Re: Losing weight (Randy)

[Guest guest]

Hello Randee

 

I am so confused as to why you can not get anything for pain besides

neurontin,  I was never even given that as an option.  That may help with

neuropathy, but not for the back pain.  I see an internal med doctor and I am

lucky because I am a nurse so I have more say in what works for me.

 

I do see this alot with people trying to explain to the doctors how they feel,

due to my position in my job, I have been able to get more people to listen to

me.

 

Lyrica from what I have seen at work is a very hard med to take, not many people

who can handle the side effects.  Neurontin does cause weight gain.  I would

hope that you can get in with an internal med doctor not family practice and

find one who will listen to you and try to help you get relief.

 

I wish only the best for your daughter, as I do with all of us who are suffering

with this terrible problem,  I would have her suggest a small dose of a time

release pain med and try to get off the neurontin due to the side effects it is

causing her.  I know doctors are worried about younger people becoming addicted

to pain meds but in our condition what choice do we have.  Sometimes you can

also find a pain doctor and that is just what he does but prescribe med to help

people, they will make you sign a pain med contract to insure that the patient

is using her meds as prescribed. Don't give up hope and don't settle for what

you are given if it is not helping or causing more problems remember the doctors

are working for us and are there to help. Please let me know how this goes for

you.

 

________________________________

To: tetheredspinalcord

Sent: Sunday, October 2, 2011 8:22 AM

Subject: Losing weight (Randy)

 

Hi Randy,

That some i had to,

She need to change type off food smaller proportion.

What helped for me is do it realy slow.

3 days a week meat (so no fast-food anymore.)

a lot fruit and vegetables. Never eat to much in the begin.

Just take cup of tea in stead off limonade (like coke and 7up) ore other

bubble drink.

cordial is realy a good option, and a good drink for us is something like

strawberry.

And if possible try to exersise, by something like swimming ore if you able

at least someting where you move you body.

That made Lyrica a much better medicin then Neurotin for me.

After 5 year i can't eat much more.

Forget pills and other ways becouse they help on short term. but then you

felt down.

This take many years but help you whole life.

Don't go to that weighing scale every week just once a month.

Good luck for you daughter Randy.

It helps me a lot. In 5 years i lost 30 pounds.

Kindly regards.

Jan Willem

-----Oorspronkelijk bericht-----

From: Randeejae@...

Sent: Sunday, October 02, 2011 3:23 PM

To: tetheredspinalcord

Subject: Re: Re: how many times

How lucky you are, Michele, that someone is willing to prescribe a narcotic

med for you. My daughter suffers with weight gain from neurontin (now on

Lyrica, but don't see how that would be any different) and at age 21 this

is very hard for her as it is, I would guess, about 40 pounds. She still

has

pain as well though she says that without the meds, she doesn't think she

would get out of bed in the morning. Randee

[Guest guest]

Wow Randee !!!!

 

I am in shock about the pain med problem.  Ultram is a pain med that is non

narcotic and is used in the prison system due to drug addiction problems

there.  We also give it to elderly patients that have not ever been on pain

meds before and can not tolerate much. 

 

I know it takes time to find the right med that will give relief, it is hard

when we have so many different symptoms to try to help.  I hope I you will find

the best med for your daughter. I am so upset to learn that in different parts

of this country patients are not getting the pain relief that they deserve.

 

I wish you the best and I look forward to hearing from you.

Michele

________________________________

To: tetheredspinalcord

Sent: Sunday, October 2, 2011 1:45 PM

Subject: Re: Losing weight (Randy)

 

How interesting medicine is! I have never known an internist that gives

narcotics long term I don't think my daughter is needing that quite yet

but it is definitely difficult to get. I worked at a multi-disciplinary

pain center in Saint Louis in which the three part time psychiatrists

prescribed narcotics. It closed :/ The multi-disciplinary pain clinic I worked

at in Kansas City did not prescribe narcotics. For the most part,other

places that call themselves Pain Clinics are often just steroid etc.

injections...as are the ones here in Columbia, MO (home of MU). It certainly

could

be that being a nurse gives the md's more confidence that you will not

abuse your medicines. Thanks for your prayers, Michele..and back at ya! Randee

In a message dated 10/2/2011 1:18:22 P.M. Central Daylight Time,

micheled723@... writes:

Hello Randee

I know how you feel my daughter is type 1 diabetic and I wish that I

could be the one with it instead of her. It is always so hard to watch your

child suffer. I hope that you find a doctor who will give her a med to help

with the pain. I am a nurse and I work in an office with 6 doctors all

internal med and I have never seen any of them not give pain med to help a

patient.

