Re: Re: Need a dr in Nj or NYC HELP

[Guest guest]

HI,

Ugh so sorry you are going through all this.I was on Embeda- a " cousin " of

Opana, and that was supposed to last 24 hours, but it didn't, so I was put on

regular generic morphoine every 6-8 hours.Why are you on Opana, Vicodin and

Diludid?

They have a new extended release Diludid called Exalgo, but it's pretty

expensive. I just switched to Oxycontin and am having better luck with it,

although I still take morphine for breakthrough pain.

There is a Dr. in land, but that is the only doctor I know about.

Dr. Frim in Chicago may also work, he did my surgery.

I'm curious.. why do you say the baby did this retether? Did you have a

C-Section? We are thinking about kids next year, so I would love to know what

happened.

Thanks

> Lindsey, Who did your first surgery? Can you go back to that surgeon or at

least get a referral for a second opinion?

>

>

>

> > > >

> > > >>

> > > >>

> > > >> Hi, my name is Patsy and I'm 58 years old. I didn't even know I had

> > > >> tethered cord until intense pain hit my hip and leg when I was 50. Two

> > > >> years

> > > >> after my first detethering, I retethered and had a second surgery.

> > > >> Unfortunately, my surgeon could not get the last two " rootlets " free

> > > >> without

> > > >> leaving me paralized. (You know how they monitor the surgery as it goes

> > > >> along.) Of course, those last two control my bowels and bladder, so

those

> > > >> problems have just increased. A couple years ago, my pain increased

also,

> > > >> so

> > > >> I knew I had completely retethered. Since the last surgery wasn't

> > > >> complete,

> > > >> I know there is no reason to try more surgery. I have a neurostimulator

> > > >> for

> > > >> my hip and leg pain. In the last year, the pain has spread to my back.

I

> > > >> can't afford to take anymore time off work for surgery for fear of

losing

> > > >> my

> > > >> job. So, instead of another neurostimulator, I also have a TENS unit

for

> > > >> my

> > > >> back.

> > > >> My problem is that I cannot find a neurologist that knows anything

about

> > > >> long term care or prognosis when surgery is not an option. Last year, I

> > > >> thought I had found one, but all he did was put me through painful and

> > > >> unnecessary tests that only confirmed that I had in fact retethered. I

> > > >> had

> > > >> explained to him before I went to the first appointment that I didn't

> > > >> want

> > > >> him to " fix " me, just tell me what I have to look forward to. He finally

> > > >> admitted he didn't know.

> > > >>

> > > >> I live in southeast Michigan. I have tried Henry Ford Hospital system

and

> > > >> even wrote to the head of neurology at University of Michigan. These

are

> > > >> two

> > > >> of the best hospitals in the US, and neither one has a neurologist that

> > > >> can

> > > >> help me. Has anyone had any luck finding a doctor that has experience

> > > >> with

> > > >> TCS?

> > > >>

> > > >> I'm sorry this post is so long, but I would also like to know if anyone

> > > >> has

> > > >> gone on disability with this condition.

> > > >>

> > > >> Thanks for your time, Patsy

> > > >>

> > > >>

> > > >>

> > > >

> > > >

> > > >