Re: MTHFR Leucovorin vs.Deplin

[Guest guest]

Unfortunately, our kids usually need supplements for years. So. . . you will

have time to try one and then try another to see which one works better. I know

a lot of people hypothesize, and that's pretty cool, but you really can't know

all the details of a person no matter how hard you try. Thus, trying is the

best way to see the response, as long as your doc is cool with it. There will

always be a lot we don't know. We use Folacal and notice a definite improvement

from it. Oddly, we don't really notice an improvement from methyl products any

more, so we just use them here and there. But, the Folacal is a keeper. I think

some people use several types at the same time. I haven't looked into the

genetic mutations stuff yet, so can't help with that. Did Dr. KS do the genetic

testing? We are looking into genetic testing now.

Love and prayers,

Heidi N

>

> Hello listmembers!

>

> I hope somebody will help me to get answer.

>

>

>

> our son ( 6 y.o ASD non-verbal) was prescribed by his dr.(Neurosen.Center)

Leucovorin.one of the new things they added in dr.K.S.protocol. i didn't start

this treatment yet.

> Our son has both mutations:C677T ++ , A1298 --. so I believe all vit B for him

have to be methylated. my Q is: is Deplin (L-MethylFolate) going to be better

choice vs. Leucovorin (Folinic Acid)in our case?

>

> He is on FolaPro right now. any connection btwn that mutation and type of

folic acid (folinic acid, methylFolate), prescribed for kids?

>

> Thank you in advance.Luba

>

[Guest guest]

LubaI had my son on the Methyl B12 shots for yrs and we switched to the luecovorin in Dec and Dr KS upped the dosage on our visit this month. im seeing nice things with it. But my son has progressively gotten better over the last few yrs a huge thanks to Dr KS.T Hello listmembers! I hope somebody will help me to get answer. our son ( 6 y.o ASD non-verbal) was prescribed by his dr.(Neurosen.Center) Leucovorin.one of the new things they added in dr.K.S.protocol. i didn't start this treatment yet. Our son has both mutations:C677T ++ , A1298 --. so I believe all vit B for him have to be methylated. my Q is: is Deplin (L-MethylFolate) going to be better choice vs. Leucovorin (Folinic Acid)in our case? He is on FolaPro right now. any connection btwn that mutation and type of folic acid (folinic acid, methylFolate), prescribed for kids? Thank you in advance.Luba

[Guest guest]

Luba,

After reading some Yasko and having a bad experience w folic acid, folinic acid

and Mb12 shots, I began the 5 methyl folate for my daughter. She got nasty and

agressive on the other forms but tolerated the 5 methyl form fine.

http://www.deplin.com/folate-for-depression/ shows a chart for folate.

The five methyl form is most available[deplin] while the formyl form[leucovorin]

needs futher conversion to 5 methyl to be used.

After we had used the 5 methyl form for approx 6 weeks and worked up to a good

level, we began the MB12 shots again. This time they were well tolerated. I have

periodically added in folinic since then and it is now well tolerated also .

The ingredients for each of the prescription items [dyes and other additives]

would have caused havoc here on their own

http://brainresearchsupplements.com/deplin-by-panlab-llc/

http://www.chemocare.com/bio/leucovorin.asp so I would be cautious about them. I

know my daughter would not have tolerated either. We used the most pure forms I

could find.

We have not done the testing so... this was just a 'guess' on my part that the

enzyme was not available for some reason.

>

> Hello listmembers!

>

> I hope somebody will help me to get answer.

>

>

>

> our son ( 6 y.o ASD non-verbal) was prescribed by his dr.(Neurosen.Center)

Leucovorin.one of the new things they added in dr.K.S.protocol. i didn't start

this treatment yet.

> Our son has both mutations:C677T ++ , A1298 --. so I believe all vit B for him

have to be methylated. my Q is: is Deplin (L-MethylFolate) going to be better

choice vs. Leucovorin (Folinic Acid)in our case?

>

> He is on FolaPro right now. any connection btwn that mutation and type of

folic acid (folinic acid, methylFolate), prescribed for kids?

>

> Thank you in advance.Luba

>

[Guest guest]

We have used metagenics L-5 metyltetrafolate with good success. We have not

tried the rx form.

I have a theory that MTHFR may be a marker for families with strong parasitic

colonies and that folic acid metabolism may have been altered to improve their

food supply. In my house, we have seen tremendous things treating parasites.

My son became very quickly verbal at 5 years of age. We have also found all

speech supplements to suddenly work after having killed off a good amount of

parasites.

Caryn

>

> Hello listmembers!

>

> I hope somebody will help me to get answer.

>

>

>

> our son ( 6 y.o ASD non-verbal) was prescribed by his dr.(Neurosen.Center)

Leucovorin.one of the new things they added in dr.K.S.protocol. i didn't start

this treatment yet.

> Our son has both mutations:C677T ++ , A1298 --. so I believe all vit B for him

have to be methylated. my Q is: is Deplin (L-MethylFolate) going to be better

choice vs. Leucovorin (Folinic Acid)in our case?

>

> He is on FolaPro right now. any connection btwn that mutation and type of

folic acid (folinic acid, methylFolate), prescribed for kids?

