Scale

[Guest guest]

My daughter (28) is in the hospital now trying to get her pain under control. 

Her 4th detethering surgery was 2 years ago and she has not bounced back since. 

Her pain has not been controlled.  We have seen three different pain management

people and none of them have worked out.  The first had her so doped up all she

did was sleep.  We are now on the 3rd and she moved so slow that Beth has begun

a downward spiral.  Duke believes is related to inactivity.  Not sure I agree

with that.  She has lost a lot of tone in her legs and feet, to the point of

literally just draggin them.  She went from walking unassisted in Oct. to

walking with a cane, to a walker, to mainly a wheelchair now.  All in just a

couple of months.  She is now having some bladder issues.  They are trying to

get her pain better managed then move her to a rehab facility for some inpatient

rehab. 

I am just wondering how you guys feel about the pain scale.  The Dr.s and nurses

come in and ask her about her pain, when she tells them sometimes they question

her like they don't believe that hse is in that much pain.  To be honest, I have

questioned her myself.  I have seen her when her pain was without doubt a 10,

heart racing, sweating bullets, BP high.  But, I have also seen her say 10

around a mouthfull of pizza.  When questioned she says that it's different

pain.  The throbbing causes her to sweat and have high rates, the shocks are

equally as painful but don't cause her to react the same way.  It's so hard to

know. 

I don't want to question her and I don't want them looking at us like we are

abusing things.  Somtimes they even make negative notes in her charts about it. 

What are some of your experiences or ideas on this?

Livvie