I do understand that age plays a role in it, afraid of addiction, but this

pain will follow us for the rest of our lives and it is not fair no matter

what the age not to give someone relief to have some quality of life.

I live in Pueblo Colorado and I can't believe how many people are having

trouble getting pain control.

Maybe because I am a nurse and I work (I have not worked since my last

surgery 1 year ago) in the field so it does give me an advantage.

I wish you the best, and I pray for your daughter. Living with a tethered

cord is not easy and knowing the outcome can be so scary. I have enjoyed

communicating with you and look forward to helping each other through this

time.

What area are you from? I ask because it seems like so many suffer with

getting pain control.

Please stay in touch.

________________________________

From: " _Randeejae@..._ (mailto:Randeejae@...) "

<_Randeejae@..._ (mailto:Randeejae@...) >

To: _tetheredspinalcord _

(mailto:tetheredspinalcord )

Sent: Sunday, October 2, 2011 10:04 AM

Subject: Re: Losing weight (Randy)

Thanks, Michele,

I am a psychologist who has worked in a few different pain clinics. It is

indeed rare to find someone who will prescribe narcotics. We will

continue the search for the best forms of pain relief. It is my daughter,

21 yo,

not me with the tethered cord..I sure have prayed hard to have it put into

me!! :/

Randee

In a message dated 10/2/2011 9:49:02 A.M. Central Daylight Time,

_micheled723@..._ (mailto:micheled723@...) writes:

Hello Randee

I am so confused as to why you can not get anything for pain besides

neurontin, I was never even given that as an option. That may help with

neuropathy, but not for the back pain. I see an internal med doctor and I

am

lucky because I am a nurse so I have more say in what works for me.

I do see this alot with people trying to explain to the doctors how they

feel, due to my position in my job, I have been able to get more people to

listen to me.

Lyrica from what I have seen at work is a very hard med to take, not many

people who can handle the side effects. Neurontin does cause weight gain.

I would hope that you can get in with an internal med doctor not family

practice and find one who will listen to you and try to help you get

relief.

I wish only the best for your daughter, as I do with all of us who are

suffering with this terrible problem, I would have her suggest a small

dose

of a time release pain med and try to get off the neurontin due to the

side

effects it is causing her. I know doctors are worried about younger people

becoming addicted to pain meds but in our condition what choice do we

have. Sometimes you can also find a pain doctor and that is just what he

does

but prescribe med to help people, they will make you sign a pain med

contract to insure that the patient is using her meds as prescribed. Don't

give

up hope and don't settle for what you are given if it is not helping or

causing more problems remember the doctors are working for us and are

there to

help. Please let me know how this goes for you.

________________________________

From: Jan Willem Weijers <__weijers.jw@..._

(mailto:_weijers.jw@...) _

(mailto:_weijers.jw@..._ (mailto:weijers.jw@...) ) >

To: __tetheredspinalcord _

(mailto:_tetheredspinalcord ) _

(mailto:_tetheredspinalcord _

(mailto:tetheredspinalcord ) )

Sent: Sunday, October 2, 2011 8:22 AM

Subject: Losing weight (Randy)

Hi Randy,

That some i had to,

She need to change type off food smaller proportion.

What helped for me is do it realy slow.

3 days a week meat (so no fast-food anymore.)

a lot fruit and vegetables. Never eat to much in the begin.

Just take cup of tea in stead off limonade (like coke and 7up) ore other

bubble drink.

cordial is realy a good option, and a good drink for us is something like

strawberry.

And if possible try to exersise, by something like swimming ore if you

able

at least someting where you move you body.

That made Lyrica a much better medicin then Neurotin for me.

After 5 year i can't eat much more.

Forget pills and other ways becouse they help on short term. but then you

felt down.

This take many years but help you whole life.

Don't go to that weighing scale every week just once a month.

Good luck for you daughter Randy.

It helps me a lot. In 5 years i lost 30 pounds.

Kindly regards.

Jan Willem

-----Oorspronkelijk bericht-----

From: __Randeejae@..._ (mailto:_Randeejae@...) _

(mailto:_Randeejae@..._ (mailto:Randeejae@...) )

Sent: Sunday, October 02, 2011 3:23 PM

To: __tetheredspinalcord _

(mailto:_tetheredspinalcord ) _

(mailto:_tetheredspinalcord _

(mailto:tetheredspinalcord ) )

Subject: Re: Re: how many times

How lucky you are, Michele, that someone is willing to prescribe a narcotic

med for you. My daughter suffers with weight gain from neurontin (now on

Lyrica, but don't see how that would be any different) and at age 21 this

is very hard for her as it is, I would guess, about 40 pounds. She still

has

pain as well though she says that without the meds, she doesn't think she

would get out of bed in the morning. Randee