Re: Thickened Filum and Tethered Cord.

[Guest guest]

Tara D.,

If I am not mistaken, a Thickened Filum is a form of Tethered Cord - so

as I see it, the MRI picked it up, and it wouldn't be exploratory.

Hope things are going well now.

Brande

mymocha@...

> In my daughter's case, the MRI sees only a thickened filum, so when/if the

> NS decides we have enough info to go ahead with surgery, it will be

> exploratory, because he is no certain he will find a tethered cord.

[Guest guest]

Mine was a thickened filum. This is a type of tethered cord.

This message was sent from s' iPhone. Apologies if it does not format

corectly.

> Tara D.,

>

> If I am not mistaken, a Thickened Filum is a form of Tethered Cord - so

> as I see it, the MRI picked it up, and it wouldn't be exploratory.

>

> Hope things are going well now.

>

> Brande

> mymocha@...

>

> > In my daughter's case, the MRI sees only a thickened filum, so when/if the

> > NS decides we have enough info to go ahead with surgery, it will be

> > exploratory, because he is no certain he will find a tethered cord.

>

>

[Guest guest]

For those of you with the thickened filum, at what level did your spinal cord

end?

>

> > Tara D.,

> >

> > If I am not mistaken, a Thickened Filum is a form of Tethered Cord - so

> > as I see it, the MRI picked it up, and it wouldn't be exploratory.

> >

> > Hope things are going well now.

> >

> > Brande

> > mymocha@...

> >

> > > In my daughter's case, the MRI sees only a thickened filum, so when/if the

> > > NS decides we have enough info to go ahead with surgery, it will be

> > > exploratory, because he is no certain he will find a tethered cord.

> >

> >

>

>

>

[Guest guest]

L2 I believe..might have been 3, poor memory sorry 

________________________________

To: tetheredspinalcord

Sent: Tue, April 5, 2011 8:07:33 PM

Subject: Re: Thickened Filum and Tethered Cord.

 

For those of you with the thickened filum, at what level did your spinal cord

end?

>

> > Tara D.,

> >

> > If I am not mistaken, a Thickened Filum is a form of Tethered Cord - so

> > as I see it, the MRI picked it up, and it wouldn't be exploratory.

> >

> > Hope things are going well now.

> >

> > Brande

> > mymocha@...

> >

> > > In my daughter's case, the MRI sees only a thickened filum, so when/if the

> > > NS decides we have enough info to go ahead with surgery, it will be

> > > exploratory, because he is no certain he will find a tethered cord.

> >

> >

>

>

>

[Guest guest]

My dd was at bottom of L2 and they said it was normal.  The vast majority are

usally @ L1-L2 or higher and few are at L2 but can be normal at L2.  That is

part of why my dd 1st nsg said no. There are studies that you can still have a

tcs with normal mri findings.carol

________________________________

To: tetheredspinalcord

Sent: Tue, April 5, 2011 6:07:33 PM

Subject: Re: Thickened Filum and Tethered Cord.

 

For those of you with the thickened filum, at what level did your spinal cord

end?

>

> > Tara D.,

> >

> > If I am not mistaken, a Thickened Filum is a form of Tethered Cord - so

> > as I see it, the MRI picked it up, and it wouldn't be exploratory.

> >

> > Hope things are going well now.

> >

> > Brande

> > mymocha@...

> >

> > > In my daughter's case, the MRI sees only a thickened filum, so when/if the

> > > NS decides we have enough info to go ahead with surgery, it will be

> > > exploratory, because he is no certain he will find a tethered cord.

> >

> >

>

>

>

[Guest guest]

Mine ended below L5 

Subject: Re: Thickened Filum and Tethered Cord.

To: tetheredspinalcord

Date: Wednesday, April 6, 2011, 2:32 AM

 

My dd was at bottom of L2 and they said it was normal.  The vast

majority are

usally @ L1-L2 or higher and few are at L2 but can be normal at L2.  That is

part of why my dd 1st nsg said no. There are studies that you can still have a

tcs with normal mri findings.carol

________________________________

To: tetheredspinalcord

Sent: Tue, April 5, 2011 6:07:33 PM

Subject: Re: Thickened Filum and Tethered Cord.

 

For those of you with the thickened filum, at what level did your spinal cord

end?

>

> > Tara D.,

> >

> > If I am not mistaken, a Thickened Filum is a form of Tethered Cord - so

> > as I see it, the MRI picked it up, and it wouldn't be exploratory.

> >

> > Hope things are going well now.

> >

> > Brande

> > mymocha@...

