Re: re tether/ scar tissue /US treatment

[Guest guest]

Hi Brande,

No comment on this you just right.

Today no feeling in my feet and tomorrow my back hurts.

now i can sit on a chair in a few hours i'm even not able to lay down on my

back.

But you use not only muscles , they need nerves. And the nerves protesting

if i sit ore walk to long.

So listen to my body.

You just right, cleaning the table and the chairs can be just to much (for

me this is always a problem.

So i make every day a list what i go to do. if i don't , i'll pay it back

the next day ore common hours.

-----Oorspronkelijk bericht-----

From: Brande

Sent: Monday, April 11, 2011 5:13 AM

To: tetheredspinalcord

Subject: Re: re tether/ scar tissue /US treatment

Unfortunately, or fortunately, however you see it, they now realize that

Growth Spurts are not the only thing

that causes us to continue to have problems with this Condition. Everyday

life, unfortunately, is what keeps us

having problems due to this Condition.........bending, twisting,

lifting......etc. But we can't stop living. If somebody

can explain this better, please do.

Brande

mymocha@...

I fully understand and agree with your point given that an infant goes

through growing spurts and if there is a re tether or scar tissue the cord

will be stretched again as the child grows and an additional op seems

logical to me. However, I was 47 when I had my first de tether so growth for

me and further stretching of the cord due to this should not be an issue ?

------------------------------------

NOT MEDICAL ADVICE. We Are Not Doctors.

Need help with list?Email Darlene: darlene_self@... or

: hollygolightly1916@...

Yahoo! Groups

Links

[Guest guest]

I had my first detether in June of 2010 at 50 years old, at first things were

going well and then things went down hill quick. I had a MRI which showed I had

retethered. Once my neurosurgeon got in there he found that I have osteoporosis

which kept my spine from fusing and caused the retether. So even though we don't

have the growth spurt tethering there are other things that make older people

retether. I am thankful they found this because my foot was getting in bad shape

and I could barely walk on my leg. Still in a lot of pain but things are better

than before the surgery.

To: tetheredspinalcord

From: weijers.jw@...

Date: Mon, 11 Apr 2011 09:06:21 +0200

Subject: Re: re tether/ scar tissue /US treatment

Hi Brande,

No comment on this you just right.

Today no feeling in my feet and tomorrow my back hurts.

now i can sit on a chair in a few hours i'm even not able to lay down on my

back.

But you use not only muscles , they need nerves. And the nerves protesting

if i sit ore walk to long.

So listen to my body.

You just right, cleaning the table and the chairs can be just to much (for

me this is always a problem.

So i make every day a list what i go to do. if i don't , i'll pay it back

the next day ore common hours.

-----Oorspronkelijk bericht-----

From: Brande

Sent: Monday, April 11, 2011 5:13 AM

To: tetheredspinalcord

Subject: Re: re tether/ scar tissue /US treatment

Unfortunately, or fortunately, however you see it, they now realize that

Growth Spurts are not the only thing

that causes us to continue to have problems with this Condition. Everyday

life, unfortunately, is what keeps us

having problems due to this Condition.........bending, twisting,

lifting......etc. But we can't stop living. If somebody

can explain this better, please do.

Brande

mymocha@...

I fully understand and agree with your point given that an infant goes

through growing spurts and if there is a re tether or scar tissue the cord

will be stretched again as the child grows and an additional op seems

logical to me. However, I was 47 when I had my first de tether so growth for

me and further stretching of the cord due to this should not be an issue ?

------------------------------------

NOT MEDICAL ADVICE. We Are Not Doctors.

Need help with list?Email Darlene: darlene_self@... or

: hollygolightly1916@...

Yahoo! Groups

Links

[Guest guest]

It is not that the cord gets " restretched " down like it was but the scar tissue

from the surgery or trauma can sometimes tether it wherever it now is still not

letting it float freely as it should which causes microtraumas as it is pulled

against with activity. 

________________________________

To: tetheredspinalcord

Sent: Sun, April 10, 2011 10:13:00 PM

Subject: Re: re tether/ scar tissue /US treatment

 

Unfortunately, or fortunately, however you see it, they now realize that

Growth Spurts are not the only thing

that causes us to continue to have problems with this Condition. Everyday

life, unfortunately, is what keeps us

having problems due to this Condition.........bending, twisting,

lifting......etc. But we can't stop living. If somebody

can explain this better, please do.

Brande

mymocha@...

I fully understand and agree with your point given that an infant goes

through growing spurts and if there is a re tether or scar tissue the cord

will be stretched again as the child grows and an additional op seems

logical to me. However, I was 47 when I had my first de tether so growth for

me and further stretching of the cord due to this should not be an issue ?