>

> Thank you in advance.Luba

>

[Guest guest]

Thank you everybody for your input.

Heidy,

dr.KS doesn't do genetic testing.That's why i have concern about prescribing Leucovorin w/o looking at the mutations first( at least for kids who already done MTHFR testing). I think Labcorp does now MTHFR. we did Yasko nutrigenomic test long time ago.

Caryn,

We got our first respond from doing 6wks dr.K a/parasitic protocol (Rx)i Jan 2011 after trying a lot of protocols-DAN protocol , a/virals and a/fungals, iv chelation, AC chelation etc (no speech unfortunately). Needless to say i ve been doing on and off a/parasaiics since then, including Rx and Mimosa pudica. I am puzzled right now about his EOS. for some reason it's getting up...after all Rx taken. The highest eos we got 1 week after finishing treatment w/Biltricide, Albenza ,Alinia. Any ideas why this is happening?

Thank you. Luba

[Guest guest]

We have used many rx meds for parasites. Alinia, albenza, ivermectin, pyrantel

pomoate, tindamax, and also mepron. All very good. We have also done well with

high doses of Zhang's artemisiae and then mimosa pudica.

It took me years until I could get my head wrapped around the idea of parasites

until I saw one in my son's stool. I went on to learn that they are everywhere

in the body. Now I believe that parasites are the big causative. Explains all

of our nutrient deficiencies, which in turn explains our metal toxicity. Worms

pea and poop anaerobes and fungus which would explain tons of weird infections

we have.

Additionally, if you go on to study lyme, it seems that lyme may respond better

to meds for worms than for bacteria. Is it really more of a worm? Looks like

one.

Caryn

> >

> > Hello listmembers!

> >

> > I hope somebody will help me to get answer.

> >

> >

> >

> > our son ( 6 y.o ASD non-verbal) was prescribed by his dr.(Neurosen.Center)

Leucovorin.one of the new things they added in dr.K.S.protocol. i didn't start

this treatment yet.

> > Our son has both mutations:C677T ++ , A1298 --. so I believe all vit B for

him have to be methylated. my Q is: is Deplin (L-MethylFolate) going to be

better choice vs. Leucovorin (Folinic Acid)in our case?

> >

> > He is on FolaPro right now. any connection btwn that mutation and type of

folic acid (folinic acid, methylFolate), prescribed for kids?

> >

> > Thank you in advance.Luba

> >

>

[Guest guest]

We did that protocol and found out that 6 weeks was just a short round. We have

been treating parasites near continously ever since.

I believe that we are suffering from lymphatic filariasis. I have very serious

lymphatic swelling, cracked dry heals, my tongue retains the shape of my teeth

which shows malnutrition and I broke out in a very serious LDM100 rash which

resembled a filariasis rash. Others may be dealing with a different infection.

>

> Thank you everybody for your input.

>

> Heidy,

> dr.KS doesn't do   genetic testing.That's why i have concern about prescribing

Leucovorin w/o looking at the mutations first( at least for kids who already

done MTHFR testing). I think Labcorp does now MTHFR. we did Yasko  nutrigenomic

test long time ago.

>

> Caryn,

> We got our first respond from doing  6wks dr.K a/parasitic protocol (Rx)i Jan

2011 after trying a lot of protocols-DAN protocol , a/virals and a/fungals, iv

chelation, AC chelation etc (no speech unfortunately). Needless to say i ve been

doing on and off a/parasaiics since then, including  Rx and Mimosa pudica. I am

puzzled right now about his EOS. for some reason it's getting up...after all Rx

taken. The highest eos we got 1 week after finishing treatment w/Biltricide,

Albenza ,Alinia. Any ideas why this  is happening?

>

> Thank you. Luba

>

[Guest guest]

I am w/ you Caryn . Th e 6wks protocol was actually the beginning of our jorney getting after parasites. and btw I was the only one who was covered by rash from head to toe after LDM 100, not my son. .

Thank you for your input.

Luba

[Guest guest]

Looks like there is a new formula (no script needed) that will be available mid-June... with both folinic & methyl folate..

http://www.neurobiologix.com/product-p/170.htm

Regards,

Sharon

Re: MTHFR Leucovorin vs.Deplin

Posted by: "Tamet Gould" tamet@... tamet_gould

Sat Apr 28, 2012 3:02 am (PDT)

LubaI had my son on the Methyl B12 shots for yrs and we switched to the luecovorin in Dec and Dr KS upped the dosage on our visit this month. im seeing nice things with it. But my son has progressively gotten better over the last few yrs a huge thanks to Dr KS.T> Hello listmembers!>> I hope somebody will help me to get answer.>> our son ( 6 y.o ASD non-verbal) was prescribed by his dr. > (Neurosen.Center) Leucovorin.one of the new things they added in > dr.K.S.protocol. i didn't start this treatment yet.> Our son has both mutations:C677T ++ , A1298 --. so I believe all vit > B for him have to be methylated. my Q is: is Deplin (L-MethylFolate) > going to be better choice vs. Leucovorin (Folinic Acid)in our case?>> He is on FolaPro right now. any connection btwn that mutation and > type of folic acid (folinic acid, methylFolate), prescribed for kids?>> Thank you in advance.Luba>>