> >

> > > In my daughter's case, the MRI sees only a thickened filum, so when/if the

> > > NS decides we have enough info to go ahead with surgery, it will be

> > > exploratory, because he is no certain he will find a tethered cord.

> >

> >

>

>

>

[Guest guest]

Hi, mine was at S2 so a VERY long way down and abnormally stretched in a

bowstring formation. The cord moved up 2.5cm (about an inch) when

detethered

If you want to read about thickened filum and the surgery in more detail

please see my website at www.btinternet.com/~tetheredcordresources

Regards

Nina

Bristol, UK

> My dd was at bottom of L2 and they said it was normal.  The vast

> majority are

> usally @ L1-L2 or higher and few are at L2 but can be normal at L2.  That

> is

> part of why my dd 1st nsg said no. There are studies that you can still

> have a

> tcs with normal mri findings.carol

>

>

>

>

> ________________________________

>

> To: tetheredspinalcord

> Sent: Tue, April 5, 2011 6:07:33 PM

> Subject: Re: Thickened Filum and Tethered Cord.

>

>  

> For those of you with the thickened filum, at what level did your spinal

> cord

> end?

>

>

>

>>

>> > Tara D.,

>> >

>> > If I am not mistaken, a Thickened Filum is a form of Tethered Cord -

>> so

>> > as I see it, the MRI picked it up, and it wouldn't be exploratory.

>> >

>> > Hope things are going well now.

>> >

>> > Brande

>> > mymocha@...

>> >

>> > > In my daughter's case, the MRI sees only a thickened filum, so

>> when/if the

>> > > NS decides we have enough info to go ahead with surgery, it will be

>> > > exploratory, because he is no certain he will find a tethered cord.

>> >

>> >

>>

>>

>>

[Guest guest]

Mine ended at s3-4? I think it was super long!

This message was sent from s' iPhone. Apologies if it does not format

corectly.

> L2 I believe..might have been 3, poor memory sorry

>

> ________________________________

>

> To: tetheredspinalcord

> Sent: Tue, April 5, 2011 8:07:33 PM

> Subject: Re: Thickened Filum and Tethered Cord.

>

>

> For those of you with the thickened filum, at what level did your spinal cord

> end?

>

>

>

> >

> > > Tara D.,

> > >

> > > If I am not mistaken, a Thickened Filum is a form of Tethered Cord - so

> > > as I see it, the MRI picked it up, and it wouldn't be exploratory.

> > >

> > > Hope things are going well now.

> > >

> > > Brande

> > > mymocha@...

> > >

> > > > In my daughter's case, the MRI sees only a thickened filum, so when/if

the

> > > > NS decides we have enough info to go ahead with surgery, it will be

> > > > exploratory, because he is no certain he will find a tethered cord.

> > >

> > >

> >

> >

> >

[Guest guest]

Very low. S2.  They could actually see the bowstring?  how amazing.  For my dd,

there were tiny fat showing in the mri but really didn't show the

wideness(greater than 2mm) until he did the surgery.  Did your nsg cut a piece

out? or just cut it to release it?

________________________________

To: tetheredspinalcord

Sent: Wed, April 6, 2011 7:05:46 AM

Subject: Re: Thickened Filum and Tethered Cord.

Hi, mine was at S2 so a VERY long way down and abnormally stretched in a

bowstring formation. The cord moved up 2.5cm (about an inch) when

detethered

If you want to read about thickened filum and the surgery in more detail

please see my website at www.btinternet.com/~tetheredcordresources

Regards

Nina

Bristol, UK

> My dd was at bottom of L2 and they said it was normal.  The vast

> majority are

> usally @ L1-L2 or higher and few are at L2 but can be normal at L2.  That

> is

> part of why my dd 1st nsg said no. There are studies that you can still

> have a

> tcs with normal mri findings.carol

>

>

>

>

> ________________________________

>

> To: tetheredspinalcord

> Sent: Tue, April 5, 2011 6:07:33 PM

> Subject: Re: Thickened Filum and Tethered Cord.

>

>  

> For those of you with the thickened filum, at what level did your spinal

> cord

> end?

>

>

>

>>

>> > Tara D.,

>> >

>> > If I am not mistaken, a Thickened Filum is a form of Tethered Cord -

>> so

>> > as I see it, the MRI picked it up, and it wouldn't be exploratory.

>> >

>> > Hope things are going well now.

>> >

>> > Brande

>> > mymocha@...

>> >

>> > > In my daughter's case, the MRI sees only a thickened filum, so

>> when/if the

>> > > NS decides we have enough info to go ahead with surgery, it will be

>> > > exploratory, because he is no certain he will find a tethered cord.

>> >

>> >

>>

>>

>>