would not

have been. You are at an advantage because you know exactly what is the

issue.

Rick

[Guest guest]

Best of luck! I didn't realize Chari was involved yeah that throws the yoga out

the window bummer. My chari isn't to bad. It's never bothered me and they only

played with the area once during surgery but I've never had any real problems

except for low fluid but again that's also part from cord and not getting good

flow!

This message was sent from s' iPhone. Apologies if it does not format

corectly.

> *,*

> *Cameron is actually having an MRI tomorrow to evaluate his Chiari ( 4mm as

> of 2 years ago) and to look at his spinal cord to see if he has developed a

> syrinx, or anything... He has been having increasing pain over the past 2

> months, but his Dr said could just be due to a growth spurt, and when the

> growth spurt slows down, his cord will adjust to the temporary stretching.

> *

> *You are so right about everybody being different. The neuro told me that he

> has kids who have TC and NO symptoms, and some with TC and have many

> symptoms. He said everyones spinal cord tolerates stretching differently.

> The Dr. did tell me absolutely NO yoga or bending for Cameron. *

> **

> *Thanks for your advice!!*

> * Cameron has an appt on 4/21 to get the results of tomorrows MRI, I will

> keep you posted.*

> **

> *

> *

>

>

>>

>>

>> Ty and good for him! Like I

>> Said I went 23 years before my dr finally felt the surgery was needed to

>> prevent possible loss of bladder function ( I had an increase in kidney

>> stones so they got suspicious also had worsening Hydronofrosis (bad speller

>> sorry!) of the Kidneys! If you ever notice your son complaining of back pain

>> because hes so young He might benefit from yoga and acupuncture! My doc

>> feels younger they are when pain starts keeping the body in motion Also

>> helps defer surgeries. Might be something to keep in the back of your mind.

>> I'm not flexible enough for yoga anymore but kids usually bend better! I

>> have done the acupuncture and man did I love the release it gave and lasts a

>> few months. Also a great alternative to pain meds. But as far as meds I'm on

>> Opana ER it's a great 12 hour acting narc. No high feelings no withdrawal!!

>> Keep it in back of your mind and please feel free to email me if you ever

>> have any questions I love to share my experiences but like I always state.

>> I'm not a dr. And every body is different and unique! I hope he continues to

>> live a happy healthy normal childhood and you guys can postpone surgeries

>> like I did if it works for you but you just never know our body's are

>> delicate and they do what they want! But I hate to report I'm having my next

>> one hopefully asap bc I hate not being able to play with my 2yo like I want.

>> Hopping this surgery gives me a good year or two with her while she needs me

>> lifting and etc then by 5-6 she's hopefully be independent please don't help

>> me stage lol!!

>>

>> This message was sent from s' iPhone. Apologies if it does not

>> format corectly.

>>

>>

>>

>>> *, *

>>

>>> **

>>> *I do appreciate your point of view and I happen to agree with you. I

>> feel

>>> bad that I didnt speak up sooner, but I had a feeling others wouldnt

>> agree

>>> and I was too " chicken " to say anything.*

>>> **

>>> *My son is 10 years old. He was diagnosed at 5 with a severely tethered

>> cord

>>> all tangled up in a lipoma.*

>>> *His neurosurgeon did a detethering, which ended up being a " debulking "

>> cuz

>>> the Dr said he could not " safely " detether him all the way. My sons

>>> neurosurgeon told me that he does NOT recommend any more detethering

>>> attempts. He expressed the same concerns you had about scar tissue

>> forming,

>>> and my son needing more and more surgeries if he was to do another

>>> detethering, and that more surgeries would make it even worse. *

>>> *I am taking the Dr. advice and not going forward with any more

>> surgeries.

>>> As of right now, my son can walk, run, ride bikes, and play. I am not

>> going

>>> to risk taking that away from him. If the time comes when my son starts

>>> losing those functions, or is in so much pain that it cannot be relieved

>>> with pain meds, then I will consider another detethering attempt.*

>>> **

>>> *Please dont leave the group. *

>>> **

>>> *

>>> *

>>>

>>>

>>>>

>>>>

>>>> I'd also like to add neither of you are drs nor am I or anyone here.

>> It's

>>>> all opinions and if you guys continue to pick on others experience or

>>>> opinions then you wonder why no oneless comments or they leave the group

>> we

>>>> should be able to reply to emails as I did without being personal

>> attacked.

>>>> You can state your personal findings and such as I did without attacking

>>>> what myself and my drs feel to be true in my case everyone is different

>> and

>>>> you can state your experience without knocking mine. Guess I'll go back

>> into

>>>> hiding or leave group so tired of seeing same names and stories and

>> theories

>>>> being shoved down others throats amyway.

>>>>

>>>> This message was sent from s' iPhone. Apologies if it does not

>>>> format corectly.

>>>>

>>>> On Apr 6, 2011, at 9:31 PM, " Jan Willem Weijers "

>>>> wrote:

>>>>

>>>>>

>>>>>

>>>>> I agree with Randee, if surgery is a solution to reduce serveral

>> probems

>>>> ,

>>>>> why not.

>>>>> There is always a risk with this but 90% have moremore comfort in life.

>>>>> The rule is you can't fix it complete , Make the best off it.

>>>>> It's all quality of life

>>>>>

>>>>> Jan Willem

>>>>>

>>>>> -----Oorspronkelijk bericht-----

>>>>> From: Randeejae@...

>>>>> Sent: Thursday, April 07, 2011 1:45 AM

>>>>> To: tetheredspinalcord

>>>>> Subject: Re: Age of Detetherings 's response??

>>>>>

>>>>> Hi ...From where did you get this general rule about waiting as

>>>> long

>>>>> as possible. While we can't predict what is best for any given person,

>>>>> the long term follow up does not support this but rather supports that

>> in

>>>>> general, the earlier the better? I recently read a textbook that

>> reviewed

>>>>> this issue. It is important to keep in mind (I know I sound like a

>> broken

>>>>> record) that those who had surgery and never thought about TCS again

>> are

>>>>> probably not on support groups Pls do correct me if your statement

>>>>> comes

>>>>> from actual data versus observation or the word of one particular NSG.

>>>>> Thanks so very much, Randee

>>>>>

>>>>> In a message dated 4/6/2011 1:52:28 P.M. Central Daylight Time,

>>>>> ltbunny192@... writes:

>>>>>

>>>>> I was 23 and preparing for another surgery now. It doesn't matter what

>>>> age

>>>>> you start. General rule is younger you start mire scar tissue more

>>>>> surgeries you end up neededinv think about it you mess with it young

>> you

>>>>> need to

>>>>> fix it more often. If you ca. Hold out with out bowel bladder issues

>> and

>>>>> pain

>>>>> the longer you don't need surges the fewer you will have. Once you

>> start

>>>>> you usually have mote the. One.

>>>>> This message was sent from s' iPhone. Apologies if it does not

>>>>> format corectly.

>>>>>

>>>>> On Apr 6, 2011, at 12:45 PM, " Brande " <_mymocha@..._

>>>>> (mailto:mymocha@...) > wrote:

>>>>>

>>>>>> I was 11 with my first, and 20 with my second. I had relatively the

>>>> same

>>>>>> complications both times, so it's been talked about that you fair

>>>> better

>>>>> as

>>>>>> a child with this surgery, generally speaking.....for me, it didn't

>>>>> matter.

>>>>>>

>>>>>> Brande

>>>>>> _mymocha@..._ (mailto:mymocha@...)

>>>>>>

>>>>>>> I am just wondering at what age did some of you have your first

>>>>> detether

>>>>>>> surgery? Does anyone out there have a child who got detethered young?

>>>>> I

>>>>>>> have a daughter who got detethered at 5 months, and so I am wondering

>>>>> if

>>>>>>> this will help prevent some of the pain and problems that I read

>>>>> about.

>>>>>>

>>>>>>

>>>>>

>>>>>